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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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RTP...Kick a girl when she's down, huh? with talk of hot jam doughnuts while riding an amusement ride! Just kidding...I'm not jelly of your fun times. I'm not jelly of anyone who can find some pleasure amongst their pain.

As for the cannabis...It's everywhere, if smoking is your method. I tried that, but didn't like. I want to try THC:CBD ratio oils/sublinguals that offer "some" pain relief and mood lift. I don't wanna take anything to make me sleepy during the day. I have far too much responsibility to nod out.

SHOUT OUT to Suicidal Nod and Shain77...Where are y'all? Annabanana? Please update! Freddie B and closeau...Y'all get in here amongst us and keep posting. It's good to have some new members to keep the thread active. =D

Hope everyone's doing reasonably well with the holidays approaching. Above all, take care and stay safe!
 
Damn Dixi, I just wrote a long post & lost it!

Yrs, the mighty Ferris wheel,- every time I went down to the bay I'd say..."Never ever ever". Too big too high too scary!

But a special event snd sweetchildofmine & her BFF cajoled me into it!!

It is nice sometimes to forget the pain & disability & just be "normal" for a few hrs. Though I slept through most of Sunday!!

I'm actually thinking of rolling s joint,- your idea ;)

I haven't yet had time to meet the newcomers, but look fwd to it.

In regard to the newer oxy OPs, my understanding is that they pass through your system .& provide anslgesia, though, lol, if you look hard enough you can see the "shell", in your faecal matter. That's why many don't think it works, if prodding around in your poop is your thing...

Rtp ❤️❤️❤️
 
Hey Dixi I'm glad your ok! Was wondering if you'd be ok there for a while.. If I must be honest..
I just so hoped that they would have finally have found some sort of solutions to your health dilemmas.. Sigh. .
Just an update on my marijuana "experiment" I smoked every night for 3 weeks but to no avail. It didn't seem to do much for my pain per-se but I did have some "fun" I must admit. I've quit since say about 3 weeks now. I don't think it works for everyone at the end of the day. Maybe the oils and such might be a different story altogether? I'm just glad ur ok hugs
Stef
 
Hey Stef =D SO GOOD to hear from you. How are you feeling, sweet? I'm sorry the weed didn't help your pain. That was my finding, too. It was "fun" for a couple of hours to "escape" the pain and the stress. It's just not for me, though. I can get the silly giggles with minimal alcohol. I don't like the act of smoking anything, though I was willing to try!

HUGS back atcha. I prefer honest, I really do. I didn't think I was going to make it either. I never knew that even though I "thought" I was moving my bowels...I wasn't. The Miralax was "washing" past the massive amount of stool distending my colon. It was too high in my colon to reach via enema. It was impossible to reach w/endoscope because of stomach stapling. It looked like surgery for a bit. Thank goodness it didn't have to go that far. I still don't think it's over...not by a long shot.

Stef...Don't you have problems with your pancreas? Forgive me if I'm wrong. :\ The pain persisting in my left side to my back concerns me about the health of my pancreas. It's just CRAZY in my mind...Doctors have the contrast CTs that show the problem of partial bowel obstruction, yet scratch their heads in "wonder" of what could be causing my pain. Huh?

Sadly, I don't see the probability of solutions for my health issues. I'm basically written off as "don't bother". The disease of endometriosis is complex at best, suicidal at worst because most doctors are clueless. Statistics show that less than 100 of 52,000 GYNs surveyed know how to "treat" the crippling disease. It's not a one size fits all, takes more than 15 minute appointment slot...so MOST don't care. Their money is made by empty promises to women TTC. They pump them full of hormones (which feed the disease) through fertility treatments. Some are fortunate enough to conceive, most aren't. Many experience repeated miscarriages and heartbreak. Then, REALITY sets in that this disease takes your LIFE (quality) and leaves you with crippling pain and ravenous disease for which there is no cure.

Some, like me, are promised full castration is the answer. Three surgeries in and many organs OUT, I'm left with a shell of myself. Not only do I deal with pain, I am forbidden to take HRT because it feeds the disease. Yep...ALL that implies. My identity, my hopes, dreams and desires GONE. I believe right now that I need an endo specialist to perform a laparoscopy to "check" my status. The closest one is 6 hours away. I know it looms in my future, but am convinced it will be the death of me. I'm just not strong enough emotionally right now to face my fears of MORE extensive surgery.

I liken this disease to ISIS...Mutant cells are lysed and eradicated. More appear with intense vengeance, wreaking havoc and destruction. Doctors are not willing to fight it with me. Right now, my guts hurt so much, as does my lower back.

Sorry for all of the whine. I should have at least brought a nice Moscato to the discussion, huh? Contact me anytime, Stef, if you need to talk. I'm happy to provide my email addy (and have) to anyone who needs it.
 
Dam Dixie! I feel so horrible for you. The pain must be crippling. I know it's not the same by far but when they found 7 holes in my colon and I had emergency surgery to take colon out I felt like my life was over. I still do at times cause every morning I wake up covered in shit cause my bag leaked. I don't know how I can live like that, much less find a wife who would understand that. At least they know what it was and my pain is getting treated. It's not enough but it's a matter of perspective. I have addict past and was just in ER this past February with overdose. I took every pill I had and started drinking till I passed out and didn't want to wake up. Well I talked to a friend apparently and he said he was coming over with some smoke. I didn't tell him about the suicide shit and he found me passed out and unresponsive. That seeing a light shit is for real cause I saw one and my mom was pulling me back. I opened my eyes and was in ambulance with my friend and they took me to trauma and saved my life. So even after that I get Dilaudid and MS Contin for pain. So I shouldn't bitch. I don't know how you feel but I do know how it feels to be in pain, mentally and physically, and feel like Drs are bullshiting. Sounds like your body problems are very complex. Do you get anything for pain? 6 hrs away is a long way to go for a test. I'm spoiled. I live right down the road from one of the best hospitals in the world. The R really taken good care of me. Saved my life twice this year alone cause when I went in with abdomen pain I was septic. I'm also on blood thinners for clots that start in my belly and go down to both knees. Up in groin it's completly blocked so no blood is flowing thru but it's inflamed and very painful to walk. So they had to get my blood thick enough with special meds to operate. I'm telling you all this to say I know how it feels to be medically broke. I really hope you get some help you need, whatever that is. I hate to hear another human going thru what you're going thru. Shit ain't fair. I think I read your married. That's good if you are for support. And you got blue lighters like me who have compassion for you. I wish I had advice but I don't. Just know you're not alone and this doesn't have to kill you. I wish you relief and all the very best. Keep living. We need you. Take care of yourself?
 
Mercy, closeau...Thank you for your concern. Believe me, my pain is no more significant than yours or anyone else's. I hope I don't come across that way. I often say that pain is not a pissing contest! You have my respect, my brotha, for soldiering through your medical issues. You WILL prevail.

I know that every person reacts individually, and I flat out FEAR the threat of a colostomy, but...I also know a woman (94) who's had a colostomy for my entire life and beyond (54). You would never know. She raised a family w/great grands even, and has outlived her husband by almost 40 years. I have a friend now who has a temporary bag due to colon cancer and a fistula. She's having a hard time adjusting also. There are some good websites to share info on preferred bag types, seals, adhesives, deodorizers...even more efficient ways to empty/clean. INSPIRE is good...Maybe check it out.

I wondered what led to your colostomy. What caused the holes in your colon? Do they know? Indeed, you are blessed to have a good medical team nearby that "gets it". I see that you are in NC...beautiful state! And yes, top notch medical facilities. MS taunts its medical centers, but IME, it's horse shit. No one here knows what to do with this disease. I have a bit jaded (ya think?) perspective that the few (across the country)who treat endometriosis are EXCLUSIVE in that they limit which if any insurance they accept. Add to that, air travel/hotel for recovery post-major surgery...who the fuck CAN afford it? The specialist in St. Louis will accept my insurance. He's agreed to review my medical/surgical records to determine if he can help.

Sadly, surgery creates MORE adhesions. It's a damned if I do...ya know. :\

Tell me more about yourself, if you will. I know you are strong. I know you are a fighter. I know you are kind and compassionate. I believe those characteristics are nurtured by those who truly suffer and struggle through every day. I'm told "we must have a test to have a testimony". Done and done, huh? I fear the word "septic" as I KNOW these hospitals available to me could never save a life. They couldn't even move my bowels!

You WILL get your bag routine worked out. I just know it. You've been through SO MUCH. Your life has purpose. Yes, you will find someone to love and share your life with. If she can't see beyond your struggles, she's not worthy of you. For now, try to focus on getting as strong and healthy as you can. Yes, I am married now for 35 years. Early in my diagnosis and subsequent surgeries, he cheated. That was just before our 15th anniversary. Long, brutally painful story. After that, IMO, it had to be "for better or fucking forget it!". We're in a good place now, thank heavens. My recent hospitalization took its toll, but he stood strong for me. It doesn't erase the memories or pain of past abandonment, but agreed..."SHIT AIN'T FAIR".

DO check out the INSPIRE website, specifically the GP and Colostomy discussions. I think you'll find them helpful. I actually found this endo specialist in St. Louis through a nurse on that sight. She has struggled with endometriosis since the 50's. Like me, she had a TAH/BSO to "remove" the disease yet it returned post-hysterectomy. This shit is much like cancer with no "death date". Crude explanation, but so fucking true.

Apologies for typing too much. It's my Southern nature to reach out, sit and talk a while. Thank you for your kind words. I reciprocate. :)
 
^just lost a massive post so I'll keep it short.

That was a great post Closeau, great to see you around too Stef! Shout outs to Dixi, speed king and all you poor ass pain pals. Much love for my online bestie Runtoparadise, hang in there folks a good day is just around this long sweeping corner. I hope.
 
Hi. Their saying diverticulitis. I'm lucky it didn't turn to cancer. I'm getting good at the bag but need to wake up in night to empty bag and take meds. I recently stopped taking my Trazadone. I mean I wasn't even hearing my alarm go off. If I don't get up to empty it it will leak and I'll wake up in a mess. I'm talking with a guy on ostomy land.com and he's had his for 40 yrs so he knows his stuff. His setup is a lot more elaborate than mine so I may change a few things but just gotta be better at getting up. I'm on heavy pchy meds cause of my bipolar, Latuda and lithium. On Kolonopin and vistaril for anxiety. I'm on Dilaudid 8mg 6x day and Opana ER right now but I'm changing that next week. That shit sucks and insurance won't cover amount anymore. OxyContin and Exalgo aren't covered either so I'm gonna go back to MS Contin 60mg 3x day. Basically I've had mental problems all my life but I drank or drugged them away. I was a boozer for 20 yrs but in early days I would use anything put in front of me. Luckily I never liked much except shrooms. Acid is too intense. The Drs said my drinking didn't have anything to do with my colon. I haven't had a drink in a long time, since Feb. I feel being pulled in a bit by opiates. Last few weeks I've been using too much and different routes of administration. I truly feel I can get back on track. No exuse but my mom is dying of cancer and she's my best friend so it sucks. I've been thru recovery before so I know what to do but I got it. Life is so precious. Whether we struggle or not life is a gift. Those of us who struggle have a special perspective bc we don't take shit for granted. You're the same. You're a special soul. Why God chose us to suffer, idk but I do believe we will make it thru our current struggles. I gotta go all the sudden but thank you for your post and say out loud to yourself, I'm special and we will keep in touch. Take care and be safe!!
 
:( So very sorry about your mom. It does, indeed, suck. Just the fact that she's your "best friend" speaks volumes of your close relationship. Be THERE for her and love her through it. You're never prepared to lose your mom, no matter what age...regardless of the circumstances.

My mom (89) has been nothing but abusive our entire lives, yet I know that I will grieve terribly when they screw her crooked ass into the ground. Sorry...dark humor...love/hate/retaliate kind of a thing. I once heard my mom's brother say "she's so mean and crooked, they'll have to screw her into the ground".

I understand about the costs of Exalgo and OxyContin, as well as so many of the newer "boutique-type" pain meds. I hope you get it somewhat sorted out next week. Meanwhile, please don't get off in the ditch of IVing. I've read it doesn't end well, no matter the reason for the detour.

SKR..."poor ass pain pals"...=D
 
Dixie, thank you for your kind words about my mom. It made me feel better. I will get straight next week. Tomorrow is my hemotologist. He's the coolest dr I got. I only see him once a year but he drops fbombs and everything. He's great. Then next week is pain clinic. I could go on fentanyl patches but those seem like too hard to get off of when your done. I'll stick with the morphine. It ain't great but Ityll do. I got thru surgery and recovery with morphine Dilaudid combo so I'll stick with that. If I'm really in a lot of continued pain next month maybe fentanyl. I'm being careful. Maybe I'll PM you tomorrow and tell you my issue but for now it's covered. Hope you're feeling ok tonight. Prob hurting like hell. Wish you were here at Duke. They'd fix you up in a jiffy. Anyway, just wanted to thank you for your words. They are appreciated!!?
 
^Sorry to hear that amongst your pain, insurance, & inconvenient night time issues that you also have to face your mother & best friends mortality.

I don't understand American "insurance". Over in OZ we have the option of taking out "health" insurance, but by no way or means can anyone tell us which meds we can or can't have. Some meds such as Gabapentin I took for pain & not epilepsy, so scripts were written "off label" (for another purpose than intended), & that cost me a LOT of money I'd rather not have had to fork out, but I guess if a dr is telling you it will help,- then I'll give it a go.

In regard to you going back on MS Contin, & hearing of your recent ( I gather), change of routes of administration, do you think with morphines low bioavailability you'll be able to put that habit to rest? Or perhaps it's the dilaudid you're messing with. If it's that, I hear it's great, but I've only ever taken my Dillys orally, to stave off wds!! (Not that I'm encouraging it).

Understand you were taking it post surgically, but your tolerance has likely increased, not that I read of a time frame. Just the nature of these meds.

On your own by the sound of your posts. I'm not partnered either, but I have sweetchildofmine to keep me busy & my chin up most of the time. My father, (I was very much a daddy's girl), passed away over the space of a couple of weeks not long ago, maybe about six wks ago.

I was more comfortable that I knew his wishes,- & after him being admitted into a ward, then icu, then back to the ward, I'm so grateful the doctors caring for him took my word as gospel that he was strictly "DNR".

His rather newly acquired chinese wife wanted him kept alive by machines, but as she couldn't grasp much English the drs were calling me 24/7 for permission for meds, treatments, tests etc.

He never would've wanted to even known if that was possible, how sick he was. He had encephalitis, lost his memory, his continence, speech, (or would talk of things that never happened in the manner of a stroke victim), even the ability to recognise most of his loved ones during that time.

To keep the peace, between myself (former next of kin), & his wife, after a long chat at three am one morning the doctors that had been treating dad called it a "medical decision" not to return him to intensive care. He passed away ten minutes later.

It was so difficult to comprehend this ballsy, British naval seaman turned chef who only retired six months earlier after a hugely successful career, could change so drastically in just a few days.

So, if you'd like anyone to talk further with you, I'm not sure if I saw any mention of life expectancy, but as someone who's newly lost a parent..I'm encouraging you to PM me if or when you wish to ❤️

Another point, & this is to all sharing our fine thread, when something big gets into your brain do you notice your pain levels go down or are largely lessened?

I'm not meaning these new psychological methods that our PMs are now pushing onto us as the latest craze over any real medical or medicinal approach, - get a hobby, crochet a knee rug lol,- but when something super big is happening in our lives...

Be it an untimely death, extreme illness of your child, (or yourself), an emergency of sorts & you discover your pain has taken a backseat albeit temporarily?

I've noticed this myself too many times now to be coincidental. Maybe our brains can only process so much, & especially toward the Cpp's here I'd like to know if it also happens to others?

Perhaps it's adrenalin taking over, fight or flight, I know I can be on two elbow crutches with severe leg bone pain,- but a call from school that my ten yr olds had an accident & needs a dr... I drop my crutches & run, drive whatev, & have no prob throwing a 35 kg kid over my shoulder & running! I'd like to hear if anyone else has this happen ever.

It's def been more than one occasion. I had an awful few episodes with an ear condition called labyrinthitis, where as much as I knew the flooring in my home is flat, stable & secure, everything was at odd angles to my view of the world. I even went to the neurologist in my dressy & uggies I felt so bad! My pain was negligible though...

Dixi,- dear lady, if u can't smoke mj,- a tip I learnt years ago when smoking weed made me vomit.. You know in the chilled section of the supermarket they sell ready to "slice & bake" cookie dough? Wow, a roll of that & not even one "bud" stunk out my fathers house to no end, so don't attempt if you're expecting guests, but easier to stomach & less nausea. As it's "real" food, might be something worth trying.

Hell, any edibles, & I did find a different effect from smoking to digesting. Perhaps end your day with a green juice, very good for digestive health ;)

Best to all,

Rtp
 
I have chronic pain and understand your Mother's situation. If the Doctors are not doing well managing her pain she may have to join a Methodone maintenance program. It is generally for people kicking opiates and they will tell you flat out its not a pain clinic, but the fact is methadone is a good painkiller and if she says she needs maintenance to avoid doing heroin for her pain they will accept her into the program. I hope everything works out for you and your Mom. Love and light, Karla
 
Not sure if morphone is the same as the dilladas I'm prescribed. If u have intense pain crushing 2 MG and mixing it with water to use introviniously will take the pain away. You have to be really careful with your dosage I am prescribed 4mg and do one and a half pills and that is a very large dose and would be too much for many. I do not want to encourage introvinious use. You can also use a syringe without a needle and inject it into your anus, in Europe they call this 'Booty bumping' it is something that will probably work better than snorting and not as drastic as injection. I would recommend trying this to see if you get better results., I'm pretty confident the results will be better for you than snorting. I wish you the best. Goodluck.
 
Dixi there are easy blood tests they can do to check your pancreatic functions like serum amylase ect. But as you said you went for a c.t I'm shure they would have seen something suspect. O yea there's a thread on here, some guys ranting about magnesium citrate for opioid induced constipation?? Ever tried that? Just a suggestion?
Closau sorry to hear bout yer mom mate..
Just a random question have any of you ever bought medicine online? Not looking for a source so relax please mods. I'm interested too see if those things are scams(which I think they are) out of curiosity only. Oh an yea RTP right back at you your wisdom on BL is bar none! Holla' back! Haha
 
Runtoparadise, I wanted to quickly thank you. I appreciate your advice and story. That must have been rough. I will PM you later when I get home from dr. Always at the dr!!
 
First off, I love this thread. It's right up the alley of the kind of things I'm looking for, basically other CPP's in PM. So, I have a question regarding pain (narcotic) med monthly refills. I've been going to the same doctor's office (PM) for the past, nearly 4 years now and we regularly butt heads on one issue all the damn time!

My doctor almost always (unless I have something up where it's legit and I need my Rx early, like travel etc.) writes my refill date on what would be day 31. As is typical, I get a 30-day supply each month. As you may be able to guess, this is where we butt heads. I need to travel to my pharmacy on day 31 with no meds in my system since the night before (I typically take my twice a day meds at 6:00 am and 6:00 pm). The pharmacy opens at 9:00 am and is 20-25 minutes away. I'm almost always in the beginnings of withdrawal unless, I plan ahead and short myself somewhere during the month so I can take something when I wake up on day 31 to be OK to travel and wait for my script to be filled (I usually get out of there with meds in hand around 10:00 am). He just will not budge on this point and I do not, for the life of me, understand what the big deal is to write the script on day 30 each month. He is always quick to point out that apparently I'm the only one in their entire practice who has a problem with this policy of his/?theirs?. Personally, I find that a little hard to believe but hey, so be it if it's true.

My question is, does anyone else here have to deal with this sort of thing and am I out of line with wanting to get my meds refilled on day 30? FYI, before this doctor I saw another who always filled my script on day 28 (30-day supply) always giving me some extra as a buffer on those "bad" days. So, having seen that doctor for nearly 10 years, I grew accustomed to that way of doing things. Now, I don't expect these docs to do the refill on day 28, but day 30 does not sound unreasonable to me. So, I'm putting it out there so I can have a better understanding if I'm being unreasonable or if I need to chill out on this issue. I really appreciate anyone's feedback. Thanks BL'ers in advance! Hope everyone is hanging in there today~!
 
Back after a bit of a BL hiatus. Dixi, glad you got through your last hospitalization intact. So what's new..

MJ sucks for me. I've tried most of the THC:CBD ratios my supplier provides and have not found much of a difference. They all make me stupid and confused, only usable right before bed. I can get 5-6 hours of straight sleep using it, but i can also get the same effect with muscle relaxers and mild opiates. It's also not practical as i have a little girl with respiratory issues.. I just can't be "baked' when i have to wake up at midnight and medicate her with a nebulizer and get her settled down.

I was recently referred to an anesthesiologist who has been giving me trigger point injections into my spinal muscles. They are cortisone and lidocaine, and do provide some relief for a few days at a time. He is a great doc who also works at the regional pain clinic, so having some success there.

If anyone else has had experience with these TPI's pleas let me know. I'm not sure it's a game changer for me, but time will tell.
 
Shain, I've had trigger point injections. I posted in regard to it somewhere on this site..maybe in this thead.

I had seven in my back as a last ditch effort,- after trying facet joint IJs, SI joint blocks, medial branch blocks etc. I remember writing how I'd asked my PM how he'd know if he'd gotten the right spot, (as he'd said that my knots of muscle & nerve were about three inches deep), & he replied I'd let him know.

Lol, in hindsight, I had no idea his meaning was that indeed, once he hit the trigger point I'd scream & leap off the table faster than anyone knew I could move!!

They didn't help me at all, caused me a few days of extra soreness though. Hope they are helpful for your pain ❤️

Rtp
 
Do not buy meds online. There all scams. I got scammed so I know. I'm not sure about all meds but most prescription meds it's a scam. The only thing you can get online that has medicinal properties is Kratom. I just took some, rather high dose but I need high dose for my opiate tolerance. Thanks to y'all with your kind words about my mom. She sees her dr tomorrow so we'll see. I wish they'd up her breakthru. The oxy does fine for extended but only 4mg every 3 hrs. I guess it's a matter of perspective. To some that might be a lot but to me that's not much for a cancer patient. She's also on gabapentin and some other shit. For a woman who took Tylenol for everything she sure is on a lot of meds. I didn't get to see her today and I hate that and prob not tomorrow but I'm bringing her lunch Friday. I have till next Tuesday to decide if I want MS Contin or fentanyl patches. The patches are covered by insurance but their a teir 4 drug which jacks up copayment. I'm scared of fentanyl. Ityll prob be 100mc. I tried 50 last year and they didn't do much. I know that shits addicting but I'm so sick of this pain. Today I feel like I have a pool ball under my ostomy. Whatever dr thinks I rekon. I love this thread so keep it goin y'all!
 
Greetings, everyone!

Sorry I've been MIA; been running around for work, and had a 9 day trial for the new spinal cord stimulator. It's smaller, and treats back pain, not just leg pain. The first 7 days were terrible, but when I went in to check, they Xrayed me (because every other person in the trial had success), and my leads moved. It's like a tens unit, but you don't feel the vibration at all, or hear anything. Well, after they adjusted the leads and tried a different program, HALLELUJAH! Pain relief! Down from a 6 to a 2! I will hopefully have the permanent implant put in before Christmas. I would suggest others with back pain to investigate. When I find the flyer, I'll post the link.

BB4U, I have awesome nurses at my pain clinic, and though their policy is not to write scripts for early pickup unless you're traveling, they almost always do it for me now, as they know it's one less trip for me since I'm already out. They say as long as my insurance will cover it (and as long as it's close, they do), they will write it. I don't understand why they wouldn't; they are not changing the amount of my script at all.

I hope everyone is hanging in there. I've missed my online pain buddies. Hugs and drugs!
:)
AnnaBanana
 
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