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Misc The Pain Management Mega Thread version 3.0

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Just thought I'd check in quickly...

My MRI films are on a CD in my neurosurgeons office but I get the feeling that getting a call by the end of the week is the best I am going to get so I am trying to stay positive mentally despite how I feel physically.

I honestly think I felt better after my first fusion attempt....#'s 2 and 3 seem to have aggravated certain types of pain and certainly the quantifiable amount of pain. I don't know, I am kind of a mess right now but I am giving it my best....diet change, seeing my therapist as usual and I am hopeful that by the time by best friend comes in to town next month with his GF that I can be somewhat social as my buddy and I tend to spend almost all the time in the same city together as he is as much a member of my family as my own sibling and it honestly seems like he is more interested/concerned in introducing his girlfriend to my parents versus his own parents....LOL

Got 3 weeks to shape up as much as possible, all with the MRI results hanging over my head....
 
Doomed2pain said:
How is everyone today? I have been knocked out from the pain again. Hope everyone is ok
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I had an ok day. Better than 3 weeks ago when it felt like I was dying ! Wow, thats freaky that your pain can knock you out, does it help at all?
I still cant believe that the pain specialist I saw last week wants to take me off ALL my meds! What the heck.
 
I can be knocked out for 3 or 4 days at a time i don't go to the toilet or anything it really is like hibernation. I do benefit as it protects me from the really unbearable pain that i get when i cannot deal with it i will be sat there then i get dizzy and pass out. Im really pissed they are doing that to you get a new Dr. Hugs
 
Hey all.

Thought I'd check in again.

It's now almost 6 weeks since my car accident. I'm off the crutches, off the cocodamol and have been swimming, yogaing for about a week and a half, and did some hiking over the weekend.
Off the cocodamol, still taking the diclofenac 75mg extended release, they really do the trick for me.
Unfortunate what was originally an itching, then a ticking, which became an electric shock and burning pain has become worse, and the doc said it might be nerve damage. She's given me Gabapentin 300mg. I'm supposed to take 1 today, 2 tomorrow, and 3 every day thereafter.
( can anyone explain why? Did a google search and it didn't come up with anything useful..)

Is this likely to work? I'm hoping to not have to take pill after pill every day!

On a positive note, the codeine constipation has gone. constipation and a hot summer are not very nice!
 
Is there discolouration on the affected skin sounds like the start of crps like i got but as my nerves were killed i had that sensation severely straight away after i was crushed by 6 tonnes. I pray to god that you don't have it, i wouldnt wish it on anyone Im so poorly from it but Im also at the latest stage where it affects organs etc.

I will pray for you spep
 
My pain doctor says that ALL scheduled drugs need to be prescribed by ONLY him. I signed a pain contract agreeing to these terms.

Besidsides my opiods for chronic pain, my doctor also prescribes benzos for sleep. So I totally understand needing to get meds from ONLY one doctor. I think it would be illegal to do otherwise, especially if you've signed a pain contract.
 
It isn't the same with psych meds as they aren't qualified to prescribe for mental health conditions Im afraid.
 
Doomed2pain said:
Is there discolouration on the affected skin sounds like the start of crps like i got but as my nerves were killed i had that sensation severely straight away after i was crushed by 6 tonnes. I pray to god that you don't have it, i wouldnt wish it on anyone Im so poorly from it but Im also at the latest stage where it affects organs etc.

I will pray for you spep
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There's no discolouration. It looks pretty much like the other leg.

I didn't get crushed, I got thrown into the air by a speeding car, bounced off the bonnet, hit another parked car and landed in a puddle. No breakages.

Happened on Friday the 13th too, dont know what I should make of that!
 
Crps can happen from something as simple as a sprain. If i were youid take 1500mcg of vit c it has proven to prevent it, also the b vitamin thalin which helps nerve growth and healing nerve damage takes years to heal unfortunately my crps wont. Hope you get better soon.
 
sorry haven't been able to get on much since i introduced myself, had a couple of bad days last week which resulted in me currently using a cane when the pain gets to be where i cannot walk well. had an appointment with the PM doc, had a good conversation where i told him my concerns about being labeled as a drug seeker and he let me know that he has not and currently doesn't see me that way. after that he asked me about how the current meds were working and i told him the TRUTH, so he switched me from tid to qid and said we'd see how that does me. thanks for listening everyone, and if you have any questions shoot em at me, i had shared before that i have quite a bit of knowledge (not feeding my ego, not trying to be an ass or any of that) on opioid medications.
 
glad you got some help from your pm dr it took me nearly 2 years to get decent meds and that was when I only needed crutches and not a wheelchair but I did have days that bad that I would be curled up in bed crying from the pain. how long did it take you to get your meds sorted norcophile???
 
Doomed2pain said:
glad you got some help from your pm dr it took me nearly 2 years to get decent meds and that was when I only needed crutches and not a wheelchair but I did have days that bad that I would be curled up in bed crying from the pain. how long did it take you to get your meds sorted norcophile???
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well over the past six months i have moved up from norco 5mg bid, to the same dose tid, then 7.5mg tid and now 7.5mg qid. it still isn't where i'd like to be but i understand the importance of building that relationship with the doctor. ideally i want to be at a 4 with my pain, today i'm at a 6 maybe a little over. eventually i am looking to get ms contin, something like 30mg bid with the norco 7.5mg maintained at qid or maybe just three for breakthrough of course.

oh i forgot to ask, can anyone point me in the direction where i can find out how to use the blog? or do i have to wait until i get to bluelighter status? FIFTY POSTS HERE I COME!!! :|
 
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i have never used the blog function so i couldn't say but i am sure others here will know. i hope you get the mst's once you have seen the pm dr a few more times, unfortunately morphine never worked well for me, currently on oxy and diazepam for the muscle seizures that i get. i was on fentanyl which brought me down to a seven but i was allergic to the glue and i cannot get oral preparations as the uk govt deem it too expensive for drs to prescribe. looking at changing meds again as been on oxy since jan and it is losing it's benefits.
 
Doomed2pain said:
i have never used the blog function so i couldn't say but i am sure others here will know. i hope you get the mst's once you have seen the pm dr a few more times, unfortunately morphine never worked well for me, currently on oxy and diazepam for the muscle seizures that i get. i was on fentanyl which brought me down to a seven but i was allergic to the glue and i cannot get oral preparations as the uk govt deem it too expensive for drs to prescribe. looking at changing meds again as been on oxy since jan and it is losing it's benefits.
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get at me on aim: [email protected], got it setup to forward to my phone
 
Doomed2pain said:
Crps can happen from something as simple as a sprain. If i were youid take 1500mcg of vit c it has proven to prevent it, also the b vitamin thalin which helps nerve growth and healing nerve damage takes years to heal unfortunately my crps wont. Hope you get better soon.
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Sorry to hear the pain's been that terrible for you Doomed! To hear that the CRPS has been that bad to cause a black-out makes me feel so helpless! I don't know how I get through the day at times, and then reminded that it has been (and still could be) even worse! Its been around 10 years for me now with CRPS. I have dealt with the pain, and living hell at times, but greatful that overall things are better in the last 5 years than before. (Pain overall controlled better but physically worse.)

I was told by a Top-rated, hand surgeon about 3 years ago to take 500mg vit. C a day, no more - and no less for the crps. I was wondering where you heard 1500mg's? I know that you are past stage-four but did you try the vit. C, and has it seemed to help any!

Hope everyone's having a • positive • day! Well thoughts! ! !
 
apparently if you take the vit c as soon as the injury occurs, I didn't hear until I was stage 3, I tried and I took that amount for 6 months but it didn't help. Has your crps spread? is it type 1 or 2?

i'm still at a 9.5 it is ridiculous.

hope you are having a pain free-ish day Blue Frogger
 
CRPS aka RSD Pain

Doomed2pain said:
apparently if you take the vit c as soon as the injury occurs, I didn't hear until I was stage 3, I tried and I took that amount for 6 months but it didn't help. Has your crps spread? is it type 1 or 2?

i'm still at a 9.5 it is ridiculous.
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I'm diagnosed as having type 1, although I still wonder if I doesn't have something to do with the nerve because it was a crush type injury to my foot. I do have times now where I feel it's spread whole-body, mostly though its still major pain in foot and ankle/leg area. It was like that for first year and then it mirrored to the other foot. I'm so sad you're in that much pain!

Hope everyone has some better days with Fall weather getting closer!


PLEASE NOTE:
For anyone wondering what CRPS/RSD is, a good site to check out is - http://rsds.org/aboutCRPS.html

Anyone having chronic burning type pain with extreme sensitivity to touch, that has started fairly recently, should know about CRPS and the stages of this disorder. If it is caught, (or clinicaly diagnosed) in the early stages, it is possible to treat and even cure. This is not a widely known pain disorder and it should be - especially for doctors! Thanks
 
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Wow, fell asleep from 12am PST until 5pm PST and never even woke up to use the restroom. What gives, I ask?

And then I figured it out: My mother, who dispenses me my meds daily has a tendency to fill individual containers ahead of time, usually does this task after using MMJ (for pancreatitis)

I've had instances of shorting one drug or another, double filling one med in the container and stuff like that.

These new Zanaflex (tizanidine) don't have the shape I am used to, and because my pharmacy uses 2 different brands of methadone 10mg pills (round vs rectangular) my container yesterday was filled with 30 mg Methadone (supposed to be 60mg) and 6 4mg Zanaflex (rather than 3)

I don't usually inspect my daily container, mostly just count that there are 6 blue pills (Oxy 30mg IR), 6 white circular or rectangular pills(10mg Methadone) and 3 bigger white circular pills (Zanaflex)

So she accidentally threw me for a loop and woke up with a severe hangover and felt totally confused. At least now I know why!

And finally, still waiting for my Neurosurgeon to get in touch with me since hes had my MRI films since Monday. I feel so shitty pain wise after 2 spine fusions last 6 months and am not making much progress on my own.


So Answers....Answers is all I want or need right now
 
OI started mybown charity for research to raise money for a cure so fingers crossed one day in the future. I have it in 75% of my body can't weight bare on either feet/legs so use a wheelchair. I think the organ pain is just awful i hope you never get that. Im type 2 i was crushed by 6 tonnes. My hypersensitivity means i cannot go in a bath due to the pressure and temp of the water hate that part.
 
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