Hi Friends,
I Hope everyone is hanging in there. I think about you guys all the time and hope you are all making it through one day at a time.
Just wanted to give you all an update of my situation.
I got all the test results back and my spine is twisted badly to the left.
I have multiple bulging and herniated discs.
Degenerative disc disease.
My tailbone (the coxxyxx) has been sheared off and was lodged over on my nerve, which was some of the cause of the severe left leg pain.
Also, My spine hurts from not having a tailbone. It is smashed in.
I have to go get an X-Ray of the lower part of my spine and hips so we can see what is happening there.
The MRI and X-Ray this “specialist” had done didn’t go down far enough to see that.
Even though I kept telling her to make sure to get the low, low back and coxxyxx area!
She didn’t!
There were multiple other problems with my spine that I didn’t understand but my brother did.
He is a Research Doctor. He understood everything and was very sad for me.
The worst results were from the MRI of my brain though.
It shows I have something they are calling “White Matter Brain Disease”.
I had 2 neurologist’s think it was MS. Two that thought it is Parkinson’s disease (which my dad had a form of (Multiple System Atrophy aka Double Parkinson’s disease and died from).
But just The White Matter Brain disease on its own is a very bad thing that is somewhat comparable to Dementia in ways.


This new doctor was not really any help. She told me what she could do is steroid injections, which I have already tried and had horrific results with. I got “Roid Rage” from those things! She was really no help except for getting me the test results I need to get disability benefits.
I told my brother that I was just done trying this and that and suffering all these side effects….i have tried everything already.
He understood.
He was so great. We were sitting in the cafeteria eating some lunch after we had just seen X-Rays of my spine being all twisted etc..
I was bummed and he said “What are you doing on August 20 th? “ I said “My schedule is pretty much open, why?” And he pulled something up on his phone and I went over to look and he had bought us tickets for the Nine Inch Nails concert!
It was so nice and sweet. It cheered me up a lot!
He has also explained the situation to my siblings and they are no longer treating me like I am a drug addict and are telling me to do whatever I need to do. They are supportive of helping me to get a Medical Marijuana card even.
So, I went back to my other doctor and she upped my dosage of suboxone and it really has helped ALOT!
The suboxone is holding down the pain as well as the morphine was now. Plus, I can function better on the suboxone.
I am not nearly as lethargic, I am dressing, putting on makeup, caring about the way I look, exercising, shopping, lunching, and going to movies with my Aunt and friend once a week. (As I can) it is limited but I am much more active comparably.
This doctor was so mad to hear about me getting all this bad treatment from my siblings and that I had had a seizure from dropping one pill of suboxone due to their demands.
She told me that if any of them have a problem with my medication they can come talk to her and she will explain it to them!
She said “I have done my homework on this! The suboxone is the best thing for you. It is a great pain reliever.”
She is right. It is. Now that she adjusted the dosage I am doing much better.
She is using it off label for pain management and it is working!
I have an appointment with her tomorrow and am going to show her the results of the MRI and X-Ray of the back.
She is already aware of the brain situation. She is the one who had me get the MRI of the brain, so she knows.
Then, I need to talk to her about getting me on disability benefits and a Medical Marijuana Card.
She is really a nice lady and a good doctor. I can tell she cares about me.
So, I expect that will go smoothly.
I looked up the diagnosis’s given on my reports and looked up on the government disability site to see if they are qualifying conditions and all of them were. Just on their own. I have a cluster fuck of them, so I can’t see how they can deny me.
I am older now and shouldn’t have any problems with that. I hope! I need those benefits.
I cannot work. There is no way. I have t been able to work for years now.
I pray I can get those benefits. I cannot see any other way I can make it without them.
So…that is the situation.
Not good but at least my siblings are not treating me like if I just quit the medicine, I would be normal.
They know that is not true. I have tried that before. Without the medication, I am a moaning mess who is out of my mind that no one can live with. Now, they have seen the situation for themselves and are being very supportive and kind. Thank God for that!
It was also a big adjustment coming off morphine this year. I’m proud of myself for getting through that.
Even with the suboxone, it was bad. I have been off that for a little over a year now,
I am not suffering nearly as much with the increased dosage of suboxone.
Plus I shouldn’t have a problem getting my Medical Marijuana card and disability benefits.
I hope everyone is doing good. Hope you are making it alright
@papercuts
You have been in my thoughts and prayers.
Much Love to you all.
Take care everyone.


P.O