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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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^That's great to hear you've taken a 180 degree turn regarding your H use and pain. You've made a very good decision, well done!
 
Dude, I understand your anger. My mom passed Froday morning to cancer and I'm just heartbroken. I was pissed at her dr but it was nothing like your level. You should be pissed. That's crazy. I tripped cause I'm in pain management and my breakthru was Dilaudid 8mg every 4 hrs and hers was 4mg. She had OxyContin twice a day but still, she was always hurting and he wouldn't raise shit. He gave her gabapentin and she didn't have nerve pain. So man, just don't let this dr take away your focus on your mom. Just spend every second you can with her and cherish the memories my friend cause cancer is a monster that always wins. I'll pray for your mom and you and I hope her meds are straightened out. God bless!!
Thanks. Yeah he gives her gabapentin as well!!!! Shes been on the same oxy dose since 2012 but her condition has got much worse.
Fetching the rest of my oxycontin script today in fact gonna go soon. Will give her half of it so she has a stock pile (i can always switch to sniffing h and be okay, she cant).
 
^And in contrast we have Whosa who'll switch to H to help his mom, I'd switch to H if it was to help my mom too man, I wouldn't tell her but I'd do it, I hope she gets better treatment though so you don't have to make that decision and so that she isn't made to suffer anymore than she has too.

My condolences Closeau, Hope you're ok man, I have not had to experience what Whosa or yourself are going through, my heart goes out to you guys.
 
So I have scoliosis ad get xrays every 6 months reaffirming this. Hurts all the time and I can't sleep. But no one ever gives me pain meds. I also have a chronic knee injury from car accident. Not looking to scam for narcotics but how do I get someone to actually get me a mild narcotic without coming off as a druggie trying to scam for meds?
 
So I have scoliosis ad get xrays every 6 months reaffirming this. Hurts all the time and I can't sleep. But no one ever gives me pain meds. I also have a chronic knee injury from car accident. Not looking to scam for narcotics but how do I get someone to actually get me a mild narcotic without coming off as a druggie trying to scam for meds?

Never be scared to discuss pain with your doctor and accept whatever treatment your doctor gives you to control pain.
 
Hey Y'all...I was dreading Thanksgiving holiday, in view of unresolved GI issues requiring hospitalization in late October. The gut/bladder problems are as I always say, the cherry on top of this shit sundae of pain. I checked into BL briefly on Monday, only to see Whosa's rant, which still isn't justified IMO.

Those of us who suffer with day to day pain as a result of documented trauma, injury and disease have enough shit to put up without being insulted and called "drug seekers". Your mom's cancer does not give you a free pass to insult us. Understand that. Speaking for myself only...this forum provides a place to share not only our struggle, but also offer some support to one another. Pain and suffering can be isolating, even in a stadium filled with friends and family.

I have met some genuinely good folks since I joined BL. I've shared my email addy with many of whom I "talk" frequently. If I can lend an ear of support to any one of you, feel free to PM me. I have a successful career, a loving husband and a large extended family. Other than my husband, no one IRL knows or gives a rat's ass how much I suffer. You see, I hide it well. This forum is a place to share, gain new perspective...maybe even laugh at ourselves.

Closeau...My deepest condolences for the loss of your mom. I knew she had cancer, and certainly felt your angst and grief in your posts concerning her failing health. I sent you a PM. I'm so very sorry.

Whosa...I'm sorry about your mom's battle with this beastly disease. Not being aware of SA health protocol, is your mom offered palliative care? Sadly, I have up close and personal loved ones who have endured (and succumbed) to cancer. They have received for the most part, adequate services in end-stage disease through palliative care. This included IV feeding/hydration and pain meds administered through IV or Fent patches. When dehydration occurs, which is often the issue, a "cut down" has to be performed to hit a vein so that meds can be provided. There are cancer centers here that serve ONLY cancer patients. It's a crying shame that your mom is in agony. Perhaps she needs an advocate by her side when she visits the doctor. If he/she isn't doing everything they can to reduce pain levels, she needs a new doctor. Her medical records should support the need for whatever means necessary.

I received a call at 3 a.m. on Thanksgiving Day that my mom was non-responsive. My husband and I met the ambulance at the hospital. She was, for all intense purposes, GONE. I've seen this more times than I can count, riding in the ambulance with her lifeless body. Not only had her sugar dropped off the charts, she had a UTI (septic) and was drowning in her own fluid of congestive heart failure. She didn't look like she'd make it through this time.

It was touch and go for several days, requiring round the clock watch. Although my siblings should be able to see that I am "walking dead" they did the usual...scatter like fucking cockroaches. They went about their plans for the day, leaving me and my husband to watch over my mom. By 9:30 I could no longer remain at the hospital, without my own wristband, bed and IV. Ultimately, I hired 2 sitters to rotate 24 hours to keep her from ripping out IVs, oxygen cannula and Foley. That way, I was able to visit frequently without performing the duties of a caregiver. She was released back to the nursing home today. TBPH, I wish she hadn't come back...instead dying peacefully. At 90 and wheel chair bound with Dementia, she lives to die another day.

I've lost 8 more lbs. that I really didn't need to lose and I am on the verge yet again of a nervous breakdown. I can't get answers from the top GI doctors in my state. I'm certain the endometriosis is choking my bowels and bladder, not to mention the horrendous spine, bone and joint agony. I've just taken to my bed, closing the shutters, wanting this shit to end...ALL of it.

My mom is almost 90 and has been in the nursing home since 2005. She is the devil on her best days, truly...has NEVER been a loving mother...gives the word a bad name. Yet, I do my absolute best to see that she is well taken care of. No matter the fact that she was a monster, not a mother...I do not want to live with regret when she dies. At this rate, she'll outlive me...could possibly be the "cause of death" for me.

So, for those of you who have been blessed with a loving mother who treasured you, REJOICE in that love. I was not. For those of you who have lost your mom, allow yourself to grieve yet soak in the beautiful memories. I have none. Love and embrace those who are sick and hurting. I have. Let them know you love them to the moon and back. Even though my mom is evil, I will fight as fiercely FOR her as I will with her.

To all of my CP peeps...fight the good fight and finish the race, even though we often feel downwind of the lead horses ass! :\
 
I saw the pain mgmt doctor today and will be starting injections as soon as insurance gives the pre-authorization, so hopefully by next week. In the meantime before asking for anything the doctor offered to write me a script for Tramadol. I said OK then he said apologetically said that a pain contract and urine sample were required. I looked at the urine screen and it looked like a basic screen that included opiates and oxycodone (along with the others: Cocaine, PCP, Benzo, etc). However I used poppy seed tea 2 days ago which would still show on the screen as positive for opiates. I noticed there was some wording on the contract that said the patient was responsible for the cost of the tests not covered by insurance. I told the nurse I was worried about insurance paying for the screening & of course they reassured me that it would be covered. I told them I wanted to be sure so I would call my insurance and if it was covered and I still wanted to get the Tramadol, I would come back tomorrow. My other thought was to tell them I took my last Vicodin 2 days ago (he saw when he ran my state narcotic report that I had 15 Vicodin rx'd about a month ago).

Are there any recommendations at this point? Tramadol is not very effective for me in the past, but I am in a good deal of pain so part of me says Tramadol is better than nothing since the poppy seeds have been terrible in my location lately. So if you were me would you not sign the contract so my options are open to taking PST or something else in the future? If I do sign the contract I can either tell them I took my last Hydro or do you think I am better off just waiting a week or so until my urine is clean. PST should only be detectable in urine for about 1 week correct? It would show up as an opiate correct since this is the urine screen that is not sent out for differentiating the types of opiates but as I said the screen tests for opiates and oxycodone.
 
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I don't know much about poppy tea but I can tell you that after about 50 hours I typically piss clean. That's hydrocodone btw.
 
Dixichik im so sorry about your mom and everything you have been through. You will be in my prayers.

As for whosa I hate to drag him through the mud Dixi but he's basically full of shit. He takes huge doses of oxy to get high off of his ass and he runs out early so he abuses heroin until he gets a refill. I've seen him post where his mom felt sorry for him and gave him some of her meds. The kicker here is that he took her meds instead of giving them back to her. I used to think whosa was a pretty chill guy until he posted in this thread.
 
Dixie, I'm so sorry for your situation, but I think you are handling it well, knowing that you don't want to change who YOU are by treating your mom the way she treated you.

Closeau, I'm also so sorry for your loss. Honestly, I have the best mom ever, and I don't know how I will deal when she's gone.

Whosa, I'm sorry your mom is being treated this way, but I don't think that gives you the right to judge us.

Everyone, let's just do what we do best; SUPPORT each other. Let's not focus on someone else making judgements, or worry about the actions of a few. Let's be here for each other in this virtual space, where only we know and understand what we are going through. Let's keep this space positive!
 
^ Yes Closeau, I'm so sorry for your loss.

I know when you began posting here you talked about how ill your mum was, but I had no idea it really was her final days.

Take my condolences from my heart, I too lost a parent two months ago.

Quite suddenly with encephalitis. It was unexpected, even the drs didn't know for many days what was wrong & by then it was too late.

I hope you get to experience what I did in the aftermath... I'd have dreams where dad would be with us as normal, then I'd jolt awake and miss him that little bit more. But they were good dreams, of happy times...

I won't really go into it here, but dad's certainly letting me know his spirits not passed yet.

Lol, something I never used to believe in, but things were happening that we're out of out hands & too regular or astonishing to be coincidental.

If you'd like to talk privately, pls feel free to PM me.

Rtp❤️
 
MR SKR,

Pls delete some of your inbox.

"I'm just a skater boy, she said see you later boy"

If ur old enough to know that song than anyone, apart from my BFF skater boy lol, is welcome to friend & PM me also.

Actually anyone is, I was just hvng a bit of a light hearted moment after the heavy stuff going on with BL tonight!!

Aaaaand, I see my original/main PM tomorrow & am now getting a bit restless about it.

After I was hit by a car in august, I feel he wronged me. He felt the same. We really liked one another & got along well...

Haven't seen him since, but he's beckoned me for an urgent appt now?!?

Not like he's gonna change my meds, he's not in charge of that any longer. Since we had our "dispute".

So, I'm with my newish dr who blatantly says " we've got to jump through hoops", which I feel I've been doing my entire pain career! Also, " we're just the puppets, they pull the strings".

I couldn't have said it better. Being in chronic pain is like a full time job. If you're doing what PM want you to do,- physio, hydro, psych, walking, check ups, blood tests, scans, pain clinic & more.

Especially when there's more than one specialist involved. It's a really busy, stressful time & fitting all that into primary school time slots is relentless. They talk about this pacing biz...well not if you guys keep me so busy!!

Ah, I've just popped a Diaz,

Whinge again tomoz

Rtp x
 
my moms been coughing up blood. the cancer she has causes microfractures in her ribs (watching this kind of pain i driiving me crazy). i took her for xrays today. just waiting on the report. shes so worried her doc will find out ive been giving her extra oxys (HOW FKED UP IS THAT) - not only is it very unlikely to happen but oxy is pretty much invented for people with her type of pain and even she feels fkin guilty taking it!!!!!!

its too much sometimes guys. managing my pain and hers.
ill admit im abusing my oxycontin again. Ive taken like 17 40s since yesterday. sometimes its just the only way i can cope.
 
Dude, you're going thru the hardest shit you could go thru. Don't be too hard on yourself bud. If that's the way you cope by all means. My thoughts and prayers are with you and your mom. You will get thru this but you're no good to your mom if you're not good. Keep fighting with her and everything will be ok and when she passes she won't be in that sick body anymore. Tomorrow is my moms one week ani of passing and I keep telling myself that. I'm in pain management too and it's hard to help your mom and yourself. I just got done doing it so I feel ya. PM me if you ever wanna talk. We have a lot in common. Hang tough and be safe!
 
Hi Pain Fam! I am pleased to report that since being switched from mscontin to methadone 5mg 3X daily I am walking on clouds! Not high, but my pain has vanished, I mean I never really worry about it anymore! I highly recommend getting the genetic test to find out which med will hit u hardest :) peace! cfzrx
 
^ That's great Cfzrx! Trying to hold my jealousy back from shaking its fist at you, I hear methadone is one of the best pain killers but as you say perhaps the gene tests are the way to go if that option is available.

Whosa - hang in there man, try to spend as much positive time with her as you can mate, it must be hard mate.
Closeau - I worry about you and that ROA, go easy on yourself man, you would be better off insufflating pills if you have to just don't want to hear you getting some nasty infection from digging around like that. It really increases the risk of complications the longer you spend trying get it done, please be careful.

RTP - hey chicky, inbox should be good now. And Avril is very well put together indeed.
 
^ive yet to try done. think ive tried pretty much every other strong and other strength opiate of any value tho and oxy has been the best for my bone pain. but maybe done would work although i hear it better for neuro pain. think we only get it in liquid here tho.
 
Hey Y'all...Thanks Anna! I strive to be the change I want to see in the world (yep).

I refuse to let PAIN (past or present) become my identity. Yes, this time of year drags me screaming and kicking back to my horrendously abusive childhood. I fight those feelings fiercely with "positive" thoughts. Funny, though, I tell my mom to "think positive". She barks back that "I don't know no damn positive"!!! I went down to the center yesterday to decorate her room for Christmas. I change out her bedding/room décor for each season, whether she likes it or not! She's a tough nut, but I'm the only sibling who shows up. Again, I don't want to ever look back in regret. I tell her I love her and kiss her forehead before I leave, even though I know she's cursing me under her breath. That's on her, not me.

Again, I've never known a mother (or father) who was a soft place for me to fall. I've spent my adult life parenting them. So folks, if you still have parents, love them deeply and don't delay. I always think of the song "Cat's in the Cradle". I once attended the funeral of my parents' friend. His children had that song played for their dad's service. He never had time for them, obviously. I'll never forget how awkward that was.

Anna, have you had the SCS implanted yet? How's it going? Tell us if it has alleviated your pain. Specialists have talked with me about an intrathecal pain pump. With my adhesion issues, I've no doubt that scar tissue would shut it down. I must admit, I've considered it. I question if it could actually "hit" all my pain sources. Tom has a pump for his spine pain. I only then realized it didn't provide relief for his TKR. The post-surgery knee pain required oral pain meds.

CfZ...Congrats on your pain relief. I'm truly happy for you. There are folks wo swear by Methadone for their CP...Others curse it. Strangely, it was the FIRST med my PM tried for me. I was opiate naïve, so even a small dose knocked me off my ass...drooling. He switched me to MS Contin (no) then Fent (no) now Oxycodone, which I don't like. I think I NEED the ER formula for my pain, but it's horribly expensive without insurance. My doctor also fears it won't absorb with my fucked up GI issues.

I'm in HELL with CP and GI issues, yet no one can help me. My medical history exclaims that I shouldn't be alive. There's a difference between living and existing, so maybe...

Closeau, still keeping you in my heart. It's not much, I know, but we all care. Big ole bear hugs to you, hoping you won't seek to ease your grief through the needle. That's not the answer, my friend. I cringe when I read your posts, as I can FEEL your desperation and pain. I wish I could help you somehow.

Good to see some familiar peeps posting, yet we're missing several aren't we? Y'all please check in if you're reading. =D

Yes, misery loves company! Pull up a chair and share a cup of whatever hot beverage you enjoy. The fire is roaring in the fireplace, as the sun is beginning to set. Short work day for me, as planned. It's time to decompress. Hey Anna...What's for supper? We have tart cherry pie for dessert!
 
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