I was an idiot when I did mine and didn't go to my back up appointments because I was off on a mad one at the time and it took so long for any improvement I had got to the point where I had accepted it wasn't going to get any better before it started to improve. Literally no change for weeks and weeks.
It's all good now though. The same cannot be said for my shoulder, but I'm getting a verdict on fixing that tomorrow hopefully.
Been in agony for days - feels a lot like my ulcer's kicking off again... or has returned given it was apparently cured years ago. Pharmacist says there's no way I should be having to take OTC painkillers with a history of stomach ulcers given they tend to cause them and will certainly exacerbate any such existing things. Really is excrutiating - not sleeping properly at all, throwing up blood, eating antacids by the dozen. Gonna go see GP but know I'll only get another omeprazole script which whilst it does help with the pain does fuck all for the reasons for that pain. Is only going to get worse with no end in sight. Goody good
That sounds horrible shambles, hope they eventually clear up!
I have had a strange headache at the right side of the base of my skull/neck for over a week now, gona make a dr app today. Last weekend I overdid the mdma so decided to give 5-htp a go. took 100mg friday morning and on sat night got drunk with mates. When I arrived home to pass out I realised my heart rate was really high and I started getting bad leg tremors an a high temperature! Cooled myself with an ice pack, kept hydrated and took a benzo. Realised I had a lot of the symptoms of serotinin syndrome without the vomiting and diarrhea but this seemed to slowly fade over a few hours of cooling and hydrating. Im now left feeling anxious about WTF just happened and still have a headache and the odd palpitation. Surely 100mg of 5-htp taken the day before couldn't interact this much with booze/weed?
I almost had to send out a search party for this thread
I'm hoping someone has some useful advice, as my use of morphine pain killers escalates along with my increasing pain I've started developing involuntary muscle twitching. I've had this before when my dosage was up around this amount but I think a drop in dosing made it gradually go away.
This time around I'm in the run up to a further op that will require increasing the dose for a good few moths to aid recovery and I dread to think what such jolting spasms are going to be like following the surgery. This seem to be a common side effect but I haven't found any information on possible remedies.
Maybe lower dose n include napraxen? Maybe the nerves are inflamed causing it? If there is any inflamation at all napraxon would sort it n if its a result of too high morphine maybe non- opiate alongside will prevent it.
A close family member uses naproxon for crumbling bones. (Osteoporosis ).
I've got the docs a week on Monday for a general review prior to the op this month so I'll talk to him about it, it seems a common side effect of morphine.
I can't take any NSAIDs due to other past medical issues, I take other meds to cope with all the nerve damage I've sustained. I'm kinda interested to understand why morphine causes these twitches, they seem to be worse when I'm tired or just about to fall to sleep.
Good luck with it all n your upcoming op. I genuinely mean that.
I'm not sure about the morphine n why it affects nerves. But maybe it's something to do with it killing pain n thus the pain recepters not working properly. Realisticly pain is meant to be good in that it warns the body to stop. So if the receptors are not able to respond as they're meant to (due to high doses of opiate) this may be thevresult.
That's just an assumption though. I know a little about nerve damage causing twitching as read up heaps on the sciatic nerve when had slip disc. If you are not able to exercise (walking) it may also be a contributing factor.
Hopefully the doctpr will know why this is happening n help you stop it happening with physio, prescription or whatever.
Hello pain thread. My biggest source of pain is currently a seton stitch keeping a perianal fistula draining. It's not actually the fistula or the seton placement itself that is painful, it's the fact that it has two sharp ends that dig into my arse crack whenever I make the slightest movement difficult to explain really, I'd post a photo but that might be too NSFW even for the NSFW tags heh.
Hello pain thread. My biggest source of pain is currently a seton stitch keeping a perianal fistula draining. It's not actually the fistula or the seton placement itself that is painful, it's the fact that it has two sharp ends that dig into my arse crack whenever I make the slightest movement difficult to explain really, I'd post a photo but that might be too NSFW even for the NSFW tags heh.
QUOTE=roganjosh;12618280]Hello EADD! Firstly, sorry for my disappearance. I guess some of you read the old pain thread that Mugz started and know that in the last couple of years I've had 3 major bowel surgeries due to ulcerative colitis effectively destroying my colon. Well, the last 12 months I've been struggling with my new j-pouch, it really hasn't been working well at all.
A couple of months ago I decided that I was no longer well enough to work, thankfully my employer has good insurance so after a trip to their 3rd party occupational health consultant, I got signed off on full pay. I moved back in with my parents, my goal being to gain the 5kg or so the I needed to be a healthy enough weight to have what's called a pouch advancement surgery where they cut out the last bit of rectum that is still giving me grief with colitis.
Well... that didn't happen. I got sicker and sicker and actually lost another 5kg instead of gaining it, despite being on good home cooking and an extra 800kcal of build up drinks to try and put on weight. I eventually started to get fever like symptoms and was worried about infection. I went to see my GP who admitted me to hospital immediately, my surgeon came and had a look and put me on the emergency list for the next days surgery!
So, surgery number 4 and my 7th hospitalisation in under 2 years. They found a fistula tracking from the point where the pouch is sewn to the anal canal (have probably always had a leak there, despite having a load of radioactive dye squirted up there and being xrayed before the takedown surgery). They opened it up and put a seton stitch in. Google image search "anal seton" if you want to know what this is like.
So basically I now have 2 arseholes, one of which is an open wound, connected by an elastic band (only with sharper edges). I can't actually sit upright, only on a recliner or lying down (which is why I haven't been on a computer much). It's pretty uncomfortable. My surgeon also discovered that there was no chance of doing the pouch advancement surgery because there isn't enough room to sew it back on without compromising my sphincter muscles (the biggest risk with that surgery is incontinence anyway).
To make matters worse I can feel another lump which assume is another abscess or fistula, so I'm going in for an MRI scan to try to pinpoint it, I could be having surgery to open that one up soon as well! It's never ending. I think what is likely to happen now, I'm still on infliximab (an immunosuppressant) which haven't been working but I'm going to continue in case they've been restricted by the infection, if the immunosuppressant doesn't work I will have a big 8hr surgery to remove the pouch, sew up my arse and give me a permanent ostomy. Daunting as that sounds (6 month recovery time is recommend because of the magnitude of the arse wound it creates and all the internal veins which connect to the 18" or so of small bowel I'll lose, have to be cauterised) I actually think this is the best option for me now, even if the last 2 years and 3 of the 4 surgeries will have been for nothing.
Anyway, all this means that I'm not really very involved with drugs or drug culture at the moment (aside from the lovely blend of midazolam and fentanyl you get with surgeries these days, which make you skip out of the hospital as if you're completely fixed, only to feel like death that evening when it wears off)... Maybe a single skin spliff and a xanax at night if I can't sleep. Anyway, that and my sporadic access to computers means I've decided to step down as mod here, so keep an eye out for a recruitment thread coming up soon!
Hopefully they'll fix me up eventually and you'll see me back here as a more active member again. Take care y'all!
^ JOKE, seriously I do wonder what must be going through your head right now. That's the side we don't hear about. I get frustrated with life all the time, but I don't have to go through what you're going through. What must you be thinking? "Why me!?", "Do i deserve this", "There must be no God" etc etc etc
I downloaded myfitnesspal years ago but never realised that you can scan in the bar code of stuff. Will have to look at that. We had to do similar in uni, using a programme called MicroDiet.
Currently training a different muscle group each day and walking and cycling as much as possible.
I am avoiding sugar/saturated fats/salt and increasing my fruit/veg intake. I try to avoid fast food as much as possible but find myself still indulging at least once a week.
Yes, i believe you can still take drugs and lead a healthy lifestyle. MODERATION is key! It does depends on the type of drug however as some can be more taxing on mental health and some on physical health plus everyone is different and can tolerate different amounts of of certain drugs. So yeah if you find what works for you personally you CAN take drugs and still have a healthy lifestyle.
Yes having a healthy diet and exercising does improve mental health a great deal! For example im recovering from a case of serotonin syndrome and exercise speeds up my recovery by promoting the growth of new serotonin axons in the brain, without it I would still be suffering with various residual symptoms but with my diet and exercise plan I feel normal 80% of the time!
Bare in mind I am doing sober October and recovering from serotonin syndrome so I have a fairly different outlook than when im not being t-total.
I think I'm currently living a healthy enough lifestyle, I try to keep my codeine use at a moderate level, at the same time I run about 20 miles a week and can run 10 miles in one sesson at the moment. I certainly feel codeine use suits my exercise regime a lot better than alcohol ever did (used to drink very heavily, pretty much never these days). However it does become a bit of a problem if my usage has crept up too much (to the point where I would get wd symptoms) as it's kind of hard to run while going through early opiate wd! It's a very nice way to relax after a long run though. I guess I'm lucky that weed has never appealed to me, and that I am not interested in any smoked substances (except very occasionally Sally D extract) as I don't think the crap in the lungs would help. I used to smoke quite heavily but glad I quit that a good few years ago now. I guess certain types of hardcore drug use might make it hard to maintain an exercise routine/regime!
I am vegetarian (almost but not quite vegan) so wouldn't touch the "restaurants" you mention with bargepole for whole number of reasons, but in this case the thought of the fat and other crap makes me ill. I eat a lot of curries, hotter the better (exercise/runners high, chilli pepper rushes, opiates - there is a connection here!) and also pasta and brown rice.
I find meditation and exercise really help my mental states, ideally I wouldn't be taking anything stronger than my morning caffeine blast, but I suppose ideals are something to work towards!
I'll pop back to this thread and post when I've been out on a run, though might be a few days now as I have a sore calf
Some people prefer to stick to their own sub-forum n I find this to be the case for many EADDers so I try to make any thread that may be of some benefit here. The same as Neversickanymore has created an exercise thread in TDS, although that is obviously aimed more at recovery because of the nature of that particular sub-forum. This is aimed at healthy living in general.
Thanks for responses, Scotsman, Hedonistic and headfuck, anyone else. Interesting posts
difficult to explain really, I'd post a photo but that might be too NSFW even for the NSFW tags heh. 
