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Harm Reduction The Pain Management Mega Thread Version 4

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what condition are you dealing with englandz if you dont mind and age?

i started pm at 18 with codiene and moved on to tramadol and asked for valium with it and never have many if any problems with either opiods or benzos because of 10yrs documented. ive arsed it a few times with new docs just walking in n getting what i need, provided having to send records and the odd piss test.

hopefully enough hoops will have been jumped for you shortly.

ive been through the whole opiate ladder as well so

have the pick of the litter apart from fent because of recent news on people selling their scripts. though only ever been given temazepam, oxazepam and diazepam in the benzo arena. my dr kindly knocked me back with midazolam.

ive been extremely fortunate with doctors. my current dr is an old family friend and the one before, i went to school and played rugby league with his son.

thanks for the opinions and my best to you in regards to treatment. i know thd game all too well.
 
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Ive just turned 39 this month and have been a cp patient since I was.21 so 18 years. I was diagnosed with a fairly rare form of reactive arthritis secondary to a dose of salmonella poisioning that nearly killed me when I was nearly 21 (if you're trying to bulk up dont eat raw eggs a'la rocky.......its stupid lol!) anyway that attacked most joints in my body and causes a lot of pain. Ive had literally every opiate presceibed that is available here in the uk (I wont list them......takes too long) along with every type of anti inflammatory, corticosteroid, sulphasalazine etc. etc. I have also been involved in bodybuilding/ powerlifting since I was 16 despite the pain and reached a fairly good standard. Unfortunately this led to my joints been complety fucked. Add in degenerative disk disease in my back and several torn muscles.and......well you get the picture. Unfortunately I also have an addictive personality and have battled opiate addiction. Ive only every abused my script and never bought from the street. Not by choice but simply where I live I havent had access to the street pharmacy as its known. If I did I would.have bought fRom it so its probably a good thing. My doc did eventually prescribe benzos. Clonazepam, then diazepam now temazepam. I currently take the following.....methadone tablets 60mg three times a day. Pregabalin 300mg twice a day.Naproxen 500mg twice a day. Paracetamol 1000mg four times a day and temazepam 20mg at night.....oh and Feldene gel to rub on to what ever area is playing up. I struggle through every day and as all my family are gone and im single im 100%on my own which makes it all the tougher but thats life unfortunately....its not always fair. Take care everyone.
 
Wait...what? Why does he have you on 4g of paracetamol? I mean, I know why, but thinking it will do something compared to 180mgs/day of methadone is pure fantasy, and will murder your liver.
 
Not really. They work via different mechanisms and paracetamol complements opiates. On my phone right now but will type a proper explanation later. Also 2x500mg qds is a standard dose and shouldnt cause problems in a man my size who doesnt drink.
 
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damn sounds youve been through the ringer and back.

i was diagnosed at 14 as spina bifida then rediagnosed at 16 as spondylolisthesis/spondylolysis. so a ddd as well, diagnoses of those last 2 depending on the dr. my dad suffers the same but ivd got pelvic and hip problems which means sciatica and unilateral neuropathy on my right side.

i was scouted to start playing professionaj football at the same time i had my 2nd diagnoses and had to give it and boxing away, risking potential paralysis.

so i can empathise and relate to a lot youve said.

fucking terrible genetics in my family with spinal problems and leukemia.

hope thd leukemia takes me out before i off meself one day from thd pain.
 
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Man it seems like you've had it tough yourself. Honestly though my problems aren't too bad compared to some people. Going through it without any support it the hardest thing. I just broke up some stupid bitch who told me im too negative and there are people a lot worse than me....which is very true but I hate that expression cos it belittles what you are going through (btw I.also had cancer this year and have just lost my job). Of course there are people worse off but you can say that about anyone. For example if I loose a leg and you loose both your legs you are worse than me but that doesnt make me losing me leg any easier!! Does that example make sense? Anyway I told the stupid bitch to fuck off!! Lol!
 
as the saying goes "im better than some, worse than others"

part the reason i hold bl so close to my heart is because of this forum and thread to be able to communicate to others in similar boats.

i appreciate you sharing your story mate. many people browse anonymously and find themselves signing up when they realise what a great outlet this place can be and to talk to others.
 
Yeah I agree. Ive talked to some great people on here. Where all different and have different stories but there are many common threads between us. Thats why it annoys me when some people lie, change their story and bullshit. I mean if you cant be honest on a totally anonymous message board talking to people with similar problems what chance is there of you being honest with freinds family and doctors? ie those who can help you.
Anyway mate if you dont mind me asking are you from the uk? You sound british just by the way you speak (type). Im from South Shields about 10 miles outside Newcastle.
 
Swimdoc.
I hope you are still coming back.
I feel ya, even tho I'm not a pharm I have sat around enough of them waiting to get my pain meds.
Keep coming back there really are some wonderful people here that can help.
We can do nothing about the way others think mof us.
Sticking their nose up and treating people like crap just shows that THEY have a problem, at least IMO.
If you go in KNOWING that someone is going to act ignorant, when it happens it's not as bad.
I wish there was a way to transfer our pain, for just 1 minute, to the assholes that look at me and have called me a 'junkie'.
I may use more then my doc prescribes, at time, but I have never, not once, bought anything off the street.
I have had the worst wd's where I couldnt stop vomiting.
I have a good guy doc who listens to me.
My only advice is to look around, talk to other pain sufferers and get a doc that treats YOU rather then a scared rabbit that worries about the 'drug doc' perception.
Hang in there, it'll take time.
Come back here, vent, get some ideas on how to cope.

Dave
 
englandgz74 said:
I was prescribed.sulphasalazine once for my arthritis but had to stop it as it was.causing liver problems. Do u get regular blood tests to check liver enzyme levels? I think your meant to with that drug. Hardly supprising that ketamine is helping you pain as its a disasociative anaesthetic lol! We issue it to the paramedics at work to treat badly wounded people in RTAs. I would be a bit careful with that tho as it can cause many, many problems if used long term. ...permanant incontinence being one anecdotal side effect. Not something you'd really fancy.
Click to expand...

I get blood tests pretty often and so far my liver enzymes have been ok thankfully.
 
phenethylo J said:
I get blood tests pretty often and so far my liver enzymes have been ok thankfully.
Click to expand...

That's good news mate. I was only on it for a few months and one day receiveda call from my gp saying stop immediately as my liver enzymes were really high. Sulphasalazine/sulazapyron is a dissease modifying drug if my memory serves me rightly isn't it?
Temtram - an aussie would have been my second guess lol! There are certain words and ways of speaking that only a pom or.an aussie would use!!
Okay I have a question regarding clinical negligence thought I would like to put past you guys. Please bear with me if I go on a bit but it's quite in depth. A few months ago while I was being prescribed fentanyl patches I was on 150mcg/hour which is three x 50mcg patches worn at once to be changed every two days. I spoke to my GP and asked if I could be issued the patches one lot at a time as I was having problems over using them when I was in serious pain he agree to do so and planned to leave me a script at the pharmacy for 3x50mcg patches to collect every two days. After the first couple of pickups one of the collection days fell on a Sunday when the pharmacy was shut so he wrote me out for double on that particular day i.e. 6x50mcg patches rather the normal 3 so that I would have 2 lots to conpensate for the day when the pharmacy would be closed (the script still stated to wear 3x50mcg at a times though). The problem arose when my next collection was due and it should have returned to only picking up the one lot of patches again (i.e. 3x50mcg) HOWEVER...he had forgotton to change the "collect 6 patches" back to "collect 3 patches" and so wqs now issuing me with 6 patches every 2 days rather than the 3 every days that he was supposed to. Effectively everytime I picked up my patches which should have been one lot to change every 48 hrs I was being given 2 lots. All because of that one day when the pharmacy was shut and he issued two lots and forgot to change it back on the computer and just printed it off and signed it without checking it. You may say "well why didnt you go in and tell him he'd made a mistake and return the extra ones but come on!!! Id already came in to him and reported that I was over using them as they werent controlling my pain and asked him to restrict me to one change of patches to be collected every 2 days and instead he gives me double!!! Still a pick up every 2 days but SIX patches instead of THREE.....what chronic pain patient who has admitted to overusing hos meds as they werent working well enough is going to willingly return half of them if the doc scripts you twice the amount and hasnt noticed?.......err...noone!!!!. It still to apply 150mcg worth every 2 days but I was given 300mcg worth every 2 days. If I had used all 300mcg (which of courseI did BTW) and overdosed....which is quite possible given the strength of 300mcg/hour fentanyl the doc would have been in serious trouble for not checking that he was issuing twice the amount to a patient who had already reported to him that he was struggling and had asked for his access to be restricted. The fact that the box still had the correct dose on is doesnt really chqnge things that much........it's still incompetence/medical negligence with one of the most deadly opiates of the planet.
Well sorry for rambling but I wanted to make sure I explained the story as best I could. I don't know who to speak to about this. I asked one of the paramedics where I work who os head of clinical investigations and clinical negligence what he thought and he said that as long as the dose on the box was correct, the fact that he had issued twice the quantity didnt matter......
I WOULD VERY, VERY MUCH LIKE TO HEAR WHAT MY FELLOW CP PATIENTS HAVE TO SAY ABOUT THIS
 
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You could report him, but who knows who you'd end up with next. At least this guy is willing to prescribe you adequate amounts of medication to cover the pain that you're in. I'm sorry, but you have a degree of personal responsibility in the use of the medication prescribed to you, and while yes he should have caught that.....you could have TOLD him.
 
Of course I could of and indeed should of told him but my point is if you go to your gp and say im having problems using this med as prescribed (i.e. Addiction).... Will you please only prescrible me a limited amount and he then prescribes you double on EVERY script what am I likely to do? Of course im going to keep them if I was able touse exactly as directed iI wouldnt have approached him and asked to have my supply restricted in the first place. How many CP patients who are.addicted to their meds would have told him?......none I bet. The point is he really should have at least checked the script when it came off the printer (this was aprox 20 scripts in a row btw). He isnt my regualr gp but another one who works in the practice that I was seeing while mine was on hoiliday. However you wre correct in that my proper gp is very good and I dont want to lose her by pointing out this and perusing negligence against one of the fellow doctors. If this had been an old person who hadnt read the dose but knew they had asked for one "application" of patches at a time and put them all on thinking that in doing so they were using them how they were supposed to theywould likely be dead. yes I knew I wasnt meant to use them all at once and should have told him but I think that misses the point...its still pretty negelgent to issue double the dose of a drug like fent over and over again without ever checking . Especially to a patient whos addkitted hes overusing and especially when double the dose equates to a whopping 300mcg/hour.
 
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This is my first go at a site like this, I have an issue hopefully I can get some help with, I was in a bad car wreck two or three months ago hit a semi on the highway was pretty lucky to just end up with a collapsed lung, concussion, a fractured femur, and crushed kneecap, but still a fairly shitty situation now I have several screws,bolts,n plates holding my knee together and a same with femur plus a rod, my doc prescribed me methadone 10s and oxycodone 5s n still painful as hell had to move with family in another state my new docs a Dick he's the only doc qualified to do my surgeries where im at he cut me off the dones n switched my oxys to oxy/acetemetaphin 5/325 120 per month ima hurting unit im not trying to abuse these lil bastards but they don't help much every month I go though em in about two weeks and he acts like im im in the wrong I've been spending my savings on more appropriate meds on the street but I shouldn't have to anyone have any info on wtf I should do im 21 no insurance trying for it though, almost forgot ...the first doc that did my surgery put to large of titanium gear in my leg prolly why it doesn't feel at all pleasant and so now it has to be redone its the bolts n plate are pushing out both sides of knee cap in several places
 
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Dont really know what to suggest. If he really is the only doc you can see and he wont prescribe more than that then I dont know what you can do. Buying from the street is a bad idea as it will ramp up your tollerence to the point that what you do get off your doc will be even less effective. Also telling him that your over using may lead to him cutting you off altogether. Have you tried supplementing with NSAIDS,or asking about lyrica or any other approaches?
 
Ive tried ibuprofen 800 didn't help tramadol didn't help Tylenol 4 didn't help, I believe the reason for prescribing the methadone was so I could switch from the dones to the oxycodone every week or so that I wouldn't build a tolerance and these oxycodone don't last long for pain relief ive been buying dones off the street n it seems to be helping from building a tolerance but I can't always find em and can't afford to blow my hard earned cash I buy a few oxy op 20s also but only use one at night so I don't wake up hurting but once again not always available and expensive, I've heard this doc is known for not being fond of prescribing narcotics idk seems odd to me that when I had my wisdom teeth removed I was prescribed the same meds im on now, maybe ill have to find a new doc in a larger town
 
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