The Pain Management Mega Thread v2.0

[Mercc96]

Me too ^ I walked out of my first pain management appointment. Rude cunt. couple month waiting period? What the fuck is that?!. I treat myself now.

 

[Doomed2pain]

^^^ same. He had me in tears on so many occasions, I have PTSD panic disorder and various other mental health problems due to my crps and even the nurses were disgusted. When I had my nerve block he was diigging doing in my bad foot with a needle, 4 nurses had to pin me down. He was just a complete arrogant, ignorant insensitive cock end.

He never let you finish what you were telling him, even when I was desribing my pain and trying to show him how bad it was. My old pyshio bollocked him as he wanted me to stop using crutches when I cannotput any weight through my foot at all I have to put the weight through my heel to try and walk with my crutches. Right now I am bed bound.


I hate this country! He discharged me eventually saying the was nothing else he could offer me. Waiting to see a private expert now.

I am sorry you had this too Hun, it is not on and much more damaging to our health than any medication could ever be.

Love and hope to you

 

[Hooddood78]

Finland. At time of second world war and our war with Russia, the soldiers were given a lot of heroin for wounded and amfetamine to help them be awake. Some time Finland was at the top of countries using heroin - then UN or something like that took the case and they cut us of. At that time there were a lot of addicted soldiers unfortunately. Since then, the laws and ideology has been very strictly against using morphine, oxycodone and such in pain management. Unless you have cancer or some, you don´t get the real stuff.

Nowdays the situation is a lot better. We have these painclinics in major hospitals and they are quite generous with the medicines but still starting the hardcore painmedicine is very tough. For chronic pain there is of course many other substances which helps well but it is very difficult to go beyond the point of tramadol/bubrenorphine -level. Most of the doctors follow very strictly the WHO guidelines and don´t have balls to test "coctails" individually which is of course the only way to get the best results. Who is the better judge on pain than patient it self. But many doctors don´t understand that, mine do though. And I´m so very happy about that. She is one of THE most well-known pain docs in this country. She sees patient as a human, individual and holistic - if you know what I mean. That is the only way of doing pain treatment.
I have a neurostimulator now for my legs and it works well. My dream is to get rid of the most medicines - I still need some for treatment of my Migraine but the every-day opioids I wish to get rid of. Well, then I use them recretionally but that´s another story...

It´s all about doctor and attitude. The climate of pain treatment has gone better in past couple years. Peopple have started talking about it and even the stronger medicines are now much more acceptable than 10 years ago. But still we have only less than 10 hardcore substances in use for painmanagement. At the same time when USA has tens and tens of different opioids in use - I believe. I don´t know for sure.

I haven´t really cheated my doctors in miss-using the medicines until just recently when I have started to shoot for example my bubes. That was the most idiotic thing from me to do..

What is the public climate in UK for using hardcore medicines in chronic pain? You have also diamorf... We don´t, damn that!

-Hooddood78

 

[BuddingPharmacist]

^^^ same. He had me in tears on so many occasions, I have PTSD panic disorder and various other mental health problems due to my crps and even the nurses were disgusted. When I had my nerve block he was diigging doing in my bad foot with a needle, 4 nurses had to pin me down. He was just a complete arrogant, ignorant insensitive cock end.

He never let you finish what you were telling him, even when I was desribing my pain and trying to show him how bad it was. My old pyshio bollocked him as he wanted me to stop using crutches when I cannotput any weight through my foot at all I have to put the weight through my heel to try and walk with my crutches. Right now I am bed bound.


I hate this country! He discharged me eventually saying the was nothing else he could offer me. Waiting to see a private expert now.

I am sorry you had this too Hun, it is not on and much more damaging to our health than any medication could ever be.

Love and hope to you

I'm with you. The medical treatments these doctors at pain clinics come up with is a load of horse crap these days.

My own pain management doctor set me up with ABSURD quantities of pain medicine, addicting me. Then he goes and puts me on Xanax to help me sleep at night.

Crazy bastard. He almost killed me, doing that! Xanax and pain killers together can be fatal. I almost died.

Anyways, after deciding not to sue him for gross negligence and medical malpractice, I found another doctor on google that 15 people rated as 5/5 stars for his professionalism. Best thing I ever did in my medical care was finding a top notch physician and reading patient's reviews. He's perfect and I have had zero problems with the new doctor and all of my health issues are under control.



MORAL OF THE STORY FOR EVERYONE:
•Always know exactly what you are taking and why instead of blind trust in your doc.
•ALWAYS find a top-notch and top-rated doctor on the internet using google to find a decent doctor review website.

 

[Mercc96]

Yes the 'Dr' that I saw was an arrogant cock, who obviously hadn't read my files or anything. If he had he would have realised that I had a nervous system disorder, but he simply just thought I had hurt my foot or something. Was rude as hell, forced me to take a medicine I didn't want to. I specifically said I would not take any anti depressants, fuck anti depressants- pain needs pain killers? especially when youve had the pain for years and its growing in intensity you fucking moron. Then had the cheek to write some writeup that was 97% bullshit. WORST BIT. My family and friends barely accept that I have a problem, they moan at me if I even dare mention being in pain- there seems to be some expectancey that I should shut up and put up, like me being is pain is somehow affecting them more than it is me? "your being depressive, stop being so defeatest" " I can't talk to you , you don't even want to try to think about something else other than your pain"

How long do you guys spend trying to describe your pain to your doctors? I assume you guys see numourous doctors as GPS generally don't have a clue about what they are doing. Seems my best bet to getting some pain treatment is smoking 100+ ciggerettes a day and hoping for a spot of cancer, throwing myself under a bus or testing positive for heroin at a piss test and hoping for methadone. Bullshit really.

 

[Doomed2pain]

I want a spinal cord stimulater too but i need to wait for a specialist on my condition on waiting list to see a private crps and pain management expert, apparently she is the same as your dr, I will also have to travel for the inpatient ketamine infusions, maybe to Germany or the neatherlands.


The nhs has just gone stupid with opoid therapy for pain patients, they ditched diamorphine years ago but now I can't even get oxycodone, fentanyl aggravated my skin causing huge open sore and scars, but other preparations are deemed too expensive by the government. I cannot get anything other than morphine which does nothing for my pain and has way too many negative side effects. I am pissed off with it. The only people who get diamorphine are people in end stage cancer, and probably the drs for themselves lmao.

It sucks. I hope you manage to get the best relief possible.

Love and hope

Finland. At time of second world war and our war with Russia, the soldiers were given a lot of heroin for wounded and amfetamine to help them be awake. Some time Finland was at the top of countries using heroin - then UN or something like that took the case and they cut us of. At that time there were a lot of addicted soldiers unfortunately. Since then, the laws and ideology has been very strictly against using morphine, oxycodone and such in pain management. Unless you have cancer or some, you don´t get the real stuff.

Nowdays the situation is a lot better. We have these painclinics in major hospitals and they are quite generous with the medicines but still starting the hardcore painmedicine is very tough. For chronic pain there is of course many other substances which helps well but it is very difficult to go beyond the point of tramadol/bubrenorphine -level. Most of the doctors follow very strictly the WHO guidelines and don´t have balls to test "coctails" individually which is of course the only way to get the best results. Who is the better judge on pain than patient it self. But many doctors don´t understand that, mine do though. And I´m so very happy about that. She is one of THE most well-known pain docs in this country. She sees patient as a human, individual and holistic - if you know what I mean. That is the only way of doing pain treatment.
I have a neurostimulator now for my legs and it works well. My dream is to get rid of the most medicines - I still need some for treatment of my Migraine but the every-day opioids I wish to get rid of. Well, then I use them recretionally but that´s another story...

It´s all about doctor and attitude. The climate of pain treatment has gone better in past couple years. Peopple have started talking about it and even the stronger medicines are now much more acceptable than 10 years ago. But still we have only less than 10 hardcore substances in use for painmanagement. At the same time when USA has tens and tens of different opioids in use - I believe. I don´t know for sure.

I haven´t really cheated my doctors in miss-using the medicines until just recently when I have started to shoot for example my bubes. That was the most idiotic thing from me to do..

What is the public climate in UK for using hardcore medicines in chronic pain? You have also diamorf... We don´t, damn that!

-Hooddood78

 

[Doomed2pain]

A the minute I am smoking hundreds of cigs, coz my pain is that bad I have been tanning them.


I have seen that many drs it is unreal.

I know your pain, 3 drs have actually wrote reports on the wrong foot ffs.

Sorry for double posts, I am using one hand and I cannot manage to paste them all together.

Yes the 'Dr' that I saw was an arrogant cock, who obviously hadn't read my files or anything. If he had he would have realised that I had a nervous system disorder, but he simply just thought I had hurt my foot or something. Was rude as hell, forced me to take a medicine I didn't want to. I specifically said I would not take any anti depressants, fuck anti depressants- pain needs pain killers? especially when youve had the pain for years and its growing in intensity you fucking moron. Then had the cheek to write some writeup that was 97% bullshit. WORST BIT. My family and friends barely accept that I have a problem, they moan at me if I even dare mention being in pain- there seems to be some expectancey that I should shut up and put up, like me being is pain is somehow affecting them more than it is me? "your being depressive, stop being so defeatest" " I can't talk to you , you don't even want to try to think about something else other than your pain"

How long do you guys spend trying to describe your pain to your doctors? I assume you guys see numourous doctors as GPS generally don't have a clue about what they are doing. Seems my best bet to getting some pain treatment is smoking 100+ ciggerettes a day and hoping for a spot of cancer, throwing myself under a bus or testing positive for heroin at a piss test and hoping for methadone. Bullshit really.

 

[Mercc96]

Although I must admit, there has been one professional who has been of the most help and it isn't even in his field. Diagnosed me with allodynia and central sensitiziasion and even referred me to a neuromuscular specialist now that they believe I may also have muscular dystrophy or myopathy. Great man, actually appreciated my knowledge of controlled substances ( I kind of held back on everything, just showed that I wasn't an idiot) and was the only doctor to shut up and let me speak which was a relief.

 

[Doomed2pain]

Oh that's good that he listens. Ionly take my meds as prescribed and I is killing me.

Hope you get some help soon, I will be having more tests dome when I see private crps and pain specialist as I may have now developed fibromyalgia, it's common, the 2 go hand in hand.

 

[BuddingPharmacist]

Yes the 'Dr' that I saw was an arrogant cock, who obviously hadn't read my files or anything. If he had he would have realised that I had a nervous system disorder, but he simply just thought I had hurt my foot or something. Was rude as hell, forced me to take a medicine I didn't want to. I specifically said I would not take any anti depressants, fuck anti depressants- pain needs pain killers? especially when youve had the pain for years and its growing in intensity you fucking moron. Then had the cheek to write some writeup that was 97% bullshit. WORST BIT. My family and friends barely accept that I have a problem, they moan at me if I even dare mention being in pain- there seems to be some expectancey that I should shut up and put up, like me being is pain is somehow affecting them more than it is me? "your being depressive, stop being so defeatest" " I can't talk to you , you don't even want to try to think about something else other than your pain"

How long do you guys spend trying to describe your pain to your doctors? I assume you guys see numourous doctors as GPS generally don't have a clue about what they are doing. Seems my best bet to getting some pain treatment is smoking 100+ ciggerettes a day and hoping for a spot of cancer, throwing myself under a bus or testing positive for heroin at a piss test and hoping for methadone. Bullshit really.

Hey I understand you. You feel as if they are not listening to you. Don't go doing anything hasty or rash, though, even though you are frustrated and you have a right to be as long as you aren't seeking the medications, which I don't think you are. I'm happy to share what worked for me. Here:

Try what I did. Find a doctor online, or talk to various doctors or friends and see who's name gets brought up and/or praised.

Trust me. Go online to a doctor rating website and have a look around. This was very helpful to me, and lead me to find my current doctor who fixed all of my problems and listened to what I had to say, just like the patient reviews online said he would.

It is no use seeing a doctor who doesn't listen, right? Find a different one through research and throw the old one out. Your health will be realized far faster by a doctor who understands you.

But be weary, of course, of the medications. The addictive medicines will tear your personality to tatters and leave you a bitter awful person if you fall into them. A large chunk of my life was destroyed by a doctor who vastly overprescribed me painkillers in amounts that would have firmly addicted anyone. I lost much due to my trust in a bad doctor.

You must be vigilent against the medicines at all times. Strike a balance between pain reduction and how much medicine you can use without feeling loopy, or the medications will gain mastery over your mind. Don't let that happen. Master it so it won't master you.

Be well. I feel for your situation. Think over my advice. I spent a while thinking about how best to help you with some good advice and wrote this for you hoping to help.

 

[Doomed2pain]

^^^ I have done my research am just waiting for the solicitor to take the insurance company to court then I can get treated, I don't have private healthcare you see and the nhs are useless.


Very food advice dude. I am physically dependent but not addicted, I have coped with the lowest amount possible the entire time. I was on the lowest dose of cocodamol for 18 months whilst trying ever other type of treatment I possible could. Strong drugs don't even touch my pain and I get no good side effects. I even went without for 3 months after having been on fent, oxy morphine you name it. I just stopped but knew what would happen this winter so had to go back on in September/ end august starting on codeine again.

 

[BuddingPharmacist]

Something else I found, which might help you:

Most people who take opiates end up with some symptoms of ADD/ADHD. I expressed my concern, so the good doctor prescribed me some Vyvanse (dextroamphetamine). I found it incredibly useful in helping my wellbeing. I simply take a low/moderate dose of 40mg, and it keeps me from cravings and from the majority of bad effects coming from opiates and the effects of staying off opiates for a while.

It may do the same for you, helping to promote more energy that the opiates take away. Opiates end up causing anxiety, some instability, and depression too from time to time, (during and after a course of painkillers), and the Vyvanse has obliterated that for me. It also helped me lose weight by curbing appetite nicely, allowing me to be all-around healthier, happier, and more pleasant about life.

Just a thought. If you look into that, stay at a low dose. Using a higher dose tends to screw up the painkilling properties of the painkillers, while a lower dose fixes a TON of problems without causing any.

 

[Doomed2pain]

I can't have stims, I do have ADD and dyslexia already but as I am constantly over producing adrenaline I cannot take them, most of the time I am unable to drink caffeine. It is a very complicated disorder. I have tried Ritalin on 2 occasions for my Uni work, and they really helped me focus but told the educational psychiatrist that I didn't want to be prescribe them, I think I took 20mg each time.

I would rather not add more drugs to my already impressive regime lol I am surprised I don't sound like a maraca when I have my pain adrenal response induced weird seizure things. The stims really wouldn't help. Just seeing someone in pain on tv, laughing too much, watching something high paced etc can set me it is awful, I got from manic to depressed to manic to psychotic at alarming rates when I am like this but blue light is really, really helping me stay positive and keep calm and distracting me from the pain as much as humanly possible. Also essential oils burning, meditation chill out music and the dark.

Oh and my cat. She keeps me sane and doesn't leave my side, she only goes for food and for the toilet and comes straight back, she knows I am in pain and wants to look after me and comfort me.


Thanks for the info though I do appreciateit

 

[doppelganga196]

Anybody here take dihydrocodeine for pain?

At one point i was getting DHC contin 60 mg slow realease tabs, then 30/500 codeine pills. However after being treated for diazepam addiction my doc wont write me anymore than the occasional 30 count box of cocodamol & he told me i'd be better off using otc angalgesics. What a pain! I'm just hoping i'll be getting the surgery next year.

Anywho, dihydrocodeine is pretty decent for releif, lasts about 8 hours imo, thing is i'm now buying A LOT of otc painkillers & getting a pack of cocodamol & paramol (dhc/apap)
pretty much daily.

I always dose the codeine first, like between 8 & 11 am. Dont get me wrong, at the doses of codeine i use i find it pretty enjoyable by way of recreational effects but the DHC does no such thing just holds me for hours & you can successfully redose unlike codeine which is lousy for chronic pain.

I'm in the UK, doctors only prescribe codeine, either 30 or 60 mg straight tabs, 30/500s, Morphine or DHC. My pain doesn't meet the criteria for morphine & being virtually blacklisted for opiates because of my diazepam adddiction/dependency.

So, anyway, anybody have luck &/or general experience with dihydrocodeine? I'm also thinking of asking for some gabapentin as i had that in 2009 back pain but i have doubts it will work for my pain...

 

[Captain.Heroin]

Anybody here take dihydrocodeine for pain?

At one point i was getting DHC contin 60 mg slow realease tabs, then 30/500 codeine pills. However after being treated for diazepam addiction my doc wont write me anymore than the occasional 30 count box of cocodamol & he told me i'd be better off using otc angalgesics. What a pain! I'm just hoping i'll be getting the surgery next year.

Anywho, dihydrocodeine is pretty decent for releif, lasts about 8 hours imo, thing is i'm now buying A LOT of otc painkillers & getting a pack of cocodamol & paramol (dhc/apap)
pretty much daily.

I always dose the codeine first, like between 8 & 11 am. Dont get me wrong, at the doses of codeine i use i find it pretty enjoyable by way of recreational effects but the DHC does no such thing just holds me for hours & you can successfully redose unlike codeine which is lousy for chronic pain.

I'm in the UK, doctors only prescribe codeine, either 30 or 60 mg straight tabs, 30/500s, Morphine or DHC. My pain doesn't meet the criteria for morphine & being virtually blacklisted for opiates because of my diazepam adddiction/dependency.

So, anyway, anybody have luck &/or general experience with dihydrocodeine? I'm also thinking of asking for some gabapentin as i had that in 2009 back pain but i have doubts it will work for my pain...

No; I use THC/CBD via cannabis, as that delivers the best analgesia for mself. %)

 

[Enigmatic]

Hi there. New to BL but am unfortunately not new to pain management and the associated problems with various medications used to treat chronic pain. (I hope this is the right forum for this post, if not please chew me out and move it to where I should have put it - thanks!)

Three months ago, I landed in the hospital with severe gastric issues. It seems from all my years of taking pain medications, I have done severe, possible irreparable damage to my stomach and small intestines. My pain doctor wants to switch me from taking Opana ER oral with Dilaudid for break-through pain to the Fentanyl Patch. I realize that I have two choices, either completely go off of pain medication and learn to live with excruciating pain or switch to some form of pain control that bypasses my stomach/intestines. For most that would mean the patch but for me it may not be possible. Having been prescribed Fentanyl four years ago and again being placed on the patch while in the hospital, I have had the same side effects each time. I"m wondering if other pain patients have experienced these issues with Fentanyl and can provide some information on what could be the cause or if there is a way to treat the side effects.

Every time I have had a Fentanyl Patch on, within 24 hours, regardless of the dosage, I experience severe muscle cramps/pains and joint pains. I have been told by a nurse that I had a histamine reaction from the patch that is causing the cramps/pain. My pain doctor believes these cramps and pain will go away after being on the patch for a while and my body normalizing to it. I have serious doubts about this. Four years ago I was prescribed the patch for 9 months, only to eventually have such severe cramps/aches I became housebound, literally only leaving the house for my once a month doctors appointment and trip to the pharmacy. Within a week of removing the patch, the pains stopped.

Has anyone else experienced these issues with Fentanyl or have heard of anyway to prevent and/or treat this type of side effect? My pain doctor is very patient and understanding and has given me some time to decide if I want to switch to the patch or go through detox and stop taking medications completely or if I want to continue damaging my gastric system through oral medications. The last time I detoxed (using Suboxone for a wicked Percocet addiction) I was able to get off the drug but not long term. Eventually my pain levels became unbearable and I ended up seeking out a pain doctor.

I'd appreciate any advice or comments about the issues I'm facing. Thanks!

 

[Doomed2pain]

Just been prescribed temgesics, 200mcg sublingual buprenorphine.

Never had it, nor have I been told whether I take this with my morphine or what. I dont know what to do. My dr even rold my mum it was sublingual fentanyl WTF,!!!!
Do these people have medical degrees or what??? Pissed off and need to get my breathing back down beforei start seizing again. Help!

 

[Sepher]

No expert but won't the buprenorphine block the Morphine? It displaces other opiates and binds to the receptors so other opiates can't get through. That's why it causes withdrawal in addcits with tolerance. Can't be intended for use alongside morphine, can it? Understand that though Bup is a more potent opiate than morphine generally, it's action at the mu receptor is weaker, as morphine is a full agonist whereas bup is only a partial agonist, so pound for pound it's a less effective pain reliever for severe pain. Guess it depends on how high the daily doses you've been prescribed of each is as to whether the bup will be less or more effective as a pain reliever.

Your PM box is full btw. Can't send to you.

 

[Hooddood78]

Bubrenorphine will block morphine for working at it´s best or other way around. Those two should´t be prescribed at the same time... You can even use bubre as "naloxone" for morphine od if that´s the case, so it will seriously block both working well.

200mcg = 0,2mg I believe is quite small dose if you already use morphine by doctors order. I can´t believe these monkeys these days. They won´t learn even the basics at the medschool. Unbeliavable. That is still quite small dose to go with morphine but is there any effect with it, I can´t really say.

I used bubrenorphine patches for couple years, now of because of this neurostimulator but still have temgesic sublingual tabs 0,4mg when needed for bad pain. We might some day have gone to the oxycodone but because of my age and plan to have children, my doc didn´t want me to start "hardopioids" because of the side-effect on testosterone levels..

Now I just need get rid of the the habbit of shooting bube. Just fixed and shooted 2,0mg - it really doesn´t make that much effect but still you go and use valuable medicines to that nonsence.

-Hooddood78

 

[Sepher]

Doomed2pain, scratch the above. Seems with low doses of bup the pain relieving effects of bup and morphine in combination are additive according to the Formulary of Palliative Care and 'Buprenorphine: the Unique Opioid Analgesic - Pharmacology and Clinical Application' (2005) edited by Keith Budd & Robert B. Raffa'

'The interaction of buprenorphine with mu-agonists in the analgesic dose range resulted in an additive to supra-additive effect. Statistical comparison with the respective theoretically additive value indicated pure additivity for the combination of buprenorphine with morphine and with hydromorphone and a moderate synergistic interaction for the combination with oxycodone. Importantly, in all of the experiments there was no indication of a sub-additive effect or antagonistic interaction. These results show that in the analgesic dose range, buprenorphine behaves in a manner similar to other mu-agonistic opioids. That is, by interacting with the same receptor type, it induces additive or slightly greater analgesic effects when combined with other mu-opioids.'

Would ring your doc first thing and check that's what they intend if you're not sure how it's to be used.