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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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closeau, I'm on the fent patch (only 25mcg/hr every 72 hours) and started in May...I'm also taking oxycodone 10mg 4X a day. I was prescribed MS Contin, but it wasn't helpful and I couldn't use the restroom (like either way). I have RA and I'm a long distance runner, so I'm really glad the doctor was able to get it managed after 2.5 years of pain. The switch from MS Contin to the fent patch was the best thing to happen. I sometimes take them off at the end of the month or if I feel ill and I do go into wd about 24 hours later. It is worse than with the other meds, but I do it at least once a month and know that I could come off the med if I had to do so...but the pain in my joints comes back quickly. You could always try for a few months and see how it goes...do you expect to be on these meds for life? I think I'll be on these pain meds and an immunosuppressant forever...at least if I want to keep running high mileage. Morning stiffness from RA makes me feel 90 when I'm only 35 and in excellent condition. Steroids give me a crappy wd and I'm thankful I only take those once every few months for 6 days. I always feel great on them and once I taper...I become so sleepy a few days later...that lasts several days. I guess my body quits producing naturally, even in that short period of time. Hope everyone is well...I haven't checked out this thread before, but thought I would since I have pain meds for the RA.
 
Hey Y'all...Good to see a flow of conversation. As SKR says, not "good to see you in pain", but y'all know what we mean. It's nice to see some of you around again. I missed you. For those I haven't yet "met"...HELLO!

I've had a horrifically painful day, but let's not talk about that. Shain...Forgive me if I've totally lost my fucking mind, but...Didn't you cook for your family for Canada's Thanksgiving? How'd it go? A guy that cooks for his family deserves props...especially a turkey! I'm disappointed for your trials with MMJ. I was trying to feel optimistic that it would ease just some of your pain. My hope for me would be a mood lift as well as pain relief. Of course, being in the "heart of Dixie" I don't have access to a medical grade apothecary. Like you, simply smoking the stuff (though I tried) is not practical for me. I too have far too much responsibility in my day to day life.

It offered up a few giggly nights, but not for me. It was sort of funny, though. I have no experience with recreational drugs. I'm no PolyAnna, but I was raised by parents who would beat the shit out of me for saying "shut up". Total FEAR of beatings kept me on the straight and narrow, even "on my own" while I got my degree from Ole Miss. I only imbibed on bourbon, so I know very little even at 54 years old. Upon discharge from hospital, we stopped at a "sex shop" that sells "decorative hand blown glass"---yep, there are some crude jokes in there for another time---My husband bought me my first bong. It was a HOOT...stories we can't tell our grandchildren since we have none, but funny memories. The look on the stoners' faces was PRICELESS, as we old farts shopped for herb accessories. Bottom line...I don't like smoking, no matter the method or device. I'd tear up some weed lollypops if I had them, or so I think.

The Oxycodone fits my driven personality and work ethic, but I'm no dummy. The IR shit is dangerous IMO and my PM doctor won't prescribe the ER because of my tummy issues. I want to try the OxyContin despite its bad reputation. FWIW, my sister from Oz...I don't prod in poop, but I've read stories of folks pooping out the "shell" so to speak. 8( Hell, at this point, I'd be willing to "prod" and draw smiley faces on said shell, if it offered extended relief and mood lift. Severe depression is a demon that requires me to stay in motion to "outrun" it.

My gut shut down completely last month. I'm taking NOTHING for pain until I can find some compromise with bowel movements. It's just not an option right now...insert wailing and gnashing of teeth!

BB4U...I've got nothing re: scripts. Sorry, my brotha. My PM writes separately 3 (1 per month) so I don't have to go in monthly. I've never taken the full script within the month, so I've not needed an early fill. However, back when I had insurance for scripts, "they" would determine when I could get my refills, even on maintenance meds I'd taken for YEARS. I would get SO pissed that I had to waste my time leaving the scripts to pick up later. Of course, when I lost script coverage, everything went to HELL in a hand basket. Donnatal is no longer available in generic. My colon needed that to prevent spasms. The bullshit bureaucracy of all this pain "non-management" makes my red hair stand on end! I hope you can find a solution...sooner than later.

SickWithRA...Hello and welcome to our little neighborhood. I empathize with your pain, as I suffer with it also. I only wish I could run! Kudos for maintaining your regimen, as a body in motion stays in motion. My knees are shot, so swimming and yoga are my go-to. My PM doctor wanted me on Fentanyl straight out of the gate, but the new matrix patch did not absorb properly for me. I had used it back in 2005-06, but it was gel then. The problem back then was I was in major WDs by 3rd day. Current doctor tried 48 hour dosing and I was SO hopeful, but all we could figure was the new design. We tried MS Contin, for which I thought had potential. Like you, it was constipating to the point of near bowel obstruction. My doctor hadn't warned me of OIC, even though my history SCREAMS my GI issues pre-opiates.

I'm unable to get the infusions for now, because I had a vicious SHINGLES outbreak in my eye and face (May 2014). The viral antibodies remain active now, but thankfully downgraded from "acute" for now. Sick...Just a thought, but maybe? I had actiq pops for BT pain while on Fent patch 10 years ago. Of course, without insurance, mucho expensive! I maintained w/steroids for a couple of years, but long term was not an option for me. I SO need the anti-inflammatory properties not only for spine/joints, but also for stage 4 endo lesions/adhesions.

Anna!!?! Missed ya, girl. %) Glad to hear the SCS is a win for you. Just a thought...Did your PM doctor think this would be better for you than an IPP? It seems that it varies from one patient to the next, whether they prefer SCS or IPP. I have MUCH to learn about both options, but for now, neither is a good idea for me being an "enigma" and all. I know folks with either/or with encouraging results. I hope this is the answer for you, girl. Meanwhile, whatcha cookin'? I'll bet you have big plans for the holidays. Love it.

closeau...Oh, my brotha, I agree with your assessment of your mom's PM. I thought that cancer patients' pain is well-managed, especially if palliative. It makes no fucking sense that she should have to hurt. Can you intervene on her behalf? I had such hope for your appointment with your doctor today. :! It sounds like you have some options. I would truly suggest starting LOW with the Fent, if you take that route, with a good BT med. I'm preaching to the choir, so never mind me. I cannot fathom your ostomy pain. My insides feel like I've been "gutted" like a deer. The Linzess 290 is causing more problems than solutions for me...that "enigma" thing again.

RTP...Without a doubt, pain takes a back seat to crisis. I liken it to the stuff of Superman...without the phone booth. No matter how severe the pain, we bag, drag and gag our way to PROTECT those we love. Your "sweetchild" is a constant soothing balm for your soul. Good stuff. =D

Nite-Nite smooches to all...
 
RTP.- Found your post re the TPI's. Have to agree that it's quite the experience. I damn near passed out a couple of times when he was "looking for the right spot". I kind of liken it to dental work. Your not really sure whats worse, the agonizing pain in your jaw or having a frozen face! They did give me that frozen feeling for a few days, which was kind of better than the constant stabbing pain. Going for more on Tuesday. I'm also at the point of developing trust with a new doc. I followed up with my GP after the TPI's and he was reluctant to refill my meds after seeing the specialist. I get it, but it's a f'd system. The specialist says "If your GP has no problem giving you the meds, i'm not going to give you more" then the GP says "Your under his care now.." and so on. Don't get me wrong, my GP is awesome, got me the MRI's, referred me everywhere, etc.. But the last visit I saw that look on his face.. Y'know, the condescending one that makes you feel like shit for asking for pain meds.

DIXI.- Yes, i did the thanksgiving bird with all the trimmings. Going to be doing the Christmas one too! My girl will be 3 in January. The excitement in our house is already building. what a great age.
 
Sickwithra. I appreciate the note. I'm leaning more towards the patch. Ultimately it's up to the dr but I've been on MS Contin for so long with minimal success. I don't mind constipation cause I have an ostomy bag and it's just less output for me. I do expect to be on these meds a very long time. The Dilaudid although short lived works great. Patches will be more expensive with insurance but that's ok. I tried 50 last year and that didn't do much so I'm gonna ask her if we can start at 100. That's a lot of fentanyl I know but I'm sick of this pain. Good to see its working for you and keep running!!
 
^Oh boy Shain, I feel you there "The PM team recommended we not increase the opiates and you're under their care now", yeah ffs, crying in your office every week or fortnight and paying you four times what the drugs cost to watch me fall apart is my way of trying to scam an extra 10-20mgs per day out of you - gimme a break!

Well another doctor did, he effectively doubled my dose on my first visit, so much for doing the right thing by sticking with one doctor and trusting they'll at least make your life bearable (without suicide on the daily agenda)....shop around folks fuck em. Errgh I think I'm having lyrica WD, no sleep at all last night, drenched the bed from an unholy sweating episode that lasted 6hrs. I must have dropped my dose too quickly. Pfft whinge over for now.

Hope my pain pals are doing ok today. I imagine a room full of us could be a pretty pitiful sight, I see the humour in it, all the moaning and groaning with squeaking joints and trails of empty pill packets behind us.
 
Oh, SKR,

Coming off Lyrica was THE worst experience for me. I dropped it a little quickly, too, because I wanted off. But was crying, wanted to die, just terrible. But good news is it all went away after a few weeks, and then I lost the 14 pounds it made me gain.

Wish you luck!

And the idea of us all together makes me laugh; add some herb brownies and we have a PARTY!

haPPy FrIDay!
 
Yes, bring on the brownies! Though it's extremely important to have some herb free brownies on stand by, cos the last thing we want is to get the munchies with the herb brownies still out cos that's a cycle only losing consciousness will stop.
 
DixiChik said:
[/I]BB4U...I've got nothing re: scripts. Sorry, my brotha. My PM writes separately 3 (1 per month) so I don't have to go in monthly. I've never taken the full script within the month, so I've not needed an early fill. However, back when I had insurance for scripts, "they" would determine when I could get my refills, even on maintenance meds I'd taken for YEARS. I would get SO pissed that I had to waste my time leaving the scripts to pick up later. Of course, when I lost script coverage, everything went to HELL in a hand basket. Donnatal is no longer available in generic. My colon needed that to prevent spasms. The bullshit bureaucracy of all this pain "non-management" makes my red hair stand on end! I hope you can find a solution...sooner than later.
Click to expand...

Thanks for sharing your experiences! Unfortunately, there's very little opportunity to not take all of the 60 pills I get a month. This is LT pain management and if I go longer than 8 hours without the meds, I start to feel withdrawal symptoms. I wish I could set a few aside but it's just not going to happen. Fortunately, I never run into any problems with the insurance company telling me I can't refill my script. It's almost always after the 30 days have past. I do know that with my insurance company, they won't refill a script unless at least 75% of the previous scripts duration has past. So, with a 30 day script, that's 22.5 days and I believe they call it day 23.

Again, appreciate your comments and I hope everyone is hanging in there today!
 
Hey...Looks like everyone made like Elvis and left the building! =D I guess most are busy with holiday prep, travel and such.

I took my mom some hot coffee and pecan pie, which she devoured. She didn't know me. She thought the dining room at the center was the "auditorium" so as usual, I played along. Look, as long as she's not threatening me (or the staff) with bodily harm, I'm good. Sadly, riot gear remains necessary after 10 long years of this.

NO, dementia did not cause her to be wicked. She has always THRIVED on being abusive, physically and verbally. I've never known a loving mother or father. He died in 2001. I confess, on occasion I've fantasized of DIY chiseling her death date on their tombstone (in hopes of speeding things up). This time of year is conflicting, to say the least.

Enough haunted home and hearth "warm fuzzies" from me...Don't get me wrong, I LONG for how I wish our holidays had been. They just weren't. My husband and I try to create the Hallmark traditions in our home, but my siblings are no-shows.

Stress ramps the PAIN, not to mention DEPRESSION. You're right, SKR...a gathering of our CP PEEPS would be a hoot! Thanksgiving dinner is at noon on Thursday. Y'all come!
 
Oh, Shroomy...I'm sorry you're hurting so bad, and I know (up close and personal) the deep dark depression that lurks alongside PAIN. I just wanted to send a virtual ((HUG)).
 
^I can relate to that one my friend, I haven't properly written and recorded anything since my pain took over my mind and life in general. I've been smoking cigarettes so much my voice is wrecked, no stamina at all it just breaks up after a couple of minutes of vocals, and then that leads to a lung wretching cough. I'm a mess, and my mate who makes up the other half of our project is certainly getting annoyed to say the least, I've got a huge backlog of partially completed guitar and drum tracks. And all this feeds into my depression YAY!

Hello Pain Pals, hope you ladies and gentlemen have a less pain day today and that you are able to stop and smell the roses. I've spent too much time grabbing the thorny stems and complaining about the pain, when all I need to do is to slow down and take the time.

Hugs and drugs folks!!!
 
Happy thanksgiving folks.

Spacing pills around Thanksgiving dinners (like damn 3 of em!) how do I get the most bioavailability from my Hydrocodone/Apap 10/325 tabs and CWE liquid (5 10s whole, 3 cwe)??

I have such variable results when it comes to food and pills. It's like if I eat earlier in the day, 2 good meals even, wait 4 hours after last meal, then the pills hit JUST right, because I've got fuel (opiates give me munchies sometimes).
They work quicker and stronger on EMPTY stomach, but most days pills are first, then I get distracted and don't eat until I've burnt up all my fuel (hydrocodone).


SO long equation short, by my theory if Food=Fuel and if Hydrocodone=fuel also, does eating a meal with hydrocodone create SUPER-UNLEDED JET FUEL or what??

Can anybody tell me the best way to take my pills, on days when I HAVE to eat big meals??
Whether it be for holiday feasts, or just because i'm hungry and want breakfast but pain relief too, what is the right way to do this?

I know somebody here knows and I have my 2nd(SECOND) thanksgiving dinner at 5:00, and I STILL haven't figured this out!!.

P.s. Eat pills now (4:30) dinner at 5:00 and carry CWE vial In case the food inhibits absorption and I need more??
Eat at 5:00 and wait till 78( to take pills??
I'm impatient, got my RX filled yesterday, 90 10's, gotta save 30 for CHRISTMAS and 20 for shoppin, so pain people, help a pain prother out here, if you have time this thanksgiving holiday.

Also; happy thanksgiving folks
 
ShroomySatori said:
Thanks! Really.

I've been fucking around. Sniffing 20mg of oxy at a time, taking up to 80 milligrams a day. Sometimes taking 4 to 6 percocets at a time. I sniffed a gram of heroin over two weeks and now I can't get it out of my mind. So bad.

I'm down to 35 milligrams oxy for the 3rd day in a row now. And only taken in 5mg doses. I am suffering like all hell but I also feel good about this dose. I don't feel like it is too high like it was before. I feel more alive somehow, even though I am in constant agony. The doses I'm taking are spread out just enough to avoid withdrawal, but offer basically no pain relief let alone euphoria.

It was starting to fuck with my mind too much, despite the great pain relief. The downs in between doses were just horrible. Suicidal depression. So I have to stick with this even though it totally sucks. Unless I want to sign myself up for a full blown H habit. I just miss playing guitar... when I was on heroin I practice like 4hours+ a day and recording music, I'm in too much pain to even pick up my guitar these days. FUCK. As if I can't even do that : (
Click to expand...

You and I take about the same amount. Because of that I run out about a week and a half early every month. I find that my internal flame burns so much brighter when off of the meds. I have so much energy and feel so awesome mentally. However, without the meds I have a hard time staying on my feet. After the pain gets intense I start to get cranky and pissy. Very crappy situation. The dose that I'm prescribed is not enough to control the pain all day, also I do love getting high from the meds. My pm doc will not raise my dose and I don't blame him really. Basically I'm tired of running out but I'm also tired of being tired.
 
Yeah it's pills before breakfast wait half an hour or until relief fully kicks in and then eat. Because I prefer to ingest on an empty stomach I tend to only have one meal at midday so I've digested enough food by the time I'm ready for my afternoon dose. I will tend to eat fruit for breakfast and small amounts throughout the day.
 
Pain med choice

Hi guys. I suffer from chronic pain due to a spinal injury and have been on various pain medications since the injury in 2012. I also have addiction issues so making meds last is a problem. My last appointment with my PM doc we upped my current med Norco 10s to once every 4 hours but it just doesn't cut it. No long acting to go along with it, just the Norco. My doctor mentioned maybe switching me to oxy with no APAP or maybe methadone. Considering my addiction problems I'm leaning more toward the methadone as it is supposed to curb cravings and has a long duration of action.

I'm tired of the ups and downs and know from past experience that I'll just overuse the oxy and run out early every month. I've tried the non opioid meds and they just don't work for me.

My question, does methadone work well for pain management of severe constant pain and do you think I'll be less likely to overuse it as it curbs cravings and would hopefully help me to not use more than prescribed? I see the doc in about a week so I'll have the chance to address the issue then. I really want to be able to have my pain relief without the impulse to redose excessively. Any advice or opinions would be much appreciated. Thanks.
 
Hey man. I was on methadone years back and I was on 40mg twice day. I hated it. It didn't do much for my pain and of course no euphoria but I don't think that matters to you. Very very hard to come off too. But some people swear by it for pain and others say they get euphoria but everyone is different. I think if you need pain control but not the euphoria cause of addiction issues I would try it. I think you can get buzzed off of it but you gotta take a bunch. What are your options? Back to oxy and running out? Most extended release meds you don't buzz from but seems like your pain is bad. Methadone might be a good choice. Norcos are crap. I can't believe they give them to you for back pain. I just switched to MS Contin 60mg 3x day and it works good unlike before with lower dose. I get Dilaudid for breakthru and I know what you mean by running out early. I just got mine but I'm already behind. Addiction sucks. I vote for the methadone at least try it. Just didn't work for me. Good luck dude!
 
I have never used Methadone and much like Closeau I have heard that it is a great pain reliever. Everyone suffering chronic pain and on opiates have addiction and dependence issues in my opinion, who doesn't like relieving their pain, I'm addicted to relieving my pain that's for sure......I also don't mind catching an oxycodone buzz which helps to take the edge off my anxiety, depression and general hopelessness that comes with chronic pain.

You could always jump on the Roxy, and if & when you start running out way too soon, abusing them etc you could switch over to Methadone.
 
So yeah, up at 4:30am again. I don't have to be up until 6am and if I were out of meds I wouldn't be until 6 but since I have them I'm up and immediately took 20mg with redbull. So I'll chill until 6 then I will clean up and go to work. On the way to work at 6:45 I'll take 20mg more then about 9am I'll take another 20mg and that will hold me until 6pm. I don't even have the will power anymore to space the doses out throughout the day. Ugh. Every month I consider not going back to the pm doc but I just can't stop. Wouldn't even want to stop I guess, if I never ran out. The withdrawals every single month are no joke. Severe depression, I mean I really don't wanna do shit when I run out. How the hell do the rest of you combat running out.
 
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