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Gibberings CLV: Empathy is a Two Way Street

Mental Kenny said:
Had a great sleep last night, just checked online tracking and the postie should be bringing goodies, which means I'll spend the rest of week politely dissociated on the couch watching Ancient Aliens. :)
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^
same, sorta. I'm pretty low maintenance when it comes to entertainment or feeling contented. But the above definitely fits the bill for a nice tranquil, pleasant week for me.

Fingers crossed postie does what he's supposed to
 
Good work marmalade on figuring out how to work those doctors, i generally refuse to pander to peoples egos, am having to make huge efforts just to treat them with respect atm, as that has been thoroughly dented over the last few years, incomptent/ucaring/ mix up/ one after the other for ages. Maybe sometimes i need to swallow my pride a bit and things would go better for me in that regard.

As for the sleeping. i know exactly what you mean, i keep waking up around 6 am and cannot get back to sleep which is extremely annoying as i know thats not enough sleep for me so i have to take more etiz. I am trying to reduce etiz. This could be quite a difficult problem. :/
 
Sammy G said:
It was really bloody cold here too.

Beautiful morning though, especially looking east toward the sun as it slowly (reeeeeeeeaaaaalllly bleedin' slowly) came to life. Worth getting out of bed and getting chilly for.

Roll on Saint Brigid's Day.
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Merciful st Brigids day.. gulp

right thats enough of this sick shite you. I'm outta herre!

Beam me up any Sscotty any one!! Is there anyone out there!!!?

sTAN yuu will do. anyone???
 
mydrugbuddy said:
Good work marmalade on figuring out how to work those doctors, i generally refuse to pander to peoples egos, am having to make huge efforts just to treat them with respect atm, as that has been thoroughly dented over the last few years, incomptent/ucaring/ mix up/ one after the other for ages. Maybe sometimes i need to swallow my pride a bit and things would go better for me in that regard.
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I don't mean to bang on about it, but I don't think your own attitude has helped at times. Certainly not on the occasions where you haven't really been prepared to listen to the doc's point of view and you've maybe been more concerned with them supporting and enabling your (recreational) drug use.

That said, I know you've been genuinely frustrated at times, whatever the circumstances. Which is never fun, especially when it involves matters as fundamental as your health and wellbeing.

mydrugbuddy said:
As for the sleeping. i know exactly what you mean, i keep waking up around 6 am and cannot get back to sleep which is extremely annoying as i know thats not enough sleep for me so i have to take more etiz. I am trying to reduce etiz. This could be quite a difficult problem. :/
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Waking at 6am isn't too late for you? I'm out of the shower and eating breakfast by that time! The sun's almost rising too. Why not get out there? :)

You say you 'have to' take more etiz, but what would actually happen if you didn't? How many hours sleep are you getting?

It's not like missing that bit of sleep will harm you, and if you were to get out of bed maybe it'd help your sleeping pattern in the long run.

NightsEpiphany said:
Merciful st Brigids day.. gulp

right thats enough of this sick shite you. I'm outta herre!
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Sick shite? Charming! :D
 
wevee had this drs conversatiion before sam, i had to admit you were right last time too. I just like to vent though, no matter how illogical, irrational etc. Maybe here is not the pace for such venting as it doesnt seem to go down well.

About 6 hours. That is fine for a night or 2, but after that it starts catching up with me and i start to feel tired during the day. I tend to need 8-9 hours kip to have energy that will last all day, and for me to not be a bad tempered, snappy, anxious, paranoid freak.

6am in January !! ??? Not a chance. Mid summer, possibly. ;-)
 
mydrugbuddy said:
About 6 hours. That is fine for a night or 2, but after that it starts catching up with me and i start to feel tired during the day. I tend to need 8-9 hours kip to have energy that will last all day, and for me to not be a bad tempered, snappy, anxious, paranoid freak.
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When you say you need 8-9 hours, I can certainly relate, but what do you need that energy for just now? It's not as if you're going to be expending it during the day, is it? Or at least not every day.

In any case, you do not get proper sleep with benzos. Fact. Even a couple of fitful nights of natural sleep refreshes you more than a week's worth of benzo sleep. It's easy to forget that.

I get six hours on weeknights if I'm lucky, and I'm working 45 hours a week at least. I should aim for 8-10 hours a night in order to stay stable, but that's just not happening, weekends aside. As somebody whose life has been blighted by insomnia in the past, I'm pretty glad of the six hours!

What I'm saying is it can be done. You don't need that extra etizolam at all, and it'd be an easy way to reduce if you were to cut out that dose and get out of bed.
 
Actually had a productive meeting with my keyworker today for a change.
She rang the ESA number and found out that the work programme shouldn't be hassleing me as my assessment still hasn't been done so I'm not yet placed in any group so she is gonna write to the work programme and basically tell them they have to leave me alone until I have been assessed.
She also has arranged for someone to help me with claiming PIP.
Feels like we got a lot of good stuff sorted out this morning.
It's nice to have a positive start to the day.
 
maxalfie said:
She rang the ESA number and found out that the work programme shouldn't be hassleing me as my assessment still hasn't been done so I'm not yet placed in any group so she is gonna write to the work programme and basically tell them they have to leave me alone until I have been assessed.
She also has arranged for someone to help me with claiming PIP.
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Nice!

Hassles you could do without right now, to say the least.
 
Good stuff Max, they really can help a great deal sometimes. All this ESA type stuff is immensly complicated and stresfull, so much so that i didnt even bother with it, when i probably/possibly had a good chance of genuinely qualifying. Mine is allways full of ideas every time we meet, i feel bad saying "no thats not for me" when she comes up with a raft of ideas she's obviously put some work into finding out about and thinking about, but then other weeks she comes up with several things that i am willing to try. There are helpfull meetings and not so helpfull ones, ive got mine this afternoon.
 
Sammy G said:
Nice!

Hassles you could do without right now, to say the least.
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Yes, it was a really productive meeting where things were achieved for a change rather than just talking about drugs etc.
Was surprised at how helpful and proactive she was, I feel much better about certain things now.
I can understand you being put off by the forms Mdb as they are daunting and if you can get help with filling them in then it's worth taking that help.
 
The sun still rises after 8am where I am. That said, 7.30 until 8.15 today produced the most amazing salmon pink lacerated skyline I've ever seen in a sunrise and was worth missing an hour of anyone's sleep.

PS I'm in work by 6am - 5.30 sometimes - and you're all lazy.

PPS Nice one Max.
 
6am I feel for you SHM, no fun in the cold & dark.
Hope you have a good day mate and will be in touch soon.
 
maxalfie said:
Actually had a productive meeting with my keyworker today for a change.
She rang the ESA number and found out that the work programme shouldn't be hassleing me as my assessment still hasn't been done so I'm not yet placed in any group so she is gonna write to the work programme and basically tell them they have to leave me alone until I have been assessed.
She also has arranged for someone to help me with claiming PIP.
Feels like we got a lot of good stuff sorted out this morning.
It's nice to have a positive start to the day.
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Max, so chuffed for you. It's so relieving and a big fucking weight lift when you get help from someone who knows what theyre talking about, and who has the means and authority to help you get the difficult shit done that plays on your mind.

I'm finally in touch with someone like this and she's helped me tackle nearly everyone of these type of problems I'd been avoiding.

You shouldn't have to worry about all this administrative crap when youre going through treatment and have other more serious shit to worry about. It's truly sad that there are tons of people unaided out there, in really bad positions, who aren't able to cope and dont understand what the whole processes are and for and whatnot (not meaning you, just lots of unsupported less able folks, of which there are many).

Hopefully this will help make your chemo a little easier to face and stop you worrying about stupid beaurocracy that has the tendancy to take over your head while it's up in the air. It can be mental torture if, like most, it's regarding money you rely on to live
 
I used to hate this time of year in my last job. I would leave for work at 6.25am and finish at 7pm on day shift so it was pitch black when I started work and dark when I finished.
The only time I'd see daylight was on teabreaks.
 
mydrugbuddy said:
Good stuff Max, they really can help a great deal sometimes. All this ESA type stuff is immensly complicated and stresfull, so much so that i didnt even bother with it, when i probably/possibly had a good chance of genuinely qualifying. Mine is allways full of ideas every time we meet, i feel bad saying "no thats not for me" when she comes up with a raft of ideas she's obviously put some work into finding out about and thinking about, but then other weeks she comes up with several things that i am willing to try. There are helpfull meetings and not so helpfull ones, ive got mine this afternoon.
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Get an appointment with CAB. Theyll sit with you and even fill the forms in by asking you questions. Call them and say youre not capable of doing it yourself. They can help, and will. There are also other charities who'll help do the same in your area, there is in mine. Just need to take your details in with you.

Do it. Call CAB and make an appointment.
 
Thanks Marmz,you are so right that it really does help when you have someone on your side who has plenty of experience in dealing with benefits etc.
I am usually the type of person who tries to do everything myself rather than asking for help but I'm learning that sometimes I do need help and there is nothing wrong in asking for that help.
As you said some less able folk must find dealing with the benefits forms and people very scary and allow themselves to be put off pursuing answers as they don't know who to approach or what their rights are.
The forms are complicated enough even for folk who deal with them all the time nevermind the average man on the street.
Now I'm going to be a lot more open about when I need help rather than trying to struggle through it all on my own.
 
Marmalade said:
Get an appointment with CAB. Theyll sit with you and even fill the forms in by asking you questions. Call them and say youre not capable of doing it yourself. They can help, and will. There are also other charities who'll help do the same in your area, there is in mine. Just need to take your details in with you.

Do it. Call CAB and make an appointment.
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Isn't MDB looking for a job though?

I'm sure that's the best way to go about things for those in doubt, regardless.
 
Marmalade said:
Get an appointment with CAB. Theyll sit with you and even fill the forms in by asking you questions. Call them and say youre not capable of doing it yourself. They can help, and will. There are also other charities who'll help do the same in your area, there is in mine. Just need to take your details in with you.

Do it. Call CAB and make an appointment.
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Good advice, CAB will be well versed in helping people with benefit forms etc.
My keyworker has passed on my details to a local Charity worker who helps folk with filling in benefit claim forms.
When my claim form for PIP arrives then the lady will come to my home and help me with filling out the form.
They also know what you should and shouldn't include on the form and they give you the best chance of getting your claim right the first time round.
 
Fuck the postie passed in my street but didn't deliver anything, fuck, fuck fuck

Seriously a cursed shipment that is, can't even trust the online tracking anymore, wouldn't surprise me if the thieving little cunt kept the package for himself.
 
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