Hey Y'all...I was dreading Thanksgiving holiday, in view of unresolved GI issues requiring hospitalization in late October. The gut/bladder problems are as I always say, the cherry on top of this shit sundae of pain. I checked into BL briefly on Monday, only to see Whosa's rant, which still isn't justified IMO.
Those of us who suffer with day to day pain as a result of documented trauma, injury and disease have enough shit to put up without being insulted and called "drug seekers". Your mom's cancer does not give you a free pass to insult us. Understand that. Speaking for myself only...this forum provides a place to share not only our struggle, but also offer some support to one another. Pain and suffering can be isolating, even in a stadium filled with friends and family.
I have met some genuinely good folks since I joined BL. I've shared my email addy with many of whom I "talk" frequently. If I can lend an ear of support to any one of you, feel free to PM me. I have a successful career, a loving husband and a large extended family. Other than my husband, no one IRL knows or gives a rat's ass how much I suffer. You see, I hide it well. This forum is a place to share, gain new perspective...maybe even laugh at ourselves.
Closeau...My deepest condolences for the loss of your mom. I knew she had cancer, and certainly felt your angst and grief in your posts concerning her failing health. I sent you a PM. I'm so very sorry.
Whosa...I'm sorry about your mom's battle with this beastly disease. Not being aware of SA health protocol, is your mom offered palliative care? Sadly, I have up close and personal loved ones who have endured (and succumbed) to cancer. They have received for the most part, adequate services in end-stage disease through palliative care. This included IV feeding/hydration and pain meds administered through IV or Fent patches. When dehydration occurs, which is often the issue, a "cut down" has to be performed to hit a vein so that meds can be provided. There are cancer centers here that serve ONLY cancer patients. It's a crying shame that your mom is in agony. Perhaps she needs an advocate by her side when she visits the doctor. If he/she isn't doing everything they can to reduce pain levels, she needs a new doctor. Her medical records should support the need for whatever means necessary.
I received a call at 3 a.m. on Thanksgiving Day that my mom was non-responsive. My husband and I met the ambulance at the hospital. She was, for all intense purposes, GONE. I've seen this more times than I can count, riding in the ambulance with her lifeless body. Not only had her sugar dropped off the charts, she had a UTI (septic) and was drowning in her own fluid of congestive heart failure. She didn't look like she'd make it through this time.
It was touch and go for several days, requiring round the clock watch. Although my siblings should be able to see that I am "walking dead" they did the usual...scatter like fucking cockroaches. They went about their plans for the day, leaving me and my husband to watch over my mom. By 9:30 I could no longer remain at the hospital, without my own wristband, bed and IV. Ultimately, I hired 2 sitters to rotate 24 hours to keep her from ripping out IVs, oxygen cannula and Foley. That way, I was able to visit frequently without performing the duties of a caregiver. She was released back to the nursing home today. TBPH, I wish she hadn't come back...instead dying peacefully. At 90 and wheel chair bound with Dementia, she lives to die another day.
I've lost 8 more lbs. that I really didn't need to lose and I am on the verge yet again of a nervous breakdown. I can't get answers from the top GI doctors in my state. I'm certain the endometriosis is choking my bowels and bladder, not to mention the horrendous spine, bone and joint agony. I've just taken to my bed, closing the shutters, wanting this shit to end...ALL of it.
My mom is almost 90 and has been in the nursing home since 2005. She is the devil on her best days, truly...has NEVER been a loving mother...gives the word a bad name. Yet, I do my absolute best to see that she is well taken care of. No matter the fact that she was a monster, not a mother...I do not want to live with regret when she dies. At this rate, she'll outlive me...could possibly be the "cause of death" for me.
So, for those of you who have been blessed with a loving mother who treasured you, REJOICE in that love. I was not. For those of you who have lost your mom, allow yourself to grieve yet soak in the beautiful memories. I have none. Love and embrace those who are sick and hurting. I have. Let them know you love them to the moon and back. Even though my mom is evil, I will fight as fiercely FOR her as I will with her.
To all of my CP peeps...fight the good fight and finish the race, even though we often feel downwind of the lead horses ass!
