Misc The Pain Management Mega Thread v. 7

[Runtoparadise]

@Englandgz, you couldn't get another role? That sucks you hv to come off your pain meds..

Ppl say acute wds last 5 or so days. I can tell you mine lasted at least ten days, though maybe it was because I was taking extremely high doses.

Fent Is an extremely difficult drug to come off of. I recall reading a post here on BL where the chick wding off fent was crawling to the bathroom & carrying a bag to vomit in with her everywhere .

You must be handling it if ur stirring up the fellas on eadd.

Im actually doing really well with my chronic pain. Best it's ever been!! My right arm/shoulder/neck troubles me as does my numb right hand.

It's almost a year since I was run over & no specialist seems to have an answer. I might be stuck with it. The other day I was boiling potatoes & spilt the steaming water on my socks & slippers. Bloody hurt! I also cut & burn my hand regularly.

I'm attending physio with a fella that owns the large practice of 20 physios + acupuncture etc & also wrks at the local spinal clinic.

He is wrkng on the diagnosis of crps. It's meant to be more painful than giving birth w/out drugs or hvng a part amputated. There's some kind of pain scale & it's actually the most painful thing going!

He now has me in the gym,- treadmill, step ups, small weights for bicep curls.

It's just so fucking hard, hvng my dominant hand that feels like it belongs to someone else!

Such a waste. My chronic pain gets healed by a cpl of med tweaks, but then my arm is killing me by the end of the day!!!

Anyway, are you on day four of wds now? Have you been given anything to help you get thru?

@Katt, so sorry to hear your back was broken! Did you have him charged? Glad I escaped my ex before he did what he could foresee...that he was going to end up killing me. The stats on domestic violence are amazing,- here in OZ one woman per week is killed by a current or ex partner.

Have you seen the new dr yet? Email me, id love to hear the outcome!!

Be well sweet ppl,

Rtp

 

[BigG]

Yeah RTP fent WDs suck but I've been through a lot of hardship in my life and this doesn't phase me.

No comfort meds.....I don't need them and IME they cause more problems than they solve. They breed us Vikings tough lol!!

Work are being a total bastard as they should have me on alternate duties since in was on deaths door with sepsis only a month ago but the occupational health doctor has signed me as being fit for "safety critical tasks"....

I have no idea what that even means

 

[kattmomma13]

@ Shroomy & rtp -yea domestic violence really sucks n that's why I got divorced ..no I didn't have him arrested coz I didn't even know it was broken for about a month n he was in jail for his own fuckups by then....I was really lucky ...the neurosurgeon said that I could have been paralysed with one wrong step ...but at least I can still walk around ...so anyway I will keep y'all posted on how the New Dr does in a couple weeks...it's been a long haul since the last one got shut down ...& I know I won't get the oxy 30 like I was getting bc dea is cracking down on all drs about it..I think that is so stupid...to take away a good medicine from people that it works for n don't abuse it..
Well everybody stay painless
Later...kattmomma13

 

[SKR]

Closeau is good. I chat with him all the time we are homies so he's good. He has been helping me out too with the talking, I had a rough few months but he has too I think. I was literally spending weeks bedridden because of the pain and withdrawal. I hadn't had a dose increase for a couple years.

I want this thread but in real life! I totally think there should be like chronic pain support groups that are kinda like AA meetings but for just people to vent about their pain. But hey they'd probably be watched by the undercovers to make sure no pills are exchanged. lol.

I am doing great now, I got an increase on my oxy that I really needed. Everyone was understanding of it except the pharmacist, who questioned everything and put a hold on my faxed scripts. I am more relaxed and accepting of the pain in general now.

I already have my life back on track with the higher dose. Managing my pain really well. I'm happy, I can smile. I can ride my bike, cook myself meals, and apply for career jobs. I have a good doc who I trust. I get oxy's in a country that is completely stupid about the way they treat chronic pain people so I'm lucky for that because I need them like I need food and water. There are people like me out there with no treatment for sure, I really pushed to get help and it was years to get into a professional.

I'm just trying to cut back on the weed now. It's not too big a deal or anything but I'd like to cut back now that my pain is managed and I'm not as stressed.

Meanwhile, this is what the news says: http://www.theglobeandmail.com/life...ain-more-likely-to-die-study/article30445218/

People taking long acting opioids are more like to die they say. Just what the fuck is the point of this? All they do is demonize pills in the media, there is no constructive anything. I had no idea this country was demonizing the drugs this bad. It's an article about the ineffectively of opioids in chronic pain management, or something about how they are associated in general with more death, but there is a picture of a seizure of fake old oxycontin. Like fentanyl or w-18 based pills, really gross stuff.

That's what the fuck they are associating with people who are in severe chronic pain and use these types of pills for relief. I was honestly offended by that bullshit, especially the picture of fake oxycontin pills when it's supposed to be a scientific article. It's one of those studies where the researchers are paid to deliberately seek out anything negative they can find about a drug. Like how they do with cannabis sometimes, but this is just insane. Fuck whoever writes garbage like that for a living.

Time is different for a lot of people in pain. I will take a shorter life over fucking suffering more. And potentially, I will accomplish more in this shorter life.

I personally feel like so far my pain management has been a rough ride, but overall success story compared to how I was before. You never hear the shit in the news. They never mention the poor 20-something who got hurt in a sports injury, and was suicidal but happy now and even working a job on pain meds. They never bother to mention that some people get amazing relief from these pills, when nothing else works, and usually if something goes wrong, it is the fault of the patient abusing the meds. They don't mention that the only real side effect, even with heavy use, apart from the dependency is constipation. Apart from like a couple others, maybe hormone imbalance. Generally they are very physically safe even long term and on my current doses of oxy, I mean I'd feel comfortable taking my entire daily dose all at once as IR and I would be nowhere near OD. I've never overdosed or even vomited (or even been nauseated) over years of use. Never have I felt that my life was in danger. I get worse cognitive side effects from smoking weed (which are like nil).

It's just really frustrating to me, because I know people read the Globe and Mail around here it's reputable. They have so many articles on opioids, all negative and designed to generate hysteria. It totally sucks because it creates a huge stigma around users, even legal medical users. Not that being on oxycodone is hard to hide or anything. Oh... unless I'm in withdrawals haha. Then it's in plain sight.

But it's going to limit access to opioids, that is what it's designed to do. Likely not for me, but especially for new patients; it's a damn shame I think because the meds are so effective and a lot of people want them for pain relief but can't get them. For me it's the difference between life or death. Oxy gave me my life back, at least temporarily. I probably wouldn't be here, without it. Sure I'm dependent as all hell now but I had NO life AT ALL before.

Stoked your getting relief now Shroomy, sounds like you found a better Dr for sure. I'm on Suboxone atm but with the support of my Sub Dr I'm going to try and transition back to full agonists and see if I can get decent relief at not too high a dose, a dose that my GP is comfortable with too as he is going to be the one whose care I'll be under and he has to have some balls with this cos if he loses his nerve I'll have to find someone else who will, even though my Sub Dr is going to put a strong case forward for me there's no guarantee I'll get enough. I mean I would love it if a 30mg dose gives me good analgesia cos he's had me on 30's. My Sub Dr wants me to have Morphine IR's instead of Endone and I'm all for it too. He says he will promote opioid rotation which we obviously both believe in if one has to use such drugs for relief.

As I've said before Oxycodone works really well with me but like everyone else if my tolerance is too high overall I'm more stable on Suboxone cos underdosed oxy' or Suboxone - either one I get fuck all pain relief but mood and well being is stable on Suboxone it isn't when you WD between doses of oxy ugh I hated that existence but I'm fairly certain the max I'll ever be prescribed if I'm the luckiest pain patient in Australia is 3 x 80's per day, after that you had better be dying soon..........

Which may not take that long after all which leads me to give the thread my latest health update.

My thyroid is fucked in that I qualify for T4 replacement and TRT as my Test is crashed and burned which I've harped on about with my Dr's for two years it's just that the psychiatric problems I was struggling with were taking a front seat - I'm no longer in that PTSD reactive anxious panic mode - it lifted beautifully over the course of a couple of months after receiving some excellent news that may have some karmic debt for myself but I think I'll pay that off in the next life thanks and I have a feeling I won't be bothered at least until then by the heavens shall we say, so that is a big positive for me and allowed me to let go and begin moving forward.

But......whilst the aforementioned hormone issue did precipitate a rush to the front of a long queue to the endocrinologists at a major hospital where I am, my recent bloodwork and symptoms I presented with turned it all on it's head cos my Kidneys don't appear to be functioning well.........probably due to taking fistfuls of pills like Lyrica whilst not eating and drinking enough water - with my hormones fucked I can put on weight like other mortals - that's something that is not an issue in my gene pool, I'm typically predominantly and ectomorph with mesomorphic tendencies if I lift weights and eat big so on on so forth......so no TRT instead one 24hr pee test and another nine blood filled collection tubes later I'm waiting a couple of weeks with further results when I see the Endo again. Now unfortunately my MGUS may have worsened a little but a worsening there really equals cancer city but that's a big jump at this stage that's for sure.

I gotta start looking after myself better in the diet and exercise area's and reducing any pill intake cos otherwise I'll get sicker. I'm stuck in a rut but lately have been making the conscious decision to recognise that and start to mend and rectify the situation, but I'm going to go in hard for this transition back to opioids/opiates and see where I'm at. If it fails I'll just have to use and reduce Suboxone cos I don't want to have to keep taking it forever - I need to go through my first WD still lol. It's been over two years almost 3 years daily use and I'm yet to actually go through an opioid/opiate WD....I was saving it up, you know, for a rainy month or so (Horror). I've still got a numb right hand issue too which has gone on for months. It was my right forearm but it's been the back of my hand, my pinky, ring and middle fingers on my right hand have varying degrees of numbness and while thankfully it's not painful it certainly is getting fucking annoying. It's made typing a bitch, I've had to lower my speed in order to have the things I type make sense, letters missing everywhere these days. And I drop cigarettes so commonly you would think that's how one smokes to watch me in action. t's definitely my neck, I actually regained some of the feeling on the back of my hand after a decent massage I had the other day, the numbness returned but I know I can fix that shit with more massage.

Anyway, hope everyone's doing ok. Hugz n Drugs to you all! Take care pain peeps.

 

[Speed King]

Hey all my pain management thread friends. First, I must mention, along with Kleinerkiffer, that this thread went off topic in a way that people should know better. We will not tolerate improper language or conduct. That should be clear enough. That being said, I deeply hope that everyone is making gains in our quest for proper pain relief and harm reduction. I have a question for whomever knows about it. I recently had a doctor offer to put me on an 8 hour, Ketamine IV. He said it would reset or bring down my tolerance to pain medicine. I take 450mg of Lyrica and 20mg of Oxycodone/APAP 5/325. Theoretically, would it be worth doing it, aside from just for the heck of it. Since it is used for pain relief, wouldn't being on IV K, for 8 hours, be along the lines of a occasional steroid spinal epidural? PM me if you feel like it.

 

[DixiChik]

8( Idaknow much about Ketamine, SK. Folks have suggested K for depression. I don't think it's similar at all to epidurals. I may be wrong, but I think some of the current PAIN PEEPS have tried the infusions. I'm sure they will chime in. I'm interested to hear also.

I didn't realize that the thread went off into the ditch. Guess I missed it...Or did I cause it? Hope not. Serious question here...What is "improper language"? I have the mouth of a sailor, as the F word is my Favorite!

I did know there was a mix up when Z closed V6 PMMT and opened V7 PMMT. I messaged him and he corrected it. I'm afraid there's still some confusion, though. Some PEEPS are thinking this thread is totally archived, not active.

I personally have been using some Cannabis oil (sublingual). I think I read where you were, too SK. How's that working for you?

Shouts out to SKR, closeau, Anna, RTP, KM13, Shroomy, SNod, BigG (I sent my hugs while you were in hospital).

It sounds like all of us PAIN PEEPS are either approaching deep shit, or IN deep shit, or trying to shake OFF the deep shit! Uh-oh, here comes another DUMP!

If anyone needs me, just message me. If you don't already have my email, I will give it to you. I don't want anyone to think I've abandoned you. I haven't. I'm here...lurking for information on MMJ. Although I have a source now for MMJ, I'm a total goob as to what I need.

OOPS! Problems with edit, creating double post. Please delete #76 and display edited version #77.

Thx!

 

[kattmomma13]

Dixi. I actually sent u an email to let u know what wad going on with me n see how u are doing I read a post that u were just going to use the cannabis for pain w/o opiates ..how is that working for u...
I have been looking for the continuance of our pain family...I was away for a couple weeks n all hell broke loose n I lost the thread n it was archived...
So I will talk to y'all later
Kattmomma13

 

[Runtoparadise]

SK, Dixi, & any others who are interested, I have had ketamine infusions to the extreme in the past to try to get my pain flare ups under control.

Given there's not a lot of evidence for it's safety or efficacy I've had many specialists question it though obviously my PM is a massive believer in it from everything from neuropathic pain relief, to "resetting ones tolerance", & also totałty weaning one off opi's.

SK, are you sure the dr said iv & not subcut? I shudder at the one & only time I was given a shot of ketamine IV in hospital... My world my body felt like spinning upside down & I had no idea what was happening! I remember screaming & holding on to the nurse in a death grip & once it started wearing off I then screamed at the dr to NEVER do that again & write that in my chart!!!

Subcut is really quite nice, depending on the dose & how well you tolerate it, especially if you're also taking opiates you'll get high as fuck :D

A really pleasant feeling like you're flying or walking on marshmallows & have the most beautiful & entertaining lucid dreams that you don't sleep as you're too busy laughing at what's going on in your mind.

Problem was, for me, it didn't touch my pain. Even at the highest dose allowed, & being admitted to hospital for between four to fourteen days,- even combined with lignocaine.

I kept going back, the so called benefits of ketamine infusions wear off at around 6-8 weeks.

It was an end of the road thing for me. I kept saying to my PM that I'd save that for when nothing else worked. I at the time had only known ketamine to be a horse tranquilizer.


That day came soon enough after I'd suffered central sensitisation for an entire month my rhuematolagist called my PM & arranged my first infusion for the following morning.

I continued to have about twenty infusions over about two & a half years. That's all he had left for me. He'd tried all sorts of meds, injections, nerve ablations, etc & I'd done mindfulness, physio, hydro, yoga, cbt.

It's terrible when you're told by the top PM in your city who not only runs his own private clinic but is also the head honcho at the public pain unit, that there's nothing else left for me but ketamine & even that had possibly a 30-40% chance of bringing my pain levels down. I guess when the odds are down if pain gets too bad to do anymore then breathe at home, you've just gotta keep grasping at straws.

I'm so happy to let all of you know that my last infusion was July 2015.

I changed drs, but have to travel now, & she changed two of my meds. That's all, & I'm soooo thankful to her that I've not had a flare up since.

She actually said "how the fuck have you been in PM for so many years & not tried this"!?!

"What sort of PMs do they have down in ........"!?!!

So, not a great believer in ketamine. It never lowered my tolerance. I was prescribed 200mg oxy daily & that dose never changed over the years of infusions. I was even prepared to go to Germany for a ketamine coma.

Extremely grateful I now have an awesome dr

Rtp

 

[Speed King]

Thanks RTP. I will definately discuss this for all the correct reasons. Thank you. Keep up keeping up. I'm always pulling for you.

 

[SKR]

Dixi, I think a few of us had a chop at Cheezy, fairly sure that's what SK and KK mods are referring to, all good.

And yes RTP is the one you want to talk to about the Ketamine. If you're into getting high there is no reason whatsoever that you wouldn't at least try it SK. Surely. What, just me? No, you too.

 

[Runtoparadise]

SKR, I meant to mention I think it's your radial nerve giving you hell.

Given the pattern you describe, if massage and/or physio make a difference all the better for you than visiting a neurologist/neurosurgeon for treatment as I have.

Mine differs in that my right thumb, index & middle finger have been numb almost twelve mths since the hit & run. On the underside. So I totally get what u mean about dropping ciggies, 'cept I drop a lot of other things & break them too!

Sweetchildofmine has wanted a puppy forever, so I bought her/me a cavalier King Charles spaniel for her impending bday.

I hope it helps with my fear of crossing roads alone ( though I've not yet done that), & also with my physio which is to improve my overall fitness ( which I absndoned last august), as well as light weight lifting to counteract the muscle atrophy.

There doesn't seem to be a clear answer for my hand numbness, which turns to pain as it travels up my arm & shoulder. Except possibly complex regional pain syndrome.

Rtp

 

[Speed King]

Dixi, I think a few of us had a chop at Cheezy, fairly sure that's what SK and KK mods are referring to, all good.

And yes RTP is the one you want to talk to about the Ketamine. If you're into getting high there is no reason whatsoever that you wouldn't at least try it SK. Surely. What, just me? No, you too.

I have to run it by my current prescribing pain doctor first to make sure he is on board with it. I had a second opinion visit to a different doctor, from the same hospital system. The doctor I visited wanted to put me on tramadol and at the end of August, do what the paperwork said as a IV ketamine l/saline solution, over eight hours. Highlights from the paperwork include "may not finish entire bag " ," driver must be over 18 years old and stay at the hospital during the entire 8 hour procedure " and " nurse will remain with patient, during entire procedure.

 

[kattmomma13]

Rtp..I have never heard of ketamine used by pm Dr ..I was a vet tech n used ket to knock out cats for surgery but wouldn't ever want to take it because cats freak out at any noise or light when they are waking up from it..but here I haven't heard about it from anybody in pm..so I don't know if it is ever used here on humans..
SK...
Be careful what u wish for u just might get it.
Later...km13

 

[SKR]

SKR, I meant to mention I think it's your radial nerve giving you hell.

Given the pattern you describe, if massage and/or physio make a difference all the better for you than visiting a neurologist/neurosurgeon for treatment as I have.

Mine differs in that my right thumb, index & middle finger have been numb almost twelve mths since the hit & run. On the underside. So I totally get what u mean about dropping ciggies, 'cept I drop a lot of other things & break them too!

Sweetchildofmine has wanted a puppy forever, so I bought her/me a cavalier King Charles spaniel for her impending bday.

I hope it helps with my fear of crossing roads alone ( though I've not yet done that), & also with my physio which is to improve my overall fitness ( which I absndoned last august), as well as light weight lifting to counteract the muscle atrophy.

There doesn't seem to be a clear answer for my hand numbness, which turns to pain as it travels up my arm & shoulder. Except possibly complex regional pain syndrome.

Rtp

Hey the puppy was a great idea, I didn't consider how helpful pup could be for yourself, and at the same time be the gift of all gifts to a child ready for the responsibility (Well in part, mostly pets end up favouring Mum or Dad lol) and like you said it'll help get you out for walks and yes hopefully give you some more confidence in crossing roads etc.....not to mention the great assistance for depression that only a pet can deliver, total unconditional love especially when your feeling down (As long as there's food and water - one condition perhaps lol).

I look forward to when my son can handle a puppy he loves his doggy's, cautiously but he's curious and may be an only child so he needs a little mate.

Yeah your arm and hand issues are neurological by all signs as you've described, my numbness is caused by knotted neck muscles pushing on everything, It will and is the easiest thing to solve I hope, In fact massage helps everyone, we should all get semi regular massages I suspect cos so many of us have jobs that our bodies just aren't suited for - sitting in front of screens for long periods is at the top of the list it kills my lower back as does standing at the sink washing dishes or working on any project where you are looking down - that's murder for me so I try to bring things up to eye level otherwise my right hand side rib cage pain will scream and stay screaming - he's the one I seek medicinal support for.

I wonder if you were new to Lyrica whether the higher doses would help. We've talked before RTP about 'permanent tolerance' with pregabalin and that's where I've ended up, where I can take more than a gram and not really feel the peripheral action, so no analgesia or even couch lock. Once a 600mg dose doesn't wobble you to pieces it's time to reduce and reduce I have. I'm sick of taking drugs simply to remain out of WD - Lyrica, SNRI, Suboxone, Valium. I'd rather just have my full agonist friends (If I find they work again) and perhaps a benzo but used only when I need it and not habitually every day. I think mentally I'm ready to reduce and remove the SNRI and/or any SSRI but I could be very wrong cos being in pain all the time mentally taxes me hence my wish to return to oxycodone and morphine again.

Hopefully physio will help you retain some strength and size of the arm. I suppose you are training up your left hand to take up the slack?

 

[Runtoparadise]

^good luck with returning to full agonists, is your GP aware of your intentions? Has he & the sub dr spoken of a plan to integrate these back into your regime?

My neurosurgeon referred me to a new PM group thinking a change back would be good for my arm/hand. Waiting since march for approval from TAC though.

I actually still maintain I'm on the best meds to manage my former chronic pain,- again, not having been admitted for ketamine in almost a year is testament to how well it's being managed. I just despair at how 90% of my pain & discomfort is covered except this damn arm!!

I don't think lyrica would make much difference to the "parasthesia". It's been numb 24/7 for far too long that I could care to remember. Although the pains that run up my arm are equivalent to c-6, c-4 impingements the current theory is that yes, these nerves may've been damaged, crushed or even killed off. Except in the time it took TAC to approve the surgeon & then the standing MRI the nerves with other treatment have been remedied.

My physio is hopeful that the hand numbness will follow suit, though clearly I'm having doubts.

I only really kept lyrica to cushion wds, & not having to go through that crap anymore I rarely take it except sometimes just on days I can afford to zone out & not have tobe accountable for several hours.

I'm now taking an SNRI that the psych scripted when he diagnosed me with post concussion syndrome. The only benefit I'm noticing is that I can hear my alarm in the morn & get up without that feeling of dread. Oh fuck, I've gotta get through another day kinda feeling...

The pup.. It certainly does seem to favour myself, being that I'm the hand that feeds it & can be with it most of the time ( I cleared my calender of most appts this first week). She certainly very happy to walk the short distance to school and back twice daily & get fussed over by the children & of course see her mama.

It sure is me that's trying to toilet train her, stop her suffering seperation anxiety, bath her & be the trainer. Especially on longer walks which if the weather is good we can do most arvos before dark at 5pm.

I'm losing sleep, (even though I'm a softie for co sleeping), & spending large amounts of time cleaning up after her/keeping company that other errands are missing out. She's quite the idealistic little lap dog. This stage won't go on forever, she's missing her old family.

SKR, it seems you've had some good news of your own. Karma is a bitch & I hope you are more at ease nowadays.

Gotta run,

Rtp

 

[SKR]

RTP - Yes my Sub Dr and GP are corresponding but yet to make the move pending my other health concerns (Kidneys and psychiatrist) which is mostly my fault as well because I've brought a psychiatrist into the mix who I'm seeking assistance mostly for ADD, I'm considering dumping any anti-depressant and seeing how I am too but no one knows this yet and it may be better to stay on anyway especially during a transition.

The psychiatrist is trying to say I have an addictive personality (Oh he's a clever one lol), which he based on the drugs I'm on, not my previous Meth addiction which he knows nothing about. He knows I try cannabis for my pain but that i get limited results and all this is the truth I more or less use weed to slow me down and my wife even see's that I'm better off with it mood wise unless there is an alternative. But because his assessment is based on all my current drugs he hated jumped to conclusion (Correct conclusion, but a jump all the same).

I kindly had to explain that as a chronic pain patient all the meds I'm on are not really of my own choosing, they are the drugs that are recommended for people in my position, good opioid programs are scarcely available due to this new push to say pain is a brain signal issue (Understood) and my brain needs to be retrained so they try you on psyche drugs and holistic practices which is great but I always argue that being in constant pain without a decent pain killer makes it very hard for me to limp in to these holistic remedies all of which i have spent 1000's on such as physio and massage and nerve blocks etc etc...........my GP will help me but it all depends on how much it takes to first stabilise my opioid sub habit and then how much on top he is willing to go to cos if the relief is not there and I'm straight back into the Oxy cycle of ups and downs and no relief then I'll go back to subs.

So if one Dr becomes difficult or somehow a road block then I'll simply dump them and move on myself and it'll be the psychiatrist if anyone. You have to take Lyrica as a pain patient in Australia otherwise your not serious, I ended up on sertraline due to anxiety and panic much of which caused by uncontrolled pain but other outside factors too admittedly, the Valium, once again nooooooooo o (Took a 3 hr 30mg Valium sleep right here and it was great ) - Ahem excuse me.............. Right yes drugs.......The Valium is really to help the anxiety but I should use it when needed rather than habitually which I don't think I need to anymore, and the suboxone is to offset the obvious issue I'll have if I don't take it......I would never have done it if I didn't need to keep working to support my family, due to a terrible financial loss I took last year, otherwise I would have taken at least a year sabbatical to figure shit out, go through WD and try to regain life without the dreaded opioids. Even if I ended up back on them I would like to start with fairly fresh receptors even though I anticipate always having a higher minimum dose than when I was opioid naive.

So you may end up back on yourself due to your arm/hand pain, and I suppose if your other pain issues return which are currently being controlled largely by 30-40-mg suboxone (You're lucky), then would you return to subs or not? I'm still shocked your pain is controlled by a partial ag having been on full ages for many years. I know I started to get hyper analgesia with high dose Oxycodone and in fact it created so many arthritic type pains all through my body that it wasn't until I switched to Subs that these pains were taken away, why? Cos my receptors are more than covered by Subs - do you think this was part of your problem RTP cos you were basically spending 2 weeks out of each month in WD - 'm not at all surprised that you are now more stable on Subs pain wise. But those Roxy pains are not experienced until you need more than your script and start taking double, triple, quadruple the dose prescribed.

Regarding Karma, I've paid heavily. Now some people in light of more recent events may think I haven't suffered enough......well I disagree and of course am willing to explain why.

When I am my normal self despite my past criminal activities I have ALWAYS acted with honour and respect, I have NEVER ripped anyone off financially and if the milk ever turned out to be sour I give folks a return policy of cash - No muthafucker in my 20 years HAS EVER done that for me, including the same people that I have done it for.

I have covered 10's of thousands of dollars for a particular "friend" when shit that was out of my control cost me their money - I always covered it - No one HAS EVER done that for me - So why the FUCK DO I DO IT FOR THEM!? It pisses me off that I have had to absorb losses that if they were playing the stock market at equal risk you just accept the loss. But underground shit, I hold myself to a higher standard than Government and as it turns out a higher standard than ANYONE I'VE COME ACROSS.

I'm not blowing my own trumpet as there isn't any great achievement or pride, I'm angry at myself for doing it, why should I? I should do what others do and just say "Bad Luck Bro, it happens!" Well I say FUCK THEM!.....I'm not rolling like that in any walk of my life from now on - it's not worth being THAT NICE. They say what goes around comes around and yeah I have noticed that I usually always break even in life it just takes time but it's doubtful I'll ever get the windfall I would require to break even, not after last years losses so something needs to change. I need to change. I'm sick of being polite to the impolite, to act with honour and code to those that possess neither. In older times and yes even in crime there was a lot more respect and an honour code going around the underground and modern society and the younger generations have not been taught this so If I am going to play with these cretins then I'll have to ramp shit up a few notches. Oh and they all flip when threatened with jail the maggots, bunch of pussies have been bred so you must Make an example out of one and make it public - I'm not your bank, you want investment then you carry the risk like everyone else otherwise do not approach me! Rant over, my apologies for those confused by my post, I carry a little resentment of a long time "Friend" and business partner who decided to seriously profit from my pain literally. And another known underground figure fairly closely related to well known crime families of Melbourne, that's all I'll say cos this country is small when it comes to people despite the land being vast, everyone knows everyone somehow I reckon......but he has been "solved" and the guy profiting from my pain who I have pretty much made over the last 20 years - well I notice his life is starting to fall apart and I'm going to stand back and watch........

Back on topic................

So who is using what for their pain and how are you going with your regime? Are you getting adequate pain relief? Keeping in mind the idea to pain is not to rid you of all pain but just to give you a "leg up" in life so you can function enough to get through each day and even smile occasionally. I'm currently on just today being Sunday here...

30mg Valium
20mgs Suboxone (Liquid suppository)
300mgs Lyrica
75mgs Effexor
75mcg Clonidine
A few spliffs of an old skunk variety still making the rounds
Tobacco/Nicotine
Caffeine (Too much probably but my body can take it or leave it with no WD or side effects)

 

[tukabirdy]

Hey y'all!

I've had chronic pain my whole adult life. I used to ride hunter/jumpers and a bad accident at 22 started me down the opiate pike. I'm 59 now and have been on and off many types of opies. Currently I'm on 60mgs mscontin and 2-6 breakthrough 15mg IR's. Lyrica about 500mgs a day and flexiril as wanted.

This life sucks major ass. I wear the pain all over my body. I guess it's because I have fibro and osteoarthritis. I have one TKR and need the other done. My thumbs are shot and I'm getting surgery for that this coming week. I also have to get a lump removed from the boob Monday. It's cancerous but I think it's in the very early stages....statistics are good for recovery so I'm not sweating it.

But it's my back that has crapped out on me. It feels much like wearing a pain girdle and it goes to my knees often. I've had back surgery twice and also had a herniated disk worked on in my neck.

But fuck it...it's better than the alternative. Just had a meds increase so that's all good for now. It's weird because I'd LOVE to ride a horse just a few more times. An old Tennessee walking nag would be cool as fuck. That and sex with an air person would be nice. The pain also screams it's way down my hammies and the inner thighs so I'm pretty sure regular sex would feel bad.

Wistful for the good ole days...I've never tried ecstasy but loooved mda...I believe I was told on here that they were somewhat similar?

Ok...pain management is a major pain too...id like to think this fall I could do another detox. I love the mental aspect of being clean...but at this point, I don't know how it's all gonna pan out.

Going to go read some threads.

 

[kattmomma13]

@Tukabirdy...I used to train and show Tennessee walkers but my ex broke my back in 06 n have rods n screws in my back that I worry about coming out if I get thrown by a crazy horse....& that's ones I us d to love to ride....narrowly missed paralysis then n been in pm..got my disability in 2012 so got insurance which allowed me to get in pm...
Welcome to the group of pain peeps....
Later. Km13

 

[Ouchies08]

Pain Management Advice

I was in a car accident years ago and as a result of that I have a crushed spine (T3,4,5,7- 5 being the worst) and also herniated discs (L4 L5) which one specialist thought was the cause of my peripheral neuropathy.
I have really had to fight from the very start to get this treated.
After the accident they cut me out of the car and took my to hospital, where they told me there was nothing wrong with me and to go home at 9pm, despite my telling them I was in extreme pain.
I was lucky to have a close friend who works at that hospital come in and take me to the toilet and notice their was blood in my urine.
After I went home, she kept insisting the doctor re-check my x-rays. At around 2am the doctor finally did and he noticed I had a cracked pelvis, crushed spine, broken wrist and foot, and herniated discs. Not sure how he missed it the first time. I was wrapped up and taken up to a bigger hospital to be treated.
I was told coldly that my spine would never heal, nor my wrist and the discs.
The peripheral neuropathy didn't start straight away but when it did, it was horrible to live with. My doctor at the time had no idea what was causing the constant pain and burning in my feet and I had all sorts of tests and x-rays. This went on for 2 years and I was begging my doctor to please help me as it wasn't a pain that came and went like my back pain, but it was all the time. I already had insomnia but I was up all night putting ice packs on my feet.
Finally, after 2 years I went onto a forum and put in my symptoms. About 2 minutes after I posted, I got the reply of peripheral neuropathy. Finally! I got my doctor to arrange the tests and it confirmed the problem. I had to fight hard to get it treated but I am now on neurontin which has changed my life. After all that time, the burning sharp pain went down to pretty much nothing and I am so grateful for this.
However, I still had my chronic back pain. That does vary. I find in summer it is a lot less painful than in winter. This has been so hard to treat. I had been with the same doctor for over 10 years and because I was in there fighting for the pain in my feet on so many occasions, he was getting exhausted with me.
I had been on mersyndol forte for many years to treat the pain and in the winter, it just didn't even make a difference. Eventually he put me on Fentanyl 50 patches which completely got rid of my back pain. I could do pretty much anything with no pain. However the side effects were horrible and I had to weigh up if it was worth staying on them.
My doctor then moved his practice further away from my home and I decided to find a new one. I came across a lovely new doctor who put me on Endep. That was a good anti depressant and helped with sleep, but it did absolutely nothing for the pain.
I went to see a specialist while on them, asking for an alternative because at that point, I just wanted to get off the patches, and so he put me on Targin 40. It was very expensive to see him and I needed to find a regular doctor so I went back to the lovely one closer to home and I was kept on Targin for all this time.
The Targin slightly helps with the pain, but the side effects are quite harsh. They make me nauseous and slightly dizzy. At this time, I decided to take matters into my own hands and got into trouble. I had taken Valium a few times in the past and it not only helped with insomnia but muscle pain, and anxiety which Ive had forever. Because of my experience with my old doctor, I decided to go to medical centers to get Valium so my new doctor wouldn't get exhausted with me as my old one had. I am now on the naughty list because of this and now it will be a struggle to treat the pain in the winter time.
I don't want to stay on Targin. It is a slow release drug that I must take daily. What I would prefer is a quick acting pain medication that I take only when I need to. I can cope with the normal chronic pain, it is the crippling pain in my spine and my discs in the cold weather that is so hard to manage and I'm finding Targin just doesn't help all that much, even mixed with panadine and anti inflammatory which Ive given up taking.
I would love to get some advice on this. If anyone else has the same or similar issues could you please share your pain management program with me?
Thank you.

 

[Speed King]

Rtp..I have never heard of ketamine used by pm Dr ..I was a vet tech n used ket to knock out cats for surgery but wouldn't ever want to take it because cats freak out at any noise or light when they are waking up from it..but here I haven't heard about it from anybody in pm..so I don't know if it is ever used here on humans..
SK...
Be careful what u wish for u just might get it.
Later...km13

Yeah, I've been considering the factors. I read that benzodiazepines can be givin upon waking, so you don't have a negative emergence. I had ketamine once. It was awesome, to say the least. It was very peaceful. I will definately do my homework throughly, before the procedure. I will have a very long talk with my psychiatrist before/if this happens. If this happens, I will enjoy it