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Misc The Pain Management Mega Thread version 3.0

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Thank you for the details milagro. My back issues are very similar to yours. I am fairly young so, while I understand your Dr's concern regarding medication, I understand your frustration with being under-medicated. I am one of the youngest CPPs under my doc so he is very cautious. However, We have very open and honest communication about my meds so, while tentative in regards to what he prescribes, he generally follows my lead. I can't stress how important, although exhausting, it is to find a good PM doc. If you live in a city large enough to look around, I encourage you to do so. As long as you aren't getting prescriptions from more than one, there shouldn't be an issue with obtaining additional opinions. You need to be able to talk openly about your pain and tolerance to medications. So many of us suffer thru being under-medicated simply bc we don't want to appear "drug seeking". It's sick really. The nurse I see in between visits with my doc is a real bitch and clearly has no concept of what it is like to be in pain every day of her life but, since my Dr is amazing, I stick it out.

I also have DDD and arthritis, along with a few other complications, so I am in the same boat as you with a deteriorating condition. I haven't looked into disability, although I suppose I should so I could better support my children. This is a great place for support and to discuss questions you may have. With as many people that visit this site, you can usually find someone in a similar predicament.
 
Are you still taking Bu-Trans or do you have more of the patches in your posession? Honestly, if your regimen includes Bu-Trans normally, then I actually think seeing a suboxone doctor has very little drawback.

I was under the impression you were on the narcotic-type analgesics, so therefore getting a substitute Buprenorphine product until you see your PM for more Bupe-type pain medications.
same
 
The difference is that BuTrans is solely for chronic pain; where as, seeing an addiction specialist would put a negative blotch on my medical history...

I have one patch left, but I'm going to save that so that I go into pain management between 72 and 96 hours after application, so that they can evaluate me while that patch is in full effect...

BuTrans is still of the "narcotic type," it's just pretty abuse-resistant, is a C-III Rx (like subs), and is supposed to be equivalent to 80mg of morphine daily, but I'd take 8 norcos over this patch any day...

@Tri...

why would taking both at the same time have a negative effect? wouldn't it just be additive/synergistic as they both agonize GABA receptors (or mimics the agonism of GABA in the case gaba/lyrica)?

Also...I've started to give up the feeling of sanity as of late for pain relief by dosing around 800mg of DXM at a time, so as to give me a large enough dissociative effect that I can barely feel anything at all...

first night I did this recetly, I dosed 820mg, and felt so little I was afraid I was going to have an accident and not be able to tell lmfao...I do not recommend, as this is not HR at all...just providing my experiences...it fucks me up to the point that sometimes I wonder if I'm still alive or if I'm in hell...lol...prolly not a good thing, but at least it doesn't feel like someone is twisting a dagger in my back lol...
 
and I would definitely prefer to be on something other than BuTrans (which any doctor can Rx)...

I hate BuTrans...it's so inconsistent...just look at plasma levels in the three-week trial in the prescribing information...

It increases through day 3, then the rest of the week and then into the first 48 hours of the next week, it's like hell...

So I see about 2.5-3.5 days of some pain relief, then the rest being horrible...

There's no way in hell at this current state I could do a full semester with less than 150mg of morphine daily at the bare minimum...dunno what I'm going to do...

Sorry for all the posting again, guys...
 
and I would definitely prefer to be on something other than BuTrans (which any doctor can Rx)...

I hate BuTrans...it's so inconsistent...just look at plasma levels in the three-week trial in the prescribing information...

It increases through day 3, then the rest of the week and then into the first 48 hours of the next week, it's like hell...

So I see about 2.5-3.5 days of some pain relief, then the rest being horrible...

There's no way in hell at this current state I could do a full semester with less than 150mg of morphine daily at the bare minimum...dunno what I'm going to do...

Sorry for all the posting again, guys...

Can you transfer to a different dr? If the medication isn't working well for you maybe talk to a different dr about it.
Maybe they will take over your treatment?
 
I dunno how it's gonna look to PM if I go to a different doctor than the one that referred me to them before seeing them...I think I might just have to ride it out, testing my urine, until I can verify a negative result with 2-3 extra tests before I make my appt. earlier...
 
That won't work because changing them that soon would causing a never-ending increase in plasma concentration...well...almost never-ending...it would be dumping more bupe in than the half-life would allow for it to be eliminated...I'll link you to the Rx'ing information and tell you what section to look at for the graph...it's a complete roller coaster...and it's supposed to be an ER med.......


That graph is at the top of section 12.3 in the link below...

http://app.purduepharma.com/xmlpublishing/pi.aspx?id=b
 
not a bad pain day today just stressed as hell, had to drive all over for my mom in the heat so i came back to her house (staying here for the weekend) and passed out for five hours. can't wait until they turn our power back on at home

anyone know much about butrans? like if any ir meds could be combined for breakthrough or no since the bupe is partial antagonist
 
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doug - have you looked into seeing a pain management specialist so as to cover your ass that way?

(un)fortunately enough i'm not in that boat as i've a definitive diagnoses and the closest PM doc is 3 hours drive. find a caring doctor and work with them every avenue possible.
 
Sorry to divert the discussion here, but I made a post to Doug in the BDD social that is very personal that I wanted to put in here as well. If anyone has read through the first pain management mega thread or followed it then, I posted in there far more than anyone else because I was dealing with my own chronic pain and desperately wanted to try to offer support for other people struggling as well.

My life has changed substantially since those days and I think a lot of people who are struggling with chronic pain should give this a read. I do apologize for the length but I felt there was a good deal relevant to the topic that I initially wanted to say to Doug when I started typing but really is to anyone struggling with chronic pain who feels or has felt hopeless.

If you aren't interested, feel free to skip over this :)

Let me put this into perspective for you - I was 19 at a university when something happened to cause me to have severe, chronic leg and back pain. This forced me to...

leave the university I was at; quit my job; require a cane to walk and severely limited the activity I was capable of; move in my with mom after living with my girlfriend for nearly 2 years after she left me during this period because of what all this did to our relationship and who it turned me into. In some way, it negatively affected every single aspect of my life and this all occurred inside of a 6 month span.​

On top of being in physical pain, I was very depressed over the limitations imposed on me at such a young age and anxious (terrified, rather) of having to live the rest of my life like that. I thought about suicide constantly and began to view knowing that I could end it anytime just in case it got too unbearable as comforting because I couldn't stand the thought of having absolutely no control while pain had such a strangle-hold on my life. Ultimately, I refused to accept how I felt then as how I always had to feel.

It was beyond difficult but I kept pushing forward - I forced myself to have just a small amount of hope. It was hard for me to believe at times, but I tried to always tell myself that I was worth continuing on for. I tried to take care of myself, to push myself to adapt physically and psychologically as much as I could to the circumstances. Over time, I DID adapt and you absolutely can too.

Today, not all that long after everything above, I no longer require a cane and in fact, can even dunk a basketball again! I no longer rely on prescription medication or illicit drugs to manage the pain. I met an amazing girl that I can see myself spending my life with and we share an apartment in an incredible area far away from where I endured misery for years. After what felt like an eternity, I can truly say that I found happiness.

I still do have pain in my leg and back that I have to deal with but I am at a point where I CAN deal with it and still be happy - the dread over my limitations, defining myself BY those limitations and worrying that was my fate forever made the physical pain so much worse which made mentally coping with that fate worse.

I rarely divulge much about my life on BL and prefer to use it to discuss topics that interest me but I felt this was too important to not share with you, the community and hopefully anyone else who is unfairly suffering like you are -


*Despite how difficult my life was for what felt like an eternity, I have come so far and am so happy now that if I could magically go back and never have to deal with all that misery, I would still choose to endure it*. Going through that pain and learning to adapt and push on was the only way I could get to THIS point in my life and I wouldn't trade that for anything including everything that I lost that I listed above.​



I did not see any reason to have hope when I was in a position similar to yours but I refused to accept that as my only fate and because I kept going, it more than paid off. I'm sure hearing this doesn't make what you have to deal with right now any easier but if you do not hold on to a little bit of hope, you could miss out on a seriously amazing life. You have the potential to not just live in less pain, but be HAPPY.

I know I have been a dick to you on many occasions and I am sorry. In retrospect, I believe the reason I lashed out at you when you would post about how much you had to deal with was because it vividly brought me back to a time that is painful to revisit but that is no excuse and you didn't deserve that. You also don't deserve to feel like you are just your medical conditions and nothing more. DON'T DEFINE YOURSELF BY WHAT IS WRONG WITH YOU AND IGNORE WHAT IS RIGHT ABOUT YOU. You are not some constellation of symptoms or conditions but a good person who unfortunately has pain but whose life can get better if you believe you deserve it to.

I truly hope that these words have an impact because I KNOW from personal experience that you can go from how miserable you are now to how satisfied I am so fortunate to be. You have to insist on not giving up hope; if you insist on not mentally defining yourself by your limitations and instead focus on what you DO have and who you are, your life CAN improve and you are worth fighting for it to.

You not only can get out of this hole you've unfortunately been thrown into, but even get past baseline and further than you believed was possible.

I'm proof of this.

Mods, please do forgive me double posting ;)
 
damn, can't read it right now cane, buut i'm stoked for when i can get to a computer to read it through tomorrow!

just woke up to morning two/day three at my moms. actually i don't hurt as bad as you'd expect someone with herniated discs who is sleepin on an air mattress. started the coffee, now i'm gonna have a smoke, feels loke a nice day. on the scale i'd say i'm feelin at about a 6.5, maaayyybe a slight 7.

oh yeah i am still curious if i can get some more info about butrans, just curious as the doc and o are going to be talking about our sr medication options soon, thanks yall i'll be back later.
 
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tramadol is commonly prescribed along with bupe patches for breakthrough pain. i've been on that concoction at one point. i've found that dosing anywhere over around the 2mg a day/bupe is where it's harder to knock through the bupe, pending what opiate/oid and dose. in my experience, with the max dose of 2x20mcg patches codeine was noticeable for breakthrough, albeit a few hundred milligrams.

are you on anything at the moment or will that be your initial consult?
 
That was inspirational Cane! I too hope that I can dunk again, after all that's how I tore one of my knees up anyways. I was on crutches for 6 months last year, and still need them on some days now that I reinsured my self, with another injury on top of the chronic pain. It's important to never give up hope, I truely believe that optimism is the best analgesic and can produce a physiological response.
 
yeah i am on pain meds already, been at my current pain clinic now for about seven months. my doctor keeps just giving me more norco but i have told him i am really interested in something that is extended release.

how was the pain relief with bupe?
 
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Norophile, the ER's would def. help for a longer more controlled pain level. Hope you get you're power back on soon, I'm glad being at you're Moms (with power) really takes the edge off! No cooling really sucks!

Cane, nice words of good advice to hear! It is really hard to focus on happier thoughts when you have CP, but is really the most beneficial and productive in the long run! Thanks for the reminder! :)
 
thanks for the reply frogger. dealing with this stuff is always a blast while being in a hefty amount of pain, especially when these people see a 23 year old with a cane and pain pills and label that person a faker and an addict. i am a recovering addict, i've admitted it here, my PM doctor knows and so does my therapist and psychiatrist and not one of them has a problem with me taking these medications. we are all working together to find the right med, dose and everything. i guess i am just ranting now, it's just frustrating, i AM an addict in recovery, and i DO have a diagnosed chronic pain condition that is well treated with opioids. the other meds that they tried either didn't touch my pain, set off my seizures or my major deppresion. i am actively pursuing every other treatment method that my doctor thinks will benefit me. thanks for being here everyone and giving me a place to get this out and get AMAZING advice and support.

wow... didnt't realize i was getting so out of hand, sorry for such a long post yall.
 
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