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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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Hello Dixi, Rtp and the rest of you. I just had a mediport removed. 0nly used 100mcg of Fentanyl and 2.5 mg of Versed all IV'ed. They were very cool. They played The Gratedul Dead the entire time. It was very peaceful. Hope your all having a great day.
 
Congrats Speed King. That iv Fentanyl is a great thing. Im glad its out and youre cancer free. Thats so awesome man!!!

Rtp, how can you hold a cig in your numb hand? I think thats awesome!!

Banana, very happy you stiulator or meds are working. Being in less pain does make a huge difference. Im very happy and youre in beautiful NYC. I was born about 30 min from there so we used to go all the time driving in. Enjoy your trip and relief!!
 
P-E-E-E-E-P-S...How the hell are y'all? Well, those of us from Texas through Louisiana into Mississippi are experiencing the wrath of flash flooding. My brother lives in Houston. He and his wife are stranded in their home, as the streets are totally submerged. More rain is on the way tomorrow and Thursday. We're okay here, because we're on higher ground that the bayou states. Prayers go out to those who are displaced and homeless due to flooding!

Speed King... SO happy your procedure went well today. How are you feeling tonight?

closeau...How are you doing? You didn't answer my question about CO. Would you go back a few posts, and tell me what your thoughts are? I'm just trying to find a way to help you out of the shit hole you are drowning in. If I could supply a plane ticket for you to get to CO (to live near your daughter) would you consider doing so, sooner rather than later? I don't know that I can get it together, but I'll die trying if it will help you.

Anna...Congrats and Kudos on getting away for a few days. Change of scenery brings about change of perspective, without a doubt. My brother invited us out to his hunting land in the country on Sunday afternoon. My husband and I drove over, after I was certain the Linzess blast-o-squirts had stopped. It was nice to spend some time in the sunshine. We rode on the tractor bucket while my brother drove. We picked up some nice rocks to add around our pond here at home. I brought back an unintended guest...a tick on my butt cheek. YOWZER! Little bugger had drilled in, though I removed him. It left a nasty itchy spot.

HOLLA to everyone in our group and any who wish to join...Keep us posted on your (hopeful) progress/lessening of pain.

I'm still researching meds that will propel motility of bowels. I keep hitting the wall. There's Zelnorm/Propulsid, but off market in USA. There's Relistor injectables, but my insurance won't approve the $1000+ per month. I damn sure can't afford to pay out of pocket! Who can? What price POOP?
 
Hi Dixi. Glad to see your post. Thats some expensive poop medicine!! I hope you find meds soon and a Dr who has some balls to treat you!! Thats terrible about the flooding. When i lived in TX Houston was always getting flooded. In a bowl like New Orleans.

The CO trip is a work in progress and probably not gonna happen till my original plan of next Feb. i know i should go soon and i might. Would love to be there for xmas but i gotta find Drs and social servce help like foodstamps and public housing there is totally different than here. They have nice townhoms and such for cheap. So i have to find s place. Usually i could stay with my ex and kids but they recently had to move to my ex grandmas house so its tricky. I dont know if im gonna drive or fly. I wanna drive so i have a car and put some stuff in car. Maybe movers. Idk and to be honest it stresses me out when i think about it but it will get deslt with when time comes. Ive decided to move to Cheyenne Wyoming. Thats actually where they live so ill get to see her everyday. Its only hr and half from denver. I wanted to go to CO to get my medical marijuana card but i quit so no need for that. My daughter has to go to summer school so shes not coming. I hate it but shes 2 grades behind on math so she needs it. Her tescher sent a long email desribing her math erformace and its not good. I stink at math so idk how much i can help her. Shes getting special tutoring. Saddest part was my son saying i did good like you told me to dad so im coming there right? Past 6 yesrs hes had to stay and go to school and Clo would come. Now that situation is reversed and he cant come, it sucks. I just flat out cant afford him or plane tickcet. He took it really well so everythings all good. I want to thank you Dixi for offering to help. Youre such a kind person and i wish i could hug you for your offer!!

So, i sit here on my bday with 2$ in my pocket. For the first time in 6 years or so i lost my wallet. I cant explain wtf. I remember getting out of store and putting it in my little compartment in backpack and came stright home. Went to grab backpack and wallet was gone. I looked everywhere!! So frustrating. I mean, i dont think it was theft cause i have this place set up where to get to my backpack you have to get over me so i would wake up. Idk. Now the ardous task of teplacing my stuff. My last 48$ was in there. But.... Then my aunt text me saying she has something for me. It turned out to be a check from my moms estate. I cried. Even in death shes helping me. Took to bank but bc my acct was in negativve funds wont be available till tomorrow and that will only be 100$ with ni id. No id is fucking me up so im going to bank in morning then to get duplicate license. Whew!! So i will be staying in today cause i have 2 bars left in gas tank and so idk. Kinda depressing, i know.

So i worked some the other dat at my friends lab. I learned i can still do it and i cant work. It was a standing job and i had to sit down every 5 min which sometimes i couldnt cause i was working with plaster so it was setting up. My groin and abdomen hurt so much when i left. Made me think hard how i would have to deal with pain at work. Idk

Well, thats enough from me. Im gonna go get a fountain drink for 76 cents. Thatyll be my bday present, lol. Good to hesr fr
 
Hit the wrong button. Glad to see a Dixi post. Glad everyone seems to be doing well which warms my heart. Take care pain peeps. Shitstorm out
 
HaPPy bIRthDaY, man!!
9k=


So sorry about your wallet. Man, that sucks. I would pitch in for plane ticket, too. We're here for each other.
Seriously, who understands like my pain peeps on what it's like to 'live'? Now my leg pain and numbness is back, but my back is so much better, I don't want to say anything. It sucks that I'm afraid to walk too far, for fear of falling down (happened a few times).
RtP, holding a ciggie is a good sign, right? Damn, sometimes I really want a cigarette.

SK, glad your procedure went well, and that you're cancer free!

Dixie, glad that you're SAFE! I saw some of those videos. How horrifying. I saw a group of random people grab a rope and help a stranger out of his car, by tugging and pulling him through the water. That's how it should be! Why does it take disaster to get people to realize that we should be helping each other all the time?

How is everyone else? Kattmomma? Check in...
 
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:) Indeed, Anna...This world could be a better place if we all reached out to help our fellow man/woman. I'm sorry you're still having pain. But, you know what I'm gonna say...slow and steady wins the race. Be kind to yourself...slowly, but surely you'll get there.
 
Okay, Dixie, I'm impressed, and that looks SO much better than mine, which I can't even see! But I'm on an iPad...is that why? Can you guys see the cake I pasted?
 
LOL, Anna! I wasn't trying to compete, I promise. =D I didn't realize you'd pasted. I don't know why we can't see it, but it's a black box with an X in it.

Hey....Wouldn't it be GREAT if we were all together to share that cake with closeau? I think Anna should add a little sum'n sum'n to the recipe. God, I could use some good cheer right now.
 
No, so glad you put something nice in there for him! I switched to my laptop, and I STILL can't get it to stick!
Man, I would pull up a couch to that party! We could eat goodies, and then giggle, and munch some more! Then watch bad tv and compare scars. Am I right? Damn, we know how to throw a party!
 
Hey to all my pain peeps I got some strange news from pain clinic if I could pay the 95 today or tomirro I could get in before thexvstart waiting list

Have a good day km
 
Hey katt...Are they a legitimate pain clinic, not a pill mill? I'm asking because it does sound strange that they seem to be "negotiating" with you. I may be reading this wrong and you've actually found someone who's trying to help you out. Will that $95 got toward the cost of your first office visit (new patient)?

I have the good and the bad of pain management, I guess I could say. I live in a rural area, 2 hours from big city hospitals. We have a Pain Center chaired by my pain doctor. It is under the umbrella of our local (rural) hospital. It's "good" that I know he's legit (though bat shit crazy IMO). It's "bad" in that getting him to accept you as a patient requires jumping through hoops, because of supply/demand of CPs who can't travel 4 hours round trip.

I say that to say this... I was initially told in November that 1st available was February. Well, my ortho had referred me, but was letting me fall through the proverbial cracks. She hadn't submitted records or advocated for me. I assembled my own records through multiple faxes, etc. and submitted with a cover letter stating my needs/expectations (and mucho ass kissing). I was in like Flynn by December. Crying fucking shame, but we who suffer have to be our own advocate.

I hope you have success with actually getting your pain "managed". I have not. He's more than eager to write for the big guns, but my GI won't tolerate them. I'm between a rock and a boulder.

Sending good vibes your way...
 
Happy birthday Closeau n yea that really sux about ur wallet n it was great that u did a little work but it told u that u reallyy can't I know how bad it is to not be able to work I wish i could but no I can't without it taking away full disability which would take away my insurance what little it does for me ..
Dixi hope y'all are staying safe from the floods I sent u a pm but I don't know if u have had a chance to read.
Anna I'm so glad that u are able to get out n enjoy ur self...I was raised in NY lol
SK.I'm glad that u got the port taken out n u are cancer free..
And how in hell could they say if I had the 95 today I could get seen before they start going by a waiting list next thurs there is no way I could do that.I get paid next Fri..but I will just have to do what they say n wait.damn this crap is getting old..I wish I had something besides tramadol oh well it doesn't really matter...
Have fun n stay painless my friends. KM
 
Dixi yes it does sound like they are negotiating n yea the 95 would pay for first visit they are in process of getting Medicaid...so maybe they will
 
HAPPY BIRTHDAY CLOSEAU!!

Hopefully this time next year you'll be back with your children. Sorry to hear you wallet went Amiss especially on your birthday but think of good things to come ❤️

SK, good news all went smoothly!!

Dixi, lactulose is what I was thinking of! Unfortunately I hadn't used it in many years as I did as an uncomfortable teen growing up, but (& I know we're very different), a triple measure of that can completely clear me out within a cpl hrs! Sure you've tried the equivalent but never hurts to mention such things...

Yes Kattamomma be careful where u go & whom u see. They don't always have our best interests at heart.

Ps: cig in hand, between the third & fourth fingers xx

Rtp
 

RIP PRINCE...

Jeez, I'm literally nauseas and crying. I know it dates me, but I have no shame in my age game! His PURPLE RAIN era was such a part of my life. If his music didn't light your fire, IMO, your wood was wet!! Can't tell you how many times we saw the movie. I bought the white guitar like the one he was gifted in the movie. I surprised my husband with it way back then. I still have the original purple vinyl.

Music has always been an anti-depressant for me. It lifts my spirits on most days. I like a wide variety of music, but PRINCE will always have a special place. Never liked the fro...preferred the original pompadour, ruffles, satin and boots...

Hope he's gone to where the horses run free.


:? Anybody heard from closeau today? He's having a string of bad luck, so I'm concerned.
 
Im here everybody. Jeez, i leave and tons of posts. First of all thank you for all tjhe bday wishes and Dixi, the sign was beautiful. My bday was pretty crappy but getting wishes from my pain family warms my heart so thank you!!!

Katmomma, be careful bro. They could take your money then put you down on list and act like they dont know whatbyour talking about. Having said that i would pay myself cause im socknof Tramadol and im hurting. Use good juggement but do what you gotta do. Sounds like a pain mill but whatever works. Good luck bro!!

Rtp and banana, im glad yall are doing better. If im wrong im sorry and yall correct me. Thank you both for bday wishes

Finally Dixi. What can i say. Youre amazing. Hurting but cant have good pain meds cause of why your hurting. Aaaaggh!!! How the hell do you keep it together suga? Im so sorry youre litterly stuck. Dam you dont deserve that at all. Im having trouble with that. Bad things happening to good peole. Im sick of seeing it. The soliers? Nobody better than them and the come back blasted to shit and have battle recall (ptsd) and are stuck going to dingy VA's and have some but little help mentally. Its like you Dixi. Its 2016, why cant they hel you. It frustrates me very much. E

Either my pain is getting worse or tolerance is up cause im hurting pretty good. I personally think its anxiety. Its just been this week and with the wallet and shit its pretty easy to figure out. I frget my morning kolonopin so ive made sure i start the day with one and 2 Vistaril. I got all my replacement cards coming and got my license dupicated today so tomorrow im gonna go get a crappy wallet and il be set. Im getting a velcro one so if it was stolen ill hear it rip if their stupid enough to open. Ill be sleeping on top of the wallet from now on and cleared a little stash spot for my meds. If they can get to my backpack they can get to my meds. I thought roto rooter was coming by to fix pipe today. It was 4000$ for a trench to be dug so they being her her bf and her son dug it and put pipe in now that damaged pipe needs fix and well have water but she came home and sounded drunk. She doesnt drink but is a pill dumpster and she slurred some shit at her son and is flat passed out. Its really pissing me off. This isnt first day shes done this. I went from a landlord whos like a granddad to me and would fix shit immediatly to this. Im going to a complex here in durham. Its not great but not too bad. Im building a plan right now. If i dont get out of here ill go crazier than i already am

Finally, Dixi im so glad you mentioned music. Its so very theraputic to me. Even at my old house i had headphones on all day. Then occasionally a song will come on that moves you emotionally. Very theraputic. I cant say i play cause depression has killed my motivation but when im mentally healthy i play guitar and write tons of lyrics. I even write raps sometimes. I want to do it rest of my life. Music is my one passion on earth and back in the day Prince would kill it!!! Im with ya Dixi. My favorite band Ween covered one of his very racous songs from 70's and its great. His music was great before Purple Rain. Anyway, thanks again everybody for the bday wishes. It was nice to see the board so active. Everyone have a good evening or whatever where youre from and much love?
 
Closeau what a long post u made not that anybody will mind hearing from u we all do worry about each other and their n each ones individual aches n pains..
Dixi I didn't know anything about Prince n I always loved his music too..
Anna how are u doing are u back home yet n is the scs helping u more I hope it does for sake I wish I could just have a surgery that would fix me so I wouldn't need to take pain meds.
Everybody stay painless as possible. Km
 
Yeah Katmomma, i do the same thing in my texts. I guess im just lonley and when i type shit justvflows out of my mind. This one will be short.

I hope they can fix your back too. Pain meds should really be a last option. I still think Drs are too tight with them but opiates sre just so dangerous. Unfortunatly im stuck with mine cause the two things that require pain meds are lifelong. Ive certinatly had my issues with them in past but to be honest taking them as prescribed helps the pain much better.

Ive been on both sides and thats what ive come to learn. Plus since i take them right i dont have the abuse guilt which can be paralyzing.

Everybody else i hope you had a great day and hopefully well hear from yall tomorrow. I thought about you today Dixi cause i went into new tobacco store and i looked around and nect to the Kratom they had what said THC oil. It was 60$ for a little bottle. Im sure it wasnt legit cause they just cant sell THC here legally. Plus i think you were looking for something different than that. Have you ever tried Krstom? That may help you. It wont help you poop but certain strains may help with your pain and uncomfortness. I used it after hospital and it worked ok but apparently if you have high opiate tolerance its less effevtive. Mind you im assuming you dont know much but its all over this site sobyou prob know more than i do. I got the green strain for energy and it did give me avboost. I wanted the red strain cause it mimics opites with painkiiling prpertied but was advised not to bc my opiate tolerance. I was gonna get white cause thats like a mix but never did. Something to ponder. Yall take care
 
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