Misc The Pain Management Mega Thread version 3.0

[Bluefrogger]

Me again -

I really hoped that you would have received that call from the doc today BiggDirty but glad to hear you've gotten some solid sleep. Good that it wasn't a different med you took! You were really lucky! I have to admit that I've mixed up my own mix up also. Hope they can do something for you!

Doomed I feel for you, CRPS type pain really sucks. I don't take a shower sometimes for a week because of fearing the 3 to 7 hour sensitivity flair-up afterwards. Good thing my family is supportive. Lol

Calling it a day - Everyone be well, won't be able to post for awhile. %) Stay cool!

 

[Doomed2pain]

i have to have bed baths, i have a special mattress cover just so it doesn't matter if i splash water on it, we are waiting to move to a pre adapted home. Long, long waiting list. I have a proper shower at my friend's who has a disabled shower and every day I wash my whole body in bed like they do in hospitals, I have a seat to put over the bath but nowhere to put my feet without them touching the water and it is very uncomfortable to sit on too so i just go to my friend's for a proper shower once or twice a week. hope everyone is having a good night I have had zopiclone oxy and olanzapine and diazepam (all taken as prescribed) and I still can't sleep dammit, it is 5.38am now :/

 

[Thanatos]

Olanazipine, zipicolone, and diazepam? Man I would either be really tired or have a lot of side effects.
My pain was only at a 6 today! It's very exciting, I just hope that I can keep the pain level low. I have either neurothropic pain or fibromyalgia, and my psych appointment is tomorrow. What should I ask about to my doctor? My dr I get my pain meds from doesn't treat neurological ailments or nerve pain, but my psych is willing to help as much as she can. Any suggestions?

 

[Doomed2pain]

amitriptyline firstly. also what psychiatric illnesses do you have if you don't mind sharing? gabapentin, pregabalin and other older anti seizure meds are used too. Try those first. And entheo I have the natural tolerance of a rhino, i'd need a shot of m99 to put me out lol

 

[Thanatos]

I have generalized anxiety with dissociation, and severe severe severe insomnia. I'm not depressed or OCD, but I do have adult add.
Amitriptyline doesn't do much besides give me night mares and anti-cholinergic side effects. I've used gabapentin but it didn't work well enough to stay on it. Pregalabin is too damn expensive for me :/

 

[Doomed2pain]

they all made me unwell. there are others to try unfortunately opiates do not help fibro pain a lot as a rule. are you being treated properly for your anxiety? venlafaxine is reportedly good but it made me psychotic.

 

[Thanatos]

I refuse to take any form of anti-depressant as a rule. My anxiety is as well treated as I could ask for..
I will not subject myself to another SNRI or SSRI ever again. I've gotten serotonin syndrome before and it nearly killed me. I have yet to get a clear answer on the fibro-neurothropic pain divide, the doctors don't know which one it is.

 

[Doomed2pain]

i got serotonin syndrome once too due to a drs fuck up, I was hospitalised too. I hate the nhs

 

[tricomb]

It makes me so mad thinking about the negligence of medical care Doomed2Pain, makes me sick. How can we make things right, and for others as well? How many letters or phone calls to the CPN?

I don't take any anti-depressants either, they don't work for their indications anyways. Pregabalin is not very good IMO. For all my psych issues, benzodiazepines are all I need, as needed. Very effective when you don't take them enough to be dependent on them.

 

[Doomed2pain]

we need to write tothe papers and the members of parliament tricomb get it properly published all above board. last night I had to talk my best friend out of serious harm or even death thanks to her useless cpn who abandons her at every given moment, so if she rings the crisis team she is hospitalised and police at her door straight away even if she isn't in psychosis and in need of hospital, just a chat to a member of the crisis team. so she doesn't ring as she doesn't want to be sectioned. same with me and my lack of anti psychotics the other week, i wanted an emergency script but they would have just sectioned me for a month instead!

 

[BiggDirty01]

As with all things stale and overdue (socially, ethically and in this case...medically) it will most likely take the next generation of medical professionals to get started in improving patient care and adequately addressing pain. The system is simply rigged, both by pharmaceutical companies pushing new, more addictive medications, and health care professionals getting harassed by society at large for over-dispensing and what not, which is easy to say when you can get around and live a normal life 'free' of any medications at all.

What needs to happen is that us patients gather our voices into one so we can compete with complicit and uninformed mass media spreading misinformation and demonstrating a remarkable lack of empathy and compassion to people, like myself, can function SOMEWHAT normally.

And we patients, must put forth a better effort as well in pursuing our therapies and treatments with equal effort as we do in our regular PM Doc appointments and subsequent filling of RX's. Our effort in our PM shows a clearly distinct attitude then a complicit drug seeker. We young PM patients shouldn't have to do this, but as my mom reminds me when I complain "your generation brought this on yourselves with the doctor shopping, gaming the system, using PM clinics like drug suppliers".

I hate it when she is right!

 

[Doomed2pain]

she is right be did it not be innocent until proven guilty aka treated first and then given regular random urine analysis to make sure your bloods have the right amount of medication buildup that should be there? that would weed people who are dr shopping and using drugs illicitly so us with real problems get adequate medication. I have always taken meds as directed unless I am knocked out in pain for days, have an extra dose spare and therefore take it to bring the hellish score of say 9.5 down to an 8 which doesn't sound a lot but it is, I can dealing with an 8 unless i have a bad pain relapse like every winter when the temp goes icy, it spreads to another part of my body then my usual 8 is a 15 out of 10 lol but then i get used to that level of pain so an 8 feels like an 8 but is in actuality a 15. I have written down a scientific process of how increasing pain, no change of meds and thresholds change each time you have a pain relapse, it took a good few days of studying and a lot of scribbling but I finally nailed it, I will dig it out and put it on here so people can understand what i mean more clearly i just do not have time to do it now as i have to go out soon.

 

[norcophile]

just checking in everyone, sorry for all the CRPS crap yall got going on. i thought my shit was bad. i am also a mental health consumer, weaned myself off of eight psych meds down to just my mood stabilizer now, and i only take one other med and that's my pain stuff.

my pain is at about a 7.5 today, bearable but still sucks. also my power got shut off at the apartment today so i get to deal with that and trying to find an agency to help pay the shut off because i am disabled and waiting for SSI, currently i get just over $200 a month through state disability. gosh this shit is a blast. i am thankful that i have a place now to talk to people about this shit, and rant of course, get ideas for ways to cope and fix these problems, and a place to use my knowledge to help yall too!
8)

 

[macd610]

Hello friends! Just wanted to say hi to everyone, I am on vacation in North Carolina. I only had a minute so I didn't have a chance to read many times. I'm sorry for everyone going through a hard time....
I'm sort of freaking out a little bit now. Being at the beach with a fentanyl patch is difficult... What would normally last 2 days is only lasting 1
but I realize I am in much better shape compared to a couple of years ago.
I hope everyone is doing well, and to those who are not I hope things improve soon

 

[Coraline]

Since I have been pretty discipline in my med use I can take normal doses to aleve my pain. It's working. I have zero pain today. I'm really glad. I feel slightly euphoric and normal. I wish every day was like this. I hope this lasts for at least a month before I decrease my dosage to combat tolerance. I wish tolerance would not happen to anyone.

Tolerance scares me because idk if I could ever get anything stronger than norco and soma. I don't really care about the soma. I just want the pain to stop. I want my normal life back.

 

[norcophile]

Tolerance scares me because idk if I could ever get anything stronger than norco and soma. I don't really care about the soma. I just want the pain to stop. I want my normal life back.

tolerance is the worst. after being an addict, mostly opioids my favorite and longest period was on opana (also enjoyed some pharm stimulants), it's hard to get by on hydrocodone alone for pain. the gaba i take for mood and anxiety does nothing for my pain as my pain isn't really nerve related.

 

[tricomb]

Hello friends! Just wanted to say hi to everyone, I am on vacation in North Carolina. I only had a minute so I didn't have a chance to read many times. I'm sorry for everyone going through a hard time....
I'm sort of freaking out a little bit now. Being at the beach with a fentanyl patch is difficult... What would normally last 2 days is only lasting 1
but I realize I am in much better shape compared to a couple of years ago.
I hope everyone is doing well, and to those who are not I hope things improve soon

Hey there! Hope you're having a blast on vacation. Be careful with your fentanyl patch at the beach, you do not want that thing getting direct sun or much indirect heat.

we need to write tothe papers and the members of parliament tricomb get it properly published all above board. last night I had to talk my best friend out of serious harm or even death thanks to her useless cpn who abandons her at every given moment, so if she rings the crisis team she is hospitalised and police at her door straight away even if she isn't in psychosis and in need of hospital, just a chat to a member of the crisis team. so she doesn't ring as she doesn't want to be sectioned. same with me and my lack of anti psychotics the other week, i wanted an emergency script but they would have just sectioned me for a month instead!

That sounds absolutely horrible, it's a shame that's how the NHS works.

 

[Mercc96]

Quick question - exactly how bad is it to have ANY knowledge of drugs, pharmacuticals , your own fucking condition when around doctors?. A few weeks ago when I was scripted zopiclone for a little while ( useless medicine) the doc and my parents wretched when I quoted a brand name and asked if it was as addictive as benzos.

Also do those suffering from fibromyalgia ever feels as if they have had their kidneys take a beating for no reason?

 

[tricomb]

It's not a crime to know about the chemicals you put into your body, remind doctors that if they give you "the look". It's important to be fully educated about what we take, how it works, and what's out there in terms of options. The information is easily accessible by Google search or doing a little reading on Wikipedia.

It's not fair for doctors to prescribe you pain medication and think that you'll be completely unaware of what's going on. It's important to play an active role in your healthcare, this includes being up to date on the medications you take and being upfront with your doctors about being active in your pain management.

 

[Mercc96]

Im pretty sure if I was completely upfront with the doctors I saw they would drop me like a dead dog straight away.