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The Pain Management Mega Thread v2.0

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I've posted here before, and was just curious which opioids typically work well with hyperkyphosis, DDD, herniated disks, sciatica, and severe neck pain?

In other news, theres actually talk of an "OxyContin-like" formulation of hydrocodone in the makings which I'm assuming would come in doses of around 60-120mg each. It's a C-II Rx as opposed to a C-III, though, so there can be no refills can be written and one must see a doctor everytime a Rx needs a refill.
 
doppelganga196 said:
Hey doomed2pain. Yeah, i was curious about others feelings about dihydrocodeine as i dont think i've seen it mentioned on here. I take a dose of codeine early in the day which i admit i enjoy for about half anhour, then get pain relief for approx 3 hours. This is where the DHC comes in. Normally i'll dose 180mg which is very effective i find. Also i dont "enjoy" the effects from DHC, just enjoy the fact that i can actually ignore the pain.

The best thing about DHC is that you can redose within an hour or whatever if it hasnt done the trick. Also it lasts long, like 8 hours.

I suppose i just would like to know what other people thought about it as i've read mixed reviews.
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DHC is great for pain but I dont enjoy the effects from it either.............
 
say i told you and am currently a chronic pain patient with CRPS nearly full body and pain induced seizures etc, just say you speak to pain patients for support and they are some of the things that came up, i told my dr what a friend and crps sufferer like me was on and he had no problem trying me on it at all.

also, take your research with you, it looks good and backs it up. my drs know nothing about my condition so i do the research for them.
 
Glad to see there is a thread for CPP. I have been in chronic pain for about 5 years now. I have DDD, spinal stenosis, Slipped disks, fibromyalgia and myofascial pain. I started out on hydrocodone, then oxycodone, then morphine to oxymorphone. I am now on Opana ER 30mg 2 x's a day with 60 count, 7.5 Percocet for breakthrough pain. I just came down from 40mg Opana ER 3 x's a day. I went through withdrawal symptoms when I was tapered down. Not sure why....not full blown withdrawal, but I was having chills, sweats, aches, stomach pain, runny nose, and sneezing, but only in the mornings and after the Opana started to kick in after an hour or two, the wd symptoms calmed down and went away, but I am still feeling some mild wd in the mornings and have now been on the 30mg 2 x's a day for 3 weeks now. My question is...I am getting ready to move to Alabama (Huntsville area) and I am not sure if I am allowed to ask this, but I was wondering of anyone can recommend a good (compassionate) pain management center or doctor there. I will be honest, I am scared that I will have a hard time finding a doc that will Rx me the same thing I am taking now. I have looked online to research docs in the area, but not having much luck finding reviews and the ones I do find are scaring me. I am not an addict, however, I am very much physically dependent on my pain meds and I know if I am cut off all at once I will go through horrible withdrawals. I do want to get off pain meds someday, but right now I am dealing with too much pain to do that. So, this move to another state and not knowing what to expect from a doctor in a new area is scary for me. It is hard enough to get any doc to Rx pain meds, but I am afraid that it may be harder to get treatment in the south then where I am from, which is Maryland. I also do not want to go to a new doc and sound like an addict either, so I do not want to go in and ask for the same meds....well it scares me to ask, because then they may get offended or think I am drug seeking. I feel doctors have so much control over my pain relief. I have tried medications such as Lyrica, Neurontin, Savella, Cymbalta...and other meds in that class, but they make me feel like a zombi and they make me so tired all the time. I do not want to sleep my life away. I do not want to feel high or to feel dizzy and fuzzy from medication, but I had a doc tell me I was just seeking opiates and I was saying these other meds did not work. That had me so upset. I felt like stopping the pain killers and going through withdrawal and never taking another pain pill, but then my fiance talked me out of that because he said I would only be hurting myself. It is so hard when you actually have so much darn pain and you are treated so badly. Also, many doctors do not believe pain medication can help with fibro pain, well I know it can and it helps me. I know it helps with my back pain, which I guess helps with the other pain. Anyway...I just want to know what I should do and how to find a good pain management center or doctor in Alabama, Huntsville area....if it is ok to ask this question, and if anyone can help me. Thank you!!!

Rose
 
is any of the chronic pain people in the mood to help me with my charity for CRPS. funds go on research and testing into crps which none are being done. there is no cure and no where near enough relief if yousre stage 4 like me.

please pm if you are. thanks people

<3
 
rose - i dont know of any docs, but i would recomend taking all your medical notes/documentation/x rays/mri's etc with you along with a referral letter from your current doctor and a supply of your current meds - so you have time to find a suitable doctor and maybe time to start buliding a relationship with them before you run out of your presciptions.

i hope your withdrawls settle down soon :)
 
brighton---thank you! I have my current pain doc sending my records and results of mri and tests to whatever new doc I find. I guess I will have to chose the best one I can find that looks safe online and then if the doc is no good, change docs once I am there. I am just hoping I find a good doc on the first try. I have been going through so much the last 2 yrs and need a break. I need something to go smooth for me, especially something like my medical care. Thanks for the advice and my wd's are easing up a little. I think mornings are just going to be my biggest butt kicker from now on. Hope you are well.

Rose
 
rosepainpt said:
brighton---thank you! I have my current pain doc sending my records and results of mri and tests to whatever new doc I find. I guess I will have to chose the best one I can find that looks safe online and then if the doc is no good, change docs once I am there. I am just hoping I find a good doc on the first try. I have been going through so much the last 2 yrs and need a break. I need something to go smooth for me, especially something like my medical care. Thanks for the advice and my wd's are easing up a little. I think mornings are just going to be my biggest butt kicker from now on. Hope you are well.

Rose
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Do yourself a big favor & pay the clinic for your own (copies) of all records/charts...
 
I need stronger meds been in tears all night and a pain induced52 hour mini coma since wed night.

Fed up of my drs reducing my meds when they need increasing :(
 
oh doomed, that sucks. i hate the crazy make you cry pain.
ive had that from doctors too, oh your pains really bad? heres less medication! grrrrrrrrr
is there something relaxing/distracting that you like doing?
or is there someone(a relative?) that can call your doctor for you? - sometimes they listen more when someone
calls on your behalf...
hope today is better for you.<3
 
Doctors dont care if you're in pain..........they just care about not going to jail for prescribing a strong medication. The whole system is a joke & the government should dismantle the DEA.
 
I live in yhe uk just as bad here. govt have stopped certain meds due to expense it is bull
 
Doomed2pain said:
I need stronger meds been in tears all night and a pain induced52 hour mini coma since wed night.

Fed up of my drs reducing my meds when they need increasing :(
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I know what you mean. You're in the hospital for "pain control" and all the want to do is lower your meds! It's like if I could tolerate being at home with less pain meds WHY did I come in here for pain control? Obviously I needed more than I am taking, that's why I'm here!

The worst is when they tell you to rest and get some sleep, so you sleep, then they say "oh you've been sleeping all day, too much, I think you're too drowsy from the pain meds, we're gonna lower them.." Idiots! You told me to sleep and get some rest! I'm in recovery! That bothers me so much, they're so contradicting sometimes.

Sorry for your pain Doomed, CP is the worst, they just don't get how some people just can't tolerate the pain. Hope it gets better soon
 
There are some good drs out there. Mine is one of them thank goodness. My advice would be to google pain management doctors/ clinics in your area. Talk to them and explain your situation. I'm a nurse and it breaks my heart to see people suffer. I'm really big on being a patient advocate. Pain is what ever the patient says it is. It hurts where ever the patients says it hurts. Those are the rules but sometimes people forget this. I hope you find some comfort soon.
 
Fire&Water said:
Do yourself a big favor & pay the clinic for your own (copies) of all records/charts...
Click to expand...

I am paying for my records and taking them with me. I am taking everyone's advice on this. Thanks!!!! Now hoping I find a decent doc to give me what I am currently taking.

Rose
 
Has anyone heard of Hyperalgesia? It is when your body get so used to high doses of pain meds that it makes you even more sensitive to pain, so even if the doc increased your pain meds, they may only work for a week or so and then you will feel intense pain again. My pain doc says this is what I have and she started lowering my meds. Unfortunately, I am still in pain and having some withdrawal symptoms. I am so darn upset over nothing controlling my chronic pain. Maybe I should wean myself from all the pain meds and deal with the pain somehow. I am sick of doctors, sick of pain and sick of practically begging for help with my pain through pain meds. When you begin going to a pain clinic they tell you that it is ok to use narcotics to help your pain and then they keep increasing them, then once you are dependent on them, then they say, well we think you are taking too many pain pills so we need to cut down. Well, you butthead were the one giving the pain meds to me and increasing them every other month, I did not ask for this crap. I did not ask for pain meds until I felt I was dependent on them. So, I feel I just need to get off them somehow, but I do not want to go cold turkey. I am in the process of moving, so once I get there, I guess how I get off these pain pills will be decided. Either I will find a doc to give me what I am taking now and help me wean off, or I will find a doc that will not give me anything and I will have to withdrawal cold turkey. No matter what, my life, my pain and what happens to me is basically in there hands. I do not like someone having that much control over me and my body like that. I rather be off all opiates and find pain relief in other ways. I have been doing the pain pill thing for over 6 years now and I am so done. However, I really do not want to be in pain. So, I guess I cannot really win. But I need to find away to balance all this out.
 
My mom always wanted me to try acupuncture? Supposedly it's good, I've never tried it or never even looked into it. But she always told me I should try it for my chronic pain. (I had a herniated disk in my back). I eventually went with epidurals which helped after 6, I think, but maybe you need some type of stress-relieving method? I don't know what exactly is causing your pain or where your pain is, but maybe exercise or yoga could help too?

Or, maybe you need to build up the muscle around the area, like they do when you go to physical therapy. Like my back was hurting so much so they told me to do sit ups and crunches to build my abs up, so that way it would take some pressure off my back. Maybe something like that could work for you?

I don't know how helpful that is but if the pain meds aren't working, maybe alternative medicine could work for you? I personally haven't tried any of it (well the PT worked for my back in combination with the epidurals) but I heard it's worked for other people? Could be worth a shot?
 
brighton said:
rosepainpt - have you tried methadone ? http://en.wikipedia.org/wiki/Opioid-induced_hyperalgesia lists it as one treatment.
but i dont get how they tell the difference between hyperalgesia and tolerence.... doctors are silly!
do you need help/advice on putting together a taper plan?
i came off daily opiates 4 months ago, one plus is that they work so much better now taken as needed.
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I am on Opana ER 30mgs 2 x's a day until around the 20th and then I will have an Rx for Opana ER 20 3 times a day. I was making up a taper plan today, but I will have to break the pills in halves and quarters in order to keep weaning my daily dosage down. I am hoping to get completely off them by the end of Feb. I feel like if I do see a pain management doc in the new state I am moving to in a couple weeks, I do not want to be on anything stronger than percocet to take as needed. Man, getting off this stuff is hard. I do not get high off them, and get little pain relief, but when my body goes longer then 8-10 hours without it, I can feel it, especially in the mornings. How would you suggest I taper from Opana ER's 20mg 3 x's a day?? Oh, and thank for helping me!!!!!
Rose
 
Hello out there. I posted a thread but havent got any replies yet. Very long story short, I have blood clots in my thighs,groins, and abdomen. The clots are old and hard by now and Im on thinners. Clotting is under control but the pain is not. Never has been in 2 years! First it was percs. Then MS Contin and oxycodone together. Built up tolerance in the 7 months I was on those. Went without for awhile and pain returned. It is constant 8 out of 10 pain in my groin. Finally got referred to pain clinic and he started me on 10mg of methadone a day. Im now up to 40mg a day. My question I guess is, anything other opiates I could use to help me. He is reluctant to prescribe anything for breakthrough pain and I dont go back for 3 months. Im just at my wits end. I'm not high and mighty and Im not perfect. Im not asking what meds are best for abuse, just better pain management. If anyone out here has ant ideas for me, it would be appreciated. Im new to this so sorry if this is unclear or incorrect. Thank you!
 
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