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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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closeau...Thank God you've headed to the hospital. Geez, I wish one of us was close enough to Duke to be with you! It's going to be okay. I'm thinking maybe when you fell on the stairs a week or so ago, you hurt your belly. It could also be that hernia. I pray surgery isn't necessary. But, if it is, PLEASE get on the phone with family members and ask for them to come support you through it. You don't need to be alone.

Please (((FEEL MY HUGS)))
 
:? closeau...Update, please! I see where you posted on other threads since leaving for ER. I hope this means you've gotten the medical help you needed. Can you let us know?
 
^How resourceful of u to think of checking that out Dixi! Though I thought it appeared Closeau posted last a few mins prior to posting here re:ED.

Hope he's ok too :(

As I told you all, the physio I'd been seeing almost long term suddenly went on paternity leave with no warning to me. I wasn't even handed over to another physio at the group, just slotted in with a young female who only had a few notes about me.

Saw her the second time ystrdy, & at the end of our session she said she thought I'd better wait until David's back. Lo & behold he is back & I ready was in the system as seeing him today.

Let's see how we go now..

Wish me luck!

Rtp
 
:\ You give me too much credit, RTP. I will go to any lengths to make sure my pain peeps are okay. He posted 3 more times on other threads after the last post here. I simply clicked on his profile to see latest posts and send PM, to check his status. I'm hoping he had his phone to keep him distracted while he waited to be seen.

closeau...I've cleared space in my inbox since notification that it was full. Please RE-SEND your message to me. I'm concerned. We all are! If you have to schedule surgery, is there a way to keep us posted/we can reach you (through text or email?) I hope it doesn't come to that, but if so, we all want to offer our "cyber support".

Okay, now...back to RTP...I'm happy to hear you saw your PT today. Please stand your ground on "GENTLE" as in no deep tissue massage or manipulation of spine. I know you are aware of the many "comfort modalities", including warm moist heat...but do you have a TENS machine? Perhaps ask if that would be a possibility to awaken the nerve conductions. Doll Baby, I know it's not a OSFA prognosis, but trust that you will grow stronger and regain the use of your hand/arm. Please keep us posted.

Tinker...Please feel free to rant or celebrate HERE. We share everything from happy to frustrated to un-consolable to suicidal, to the other end of the spectrum of just plain ole silliness and laughter at our chronic pain experiences. Come find a comfy place and stay a while. We help each other as best we can.

SKR...I feel the heartbreak and love for your wife and child. You can be the husband/father you want to be. Pick yourself up, shake it all off and move forward, my brotha. I think you are a prisoner to your pain, and the constant search for something to relieve it. As I've said to you before, the thoracic section of the spine is a bugger to treat. You may just have to come clean and consult a neuro, if you've not already. You probably have (I'm sorry) I'm just trouble-shooting. Whatever you do, don't let the black dog of depression and self-loathing consume the white dog of all that is good and kind. Choke chain that black mofo, before it gets you further down.

I can talk, huh? If I'd had a gun, I'd have tasted lead last Thursday overnight into Friday. I was in so much pain and misery, convinced my hubby would be better off without me. I couldn't leave him or my Dalmatian...not just yet. I honestly don't believe I can stay much longer in my condition, with no hope of improvement.

I pray we get good news from closeau. Until then, nite-nite y'all.
 
Ok so sorry for the delay. I typed a long message last night when i got home and it said something like yime had run out or one of those bl warnings so i actually fell asleep as soon as i started retyping. My fauly

Well i have an ulcer in my tummy. Shit hurts this morning. The popped iv in me and off to ct scan. Oh yeah, i got lucky and only waited an hr but there was a gangfight in the waiting room. No shit. Bloods and crips. Its a usual occurence there you just hope that you dont see it. Huys were walking in with their guns even though theres a metal detector. So back to it, ct scan showed it but they werent sure so they were gonna knock me out and stock camera down there. For 30 min i was dreading it them him and the attending came in and said they have enough evidence for ulcer diagnosis. They asked me a bunch of questions and left and that was it. They said ityll hurt for 2-4 weeks and im ike urrrgh. Eat apples and bananas and stuff with low acid. All i injest now is protien bars and gatorade so the attending asked me my stress level and ivlaughed and said thru thevroof so she said that prob contributed to it. I cant help worry. Im telling you people, im falling apart piece by piece. Could have been a lot worse so imvgrateful it wasnt but it coulda been nothing too. Feels like a match is lit in my belly. Anyway, i left promptly bc i wanted out of there so bad. I hate that place. So i dont know the medical term but ulcer about size of a nickel he said. He said dairy products will ease burning but i hate milk. Might go get some chocalate milk. Anyway, thank you for your concearn Dixi and im ok. Well im managing. Just cant take much more. Im more worried about my mind than a dam ulcer. Ill be on a lot yoday so see you guys out here. Thanks
 
:) Good to hear that surgery wasn't necessary. Yogurt? Very soothing/healing for tummy. Find a fruit flavor you can tolerate and eat it daily. Peach is my favorite. You can even get the Vanilla "tub" and add your own fruit. It's worth it. Do it.

Headed to terrorist pain doc this morning. Gotta run, er, limp!
 
Yeah, they said yogurt too. Good luck at your mean Dr this morning. Let me know what happens.

Rtp, thanks for your concearn. How are you today?

SKR, im thinking about ya buddy. Hope youre hanging tough as you can.

Love yall
 
^thanks mate. I did the same with my PM back to you - BL timed out and I lost the lot! Dixi - it's coming honey I've saved what's written so far in a notepad, I hate losing posts they're some of the best posts written and never read. RTP - your PM is in the same boat, it made it closer to dock but is still adrift at the moment. I wish pain was euphoria, fuck we'd all be helium balloons bobbing along the ceiling together lol. Take care.
 
Wow! I missed a day or two and so much happens!

closeau, I'm glad you know what it is, and that you didn't need surgery, but ulcers are no fun. I'm sorry you're in more pain. Did they up your pain meds for it? Stress is one of those things that is hard to fight. Did you say you did meditation before? That may help overall stress. I do wish we were there to take care of you. I would make you a hot cup of tea, put on your favorite terrible show, and wrap you in a blanket.

RtP, glad your guy is back.

Dixie, I can't believe it's that bad again. I'm so sorry, my dear. Your poor husband; I'm sure it's hard for him to see you in so much pain, and not be able to do anything. But he does need you. Wish I could fly you to Boston to have amazing surgery to fix things up.

For me, the spinal cord stimulator is finally working!! I haven't thrown my back out in 12 days! Keeping fingers crossed...

Hugs and drugs.
 
Hey banana. Thanks. I wish yall were here too. What you said sounds great. It be nice to be taken care of period. I havent dated since my ostomy and my mom would take care of me before she died. Dam i miss her.

No they didnt up my pain meds. Only the pain clinic can do that and i dont go back there till the 5th so it should be healed. They did give me some dilaudid in my iv yesterday. I told dr my tolerance is high so they gave me enough for a nice peace. I also got one before i left. Its hard not to up my dose today but then you go over and then your behind. It feels like someone lit a match in my tummy. Uuugh. I need just some good news soon or im gonna blow. This always bad news shit has run its corse with me. Im mostly worried about my mind. The ulcer will heal but im locked in maximum stress.

I do meditate but havent in awhile bc its too loud here. That would def help. Oh well. Im glad your machine is working and thanks again. Take care banana☺️
 
^anna, I love that this phrase continues through this thread, -this too shall pass, this too shall pass. Or one I'm not sure if I posted publicly or just PM it occasionally from Finding Nemo,- just keep swimming, just keep swimming.. So glad your scs is in place & wrkng. We'll tick you off the list here. *jk ?

It keeps me sane & calmer to have mantras when things seem bleak or simply out of my hands, hope others can find some solace in those moments too.

Yes,so much going on! Closeau, glad you're not in surgery right now even though an ulcer is not a great result for you. Can u eat mashed potato? Very alkaline & added dairy depending what you personally like to add to it. Milk, butter, cheese is sweetchildofmine's fave.

Can relate to you saying it feels like a match has been lit on the inside, my thumb, pointer finger & partial hand feel as though they've been dipped into a deep fryer!

Dixi, terrorist pain doc? let us know how you get on with dr evil, sounds like something outta those crappy Austin powers movies lol. Though I'm sure it'll be far from lol for you! Ps: what's an OSFA diagnosis?

The physio appt went really well, I found out he's firstly head of the clinic I go to, and then the local spinal clinic too . Which reassured me. ..Also he's an occupational physio for the traffic accident insurance scheme we all pay for over here in OZ. So he's not afraid to write to them telling this difficult mob that I need treatment for neck & spinal structural problems & I require ongoing funding & taxis to attend his appts.

He had me face down on a massage table, & performed a very gentle kind of rolling motion around my neck,- hugely different .& more easy than last time with the young girl.

I mentioned that I crack my back (intentionally) often trying to relieve arm/neck pain, so he asked if he could do some gentle cracking. Deep breath in,- out & he quickly in motion cracked thoracic, mid upper, then just down from my neck. In a very fast few movements. He also gave me a few new exercises at home.

Left feeling a bit sore in my shoulder/arm area but ok. Taxi was taking me home for 45 mins until next taxi picked me up to take me to my first hydro session since before last August, it's taken that long for my drs to give the ok & the physio at the hydro cntr to approve!

Not meaning to sound racist, (I'm not), where I am in OZ most of our cab drivers are Indian. Some are amazing, open car doors, move front seat fwd etc, then some are just rude pricks.

This one beeped twice two doors up from my own driveway. Remember I have an elbow crutch on my left & a useless right hand/arm. I generally expect them to pull into my drive after I've booked through a special services phone number.

Most of the drive was fine, though he was kinda speeding. The catalyst was when approaching a major slipway I had my head down focused on my phone for a moment & for whatever reason he suddenly braked hard,-enough for my head to jerk back then forward again & my seatbelt to lock up.

I was in silent tears and we were only moments from the entrance of the rehab cntr my hydro is based at. I asked him to let me out before going inthe boom gates as it was gd for me to move around (felt safer to walk the rest of the way in :/), my neck was tortured!!

My hydro physio put a neck device as well as a flotation belt/running belt so I could do as much jogging or layback & try to make pretend snow angels with my atrophied arm (well,both), &'I could just float in between. So nice in a 36 degree super deep pool :D

Sorer neck than ever today, but see my primary physician a cpl of hrs away tmorro.

Lk fwd to ur PM SKR, best to all of our troubled souls before BL or my iphone glitches

Rtp xx
 
Hey everybody here ...Anna I am glad the scs is working for u do u still have to take meds along with that ....
Closeau I have kinda been away from this thread n bl in General..sorry to here that u have an ulcer but it's good they didn't recommend surgery ...maybe the dairy foods will help...as Dixi said yogurt is good for it n tastes good too..
Rtp..so r u back from ur vacation...I just went bacthru the thread n saw that ur normal physio guy is back I hope that he helps u more than he hurts u
Well guys I told the nurse at my Dr to send the referral to a couple different pain clinics these people so damn slow at getting stuff done...the first one still hasn't went over my records n decided if they would help me or not don't have a clue why it's such a slow process..I have never gotten dismissed from a pain clinic ever or failed any drug test which that will get u kicked out...just waiting ....
Dixichik...u have a really good man in husband I Have a pretty good one myself. He can see in my face if I'm in pain n does a lot for me...he even does laundry n dishes...so I can't complain about him..n yeah I'm actually not on Georgia line..didn't realize u were in Mississippi damn I wasn't sure I spelled that right...lol...we have some things in common....I will message u tomoro.
Good nite all everybody stay painless as u can...peace out ..km
 
Hey Kattmomma, I'm in OZ so not familiar with your area. I don't understand though why a pain clinic would look through your records before knowing if they can help & accepting you.

Shouldn't you have the choice of which clinic you attend? Luckily it sounds like you have a cpl of options.

Completely understand about the slowness of actually securing an appt!

Over here the majority of PMs are/or have a background in anaesthesiology. So they have an excellent understanding of every part of our bodies.

I know some clinics believe more in multidisciplinary programs & others in interventional methods.

My PM who I was with for many yrs was a great believer (& money spinner), in inpatient ketamine infusions. I used to be admitted to a private hospital (along with a handful of others he had on a rotating list), every six to eight weeks.

I'm so happy to say that due to a change in drs/meds, I've not needed to have an infusion in eight months!!

My neurosurgeon has referred me to what he calls a "lovely, great, caring guy", as in a PM dr within the same group he is with. Which also means more travel :(

As it's pertaining to being hit by a vehicle, it has to be approved by our traffic accident commission,-an insurance company.

For I did get kicked out of my public pain unit twice where I live for not attending appts I'd not written in my diary. My cognitive issues are such that if it's not written down I'll forget about it in minutes. My dr has referred me now to a neuropsych.

I myself fired my private PM after he reduced my opiate intake not long after my accident. That was cruel & heartless of him,- although he was as upset as I was & said he didn't want to have to attend my inquest after I began self medicating & I, after several years of doing such & then running out & wding each month, had to confess. I was tired of living like that.

Anyway, I'm good now. My chronic pain is well controlled & I saw my main physician today & had a script filled for some pain relief for my right arm. A little surprised she'd write anything, but it's helping a lot!

Healing vibes Cpp's ❤️

Rtp
 
Hey rtp sounds like your on cloud nine! Enjoy.. Ive been busy being sick myself lately and havent been feeling the best, thats why im so quiet. Was at my pain clinic yesterday and dr said i should stay on the morphine as its much cheaper in the end and get off the patche as i couldn't afford them even though they help best with my pain overall. I think fentanyl patches s potecy are completely underestimated meaning fent in general. So she prescribed me an extra bottle of morphine syrup in the end as i was asking her to increase my dose. She said i shoud use this bottle as for "as much mg as i need to" when i got breakthrough pain which i think was pretty damn cool of her hey? But that bottle is stuck in my head and now obviously i wanna drink some extra.. Its really tempting i must say ive already failed twice.. But i guess thats the boat were in once you've been bitten by opiods its hard not towant that calming warm blanket wrapped around ypu feeling hey?

Should state my pain is better tho and for that im glad. Cant imagine how much.. Closeau i feel like you too its like this chronic pain terns you into a hermit. And my heart goes out to you with your bag bro.. Really. This disease, chronic pain of course causes so many mental problems imho depression, a feeling that your inferior, being punished, or just plain got the short end of the stick. Then we have to advocate for ourselves and reason with doctors about dosages ect sorry im whining but just needed to say that.

Dixi these big pharm companies are keeping us from the drugs we need i feel for your colon.. Have you ever tried liquid paraffin? Just a suggestion anyways. Keep well my pain pals..
 
Yup Stepx, thats how i feel. Im on heavy duty pchy meds but like my dr and i talked about, they can only do so much. Hermit, hatred of people, major deression, all cause of my pain and bag. My life in every area is fucked up right now. Im just surviving so if i catch a break ill be around to reap the benefits. Im def cursed i believe. I turn 41 in 5 days and i have nothing. And to be on these pain meds and still be in pain is frustrating!!

Sounds like you scored with bottle of morphine. I couldnt have that. Id guzzle it, lol. MS Contin sucks for me but my insurance company doesnt cover Exalgo which is er dilaudid. Both my dr and heead of pain clinic want me on it. Well, im glad you got some relief!!

Rtp, same goes for you. Hearing your pain is under control makes me happy. You deserve it. Ketamine injections. Im gonna look into that

So im getting out of this house. Theres 4 teenagers here and i can hear them over my headphones. Anxiety is not good for pain. Good to hear some good news from yall
 
Hey everybody it's Friday n it will be two weeks til payday I am just trying to get by on tramadol until I get in a Dr..
Rtp.I'm glad ur pain is under control now n ur primary Dr gave u something for ur right arm..
Closeau how are u doing today I know that anxiety is not good for pain it just makes u feel worse I'm kinda in same boat w my nerves shot I am on buspar n hydroxyzine for that but it don't work real good..I wish I could just get my pain controlled it would help immensely..gotta go for now...km
 
Hey Kattmomma. Sorry your stuck with tramadol. That shit sucks in my opinion. Prob bc its barely an opiate, if it is at all. Idk. Ive taken high doses several times and i swear Tylenol is more effective

Im not
 
Sorry i hit wrong button. I am not well at all. The pain and my ulcer pain are raging due to my stress level which is thru the roof!! I also take hydroxizine 50mg 3x day and Kolonopin 1mg 3x day and im on my 3rd already today. I took my morning dose but if i feel an attack coming i can take 2 so i did about an hr ago. Hit me like a brick. Dizzy, heavy breathing, numbness in extremeties. I popped two and my hydroxizine and put some nice acoustic music on and put rag on my head. Common practice for me. I have to do it at least once a week. Thank God for Kolonopin. Its the only benzo that actually can stop an attack. When i was on Valium they were bad. Crying and screaming and last forever so i told my shrink and she said these will help or even stop an attack. And she was right. My depression is feirce right now too. Meds only do so much. Im still trying to process my moms death and now this financial burden is killing me. I have 62$ to last the month and ive already overdrafted my bank acct so im screwed. I did get 50$ from my dad for my bday next week but its a check so i had to get him to send cash so that wont be here for awhile but bank wouldnt cash it cause im in negative and check cashing place wanted 17$ to cash it and another one wouldnt even do it. I told him last week to send cash but hes almost 70 and his memory aint great.

So the mental anguish is wreaking havoc on my pain. Im so sad and miss my mom cause she would know what to say to me to bring me back down to earth. Im fighting the urge to abuse my dilaudid which a few of you know but everybody on this thread is my friend so its ok. Ive been up and down with it all year but havent abused in quite awhile now. I know from my recovery from alcoholism that it wont make it any better it will just add guilt to the list of negative emotions. I cant live and i cant die. At least if my daughter were here i could be a daddy. My friends both of which are like brothers and even my buds in AA are all busy with their families and lives and rightfully so. Anyway i gotta watch my gas now so heading to meetings might have to stop. The clubhouse is the closest but its still pretty far. I called my shrink pharmavcy and thank God they have a program bc i need lithium which is cheap but my kolopin is like almost 20$ which used to be chump change. Now its too much. I am very fortunate to have a great place with my shrink and pharmacy on sight

Ive tried exersises to combat this mental assault. Ive made gratitude lists and i do have much to be thankful for but its like i dont even care. June 6th,2015 was the worst day ever. Thats the day...or night i was rushed into the ER with mind nimbing pain and they took my colon. And the shitty part is i can never put it behind me bc i poop into a bag for now and forever. It debilitates me mentally and physically. Everytime i hear about someone who had accepted and adjusted to an ostomy bag they always thank their husband or wife for support. I wonder what thats like. Im all alone. No girlfriend and with my insecurities about bag i may be alone for all my days. I have family in town but im not close to them. Im the black sheep alcoholic who everybody treats like shit. They did it to my grandpa then my uncle now me. Dam family needs some serious Al anon!!!!

I guess my whole point to this is i seriously dont know how much more i can take of this shitty life. Ive been a trooper and never gave up when lots of people would. Im tired yall. I dont think i can keep it up until something happens or i catch a break. Its not like ive been stagnat. Ive been out putting applications in even though i question if i could really work with this pain and leaky bag. I made dentures for 17 years and know 4 guys who have labs here in town so i thought getting part time work would be easy but noone needs help. I was shocked. I was having a great convo with the manager of guitar center, my dream job to be aroung guitars all day when my bag leaked all over the floor and his shoes. I wanted to die. He was cool about it but see guys and gals, this is what i deal with every day of my life. Some of you have it way worse than me physically so i dont mean to belittle your situation. Since i got on this thread ive got nothing but love and fellowship. So its natural i would come here in my darkest hr. I made a pact with my shrink that if suicidal thoughts turn into more to get to the ER. Im not quite there yet but wouldnt be suprised. Then id be in the ward worried about my cat and people here stealing my shit. Uuuvh

I want to thank you for reading this and im sorry to spill my guts but like i was told, thats what this is for. Im going to my shrinks office. I still have an hr and shes only 5 min away. They once gave me a shot of something, i cant remember what but i need that. I remember it clearing my head and helped me think straight. Wish me luck and i will check in when i return. Thanks again everyone?
 
I recently started managing pain myself. Fentanyl is working for me pretty well, but I have to redose way too often as I have the spray version of it. Do pain clinics drug test you to see if your on fentanyl?
 
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