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Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

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@SkavrsXeplion: i'm good thank you. how are you? yes, i can work. i'm thinking of starting volunteer work in the next few months to get back into the swing of things. i'm currently 66 months without invega/xeplion and still fully healed. you and Empty1128 seem to be getting along well, good to have familiar support. also good your getting it from others here. your frustrated and that's normal for what your going through, please continue to take it one day at a time.

@zack365: doing a lot of research and calculations. thank you. it's also a good sign in your healing progress. tell me honestly, could you have done all of this work say, 6 months ago? glad to hear of your improvements lately. good outlook going for you too. almost there, just a lil further.

@Yeshuah: your welcome, no worries. yes, you will get that way again. weird how it's different than it was before isn't it. thankfully it's not permanent and your lucky actually, not all of us men could even get it half way like you do. yes, i'm still healed. sounds like you hit a slight dip down in the healing process, that's a bad place to be in but a good sign. if things never got any better or worse that would be a bad sign. but seeing as you dip down a lil it means your brain and body needed a small time to rest before trying to push itself to heal again. this too shall pass.

what i mean by "my condition" is what got me put on xeplion in the first place. it's not a mental illness but it is a dysfunction of the brain. it is something no professional is familiar with so i call it my condition. no, xeplion has not ruined part of my physical process or any other part. i'm just weak in all ways that make up a human being. it's called atrophy and part and parcel of being a long term negative exception. it's been 9 years since i was myself and i was locked into invega time. it's nothing i can't handle and i've lived through worse (which i'm sure you can relate on with your trial, so can everyone else). i'm already much better since yesterday. i appreciate your concern and didn't mean to alarm you, you all have it hard enough as it is and your healing comes first above anything else.

@Empty1128: well soon i have gotten, good lookin out. it's not the emotions that get to me, it's other people acting and behaving like animals. no need to be like that during this time of year, it's all about sharing the love and not tearing each other apart. thank you for getting SkavrsXeplion settled in and showing them the ropes as well as the half life calculations. you seem to be doing better than a few months ago yourself. proud of you brother.

@Ali_Choudhry: sorry about the typo in your name in the welcome post. i fixed it. as far as getting a job goes it should be apperant to your parents by now (pun kind of intended, a lil bit) that it's not going to happen until your fully healed. this is why i say your healing comes first before all else. half of those who suffer from invega/xeplion can work and be active while the other half are stuck riding a couch all day. if you are suffering from the poison and currently not able to work then you will not be able to work until you are fully healed. that's not to say you shouldn't put effort into the healing process and anything else you do in life. thems the breaks.

that is definitely more than what i took. i only had 7 of the 156 mgs, 2 of the 117 mg and the starter dose of 156 + 234 mg. your not going to be a negative exception like me though plus you've made it this far while suffering. it's a good sign of your inner strength and a testament to you and what your capable of. if you do decide to stop taking the injection please let us know.

as far as your other two question go, we cannot tell you what to do as we are not medical proffesionals, we can only relate what has worked for us or has not worked. what zack365 (he's a pretty smart guy and good people) is talking with you about is how niacin has been used in the treatment of mental illness as well as what @poisoned_veins introduced a long time ago as a way to heal faster in our trial. please start with that first, respect your limitations and see how it goes if you decide to go that route. then take the next step from there. maybe it will help with the mania and depression or mabey it wont. you wont know until you reach that point. fingers crossed.

@Nvegasux: i'm surprised no one took that handle yet, good one. what you are experiencing is very typical (even the things that affect you as a woman that us men do not experience), i have talked with some women who have suffered from the poison as well as some have posted in this thread about it. so in general it's a good thing cause your gonna make a full recovery and get yourself out of your current situation. for the futrue (in case you find yourself in the same situation again. IF and not that you will) please try the oral meds, they are easier to get out of your system, easier to have the doses raised or lowered and usually have less negative side effects and withdrawal symptoms.

not getting high and drunk is pretty typical too and it sucks. we've talked about it a lot in the past. it's one of the ways people gauge their healing progress but not the only one.

thank you for taking the time to read our stories and we appreciate you posting yours. feel free to ask questions, read and not post, post, vent and even shoot the breeze. we also have two threads you seem to have delved into and plenty of full recovery stories. welcome to the thread.
 
@invegauser : yeah I'm very happy to find Empty 1128, I hope you can be stronger!
@Rosi : can you tell me how do you feel now? I think cerebrosilyn was a good supplement hoo f##k
 
@invegauser Thanks for your answer and caring. I am very sorry for you condition. Please try to eat very clean. Food is medicine. And keep taking the nutrients you need. My sleep got actually a bit "better" again. But nothing to be excited about. I go for a short walk more often now. Physically a bit better, but nothing huge. But I can see tiny improvements. Still got a long way to go.
 
@Ali_Choudhry : I can assure you that the niacin is a lot safer than injections and antipsychotics. When I took the niacin the first year I had no side effects. The second year I noticed that I had to scratch my skin. I had to scratch some itch because my skin was dry sometimes. If you think 3000 mg is too much. Take a bit of powder from inside. Mix it with water. This way I had maybe 10 mg of niacin powder (so very little) and mix it with water. I drink two or three sips and I feel better instantly. You can do both if you want. Niacin 500 mg pills with meals until reaching 3000 mg a day + mixing some niacin powder with water and drink it. Or you can do one of them. As you want :)
 
@invegauser : It wasn't very difficult for me to do so. I am pretty good at basic mathematics. If I had all the informations 6 months ago I could have done it imo.


Day 188

I had a run today, 4 km in 21 m 12 s.
Nothing noticeably changed these last few days. The roller coaster ride has ended for now. It's all about patience and making it until the end of this whole experience.
I am glad I can hang out with some friends from time to time.
 
@zack Don't you feel strange hanging around with friends? I feel like I'm not a part of the situation, can't hold conversations and not able to connect with them... :(
 
@ invegauser : Thank you for fixing my name. I didn?t really mind as my name isn?t that common to English speakers but your acknowledgement of your mistake makes me glad. My parents are very old school and don?t like to accept the medication can have a hold on me. They like to put all their faith in God and instruct me to pray more; I have done this and my intrusive thoughts linked to psychosis have diminished. So there is something there; I like to take both religion and science as my helper as well as this forum. Everytime my parents mention a job nowadays I bring up the fact that I?m unmotivated and can?t and need to get off invega first but they are just like that. Even though it is apparent to them that I need to be fully healed, they still like to try to push me into going outside and doing stuff; because all I do nowadays is sleep, go on my phone, eat and that?s it. My uncle takes me to his store once in a while and I get to have an outing but for the most part I?m isolated. My hygeine has gone down snd my room is a mess; I hope things get better soon.

I?m going to tell the psychiatrist at the hospital that I want to get off invega snd if he tries to convince me otherwise I will tell him my reasons and get off by all means. I meet with him in two days.

I think I?m going to take zack365?s advice and order the niacin pills but should I do it right away or should I wait. My next shot was supposed to be given on December 7th but I?m not going to let that happen. Should I order the pills right away and take them asap as they may take a few days to get to me.

Also, in the past I had a problem with my health insurance and the invega injection was delayed 2 weeks for me. In those two weeks I felt much better than I had been and not as lazy and unmotivated; almost manic but controllable. I think I should wair 2 weeks after my due date and then take the niacin pills. What do you think?
 
@zack365 : Thanks for all your help thus far. I think 3000mg is fine taking 1000mg three times daily. Many websites I read also recommended that. I will start small taking 500mg at first and then moving on up. I want to know if you had any liver problems at all. Also, how long have you been off niacin and free of paychosis?
 
How long until I feel normal again?

I was recently a victim of forced drugging of 156mg Invega Sustenna IM, supposed to be taken once every two weeks

I know that the half life of Invega Sustenna is really long and now I feel really sedated/shitty. My sex drive is zero and I can no longer sit or stand still for more than a couple of minutes.

I have realized my mistake and won't be getting another injection after the two week period.

I was wondering if I would start feeling like myself again after two weeks, or if I had to wait until the Invega leaves my system entirely in order to feel better.

It's killing me that I don't know if I'll be better after the two week period, or if I have to wait 200 days (that's how long it takes invega to leave your system)
 
mods, feel free to close this one out in 7 days if you want. or merge it (probably better).

@awesome31311: it's going to be ok, really. it's just hard. we call it a trial cause you come out on the other side much better off in some ways.

there's an invega thread called coming off of invega sustenna if you wanna join the conversation or just read. lots of info and people who are going through the exact same thing. we've had lots of full recovery stories, i'm one of them (finally).

just in case, i'll post in response here...

what your experiencing is typical, which is a good thing, means your going to fully heal and might do so in the average healing time or quicker.

it's good you stopped the injection, it would've only gotten worse (based off of many peoples experience). the healing can begin now. everything will be as it was before you took the injection, in time. i promise.

two weeks is a lil earlier. withdrawal symptoms are going to slack off around 4-8 months. your first window will be shortly after that. that's when you know for yourself for sure recovery is truly possible. the receptor that got targeted is the hope receptor and it's pretty vital in the day to day part of life and the long term. it's also the reason why your experiencing anhedonia; it's emotional void, makes you feel like a zombie. that's why we call the bulk of the healing phase the zombie phase. the receptor is not destroyed, just temporarily shut down. that poison is pretty potent stuff.

what the makers of invega say is 25-49 day half life. i know you can make it to 200 days. i know how hard it is, those in the invega thread do to. we got some things that make it easier and we're still looking for the antidote to the poison which is better than not having the possibility at all.

either way, hang in there. nice handle btw.
 
your welcome.

if you take invega and suffer from it healing comes first above all else. half of us can be active, go to work and school in a limited capacity. the other half are not doing much at all, stuck at home doing the best we can. the poison is one of the great divides in this respect.

working within your limitations, taking it one day at a time and putting effort into the healing process is all we can do.

it doesn't last forever. the receptor wakes up again, things return back to the way they were pre-invega and you'll leave this all behind you. going through this is hard but i have faith you can do this. i was an extreme negative exception, it took me 5 and a half years to fully heal, the average healing time is 8-14 months, some do it much sooner. we're all different.

the important thing is to hold onto what matters most and never let go. having people to talk to who are going through the same thing is a cliche but not so with invega/xeplion. only those who take it and suffer really understand what it's like. the invega thread offers a lot of support in this aspect. there are people in all different stages of the healing process. we come from all walks of life and different parts of the world, men and women, young and younger. you can check it out or we can talk via PM. your not alone, this will not last forever and you will fully heal.

hang in there.
 
@Ali_Choudhry: your welcome.

i think life is a balance including moderation and all inclusive. heart, mind, body and soul. science, religion/spirituality, society and the self. i'm glad science, faith and this thread have worked out for you so far. what you say exemplifies the positive of all 3.

your parents pushing you while recognizing what you are going through is a great thing. working within your new (and temporary) limitations is very helpful to the healing process. those outings sound very cool. i only had those during the beginning and they were mostly with people who were using.

i think it is best to start slow with the niacin and see how a person deals with it, we're all different. you can always try some consistently for a week then up the dosage from there. it's an effective way for most in the past plus it allows your body and brain to adjust to it gradually with what your going through.

i couldn't say on your insurance. you do what you think is best.

@zack365: my mistake, i forgot i'm talking with a math wiz ;). c'mon zack, your recovery post is coming soon.

@SkavrsXeplion: the trial made me stronger and now that it's behind me i'm already much stronger everyday. thank you.

@Yeshuah: i totally forgot to start taking supplements again, good lookin out. still eating the best and cleanest foods i can, gotta get back into fightin shape, haha. glad to hear things have slightly improved for you. the not feeling like your in the moment with everyone else is not totally true, just the frame of mind your in now due to the poison. nasty stuff. you recognizing it is a good thing, wanting to be apart of it a good thing and getting back there will be an even greater thing. you will too, in time. for now your one of the regular social butterflies here, no easy task. you seem to be able to articulate better than when you first started posting here as well, that will get even better in time as well. keep it up.
 
@Ali_Choudhry: I forgot to tell you. I tried to take niacin to heal faster from invega. Niacin is known to extract toxins from fat cells. It may be true but after a few days of taking niacin while withdrawing from invega my withdrawal symptoms from INVEGA got worse. I hope you can manage to go through these issues, maybe by taking less than 3000mg a day or finding a way that fits you well.

Best regards
 
@invegauser : thanks a lot for the support. I'll remember this experience my whole life but also the people I went this through with. Idk if I'll stay very long on the thread after recovery but I'll try to give people hope from time to time.

Day 189

The symptoms remaining come mostly from hormonal imbalance for now. invegauser : do you know if it takes a long time for hormones to go back to normal around the end of recovery?
I am dealing with fatigue when I exercise, and lack of motivation.
Maybe I pushed too much my boundaries during july and september when I did lots of sport. And that is why I can't do it now, I don't really know but I know for a fact that if I recover soon it was sure worth it.
 
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