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  • EADD Moderators: Pissed_and_messed | Shinji Ikari

The EADD Sickness and Pain Thread ver Pain of the Wrist & Cock

I ran 4 miles yesterday but was hard work as not run much for a couple of weeks!

Cool that you are losing weight Evey - I really need to lose some as I keep finding old jeans that don't fit and the other week a button burst off my shirt after a meal out - oops!
 
I'm probably pretty unhealthy but not as bad as I have been. I choose to live 20 minutes walk from uni this year (same as first year but where most people live this year is like, 5 minutes crawl away) so I actually have to do some vague exercise and I've got 20 minute walk up to Sainsburys so more vague walking there (which turns into extreme weight training if I buy too much wine).

I used to eat pretty badly at uni, for some reason I haven't been so much recently. Like, I used to have a cake or milkshake or some sugary shit for lunch and now I just have fruit and yoghurt or something like that. I've been having a reasonably proper meal most days recently, cba to cook at the moment for some reason so I've just been having like, salad and fish cakes or something like that with it. Plus I always hammer the smoothies, though I know shop bought ones aren't actually meant to be that good (too much sugar or something?) but not bothered about that so much as more fruit can only be good for me really and I've been trying to drink more water as I used to be terrible at staying hydrated.

On consideration I've probably subconsciously been making more of an effort to eat well as my drug/booze intake has upped by a huge amount. After losing a noticeable amount of weight a couple of weeks ago I think I've put on a bit again which I guess I needed to do. So I'm looking slightly less of a skinny cokehead now I think but I find it hard to tell and don't want to start weighing myself really.

I do think you can be healthy and still take drugs, I wouldn't say I'm that unhealthy even with the amount I rip through stuff but yeah, it's all about balance and making sure everything else is right. I think what has really helped me is managing to get a proper sleep most of the time otherwise I'd be in much more of a state. I've probably been able to get away with things a bit more because I'm still young though, doubt most of what I'd said would still be true if I was 20 years older :P
 
I'm sick of being sick. There always seems to be something wrong with me. Diabetes would be fine if it just meant eating ok and taking insulin but no, it has so many complications and my immune system is really compromised unless I adhere to a strict diet and lifestyle. I feel so diseased, might as well have HIV tbh. I haven't been infection-free in 4 years now and no matter what the GP prescribes me nothing seems to work. I will probably kill myself if it continues much longer, because I can't live like this forever.
 
@Allein - fuck me mate you really have been through far to much for anyone to bear ... re PK's can you not be put on opiods? oxy's ,hydromorhone/codone etc
 
I'm sick of being sick. There always seems to be something wrong with me. Diabetes would be fine if it just meant eating ok and taking insulin but no, it has so many complications and my immune system is really compromised unless I adhere to a strict diet and lifestyle. I feel so diseased, might as well have HIV tbh. I haven't been infection-free in 4 years now and no matter what the GP prescribes me nothing seems to work. I will probably kill myself if it continues much longer, because I can't live like this forever.

As soon as we are born we start dying, we are allocated a number of heart beats and when you've reached your number... Thats why smackheads with a resonable lifestyle always look 10 years younger as our metabolisms slow down. Many people walk about with infections all their life , be it athletes foot, spots, cancer, diabetes etc its just a matter of accepting what you have and making the best of things.
That being said if you put all your faith in a GP then I would start looking at alternative ways of getting yourself better - trying to remain positive is vital also research alternative healing methods for what ails you - google is your friend.
GL
B
 
Yep me to, the gears kept the years back for me as well.its all to do with how you look after yourself, most street/ giro Junkies look like shit admittedly.
 
I'm sick of being sick. There always seems to be something wrong with me. Diabetes would be fine if it just meant eating ok and taking insulin but no, it has so many complications and my immune system is really compromised unless I adhere to a strict diet and lifestyle. I feel so diseased, might as well have HIV tbh. I haven't been infection-free in 4 years now and no matter what the GP prescribes me nothing seems to work. I will probably kill myself if it continues much longer, because I can't live like this forever.

Less of that, please. <3

I can imagine it's a real fuckin' nightmare and it sometimes makes you feel as if you don't have a life, but please keep trying.

I was convinced that my life would never get better until I got on the right medication and things began to click into place. It was awful to think that I had a lifelong health condition which I'd have to base my life around, but I eventually got used to it.

I hope your doctor finds something which works for you, I really do.
 
Owwwww.

Had a bloody awful weekend for pain. Basically, the lump that I had emergency surgery for a couple of months ago, well they removed something else but not the lump, and it's just got worse and worse. Last week another lump joined it in a show of solidarity, along with the fistula site, I'd say about 50% of the circumference of my arse hole is now given over to abscesses or fistulae.

Shoulda done something about it last week but I know my surgeon's list is on a Thursday, so there's not much point rocking up to the hospital on a Friday morning, I'd just spend all weekend sat in a ward, getting worse treatment than I get at home (thanks Mum). Spoke to his secretary this morning though and managed to get an appointment with him this evening.

Turns out he has another list on a Tuesday, at the day case unit across town. Which is where I'm off to tomorrow afternoon (who said NHS waiting lists were too long?). Gonna have it all opened up and drained out, maybe more setons.

At least in the time between these two emergency surgeries I've managed to confirm with the medical team I don't want any more biologics, no more false hope treatments that prolong the inevitable. Surgeon has been informed of this and is on board to remove my pouch, rectum and anus. It's not happening tomorrow (too long an op to squeeze into an already full list), but he appreciates that although he'd like me to be less malnourished before he does the op (statistically more chance of complications, but let's not dwell on that), I'm still losing weight and maybe will only get worse, so might as well get on with it.

So perhaps I'll have the big, laparotomy based surgery before Christmas! Joy.

Big love to any other eadders in pain right now <3
 
Survived it! The whole thing took about 4 hours, including getting admitted and signing all the disclaimers, having the op, recovery and waiting for my ride! Not bad for a general anaesthetic.

So much more comfortable now than I was this morning. Whether this is because in full of fentanyl, or if the pain is dramatically reduced, I'll let you know tomorrow - I'm going to bed now without any other painkillers - too much opioid painkillers stop me peeing so I'd rather be a bit uncomfortable tonight than have to go back to hospital tomorrow with renal issues.

Surgeon found another little fistula and gave me another seton for that (different colour this time, my arse is looking festive now!) But the main event was that he drained "an abscess the size of a conker" from my arse cheek, so it's no wonder I was in pain. It's now a ~5mm hole which needs packing daily. Annoyingly this means no baths, which means it's now impossible to keep my arse clean, negotiating 2 setons and an open wound with the bog roll :( Maybe I'll be back soon with another infection then!

Have a pre-op appointment in months time with a view to doing the big op in early January though. It's on!
 
Reading this thread is a surefire way to feel better about your own situation. No matter how shitty it is, someone has it worse. Stay strong guys. <3

OT: Today's pain level is a solid 8, compounded by opiate induced hyperalgesia, and the fact it's fecking freezing. Head is pounding, recently been getting some pain worryingly close to organs I've grown to cherish, namely the kidney area and my lower abdomen, right where the liver is... at least I hope it is. Haven't seen a doctor about my knees since I had surgery done on the right one, I realised yesterday that was over 2 years ago, what a stupid decision on my part. Both of them are fucked now. Having a kneecap multiple cm's away from where it's supposed to be is odd. And fucking painful. And given shit is never lonely, the other kneecap was invited to the 'shift around the leg, swell at will, dislocate at will, lock completely by trapping bits of cartilage (that really shouldn't be there) against the femur' all you can eat buffet. The multiple injuries over the years on top of a chronic hereditary problem has meant I struggle to walk most days - I snapped my right ACL a few years ago, then the Medial Meniscus, then the Lateral, progressively injuring almost every single part of the knee. Then, the same in the other knee. Turns out I have cartilage growing pretty much at random in and around the knee which was slowly pushing my kneecap in the opposite direction, thus the tendons and ligaments were in a state of permanent strain without any support. Makes them 'just a little' more prone to snapping. Also, my legs are apparently 'overextended', they can go quite a bit past 180 degrees (straight...) so again, more straining of internal bits and bobs, more snapping. Eventually the cartilage grows between the joint of the kneecap and so gets crushed by the bone against the surface of another bone - as you'd expect, there's a lot of nerves in the knee, and constantly physically crushing them is very, very painful. Though it is preferable to the latter stage, the cartilage grew so thick that it would completely dislocate my kneecap at least twice a week at one point before the surgery. Oh, and how could I forget - arthritis. Arthritic by 18, oh the joys!

The thing that gets to me is that I was so athletic before the first injury - I ran marathons for fun at one point. Every single day I ran 8 miles as a minimum. Once, I ran 16 miles with a 40kg bag on my back, just to make it harder. Along with weightlifting at an age that I really shouldn't have been. I could chest press 55kg with relative ease, I was 11. I was offered a place on a team with Olympic ambitions until they found out my age.

And now? Chronic, unending, awful pain, day in, day out. I can literally use my knees as a fucking barometer - as the air pressure drops, my knees balloon with synovial fluid and the pain, somehow, worsens. So I get a 12 hour early warning system for rain in exchange for it all, not all bad I suppose.

Emotional pain is most certainly present, though I've already filled the Vent/Rant thread with enough of that so I won't spam it here as well.
 
Much <3 to you Sprout and all you eadder's coping with pain and illness at the moment. Please keep on in there and hold hope close.

Survived it! The whole thing took about 4 hours, including getting admitted and signing all the disclaimers, having the op, recovery and waiting for my ride! Not bad for a general anaesthetic.

So much more comfortable now than I was this morning. Whether this is because in full of fentanyl, or if the pain is dramatically reduced, I'll let you know tomorrow - I'm going to bed now without any other painkillers - too much opioid painkillers stop me peeing so I'd rather be a bit uncomfortable tonight than have to go back to hospital tomorrow with renal issues.

Surgeon found another little fistula and gave me another seton for that (different colour this time, my arse is looking festive now!) But the main event was that he drained "an abscess the size of a conker" from my arse cheek, so it's no wonder I was in pain. It's now a ~5mm hole which needs packing daily. Annoyingly this means no baths, which means it's now impossible to keep my arse clean, negotiating 2 setons and an open wound with the bog roll :( Maybe I'll be back soon with another infection then!

Have a pre-op appointment in months time with a view to doing the big op in early January though. It's on!

I'm pleased it went ok as anything can go ok for you when things are so tough. It sounds like there's light at the end of the tunnel and a bit of relief in your post. Hopefully 2015 will ease up on you and make this condition more manageable for you. You're an absolute hero for what you are going through <3
 
Had a pretty intense occurence of Proctalgia Fugax last night at 4am. It was one of the most severe ones yet , about a 7 or 8 out of 10 on the scale of intensity. Waking up, knowing somethings not right, before realising 'oh that's come back'. I may or may not have found a 'cure'; a few hits of noids, as ridiculous as that sounds.:o Maybe it's not all that ridiculous as smoking can have effects on those regions. I dare say weed might work just as well, if not better. Even just nicotine helps, as the act of smoking provides some kind of distraction from the pain, which has always been one method of dealing with it.

It cant be more scientifically proven, sometimes the episodes only last a couple of minutes, and just clear of their own accord, sometimes they last up to an hour. About half an hour is the average duration. Thankfully i only get this once every few months, as i believe is the case for everyone/most people who get it.
 
I'm starting to think about coming off pain killers, I'm on the mend from what should be the last op in a good while and I'm getting diminishing returns from the XR morphine tablets, I suspect a good part of my pain is nerve damage now anyway.

I've been taking pain killers for over 2 years, started on Codeine and been on and off morphine but I've been taking 60-100mg of Zoromorph daily for about 6 months.

I suspect that in the grand scheme of things that isnt that much and as they are XR the level in my bloodstream as anyone time would be less than if they were instant release.

Any one any idea as to how quickly I could taper off of them and what kind of WD I might have to deal with ?
 
6 months of 60-100mg Morphine daily will certainly cause WD, though you've not been using too long, so that works in your favour.
Morphine WD is no cakewalk but it is over relatively quickly, IME: starting around 18 hours from last dose, peaking around 72 and almost over by day 5.

The thing I'd be worried about is the rebound hyperalgesia that continues for... I don't even know how long is average, though Shambles mentioned some are stuck with it for life. I had 6 months of sobriety tarred by it, it's ridiculous how much something like stubbing a toe or hitting your hip on the counter is magnified.
 
Rapid buprenorphine taper? I wouldn't count on it being almost over on day 5 of cold turkey! Even codeine WD hasn't cleared by day 5 with me, tho mileages vary.
 
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