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  • EADD Moderators: Pissed_and_messed | Shinji Ikari

The EADD Health, Sickness and Pain Thread - share what ails you here.

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Shambles said:
^ Thanks, Evey, Aftershock :)<3




I suspect there's a tale attached to that throwaway sentence - one I get the feeling would have a certain degree of familiarity to me :D
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Weeel i wish it were more glamorous or exciting (almost half tempted to make up a daring adventure haha) but the sad truth is after navigating my way all the way to the hospital and finding the right wing, i was escorted by a rather pisded off looking nurse (or other uniform wearing oficial) to the physio department.....sick looking cunts everywhere....so the physio prick comes up says "oh i didnt know you were booked for today"

I looked at him with unfocused eyes thinking fuck sake im here just do the medicine!

So my appointment is for next Tuesday ehh??

On my way past neuro i knocked over an orderly with a bin on wheels (puzzeld me loads i thought...wheres that cunt going with that...someone should do something..) but by that time people were starting to pay attention to my erratic movements...so i bolted for the nearest fire exit...no doubt causing lots of distress

In the end i was too para to return...fuck em
 
Well, back to the hospital today for an outpatients appointment and my surgeon has basically run out of ideas that don't involve defunctioning the pouch either temporarily or permanently. So I waited around for another hour or so to see his medical counterpart and he's not really got much idea either. He put me on prednisone suppositories though, so at least I got new drugs to try, although I can't see how they'll be much different than the pred foam enemas I've been using without success for 3 weeks now.

He did mention that my CRP markers (blood test for inflammation) have been consistently higher than they would be for just cuffitis (ulcerative colitis in the 2cm of rectal cuff they had to leave in to connect the pouch to, my Surgeon's diagnosis for all this rectal pain I have). This concerns me, why did nobody at the hospital mention it before? I kind of feel like I'm less sure of what's going on than I did before now.

Anyway, I'm now waiting for an appointment for an MRI scan of my entire pelvis to see if they can spot anything else, maybe an abscess or fistula. I'm kind of hoping they do, at least then I'd have something definite and treatable.

So the saga continues :(
 
I feel for you Rogan,you have really been through the mill and still it continues.
Try and keep your spirits up mate.
 
Cheers man, how are you doing these days?

I haven't had too bad a day, bit uncomfortable but it seems to help to keep busy, which is good because shit is hitting the fan at work and the next couple of weeks are going to be manic. Went in at 8 this morning and have only just got home :/ At least the tube strikes have been called off so thankfully I'll be able to get to work tomorrow and Thursday without spending hours being crushed on an overcrowded bus, and I won't have to walk home like last week!
 
Nothing severe, but funny none-the-less: Went on a bit of a bender last week; drank 15-20 units on Sunday, Monday and Tuesday. Then on Wednesday I went to the pub with a rather lovely (read: a fucking model!) friend of mine; again hammered the booze (10 pints or so), then went and got 2 70cl bottles of Vodka between us. Soon after we got back to hers (all going well so far...) I decided to drop 160mg 5-EAPB, ~50mg MPA and around 100mg of 5-MeO-DALT (anxiolysis is a cunt), fast forward 20 minutes and I'm lay on her bed gurning my face off and stroking some plushies, then the vision problems kicked in: 6 of everything, in alternating colours complete with tracers and a sort of visual echo. She began playing Dimmu Borgir's The Serpentine Offering, which is a hell of a song when I'm sober, but the DALT meant I got far, far, far too obsessed with the lyrics, meaning "I am hatred, darkness and despair!", really fucked with my thoughts. Soon after that I blacked out for about an hour and awoke to said friend sliding in to bed next to me, a single bed I may add. I was far too mangled to even consider anything of "that" regard so just cuddled up to her, grinning like a Cheshire Cat. A few minutes later, she was asleep so I thought I'd be nice and slide right over to the edge of the bed, give her more space and tuck her in. 5 minutes later: BOOM! Unconscious ninja kick to the back launched me out of the bed and face first onto the corner of a chest of drawers. My eye looked like I'd been scrapping and took a pretty nasty beating, 5 days later it was still black as the night sky.
So, I got out of bed and went to look in the mirror: somehow, in my unconscious, twitching, gurny mess I'd rubbed both my eyes red raw, destroyed half of my right molar, chewed a chunk out of my lip, set fire to my hair, cut open my arms and legs, tensed my calf muscles to the point I had inch wide gashes on each foot, bruised my rib-cage and, to top it all off: my head felt like I'd been boxing with Tyson.

Does this count? :P
 
Fucking Ouch Sprout, you poor sod. There must not be a part of you that doesn't hurt.
Love the way you described what happened. There's a lesson in there.
 
maxalfie said:
Fucking Ouch Sprout, you poor sod. There must not be a part of you that doesn't hurt.
Love the way you described what happened. There's a lesson in there.
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There's many a lesson in there - if you look like me, don't get ridiculously intoxicated when a woman, who'd score a solid 9 when she'd just woke up with a raging hangover, invites you back to hers.
Don't take triple your normal dose and almost have a seizure.
Don't be a nice guy and give her space in bed.
Don't drink for days on end and complain of a hangover.
Don't avoid Mg supplements if you plan on stimming.
Don't play Atmospheric Black Metal when tripping.

And above all: don't lose your fucking glasses in the process! :D
 
I'm still waiting for an MRI scan of my pelvis to check for abscesses, it will be 6 weeks tomorrow, the NHS target is 6 weeks so it's the first time I've been let down. Hassled them a couple of weeks ago about it and got told that emergency cancer patients take priority, which is fair play.

Thing is, I don't even think I have an abscess. If I did the pain would be permanent right? Whereas mine comes and goes, can have a few good days followed by bad days. Nope, I'm still sure its colitis that is still affecting the bit of rectum they had to keep in when they removed everything else, in order to leave something to stitch the pouch to. Problem is, I think they left too much (quite common although my surgeon won't admit to it - I had a feel up there and I can stick my finger in way further that I should be able to before I hit the pouch).

If they have left too much they can do a pouch advancement surgery which removes nearly all off it, plus scrapes the mucousal lining out that gets the colitis, but the surgery has to be done in through the anus and the stretching of the sphincter muscles for that length of time has a high risk of fecal incontinence. Given the choice I think I'd rather go back to an external ostomy and stick on bag, than be worried about accidents all day.

Some big decisions coming up for me in the coming months if this doesn't settle by itself.
 
I popped this in Snoo thread but just wanted to make sure you who I was on about saw it.
Funnily enough I popped in there earlier to see how people are doing. The doorbell rang and I didn't get chance to wish you all continued improvement. In January when I had my op and the weeks recuperating after when I was in abject agony unable to move and attached to a bag of my own pee....you all helped me more than you could ever know.

I was stuck immobile at home mostly alone in rural nowhere screaming and writhing in pain and you really were my support, sympathy and advice team DESPITE the fact many of those in the thread were probably in equivalent pain if not worse and had far more serious and all encompassing and longer enduring medical shit going on. The thread MUST live on. I have said it before but I will say it again..you helped me through a very dark period in my life, I wont forget your kindness. I am now finally healed and fixed and happy and that is my wish for those that frequent it.

THANK YOU

And so very pleased for you Max.

Ahhh bloody girl hormones getting all teary now ffs...
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Complete whinge compared to you guys' actual ailments, but.. somehow I've managed to sprain/pull a muscle in my hand. Occupational hazard of slaving over a computer for many hours of the day.

Oww.
 
Nah, this is a whinge.

For five years or so I've been having problems, first with cramps, then with general walking ability. For three years I went through hospitals having all tests possible. I actually started in the vascular department where many different specialists told me I was either making it up or imagining it as tests found nothing.

Late last year the problem became so acute I pleaded with them to start all tests over again, from the start. Lo and behold, the very first test, which was the very first test I had five years ago, showed up a problem.

I have arteriosclerosis. Multiple arteries in my groin are furred up and stopping blood flow to my foot. I now only have one good vessel carrying blood to my foot. You are meant to have three. Because I have only one good artery, I cannot have surgery as it would risk buggering up the one good artery and, if this happened, I have my leg amputated.

I really wish they would stop saying amputation to me. Amputation is something that happens to other people. Well now it's a big threat of happening to me.

How did I get this? Two main reasons. One seems to be a genetic predisposition, the same faulty gene that killed my dad at an age not much older than I am now. The second reason is smoking. They could have put some sort of warning on the packets, huh?

This whole thing has been masked by living in the middle of nowhere for years and the subsequent "drive everywhere" mentality/necessity that engenders. If I still lived in the middle of London and walked everywhere I myself might have been a bit more forceful in trying to get the NHS to take me seriously. That said, I'm also pissed off at the NHS for fucking up my tests five years ago. I've been told the test is regularly ballsed up, though usually by a GP. My tests were ballsed up by so called specialist nurses. I got the tests redone at a different hospital. I think this is significant.

Moral of the story? Smoking is bad mmkay? Don't rely on medicine being infallible. Don't have the misfortune to be born into a working class family that has 200 years of hard working peasantry and subsequent crappy genes behind it.

I used to climb mountains. I used to walk everywhere. I used to smoke. All these things are gone.

I'm still alive, with both legs, and it could have been worse.

But my head is fucked, thank you for listening.
 
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