Positive The Tapering Support Thread v 2.0

[Painful One]

Okay.
I talked to my Doctor and she is trying to get me in to a Pain Specialist Emergency Situation.
I also have my insurance Company working on getting medical records and referral over.
She said, it just doesn’t work that fast but she is working on it now.
Thank God!

The pain from this stuff is unbearable.
It really is.
I’m back to no eating, no sleeping situation.
I just pass out from exhaustion here and there.

 

[kiely]

Prayers because it is just so awful.

Keep getting the care that you need because we are important you know also.

And in survival mode to take care of ourselves along with others.

To you @Painful One with lot's of love.

It is just a matter of proper medication that should and can be acquired. Amen.

 

[Squeaky]

Hang in there P.O. Hopefully a Pain Management Dr will be more understanding of your situation. Too many regular doctors are so worried about getting caught over-prescribing, so they barely gce out any pain meds at all. That stuff is available for a good reason, right!?!

 

[Painful One]

Hang in there P.O. Hopefully a Pain Management Dr will be more understanding of your situation. Too many regular doctors are so worried about getting caught over-prescribing, so they barely gce out any pain meds at all. That stuff is available for a good reason, right!?!

RIGHT,!
Thank you my dear friend.
So sorry to crash in on your thread like this.
But, you know how it goes.

I haven’t heard anything from my doctor.
I am going to try calling again today and see what they say.

I’m worried about this, but I should have sought another doctor sooner.
The suboxone feels like something they HAVE to drug test for to make sure you are still taking it.
Which they do.
It is that horrible and I just kept thinking, maybe it will get better.
My family was so happy for me to “get off of MSContin” but they are now seeing this is worse.
I put on a brave face to help my mom through her death by all 4 stages of Liver Disease.
I haven’t had time or energy to take care of myself properly and as a result, I am doing super bad.

The chronic pain always flares up this time of year.
The cold and the pollution that gets packed into this valley.

 

[Painful One]

I got records over to one place but she said “We will call you IF we decide we want to have you as a patient.”
I don’t think I should have any problems.
But that is really lame.

The lady at my doctors office said she was sending a request to another place too….just in case.

 

[Squeaky]

So sorry to crash in on your thread like this

I guess I actually hijacked this thread from the OP a few years ago. Her name was Pokemama. She got off her prescription pain meds and went on to live a life free from all of this stress.

The only advice I can offer is to stay as busy with meaningless stuff as possible, like knitting or binging Netflix. Time is the enemy. I gave away soooo much of my time to stressing over things I had no control over. The worst was stressing for days about what I would say to the Dr to get the pills I needed(wanted). The Dr appointment was scheduled. The prescription was going to be written (or not). Killing myself with endless worrying about was a f’ing waste of my sanity.

Hang in there P.O.

 

[Painful One]

Yeah, you are right @Squeaky
I actually don’t want more medicine.
This doctor wanted to up the gabapentin and did up the clonazepam.
I have gotten back down to a lower level of clonazepam again and that is where I need it to stay.
I don’t want to be getting prescribed “hell” level of drugs.
That makes it worse for me.

The suboxone is too strong.
I wasn’t taking anything near this strong.
The constipation is like 4 X worse.
It has some strange anti depressant, gross drug component to it.
I am Anhedonic on it.
It is causing me anxiety.

I need a small, long acting MS Contin, the low level clonazepam, and low level gabapentin.
I need to work on lower the levels of both gabapentin and Suboxone.
But, I think I need something to replace this much Suboxone now.
This stuff is yucky.
I want off it.

I need a Doctor to just treat me for the chronic low back pain.
Let’s face it, it has to have some medication.
Especially with the migraine headache problem.
That is now out of control again.
I hadn’t had one of these for years with the MS Contin treatment.

I don’t think that is unreasonable.
Ugh! Trying to have a doctor “accept” me now sucks.
I haven’t don’t anything wrong.

 

[Painful One]

You, me, and ShroomySatori hijacked this thread lol.

 

[kiely]

It's tormenting to go without pain medication.

It seems like they try to distract instead of comfort.

With no appropriate support.

Or redirect wasted time and efforts on to other medical services. A lot.

Sorry. But it's what they do.

Marijuana is more dependable than them now.

And they have no sense of balance. It's like the all or nothing law.

They still don't treat appropriately and I have yet been able to understand.

I'm tired of trying and exhausted of these medication options.

Are we too stupid to know what is and is not good for us. No !!

I had too many bad reactions to bunches of medication too many times now.

Sad but true.

The comfort meds do not seem to be working. Because it's a LIe.

~~~ good day.

Please Take Care.

Prayers to @Painful One

 

[kiely]

I don't know. I will take some xanax later when I feel better and go dig for it.

Feel Better too @Painful One

I hope that we can.

 

[idiotkid243]

down to around 5 gs of kratom after an emergency taper - the withdrawals have dutifully arrived via mail - lost my mom last year and ratcheted up my usage to around 13 gs a day immediately - some tussles with pharmaceuticals during this time as well - everything is flooding back, or flooding in for the first time - i am a soft man, i know this

 

[Squeaky]

down to around 5 gs of kratom after an emergency taper - the withdrawals have dutifully arrived via mail - lost my mom last year and ratcheted up my usage to around 13 gs a day immediately - some tussles with pharmaceuticals during this time as well - everything is flooding back, or flooding in for the first time - i am a soft man, i know this

Kratom works on a lot of life’s problems. Pain, anxiety, insomnia, diarrhea.

Don’t beat yourself up. Losing your mom must have been awful. It makes you human, not soft.

 

[Stephy]

Good job getting of benzos and opiods; seriously I asked my doctor and he said it could take up to a year and a half if I wanted off all that I am prescribed. I don't get hugh amounts, so getting off, of large amounts, great job.

Anti depressants I have heard can take weeks to start working and need a taper to stop using also, is this true?

Also anti psychotics, while they can really help people with various mental health disorders can cause people without these disorders to be zombies( figuratively speaking)?

there's an antidepressant called avulity that is fda approved to start working in a week....a suggestion only because you said they take so long to work. can't comment on most of your post though

 

[Painful One]

Well, I can’t find another doctor.
They want to send me back to the neurologist and I have already been there.
Been to all the doctors who said “there is really nothing we can do, it is chronic pain and you need to go to pain management “.

They don’t have that in my state anymore.
Pain management is now “Suboxone” .
It helped for a few.

I am just going to slowly taper off those.
See if it helps at all.
My brother thinks it will help so I am going to try it.
He bought me some Medical Marijuana to help.
He understands it is going to take about a year and wants me to do it slowly so I don’t get sicker.

I just feel so much worse.
I’m sure being grief stricken at losing my mom and the horror I went through taking care of her is not helping.
I guess it is just going to take some time.

Problem is that I am just getting sicker and it has nothing to do with medication.
My condition is getting worse.
I am really having a hard time eating, keeping any food down, sleeping, migraines……taking care of myself and my dog.

I would appreciate any advice and especially just some love, support, and friendship.

 

[Nas47]

u support u...theres no reason to not tapper suboxon...ain't difficult....a month wirk-two may be,,,but is worth.it...i wish u sucess

 

[Painful One]

u support u...theres no reason to not tapper suboxon...ain't difficult....a month wirk-two may be,,,but is worth.it...i wish u sucess

Thank you NAS.
Your words are very comforting to me.

I’m going to kick this suboxone to the curb.
I am starting to take one suboxone pill less every other day now.
I’m going to do that through Christmas and then I will make another cut and hold there for a few weeks and then do another and another.
I will do it as fast as is possible.

Then I will either feel better or will at least have a clean canvas for doctors to see the issues,
I am holding out hope that I have healed some and things are not as bad as they were.

 

[Jnowhere]

Well, I can’t find another doctor.
They want to send me back to the neurologist and I have already been there.
Been to all the doctors who said “there is really nothing we can do, it is chronic pain and you need to go to pain management “.

They don’t have that in my state anymore.
Pain management is now “Suboxone” .
It helped for a few.

I am just going to slowly taper off those.
See if it helps at all.
My brother thinks it will help so I am going to try it.
He bought me some Medical Marijuana to help.
He understands it is going to take about a year and wants me to do it slowly so I don’t get sicker.

I just feel so much worse.
I’m sure being grief stricken at losing my mom and the horror I went through taking care of her is not helping.
I guess it is just going to take some time.

Problem is that I am just getting sicker and it has nothing to do with medication.
My condition is getting worse.
I am really having a hard time eating, keeping any food down, sleeping, migraines……taking care of myself and my dog.

I would appreciate any advice and especially just some love, support, and friendship.

I tried sending you a PM about the real life and death nightmares I have been through but I couldn't send a PM?

 

[Nas47]

if uu are on max.daily dose-around 24mg tapper would get results...ok...four-five moths and u can be on very small.subs got last forever...easier to tapper than methadone even....dount counts how many time ...just tapper and quitt or if u don't change the medicie....subs are not very every one....some people got bad reactions from them....just like any other srong med

 

[Painful One]

I tried sending you a PM about the real life and death nightmares I have been through but I couldn't send a PM?

I am able to receive PM’s from anyone, so I know it is working at my end.
Maybe go into your account and make sure PM’s are turned on for you to send and receive.
I would love to get your message.
Edit: I figured out that I have to be following someone to get pm. So I am following you now. PM should go through now)
Thank you.

Believe me, I have been through my own life and death nightmare and I am just done with it.
I want to be well as is possible.
I REALLY want it!
I am tapering as fast as I feel is safe for my situation.

 

[Painful One]

if uu are on max.daily dose-around 24mg tapper would get results...ok...four-five moths and u can be on very small.subs got last forever...easier to tapper than methadone even....dount counts how many time ...just tapper and quitt or if u don't change the medicie....subs are not very every one....some people got bad reactions from them....just like any other srong med

It is good to hear that you think I can taper these a little faster.
I will try.
I want off these ASAP.
They do not agree with me.
I am always nauseated, they don’t help much for actual pain, and they feel like some gross antidepressant , like mental on these.
No wonder they drug test me to make sure I am still taking them.
I feel like I have been forced onto some gross psych meds that are just making me sick.

If anyone has experience coming off suboxone as fast as possible, I would love to hear it.
I don’t want to do it too fast and cause myself flare up of injuries and God only knows what.
I need to be gentle on my body.

But that is good news!
4-5 months and I can be on very low dose of Suboxone and then dump it from there.
I am determined.