8) Hey Y'all...Happy to see everybody posting, keeping our PAIN PEEP thread rolling!
Thanks for the thoughts and good wishes...
SKR, you made me laugh out loud! Good for the weary soul...weary, indeed. I've been told throughout my life that I'm "full of shit". Turns out, they were right!
I know folks get tired of hearing my troubles, so I withdraw and hide in my work. When the pain becomes suicidal, I isolate. My life could be so different if I had just one doctor who cared enough to do the work to treat me. Alas, I don't.
Closeau, my brotha, I'm sorry you're having horrid issues with your ostomy.
PLEASE take SKR's offer to help you. Don't assume you can't afford your supplies.
Take the help where you can get it, when it is offered. My thoughts are that something is malfunctioning that can be tweaked or corrected. Just think what a difference that could make in your overall outlook...not to have the anxiety of surprise blow-outs. Thank you, SKR for offering not only your efforts, but also your wife's knowledge. We need to lift each other up whenever we can. Closeau, it's gonna work out. Question: If you could get to CO? where your daughter lives, would you have a place to stay until you could find work/permanent housing? Maybe there's some work in the legal cannabis industry that you supplement your disability?
Anna...SO THRILLED that your SCS is easing your pain!

I'd still hold off on paint ball games, for now!
Cfzrx...Kudos for achieving true "pain management". My PM has no hesitation for writing big meds because I'm the poster child for "I SHOULD BE DEAD". Problem is, my crazy mixed up GI system refuses to cooperate. He doesn't treat the whole patient. I want to try the CBD:THC oils/tinctures, but looks like that "ain't happening".
Mracid, KM13, Steph...Sending positive vibes your way.
As SKR said...It sounds like we're all up shit creek, in one way or another. We've gotta keep hope alive that if we paddle hard enough, there's clear water just around the bend. Oh, fuck, who am I kidding? Let's just put on our Muck boots and wade through...
RTP...Sorry I've not posted since your question. OSFA is "one size fits all". Doctors tend to make generalizations among patients with similar ailments. They shouldn't, but they do. They should treat us all as the individuals we are.
Take endometriosis...
please!
Doctors have no clue unless they specialize. There are FEW who do, so it's become a cash cow, literally, that can pick and choose whose insurance they accept, or worse...require cash up front. The closest ones to me will require air travel. They've basically told me they've done all they can do.
My PM doctor told me that the motility med I need (Zelnorm) has been taken off the U.S. market.