Mental Health Coming off Invega/Xeplion (paliperidone) injections v. 10

[invega011024]

It has been 5 1/2 years since I been have been recovered from anhedonia**(got the injection may 2018 total of 3 injections)** and overall side affect from invega and 3 years stabled back on medication **(never dealing with injections again! only pills all i take now is 15mg of zyprexa it keeps me sane without killing my soul )**which was very hard for me to trust medication again after that injection but I had to get stable it was the only choice I had and best decision I made because I am at a point in my life 33 years old and thriving i never thought I be here but I am don't give up ever keep going for those babies mamas !

This makes no sense. Since the zyprexa is inhibiting your receptors should he still have anhedonia?

 

[IOSIP]

Bro but i read like 4 or 5 studies where ppl said it helped them, idk i havent fully decided but if i do it will be a very low dose less than 5mg , anything above 10 will be just like invega

Brother i know you want to fin

So I would be going to the doctor today. Hope he accepts my suggestion about apomorphine and cabergoline.

Keep us updated. Id hazard a guess if they are jabbing you up with antispsychotics they aren't going to start giving you these meds. But I coupd be wrong.

 

[IOSIP]

bro i have no idea what ur talking about, whatever u learned from receptors or the brain are just theories, the brain could very well work very differently.

Says the guy trying every drug under the sun to cure his anhedonia (just playing hahaha.)

 

[Pretty Green]

Wow, thats a long time for the anhedonia. I was forced the haldol when a male patient walked into my hospital room and was watching me sleep. I screamed and they gave me that. I will never forgive them for doing that. Then the abilify. Did you imagination come back and spirituality? Your love for your son? The feeling of the sunshine on your body? Sweating? Thirst? Hunger? Emotions? Music? Sorry for the questions. It just feels like a prison sentence and it’s been 10 months on July 20th

It has been 5 1/2 years since I been have been recovered from anhedonia**(got the injection may 2018 total of 3 injections)** and overall side affect from invega and 3 years stabled back on medication **(never dealing with injections again! only pills all i take now is 15mg of zyprexa it keeps me sane without killing my soul )**which was very hard for me to trust medication again after that injection but I had to get stable it was the only choice I had and best decision I made because I am at a point in my life 33 years old and thriving i never thought I be here but I am don't give up ever keep going for those babies mamas !

 

[WildSunShin3]

This makes no sense. Since the zyprexa is inhibiting your receptors should he still have Anhedonia

Well sorry to shock you but I have zero anhedonia i been on many medications since 2015 and stopped and started treatment for years invega injection what took me out ! After that injection I didnt take anymore medication even after I the anhedonia lifted i still went two years after that unmedicated until I had to get stable it was the worse episode went on a few I wasnt looking for something to fix my anhedonia or what invega done to me because that issue fixed itself I was looking for something to get me in my right state of mind and stable and for me zyprexa is what worked I haven't had any issues with it for the 3 1/2 years i been on it and i am very functional happy motivated and thriving on a lower dose. plan to drop it to 10 mg here soon as well .what works for some doesnt work for all do what you think is best for yourself . If you stay focusing on what medication will get you out of the situation you will go mad crazy and who knows when the time comes you might need to be on new medication again but you will be focused on the wrong thing instead of being healthy happy and functional .

 

[WildSunShin3]

Wow, thats a long time for the anhedonia. I was forced the haldol when a male patient walked into my hospital room and was watching me sleep. I screamed and they gave me that. I will never forgive them for doing that. Then the abilify. Did you imagination come back and spirituality? Your love for your son? The feeling of the sunshine on your body? Sweating? Thirst? Hunger? Emotions? Music? Sorry for the questions. It just feels like a prison sentence and it’s been 10 months on July 20th

Not very long with anhedonia I snapped back to life towards the end of 2019 ! I love my son and believe it or not during all of this i had a daughter who i love deeply as well she is 4 years old as of July 1st this is why I had to get stable on medication again so I didnt lose her and can properly care for her her and my son is the reason I keep on going I work as a massage therapist part time and just functioning and thriving in life right now you will get out of this i promise some chose to take medication other haven't after this unfortunate circumstances with the injection as for spirituality I am back into myself and spirituality I also feel the sun on my skin and the air blowing I feel everything hungry thirsty sleepy horny all of it that you can think of it but at a non manic level very stable level because I use to get manic before the injection and after I recovered from the injection I am schizoaffective bipolar type high high low low so I had no choice but to be medicated after my daughter was born 2021 . Your circumstances sucks I am sorry they were quick to give you the jab after what you saw and thought was going on but you will recover from this .

 

[Matthew01]

Wow,that's is very long time.In the period you were feeling like that, did you at least try to take some drug that would help with the effects, like a dopamine agonist? Did you ask your psychiatrist if there were any drugs that could help

Yes to all those questions. It did mess me up in a way that I initially thought it was forever


It took me about 6 months to see the first meaningful improvements and then 6 more months after that to consider myself somewhat functioning (not fully recovered but like halfway there)


From that point I knew that recovery was in sight and eventually I just got there

Hey are you still here?

 

[EsseWasGreat]

Wow,that's is very long time.In the period you were feeling like that, did you at least try to take some drug that would help with the effects, like a dopamine agonist? Did you ask your psychiatrist if there were any drugs that could help?

No, I never took any kind of dopamine altering substances other than the two shots they gave me.

The only drugs I took were a bit of Stilnox/Zolpidem for a few weeks and a couple months of Delorazepam, all under my former psych's advice after telling her about how those two shots literally had me sleepless for more than a month

I just took a few supplements (can't quite remember all of them 'cause it was a while ago, I did mention them in my older posts though) and they felt nice in the moment but they weren't all *that* impactful for the overall recovery

And no, my psychiatrist just kind of moved elsewhere shortly after misdiagnosing me and has since been replaced by just a regular therapist who has somewhat figured out that I've been treated like shit by pretty much all of my previous doctors lol


sooo yeah I have that going for me right now but really nobody helped recovering other than myself and the support of the past success stories I've read on this website

 

[Matthew01]

No, I never took any kind of dopamine altering substances other than the two shots they gave me.

The only drugs I took were a bit of Stilnox/Zolpidem for a few weeks and a couple months of Delorazepam, all under my former psych's advice after telling her about how those two shots literally had me sleepless for more than a month

I just took a few supplements (can't quite remember all of them 'cause it was a while ago, I did mention them in my older posts though) and they felt nice in the moment but they weren't all *that* impactful for the overall recovery

And no, my psychiatrist just kind of moved elsewhere shortly after misdiagnosing me and has since been replaced by just a regular therapist who has somewhat figured out that I've been treated like shit by pretty much all of my previous doctors lol


sooo yeah I have that going for me right now but really nobody helped recovering other than myself and the support of the past success stories I've read on this website

It has really been rough for you. I can't imagine living like this for a year, it's horrible.Why didn't you try any dopamine altering substances like dopamine agonists? Were you afraid of taking them? I read up some cases of them being used for antipsychotic effects.

 

[EsseWasGreat]

It has really been rough for you. I can't imagine living like this for a year, it's horrible.Why didn't you try any dopamine altering substances like dopamine agonists? Were you afraid of taking them? I read up some cases of them being used for antipsychotic effects.

I couldn't really feel the fear of taking anything, I *did* feel like the next thing to do for me back then was to die afterall

I simply didn't take them due to a matter of availability (I couldn't just order Wellbutrin or even the actual St John's Wort from just any online shop...not in EU at least), but also because of all the mixed results I've heard from other people who took them (like yeah some had positive results while others just had constipation and no benefits) and since my money was limited at the time I just went for the things I knew would 100% help in some way (like healthy foods and some supplements which have been suggested by some parapharmacists who were just willing to help out back then)

 

[InvegaAnon]

I actually got my period on time. I've been having 40 day long cycles but this time it was only 33. Funny thing is that I paused my metformin because of a colitis flare.

 

[WildSunShin3]

No, I never took any kind of dopamine altering substances other than the two shots they gave me.

The only drugs I took were a bit of Stilnox/Zolpidem for a few weeks and a couple months of Delorazepam, all under my former psych's advice after telling her about how those two shots literally had me sleepless for more than a month

I just took a few supplements (can't quite remember all of them 'cause it was a while ago, I did mention them in my older posts though) and they felt nice in the moment but they weren't all *that* impactful for the overall recovery

And no, my psychiatrist just kind of moved elsewhere shortly after misdiagnosing me and has since been replaced by just a regular therapist who has somewhat figured out that I've been treated like shit by pretty much all of my previous doctors lol


sooo yeah I have that going for me right now but really nobody helped recovering other than myself and the support of the past success stories I've read on this website

Hey good to see another person to share their recovery story ! If you dont mind me asking did you have to go back on some sort of antipychotic medication or you doing just great with out it since the injection . Only reason I am asking is because when I finally got out of my anhedonia my schizoaffective disorder came back full force and I went 2 years with out treating it then finally had to take a new pill form of medication which was the best decision for me at at least I feel great and thriving in every aspect of my life . I know everyone is different . I know you said you still continue seeing therapist happy you continued that even after your experience .

 

[EsseWasGreat]

Hey good to see another person to share their recovery story ! If you dont mind me asking did you have to go back on some sort of antipychotic medication or you doing just great with out it since the injection . Only reason I am asking is because when I finally got out of my anhedonia my schizoaffective disorder came back full force and I went 2 years with out treating it then finally had to take a new pill form of medication which was the best decision for me at at least I feel great and thriving in every aspect of my life . I know everyone is different . I know you said you still continue seeing therapist happy you continued that even after your experience .

Well to tell the truth I was misdiagnosed (or rather I was diagnosed with an episode of depression and behavior issues which led me to self-harm and even one suicide attempt but on paper they wrote I had schizophrenia instead) so I didn't really have to worry about relapsing (instead I had to worry about people thinking I would relapse *while* getting my shit together)

Though some of my negative thought patterns *did* come back, I am making the best possibile effort to not turn them back into behavioral issues which might just end up putting me back on the shots

My therapist did notice how well I'm holding myself despite life not always treating me so well (nothing to do with the shots, mind y'all) which is how they just let me go unmedicated without much issue


Sadly I don't have an idea of what it really means to live with schizoaffective disorder so I can't give good advice on that.

All I know is that living the healthiest, cleanest possibile lifestyle is what helped me the most to deal with the Xeplion/Invega shots in the long run (worked for both myself and a close friend of mine who *did* have a psychotic bout caused by drug abuse and also had a very negative reaction to antipsychotics much like the rest of us)



Once you get over the shots everything else in life just feels a lot lighter, you sort of just learn to appreciate what you have and become less scared of the things that really used to mess you up before... it's a nice feeling

 

[WildSunShin3]

Well to tell the truth I was misdiagnosed (or rather I was diagnosed with an episode of depression and behavior issues which led me to self-harm and even one suicide attempt but on paper they wrote I had schizophrenia instead) so I didn't really have to worry about relapsing (instead I had to worry about people thinking I would relapse *while* getting my shit together)

Though some of my negative thought patterns *did* come back, I am making the best possibile effort to not turn them back into behavioral issues which might just end up putting me back on the shots

My therapist did notice how well I'm holding myself despite life not always treating me so well (nothing to do with the shots, mind y'all) which is how they just let me go unmedicated without much issue


Sadly I don't have an idea of what it really means to live with schizoaffective disorder so I can't give good advice on that.

All I know is that living the healthiest, cleanest possibile lifestyle is what helped me the most to deal with the Xeplion/Invega shots in the long run (worked for both myself and a close friend of mine who *did* have a psychotic bout caused by drug abuse and also had a very negative reaction to antipsychotics much like the rest of us)



Once you get over the shots everything else in life just feels a lot lighter, you sort of just learn to appreciate what you have and become less scared of the things that really used to mess you up before... it's a nice feeling

I agree with you on feeling lighter. I been diagnosed with schizoaffective disorder bi polar type since 2015 (never touched drug all mentally illness ) so I have pretty much know my cycle when I am not medicate I was on and off different medication but I was under the impression that medication was to kill my mind so I would just stop taking it which lead to the find out so they medically overwrite me to take the injection invega may 2018 one of the worse medication ever .moving foward went through all what the shot did and made me feel like . Became what I thought was better the end of 2019 but this time I developed voice which I never had until I recovered from invega ..went two years unmedicated because I didn't want to go back to what invega done but it got pretty bad and I was having a baby so I went my pregnancy unmedicated and as soon as she was born I reached out for medication help and now I am doing so much better even before invega better .thank you for sharing your story . And just want to say it is crazy they gave you the injection because of depression and suicide attempt.

 

[Invegatorture]

When i’ve healed from antipsychotics in the past including invega I came back stronger than ever. With a new found perspective on life. I know this will happen again for me and it can happen for anyone whos hopeless. I was.

 

[TonyTonyChopper]

I have come to the conclusion that if you've had more than 6-8 shots of invega sustenna and higher doses , chances are you will not recover , this is permanent I fear. I can't believe theres barley any improvements after I had 10 invega shots . My mind is still blank, I still have anhedonia , 0 motivation , 0 attention span , 0 interest, bad memory, very slowed cognition. I had all these side effects when I was on the invega and they never went away and its been 16.5 months since last injection. So yeah if you have 1-2 shots of invega or other antipsychotics, you may recover. Big emphasis on may because not everyone recovers but if you had more than 6 chances are this is permanent and you should get used to it as I have.

 

[rawbanana]

Seeing people who got 2 shots take a year or longer to recover is not encouraging to me. A lot of these people had lower dosages than I did as well.

I’m not really able to accept this circumstance and I don’t believe I will recover in a year.

I also don’t have the patience to wait so I’m just kind of looking for the best way to commit suicide at this point. It’s sad but it’s the way it has to be.

 

[paranoid android]

I have come to the conclusion that if you've had more than 6-8 shots of invega sustenna and higher doses , chances are you will not recover , this is permanent I fear. I can't believe theres barley any improvements after I had 10 invega shots . My mind is still blank, I still have anhedonia , 0 motivation , 0 attention span , 0 interest, bad memory, very slowed cognition. I had all these side effects when I was on the invega and they never went away and its been 16.5 months since last injection. So yeah if you have 1-2 shots of invega or other antipsychotics, you may recover. Big emphasis on may because not everyone recovers but if you had more than 6 chances are this is permanent and you should get used to it as I have.

False. I received 3 months worth of invega and about 18 months of abilify and recovered more then 100%. Seriously i can lift twice as much now as when i was 20 and doing bricklaying

 

[Matthew01]

This effects of this forced injection i have recieved have lasted far too long. They only gave me 1 shot and it's almost been 3 months now,it should have gone by now. how much was the dose? Shouldn't my dopamine receptors be free now?

 

[iraistired]

for how long am i supposed to wait for emotions to come back? it’s been 15 months