Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

[copperdome]

hi people, I just wanted to stop in with a little mathematics for those of us who are waiting for the medication to leave our system. While the median half-life is said to be 25-49 days, that is the median, and therefor the half-life can be much longer for some, or much shorter for others. The last time I came off Invega Sustenna, I had been on the 117 mg dose for over a year. So by the time I came off the Sustenna, I was really only coming off 117 mg's. I began to get a bit of weight loss here and there after 4 months off. This time, I am coming off the Sustenna after receiving only the two starter doses, 234 mg's and 156 mg's. This is to say, I am coming off a MUCH higher dose this time- over 3x's the dose I was coming off last time. I'm off 7 months with no weight loss, but it's becoming a bit easier to have a positive outlook on the matter after I realized just how much I am coming off of this time.

Hope all's well with everyone. Good day

Are other symptoms inproving? Did you even have depression or anhedonia? I didn't really gain weight on it in the first place, I hope that is a good sign.

 

[invapo]

I for sure had a good deal of sadness/frustration over the winter, but that is improving with the coming of spring. I also had a great amount of exhaustion, which I still deal with. I totally have an appreciation for naps now. Of course my mind feels very dull, as the Sustenna removed all signs of mania, and with that, my joy as well.

 

[iridescentblack]

I think they're half life estimate is total bullshit. Might as well call it as 1-9,999,999 days. And they're slogan, "Who's up for a round of sodomy?"

 

[onegreenday]

(INVAPO said 'this time, I am coming off the Sustenna after receiving only the two starter doses, 234 mg's and 156 mg's.)

I got the same starter dose plus 2mg Resperidone at bedtime. When I said I did not want the shot they prescribed 4mg at bedtime.
I took the shot to keep my apt from eviction but I screwed up anyway and got evicted yesterday; now a month to find a new place but at least I am off the shot and no meds at bedtime and I slept 7.7 hrs last night which is great for me. Never have any good dreams though. most are stressful if I can even remember them. I did take 1 Prozac20mg to settle my nerves after court (around noon) so that may have helped my sleep.

I noticed my vision seems a little duller w the shot and I turn on more lights to see. small print seems a little blurry. I seem to think a little more clearly w some fresh ideas but blurry on other stuff & some confused recent memories. I seem restless and a little jumpy always wanting to be doing something (can't sit still , up & down out of my chair) and my leg muscles are weak w weak cramps/aches. I rode the bike 7 miles Sunday in a strong wind and did not notice many changes though I got shot in buttocks (no pain at all after) my heart seemed to handle the shot ok even though I'll be 65 in June; so that was relief. no real palpitations to speak of. nice thread here for new shot victims...

EDIT: I felt like crying twice today over getting evicted. If I did not have this shot I would have had two (2) good cries for my screw up but I could not quite get to the weeping stage. I could feel like I should cry but I just could not get there and before the shot I would have cried easy cause this was a big screw up and I am in need of a good weeping session since I KNOW how down I am.

EDIT: I am not getting the release I should have. I want it & need it but it is NOT coming. My feelings seem 'bottled up' which is NOT good. Tears are needed for a reason. Not just crying over nothing.

EDIT: I am realizing 24 hours later that I was not even mentally present at the court room. I could barely speak. My mind was numb. There is so much more I could have done to defend myself with a possible different outcome if I was mentally present. My face feels numb like I cannot smile or frown. I just feel dull. I am here but not present.

Edit: March 1, 2017, I feel a little better today (14 days after my second 'intro' shot) . 3 Edits ago was Monday so 48 hours and I feel a little better. thinking more clearly. my prayers seemed more clear, not as jumbled while saying them and I was more precise in knowing where i was in the prayer sequence. A little more optimistic that I can find a new apartment after my eviction Monday (I have all March to find one) and that I can pull-out of this problem

that I partially caused. I felt today like I was part of the problem ; where before I thought it was all her (the manager) I did write some letters after they gave me a "cease & desist" letter ; so that part I brought on (even though she had lied in the "cease & desist" I should have talked to my lawyer and let the lawyer handle it; instead a wrote myself (which was the big mistake) and lead to the eviction.

I also had a good cry over my cat ( & probably the eviction, though mostly him) that I put down Dec 26, 2017;
so it was good to cry for about 1-2 minutes and then I was over it. I am glad for that cry, as I am in touch again with some feelings after 14 days post shot.

 

[invapo]

hey 1GD, it's funny you mention not being able to get a good cry. Invega does the opposite to me: I shed tears when I least expect it. The last time I was on Invega, my brother got married and the wedding photographer got all these shots of me, at a horribly heavy body weight with buckets of tears just streaming down my face all afternoon. I absolutely find them to be the most horrid pictures of me. But it's not like I actually felt any emotion connected with the tears; they just kind of fell out of my eyes. I guess I can agree to feeling the same numbness as you, but with me it's moreso that I miss my "mania" symptoms, where my mind is much more active. Just under 32 weeks since my last injection, still waiting to see some weight loss so I know it's ridding my system.

G'day

 

[RisperdalAnhedonia]

been a victim of risperdal 4mg tablets and after that for invega tablets since 2010 my age was 23 i took them for a total of a month and half only. Then i cold turkey with scary withdrawal symptoms fast heart beating and electricity shooting in my brain with the strongest headache i ever had in my life I though this was the end.

before i was poisoned with this drugs i was very creative and healthy strong male. i was poisoned for the wrong reasons misdiagnosis.

its been 7 years since the incident i still can't feel pleasure from things i can't even feel orgasm after the incident till this day.

i also never had a headache since 7 years! my brain feel so numb.

my next target will be some hard drugs that may excite and stimulate my numb reward circuit hopefully that will work tried everything legal under the sun with a dr nothing works.

in 2012 the new doctor said i was misdiagnosed and should not given these drugs(poisons) in the first place

excuse my english not from a native speaking english country.

best wishes for all we are in the same boat we will survive

 

[RisperdalAnhedonia]

Excellent theory. Could be the miracle cure we have been searching for!


Thank you for the tip, cheers ; I will order sarcosine and the other one ASAP. I suspect they are helpful, maybe I can get these receptors to operate properly again, since I KNOW dopamine misregulation is the problem.

When I take high dose amphetamine, I go back to normal. It's sad to go back to normal for 4 hours. Its tempting but I cant go there, I know it is damaging and I don't like what it does to me.

this scares me looks like my next target won't work

 

[RisperdalAnhedonia]

I was forced into taking this by a methadone doctor. I think a lot of us have been given this because it stops the effects of drugs. I'm so bummed, can't even enjoy a cigarette. I've found you can get some effects from meth and ketamine though.

my new doctor tried to treat the anhedonia with the new clinical way of treating depression with ketamine.

it was a failure in my case no benefits not sure what dosages he used though.

 

[RisperdalAnhedonia]

question to those who has been victims of risperdal and invega have you ever checked your Aldosterone levels? was it elevated? mine was and it is the only out of balance hormone in my system after the incident i did a complete bloodwork analysis. we might find correlation.

 

[invapo]

RisperdalAnhedonia, I meet with an endocrinologist tomorrow, I'll be sure to ask about getting that level tested. Thanks

 

[The Most Ultimate]

Hi, guys. I went for a blood test for Invega Sustenna/paliperidone Dec 30, 2016, 26 days after my shot (Dec 4th, 2016) to see what my blood levels were. What is weird is that my test was not done in my home city nor the blood lab I went to; it was done by ARUP LABs in Salt lake City, Utah, which is 725 miles away from where I live. Julio DELGADO MD is the director of the ARUP Laboratories. 3:32 video mark. Another thing to mention. My test results were never listed. Report mentioned that it had been revised too, and I did not get the results. There was no result. I find this highly weird that my blood was sent so far to get tested.
https://www.youtube.com/watch?v=qP5RwYQadzw


Here is some positive news from me. At 2 months after my shot, I was able to somewhat start getting spontaneous erections. At 2.75 months after, I started having strong sexual feelings, and woke up hard. I ejaculated, and once again feeling vanished for now a good week, so I am waiting for it to rebuild.

 

[RisperdalAnhedonia]

RisperdalAnhedonia, I meet with an endocrinologist tomorrow, I'll be sure to ask about getting that level tested. Thanks

Thanks for cooperating looking forward for the results.

I encourage other members to check Aldosterone levels.

I remember when i was on the poisons my Prolactin level was elevated but it fell to normal levels after withdrawal.

 

[jennefren]

I was court ordered a year ago to take invega sustena injection. I had know idea what to expect. I have been living emotionless, feeling like killing myself on a daily basis, unmotivated and my self esteem is bottom of the barrel. I have no friends and my family has disowned me and I am sad all the time. I am working at a job and even my boss calls me a zombie. I have no motivation to do anything anymore. I like to smoke weed and it doesnt affect me and either does alcohol. When I am socializing I dont show emotions and I dont find happiness in anything. I just want someone to talk to that can relate to me.

 

[copperdome]

I was court ordered a year ago to take invega sustena injection. I had know idea what to expect. I have been living emotionless, feeling like killing myself on a daily basis, unmotivated and my self esteem is bottom of the barrel. I have no friends and my family has disowned me and I am sad all the time. I am working at a job and even my boss calls me a zombie. I have no motivation to do anything anymore. I like to smoke weed and it doesnt affect me and either does alcohol. When I am socializing I dont show emotions and I dont find happiness in anything. I just want someone to talk to that can relate to me.

Well you're in the right place. You will heal if you get off of it. It may take upwards of a year but it will happen. I have been off it 5 1/2 months... I thought it was 4 1/2 but I found out I was wrong when I went to the doc he told me it was last September not October. So I am glad because that's one month closer to feeling better. This medicine is evil, I can't wait to feel better and I hope everyone else is doing well. Inprovements do happen, at least in my case. I can't tell on a day-to-day basis but each month I look back I can tell I'm doing better compared to the month before.

 

[onegreenday]

When I refused the IS shot the Dr upped the nighttime dose of Risperidone to 4mg (from 2mg) for a night or two and then I took the shot because they said it would show my landlord (38 unit HUD Senior Housing) that I was serious about not bothering them anymore and the Dr cut it back to 2mg Risperidone (I have not been taking this at all since I left Feb. 15,2017. The Invega sustenna has lowered my blood pressure (I take diltiazem for BP as I am a bit hypertensive) and it has helped my skin rash called seborrheic dermatitis and I have less skin redness and flaking. I rode my bike Thursday March 2, (15 days after shot) for 2nd time 7 miles and after I took a bath I tried to get up but I got an excruciating muscle pain in my back shoulder (worst pain of my life) and almost passed out in the tub (saw black or darkness & had to lean over the side of the tub for fear of passing out in the water) so there is still some effect of the IS shot on my muscles at. I did get a couple cries in over my dead cat (I think his spirit is real close to me) but otherwise pretty flat on the emotions. I seem to be a little more alert and am getting organized pretty good but flatlining on some other emotions still exists. Higher levels of aldosterone could be a sign of an adenoma in the adrenals or hyperaldosteronism (which I have) and unrelated to the IS-shot.

EDIT: My bath was Wed afternoon and this morning Sat @ 5 am I have zero underarm odor and I did not use any deodorant after my bath. So I'd say it effected my underarm sweat glands somewhat as I would usually have some BO at this point.

been a victim of risperdal 4mg tablets and after that for invega tablets since 2010 my age was 23 i took them for a total of a month and half only. Then i cold turkey with scary withdrawal symptoms fast heart beating and electricity shooting in my brain with the strongest headache i ever had in my life I though this was the end.

before i was poisoned with this drugs i was very creative and healthy strong male. i was poisoned for the wrong reasons misdiagnosis.

its been 7 years since the incident i still can't feel pleasure from things i can't even feel orgasm after the incident till this day.

i also never had a headache since 7 years! my brain feel so numb.

my next target will be some hard drugs that may excite and stimulate my numb reward circuit hopefully that will work tried everything legal under the sun with a dr nothing works.

in 2012 the new doctor said i was misdiagnosed and should not given these drugs(poisons) in the first place

excuse my english not from a native speaking english country.

best wishes for all we are in the same boat we will survive

 

[copperdome]

I have to say, some of the posters in this thread are batshit crazy. Some of the content in this thread is just the ramblings of persons suffering from mental illness.

 

[copperdome]

@onegreenday: those are all typical withdrawal symptoms and side effects from the poison. your muscles will feel rigid most of the time and hurt at the most unlikely of times. your blood pressure and just about every other vital sign is going to fluctuate sometimes but maintain somewhat higher/lower than your used to because invega is an upper on the drug scale. under your arms wont be the only smell that will change. internally your body is being more compressed and heated up so noticing smells are different from your body is common especially around the time of first taking the poison and when your closer to healing. your pores will close up because every cell in your body is being accelerated to a higher pace plus the other nasty chemicals they put in the poison. i couldn't take a shower for weeks at a time, much like not being able to do anything else for long periods of time, and i noticed that i didn't have that B.O. smell more often than not. your anhedonia or flatness is probably the one symptom that lingers the longest and hardest to deal with, don't let it discourage you. your emotions will well up from time to time on their own and even the grieving process will fight through rarely but it is good for you to go through all the same. glad to hear you got a lil good bye to your cat and i'm sure kitty will be missed.

@iridescentblack: that's one of the better slogans yet. you and @HiddenSpectrum have jokes (dumb me down). good sign in the healing process. funny.


to the room: whenever anyone feels that dizzy feeling, like there about to pass out or see spots or anything else in there vision. please stay as calm as possible and get into a relaxed sitting position until it passes. it can be dangerous for falling purposes among others and no the docotr's don't tell you this. glad to see a lot of you are further along in the healing process and seeing signs of doing better. welcome to all the new comers. i see more things are being tried to not only find relief to the suffering but also targeting the poison in detail. all great stuff. heal quickly everyone.

You are right about the anhedonia lasting the longest and being the most difficult to deal with. I was so bad the first few months I would literally just stare at the wall all day and not even attempt to entertain myself. I would look at the clock every few minutes, just waiting for the day to end. I thank God that I can gain some entertainment from TV and games etc now. I'm not where I need to be, but I'm not where I was.

 

[onegreenday]

invegauser

Thank you your fine insights and words are reassuring but stuff got bad today I think it was consequences of the big bike ride the other day. I overdosed on the cannabis infused coconut oil AGAIN today even after cutting the dose in half (down to .8 grams) and my legs have been cramping for 10 hours after i tried to nap this afternoon 3/4/2017. I woke up again at 12:30 am 3/5/2017 major cramping only time in my life (64) I poured foot tub with cold water to help stop the cramping. It helped a little but super cold like Maine ocean water. I have no clue why I am cramping cause I take vitamins and plenty of water with 2 cups coffee a day. Anyway the overdose felt life threatening to me , it was that strong. I'm no lightweight on grass and had this same infused oil oil before IS and nowhere near as strong as this combo. 4-10X stronger than regular cannabis oil. Once again be super careful w cannabis oil & Invega sustenna it could be life threatening.

@onegreenday: those a
essure and just about every other vital sign is going to fluctuate sometimes but maintain somewhat higher/lower than your used to because invega is an upper on the drug scale. under your arms wont be the only smell that will change. internally your body is being more compressed and heated up so noticing smells are different from your body is common especially around the time of first taking the poison and when your closer to healing. your pores will close up because every cell in your body is being accelerated to a higher pace plus the other nasty chemicals they put in the poison. i couldn't take a shower for weeks at a time, much like not being able to do anything else for long periods of time, and i noticed that i didn't have that B.O. smell more often than not. your anhedonia or flatness is probably the one symptom that lingers the longest and hardest to deal with, don't let it discourage you. your emotions will well up from time to time on their own and even the grieving process will fight through rarely but it is good for you to go through all the same. glad to hear you got a lil good bye to your cat and i'm sure kitty will be missed.

@iridescentblack: that's one of the better slogans yet. you and @HiddenSpectrum have jokes (dumb me down). good sign in the healing process. funny.


to the room: whenever anyone feels that dizzy feeling, like there about to pass out or see spots or anything else in there vision. please stay as calm as possible and get into a relaxed sitting position until it passes. it can be dangerous for falling purposes among others and no the docotr's don't tell you this. glad to see a lot of you are further along in the healing process and seeing signs of doing better. welcome to all the new comers. i see more things are being tried to not only find relief to the suffering but also targeting the poison in detail. all great stuff. heal quickly everyone.

 

[iridescentblack]

^ I feel I can relate to this in a way with caffeine. Invega made it harder to tolerate caffeinated beverages. Sometimes I even feel 'strokish'. Had just a single cup of coffee yesterday and felt my left leg go suddenly numb. Fortunately it was back to normal after a few seconds. Invega made it also pretty difficult to tolerate weed, among other things. On some days I would feel okay, but others I would feel as if I were dying and in quite a bit of pain at the same time. I won't describe the other symptoms I felt. Hard to relive that.

 

[copperdome]

I talked to 2 of my friends in person who were on invega and neither one of them had any of these problems when they came off of it. I wish I had been that lucky.