Positive The Tapering Support Thread v 2.0

[Painful One]

Some good news guys.

Yeah, the doctor completely saw the situation and is sending me back to Pain Management Immediately.
She said she would give me some morphine if she could but she was not authorized to prescribe it.

So, now I have to wait until Monday for a Referral.

You would think a doctor could help a person out if necessary.
I mean, this is actual torture of other human beings.
There is going to be a heavy price for this.

 

[Painful One]

Your prayers worked my darling!
Thank you!!
XOXO

 

[kiely]

Thank you @Painful One for your presence. What a gift. And you are and always will be in my thoughts and Prayers too.
I'm Praying for you ' my girly girl " and such a Beautiful Lady. Woot Woot.
And thank you for your strength.

 

[kiely]

Your prayers worked my darling!
Thank you!!
XOXO

xxoo That's nice. I am so happy. I hope that you are feeling better too.

I'm tired and I got afu with some caps. Sry.

I am glad that you are staying strong. I was scared for you. Your voice still reaches out.

I'm kind of confused right now. I can't remember if I took my meds twice again. Thurs. and

Fri. Dang. I can't even find my little pill box to even try to keep track.

bye.

for now.

--- I will keep trying to do this. I guess really.

But it's the holidays anyway. It's not going to be easy. Too many distractions I guess. lols.

peacelove and thankyou Again.

 

[Painful One]

My little brother has finally seen the light in me needing medication.
He feels bad for the pain I am suffering.
He said “You would think a Doctor could do something!”
He is going to take me to get some medical marijuana today.
We have to drive to Nevada to get it, but there is a little corner that touches my state and the drive isn’t too long.

We are going to play a few slot machines while there.
I have a feeling we are going to win big.
I need the money and good karma is coming my brothers way for helping me.
For listening to me!

Monday still seems so far away and I probably won’t even get help on Monday.
I am going to have to go through that whole “referral” bullshit!
I found the referral from my old doctor of 15 years that says that “Painful One follows instructions carefully and is going to require opiate therapy for the rest of her life in order to be functional in any way!”

Hopefully I can get some help soon.
I can’t sleep. I can’t eat.
I’m starting to look like Michael J. Fox at times. All shaky.
Went to the grocery store yesterday because there was no food left in the house and they followed me around!

 

[Painful One]

I had to tell my relatives that I can’t make it to Thanksgiving.
I’m so embarrassed to have people see me like this.

I had a seizure right in front of them on the 4 th of July and they just thought I was being funny.

I don’t want to ruin anyone’s holiday and I am just not well enough to cook.
I can’t really eat either..,,so….just going to watch T.V. And stay in my recliner.

 

[Painful One]

I’m still taking the stupid Suboxone because I don’t want to have opiate withdrawal on top of this.
Otherwise, I would just stop it now.

Are they going to be able to transfer me over from Suboxone back to the MS Contin without a problem?
Is the MS Contin going to hold me now that they have blown out all my opiate receptors?

 

[Nas47]

it depends how much subs u take....if u are not a big dose-nearly 8 mg...mst will help...if it's on more-than a lot of mst would help...hey calm down...if u have some good medics around u....don't bother

 

[Painful One]

it depends how much subs u take....if u are not a big dose-nearly 8 mg...mst will help...if it's on more-than a lot of mst would help...hey calm down...if u have some good medics around u....don't bother

It is a large dose.
8 mg 3 times a day!
I assume they must have something that can get those bitches off my receptors!
I sure hope so!
These doctors going around basically Chemically locking people up!!
Even though said patients keep telling them it is making things worse and not helping for pain AT ALL!
Doesn’t touch this kind of pain.

 

[Nas47]

books say-dose around 4mg-60percent occupancy of mu receptor as i remember.24mg-ur receptors are saturated fully...must tapper and switch to another opioid...not sure that even fent can affect u at that dose....heads up...tappering bupe is easy...it will take some time,but u would not feel any discomfort,if it's doin' properly.....naltrexone can replace bupe,but then u go directly in fullblown precipitate withdrawl...there is also a some kind of sleep detox...cost expensive-u de facto is in sleep and don't feels withdrawls.....so they say...have not personal experience with this method

 

[Squeaky]

As regards Peripheral Neuropathy, have any of you tried Gabapentin or Pregabalin?

I have tried both. Gabapentin did nothing. I’m currently taking Lyrica. It cut down my worst pains by about 50%. It’s basically like being drunk without the stumbling/slurring/waking up next to a stranger parts of alcohol. Just the numbness.

 

[papercuts]

It is a large dose.
8 mg 3 times a day!
I assume they must have something that can get those bitches off my receptors!
I sure hope so!
These doctors going around basically Chemically locking people up!!
Even though said patients keep telling them it is making things worse and not helping for pain AT ALL!
Doesn’t touch this kind of pain.

I've everything crossed for you Painful one, I hope you get your prescription back from this doctor. Don't worry about going from bupe to ms contin, it is bupe that attacks receptors containing morphine, not the other way around, morphine does not affect receptors soaked in bupe.
If you take a full agonist like morphine while saturated in bupe then it will attach itself to any free receptors but it leaves the bupe filled receptors alone, they expire whatever way they would do naturally, then when you make new receptors you are only taking morphine so those receptors are available for it. MS Contin is slow release so it's even better at slowly filling new receptors as they come online. A lot of morphine is wasted while you wait for your body to adjust and make new receptors, but it shouldn't hurt at all, in fact it feels like relief swapping out bupe for the incoming morphine.
When I'm switching from bupe to full agonists it's easy. What happens is that each dose of morphine feels progressively stronger than the one before as you get further from the last dose of bupe.
No precipitated withdrawal, just gradually feeling better as the bupe is cleared out gradually and you start to have receptors filled with morphine instead.

Don't for a minute think I'm saying preciptated withdrawal doesn't exist or isn't awful, it occurs when you switch from morphine to bupe and probably gave you a very bad first impression of bupe if you were doing that with morphine in your system. Bupe will happily knock morphine off those receptors and put you in hell, bupe will even knock naloxone off those receptors and replace it. I think bupe has the highest affinity of all opiates, certainly highest among the common ones.

 

[papercuts]

I have tried both. Gabapentin did nothing. I’m currently taking Lyrica. It cut down my worst pains by about 50%. It’s basically like being drunk without the stumbling/slurring/waking up next to a stranger parts of alcohol. Just the numbness.

I want to get pregabalin off my doctor, but haven't figured out how to raise the subject. I thought, "I was in opiate wthdrawal the other week so my mate gave me some pregabs, they were great, can I get some on prescription please?", might be viewed with suspicion.
I'm not asking for tips on aquisition, that's against the rules, I'm just agreeing you need a whole lot of gabapentin to have any effect, but with pregabalin it only needs two or three and I'm in no pain at all.

 

[endlessnameless]

Yes I am on gabapentin.
Have been for many years now.

It is a good suggestion though and did (does?) help some.

I thought it might as when I was prescribed it for opioid withdrawal (for which its an absolute godsend, by the way - mitigating the acute and approximately 75% of the physical symptoms without having to switch one opioid for another) I saw that its typically prescribed for Neuropathy for which I've heard its also extremely effective for. Seems to be one of the few medications out there that actually does what its supposed to do.

 

[endlessnameless]

I have tried both. Gabapentin did nothing. I’m currently taking Lyrica. It cut down my worst pains by about 50%. It’s basically like being drunk without the stumbling/slurring/waking up next to a stranger parts of alcohol. Just the numbness.

Yes thats the only negative side-effect I encountered with Lyrica - I recall I'd be stumbling around and would have to sit/lie down initially but I found that side effect would go away after ~72hrs or there abouts. Of course, I was using it for Opioid withdrawal so I wouldn't be doing much for the first week of that process anyway and would be largely horizontal. I also found that it would help me sleep for those first few days when nothing else would - and in opioid withdrawal all you really want to do is sleep through it which also helps pass the time. I found with Lyrica it would allow me to get a full nights sleep, then I could get up to eat, use the toilet, shower and then return to bed and sleep for another 4-6hrs (sometimes more to be honest). Then I could get up, eat and use the toilet if needed before taking my dose in the evenings in order to repeat the process the first 3-5 days so as to minimise the abject torturous suffering involved in the opioid withdrawal process.

I also found that while they cancelled out any effect from my Alprazolam or Diazpepam (or any benzos for that matter), I wouldn't experience much anxiety within that first 5-7 days @300mgs a day.

I'm currently weaning off the Tylex I've been prescribed since I was attacked in an attempted mugging back in the first week of October of this year so I'm going to get some Lyrica next Monday for when I hit 0mgs on the Tylex so that I won't feel much of the withdrawals. 1 x 300mgs for the first 10 days and I'll be fine after that as relative to the dose of Tylex I was on the length of the opioid withdrawal shouldn't be any longer than 10-14 days at an absolute max. I have a prescription with another month's refill (56 x 30mgs) for Tylex here (and could easily get another month on top of that without any questions asked) but I've already been taking them since I had the operation in mid-October and don't want to go into 2025 dependent on anything.

Anyway, sorry for rambling on. Glad to hear it's working for you - a 50% reduction in symptoms is certainly better than nothing. What dose are you on by the way?

 

[papercuts]

As regards Peripheral Neuropathy, have any of you tried Gabapentin or Pregabalin?

Yes and no, I've been on low doses of gabapentin for years, the doctor offered it to me as "all we can give you for pain" after tramadol fell out of favour as the, "all we can give you" drug.

They gave me gabapentin at 100mg a day which did nothing for my long established burning and tingling pains, clumsiness and numbness which are diagnosed as nerve pain, I don't know how that compares to peripheral neuropathy. After a year I went to 200mg, then 300mg, then 600mg and finally after four years they reuctantly agreed to give me the entire starting dose of 900mg. Why even bother with the expense of prescribing something if the dose is far too low to work? For four years my gabapentin dose was below the starting dose and they couldn't tell me why it wasn't working!!!!
That's why I've a lot left over, I gave up taking it, I also gave up on my useless doctor, the only thing I use gabapentin for any more is coming down off pregabalin.

With pregabalin, 600mg is plenty for all over pain relief at the start, but tolerance builds up quickly. As I start to run out, I taper down to 600mg, then 300mg for two days, then jump onto gabapentin, ten of the 300s first day, six the second day, three on the third day. Tapering makes it easy, if you don't taper off pregabalin it's a worse headfuck than opiate wds, more like benzo wds or taking progesterone, irritable doesn't cover it, I felt inclined towards killing myself one time jumping off 900mg pregabalin, but it doesn't last more than a few days ever.

 

[Squeaky]

I want to get pregabalin off my doctor, but haven't figured out how to raise the subject. I thought, "I was in opiate wthdrawal the other week so my mate gave me some pregabs, they were great, can I get some on prescription please?", might be viewed with suspicion.
I'm not asking for tips on aquisition, that's against the rules, I'm just agreeing you need a whole lot of gabapentin to have any effect, but with pregabalin it only needs two or three and I'm in no pain at all.

It’s commonly prescribed to diabetics for the pins and needles pain in their fingers and toes. I got it for a pinched nerve in my back that caused nerve pain in my foot.

You could tell the Dr that you’ve been having pins and needles pain in your toes for a couple of months and ask if it’s normal. Then just let him come to the conclusion on his own that medication is the answer. But be prepared to answer some very specific questions: Where it hurts, when it most commonly bothers you, pain level, how often, etc.

 

[Painful One]

I’m willing to answer their questions,
I need to try and just do that and not give too much information at once.

The doctor I have now, did offered to raise the dose of gabapentin, but I find the same thing, it stops working and then you just work yourself into a hell corner of medications.
I found it was about keeping the lowest dose of each medication in this combination that my doctor before this one , who was a pain management specialist had me on 2 30 mg MS Contin, 1 mg clonazepam, and Ambian (which I changed out for gabapentin 600 mg 3 x a day.
It only helps as much as it helps.
I found that if I started to fuck with the dosages too much by increasing them, it didn’t work as well.

My Insurance Company has a Chronic pain doctor who will take me.
We just have to get current doctor to send over Medical Records.
Then I can take letter of Referral from retired doctor of 15 years who treated me with that combo and it made me functional, liveable.
That is good news.

I need to be able to eat some and sleep.
Be able to function.

 

[Painful One]

Yes and no, I've been on low doses of gabapentin for years, the doctor offered it to me as "all we can give you for pain" after tramadol fell out of favour as the, "all we can give you" drug.

They gave me gabapentin at 100mg a day which did nothing for my long established burning and tingling pains, clumsiness and numbness which are diagnosed as nerve pain, I don't know how that compares to peripheral neuropathy. After a year I went to 200mg, then 300mg, then 600mg and finally after four years they reuctantly agreed to give me the entire starting dose of 900mg. Why even bother with the expense of prescribing something if the dose is far too low to work? For four years my gabapentin dose was below the starting dose and they couldn't tell me why it wasn't working!!!!
That's why I've a lot left over, I gave up taking it, I also gave up on my useless doctor, the only thing I use gabapentin for any more is coming down off pregabalin.

With pregabalin, 600mg is plenty for all over pain relief at the start, but tolerance builds up quickly. As I start to run out, I taper down to 600mg, then 300mg for two days, then jump onto gabapentin, ten of the 300s first day, six the second day, three on the third day. Tapering makes it easy, if you don't taper off pregabalin it's a worse headfuck than opiate wds, more like benzo wds or taking progesterone, irritable doesn't cover it, I felt inclined towards killing myself one time jumping off 900mg pregabalin, but it doesn't last more than a few days ever.

That is what I am experiencing too.
That “Boa Constrictor” feeling that burns and wakes me up out of cold , exhausted sleep in a panic.
It is causing really painful pins and needles. Severe.
Then the tingling in feet and hands and numbness in both.

The suboxone makes me like 3 times as constipated.
I keep waiting for the suboxone to make the stomach cramps stop, but it doesn’t and it doesn’t help with that nerve pain.
Noooooo it does not.
The suboxone is way stronger in one way than the MS Contin was.
It is too strong in many ways for me.
Not strong enough in the ways I need.
It had things way more under control and I felt so much better in my own body.
I could breathe again.

I hope they can get me in to this doctor over by my location.
I am back to not being able to sleep or eat due to pain.
These uncontrolled movements-like, little dances and shaking…..

Oh, you guys…,
Pray for me to get help.
This is torture.

 

[kiely]