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Misc The Pain Management Mega Thread version 3.0

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I see my pm Dr on the 23rd to get my meds changed and it cannot come soon enough Im in agony and it is only going to get worse as winter approaches.
 
JKTM ...Wow, that seems a bit extreme, do you think so too? I mean, I realize these drugs are nothing to laugh at, but still....
Were those the only 2 drugs that you were being prescribed at the time?
To D2P, Is the 23rd when you will switch over to what you were hoping to switch to last visit? Yeah, that's definitely a long time :( Is this a pretty much certain thing?? I hope so, you don't need to wait any longer. I know that you were hoping for this sooner. Although it's a long time to wait, it definitely helps if you know that you will be switched.
I'm glad you posted, I've been wondering how you're doing. I'm sorry to hear that you're still in such pain. Wasn't there some new drug they had you try that didn't help at all? I can't remember what you said it was called, but it was a non narcotic of some sort, right? anyway, I'm sorry that has not helped anything either.
 
Yup...my doctor is a bitch though...

Cold Turkey'd me off of BuTrans, Xanax/Klonopin, Lyrica, and Tramadol all at the same time and wrote in my treatment plan that I was tapered off my medications in the BHC...because someone can be tapered in 5 days.......

I left there taking 80mg of hydrocodone, 4mg of alprazolam, 300mg of lyrica, and 150mg of tramadol a day. I mean I guess I was kind of tapered in a way. The initiating doc put me on 40mg of OxyContin, 40mg of Norco, 150mg of Tramadol, 2mg of ProSom, 300mg of Lyrica, and 4mg of Xanax. Then the main doctor dropped me off the Oxy, changed my norco to 60mg, dropped my ProSom, and left the rest alone, but then bumped me up to 80mg a few days later...They didn't send me home with anything but 150 Effexor XR, and 150mg of tramadol/day because they thought my doctor would resume treating me...

Life is hell atm lol...getting by on 2400mg of ibuprofen a day (and I already have moderately-sever GI problems), 200mg of Dramamine PRN, and 3,000mg of tylenol/day...I have Seroquel for sleep, but I don't bother with it anymore as it doesn't work anymore, and I quit taking the effexor because it wasn't affecting me (tried it for 6 weeks before DCing it myself) and it was worsening my sexual problems...

BTW, has anyone ever had chronic issues with Varicocele before?
 
Yes i was put on Duloxetine for nerve pain and mental health problems instead of sertraline but now my psychosis is in full flare and it didn't do shit for my pain.
 
okay, good, I'm not the only one that didn't feel any improvements in pain from SNRIs...

I mean, that sucks that it didn't help and is fucking with your head (I know how that feels...I got serotonin toxicity from duloxetine, buspirone, and tramadol combined...that shit sucks)...
 
Same thing happened when i tried amitriptyline. no relief and it sent me batshit. I can't tolerate gabapentin or pregabalin either. Nothing helps, fentanyl got me down to a 7 on a good day i wish we could get oral preparations because Im allergic to the glue on the patches but the drs agent allowed due to cost. I really hope my next medication change helps when i see my pain management Dr. And i pray that the psychiatrist has space before i end up in hospital again.
 
have you thought of trying levorphanol? it's a pretty strong sigma-agonist and is good for nerve pain? there's also nabilone (the cannabinoid) which is indicated for neuropathic pain...
 
oh, bummer...I don't know how well it works as I've never tried it, but are you eligible for diacetylmorphine/have you tried it? They do Rx it there right? I really don't understand why it's a C-I substance in the states when it has a better side-effect profile than morphine SO4, and hydromorphone, oxymorphone, and methadone are all more potent than it.
 
One other option you might want to try is ketamine...dissociatives work wonders for nerve pain...at least they do for me...
 
meh, I've never had ketamine...but when I was using DXM to get through benzo withdrawal I would take 7-900mg and while it was god-awfully awkward psychotropically it helped with my nerve pain...

something else to think about is lidoderm patches (if they're available in the UK)...It doesn't penetrate very deep, but it took the edge off my stenosis...
 
Hello all, I'm a Cp sufferer and after reading this thread, I feel as if I could really use the help,support, and information that seems to abound in this group of folks. I just didn't want to be rude and jump in and start babbling away. So, for starters, it's a pleasure to meet y'all....can I sit at the cool kids table? :) And please, feel free to ask me anything, I'm an open book.
 
Jktm said:
meh, I've never had ketamine...but when I was using DXM to get through benzo withdrawal I would take 7-900mg and while it was god-awfully awkward psychotropically it helped with my nerve pain...

something else to think about is lidoderm patches (if they're available in the UK)...It doesn't penetrate very deep, but it took the edge off my stenosis...
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I tried lidocaine patches, useless. Can't get ketamine as an rx in this country and diamorphine is generally reserved for end stage cancer patients.
 
*Crosses fingers*

I've thought about looking to MMT, but I'm young in the NMCPP game, so I don't know if I should leap there...sounds like a quick way to develop hyperalgesia...
 
Well, I say non-malignant, but there's still a coin flip on what's causing the testicle pain lol...not to mention they're checking for pituitary tumors...I'll find SOMETHING (probably not everything) on tuesday when I go back to the urologist...
 
I already have hyper algesia it is one of the symptoms of my condition had to put up with it for over 3 years now. Good luck for Tuesday i hope you get some answers
 
There have been studies showing ketamine helps prevent opiate tolernce from increasing. I have found that both ketamine and methoxetamine have worked wonders for my pain and aloud me to decrease my morphine and hydrocodone dosages. I remember this one time when I was using lots of ketamine and/or mxe everyday for 1 1/2 weeks or so my mom commented several times on how much better I seemed to be doing. I have told her about the studies with it being used or that treatment and she found it interesting but I haven't told her I use it. I would love to find a doctor willing to do it but the chances of it happening are extreamly slim since it's not fda aproved for that treatment and even if it was there would still be real hard finding a doctor that would comfertable giving it to you.
 
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