Mental Health Coming off Invega/Xeplion (paliperidone) injections v 8.0

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Hi everyone!

I’m new here. Was in a psych ward for two weeks for a two day drug induced psychosis and they put me on oral Palperidone then after two weeks they said I could go home but needed an injection first which I would have to get from a nurse every month.

By Feb/ March I was horribly anxious/ pacing/ couldn’t watch TV read books or listen to music. If someone called me on the phone or if I was with them my throat would close up and I couldn’t talk, but also I had nothing on my mind - nothing to say.

Weirdly I got an 9-6 office job and was able to do that each day and do a stressful commute but I was motivated by money and having an income.

By June this year I had googled my symptoms and worked out it was the meds so I stopped getting the injections.

I begged my psychiatrist to let me stop them, I told her it was ruining my entire life and she said I could switch to alpiprizole pills. I got the prescription filled but never took the pills. A month later the psych tried to push me into getting the injections of it and I point blank refused. I only see her every 3 months.

Anyway! Currently on month four and a half without the Palperidone. I’m MUCH better! I can talk, laugh, have a conversation make jokes and drink wine and get a buzz. My memory is better and I have more motivation to go to the store. I’m pretty lazy at tidying my apartment but then I always was.

I’ve bought new make up (I am making an effort about my appearance) and whilst I can’t cry yet at least I can laugh. I can also feel hunger and appreciate beauty and I feel happy when I’m with my family and friends.

This weekend I have been to the beach both days and swam and chilled and I can read and watch TV again.

I don’t get so bored now either. I’ve switched my work contract to working from home but I’m able to get up and work at my laptop. Best of all! NO pacing!

I’m gonna switch psychs. Mine says I have to be on APs for a couple of years - it’s their standard protocol. She doesn’t know I’m not taking the Alprprizole (Albify) so if I go in there in Nov in full make up, chatting away and making jokes and small talk she’ll either think she’s a brilliant doctor or if all her patients are anxious chain smoking zombies so will know something is up.

Anyway! Any advice?
 
Once again sorry for saying that I was trying to uplift myself because I was feeling hopeless it just seems to be true it may not be tho, I was telling her to get an mri to see if damage was done it may be helpful Imma try to get one myself, I’m not 100 percent certain it’s just based off what he said it seems like it’s damaged, contacting the drug manufacturer probably won’t do shit for justice I am trying to get justice against the scumbag fuck who injected me by talking to someone here to see how I can get justice I hope I can I may not be able to sadly tho, if most people who recover had psychosis it makes me extremely fucking hopeless 😔 how will I fucking recover im only 18! And was only depressed from some horrific betrayal event that happened in my life now im losing hope! Yes it makes me hopeless when i see someone say their pituitary and pineal gland were flattened and damaged one controls sex hormones the other controls spirituality and sleep that’s important! It makes me think maybe paliperidone poison destroys these glands in most people including me!😔 that makes me really fucking hopeless bro!😔 i also feel hated by the mods now unlike everyone else i just try to help! Maybe I say dumb shit but it’s not my fault im fucking lobotomized!😔
It's okay man, I'm sorry if I made you feel targeted with my replies to your comments. You are definitely NOT hated by the mods, don't worry about that. We (I, in particular) can see your desperation about your current side effects and your waning hope for your recovery. I really do feel for you. I was just trying to teach you about how to word things that are opinions vs facts (there's a very big difference), and about being more mindful about giving medical advice on the internet when you're not a doctor. Also, specifically regarding cmf77's MRI results, please keep in mind that he is 54 years old. You are 18 years old. That's never going to be an equal comparison.

Now, regarding the doctor who injected you, your best bet would be to sue for malpractice. But is this going to be feasible???? You would need a lawyer, and a VERY GOOD ONE, in order to win. And for that you need...? You guessed it. Money, and lots of it, And what is something that doctors tend to have lots of?? Money. So chances are that even if you got the money together to pay a good lawyer to represent you in a malpractice case, the doctor would pay for an even better lawyer to defend them. And medical malpractice court cases can go for many many months. Your funds to keep paying your lawyer may dry up, you may have to end up representing yourself, which is a sure-fire loss because you don't know the court and legal jargon, the document filing processes, the proper court practices etc. So the judge will will end up just dismissing the case. So you end up broke, and back to square one.

If by some chance you have unlimited funds then fucking go for it and get that fucker's medical license taken from him!!! But chances are pretty slim that you will win in court. I'm sorry. I'm just being realistic. I am on your side, but I don't want you to waste any time, energy or money on something that isn't going to get the result you want.

This is why I suggested contacting the manufacturer of Invega (which country are you in? I think the manufacturer is Janssen Pharmaceuticals from memory??) because the manufacturers of drugs are legally required to document and investigate/act upon every single adverse reaction complaint they receive. The more complaints they get, the more legal, hard evidence they have to support taking the drug off the market. This is why I keep suggesting in every Invega thread that people report their adverse side effects directly to the manufacturer of Invega.

I couldnt have gotten it up if you had put a gun to my head.
I don't think anyone could get it up if they actually had a gun to their head 😉😋
I know what you meant though, and for real, I am really glad you've got your libido back. It's a really important part of being human so I understand why it's such a distressing side effect.

Hi everyone!

I’m new here. Was in a psych ward for two weeks for a two day drug induced psychosis and they put me on oral Palperidone then after two weeks they said I could go home but needed an injection first which I would have to get from a nurse every month.

By Feb/ March I was horribly anxious/ pacing/ couldn’t watch TV read books or listen to music. If someone called me on the phone or if I was with them my throat would close up and I couldn’t talk, but also I had nothing on my mind - nothing to say.

Weirdly I got an 9-6 office job and was able to do that each day and do a stressful commute but I was motivated by money and having an income.

By June this year I had googled my symptoms and worked out it was the meds so I stopped getting the injections.

I begged my psychiatrist to let me stop them, I told her it was ruining my entire life and she said I could switch to alpiprizole pills. I got the prescription filled but never took the pills. A month later the psych tried to push me into getting the injections of it and I point blank refused. I only see her every 3 months.

Anyway! Currently on month four and a half without the Palperidone. I’m MUCH better! I can talk, laugh, have a conversation make jokes and drink wine and get a buzz. My memory is better and I have more motivation to go to the store. I’m pretty lazy at tidying my apartment but then I always was.

I’ve bought new make up (I am making an effort about my appearance) and whilst I can’t cry yet at least I can laugh. I can also feel hunger and appreciate beauty and I feel happy when I’m with my family and friends.

This weekend I have been to the beach both days and swam and chilled and I can read and watch TV again.

I don’t get so bored now either. I’ve switched my work contract to working from home but I’m able to get up and work at my laptop. Best of all! NO pacing!

I’m gonna switch psychs. Mine says I have to be on APs for a couple of years - it’s their standard protocol. She doesn’t know I’m not taking the Alprprizole (Albify) so if I go in there in Nov in full make up, chatting away and making jokes and small talk she’ll either think she’s a brilliant doctor or if all her patients are anxious chain smoking zombies so will know something is up.

Anyway! Any advice?
Hello and welcome! ❤ Thank you so much for sharing your recovery story with us, it's really important for everyone in here to read positive stories like yours.

What would you like advice on? Whether you should switch psychs?? If you feel you should see a different psych and you have the option to, then hell fucking yes switch psychs lol. Follow your instincts.
 
It's okay man, I'm sorry if I made you feel targeted with my replies to your comments. You are definitely NOT hated by the mods, don't worry about that. We (I, in particular) can see your desperation about your current side effects and your waning hope for your recovery. I really do feel for you. I was just trying to teach you about how to word things that are opinions vs facts (there's a very big difference), and about being more mindful about giving medical advice on the internet when you're not a doctor. Also, specifically regarding cmf77's MRI results, please keep in mind that he is 54 years old. You are 18 years old. That's never going to be an equal comparison.

Now, regarding the doctor who injected you, your best bet would be to sue for malpractice. But is this going to be feasible???? You would need a lawyer, and a VERY GOOD ONE, in order to win. And for that you need...? You guessed it. Money, and lots of it, And what is something that doctors tend to have lots of?? Money. So chances are that even if you got the money together to pay a good lawyer to represent you in a malpractice case, the doctor would pay for an even better lawyer to defend them. And medical malpractice court cases can go for many many months. Your funds to keep paying your lawyer may dry up, you may have to end up representing yourself, which is a sure-fire loss because you don't know the court and legal jargon, the document filing processes, the proper court practices etc. So the judge will will end up just dismissing the case. So you end up broke, and back to square one.

If by some chance you have unlimited funds then fucking go for it and get that fucker's medical license taken from him!!! But chances are pretty slim that you will win in court. I'm sorry. I'm just being realistic. I am on your side, but I don't want you to waste any time, energy or money on something that isn't going to get the result you want.

This is why I suggested contacting the manufacturer of Invega (which country are you in? I think the manufacturer is Janssen Pharmaceuticals from memory??) because the manufacturers of drugs are legally required to document and investigate/act upon every single adverse reaction complaint they receive. The more complaints they get, the more legal, hard evidence they have to support taking the drug off the market. This is why I keep suggesting in every Invega thread that people report their adverse side effects directly to the manufacturer of Invega.


I don't think anyone could get it up if they actually had a gun to their head 😉😋
I know what you meant though, and for real, I am really glad you've got your libido back. It's a really important part of being human so I understand why it's such a distressing side effect.


Hello and welcome! ❤ Thank you so much for sharing your recovery story with us, it's really important for everyone in here to read positive stories like yours.

What would you like advice on? Whether you should switch psychs?? If you feel you should see a different psych and you have the option to, then hell fucking yes switch psychs lol. Follow your instincts.
Hi 👋 I just wanted advice on recovery in general. I was on Reddit and someone there said “everyone” suffers rebound psychosis but then others say that’s not true. It’s hard to find any advice at all really, I’ve seen a tonne of negative posts but I get the impression that I’m getting better all the time. Thanks very much for your reply. 🙏🏼❤️
 
Hi 👋 I just wanted advice on recovery in general. I was on Reddit and someone there said “everyone” suffers rebound psychosis but then others say that’s not true. It’s hard to find any advice at all really, I’ve seen a tonne of negative posts but I get the impression that I’m getting better all the time. Thanks very much for your reply. 🙏🏼❤️
I personally have never read anything on Reddit about people's experiences with Invega (I simply don't have the time), but I consistently hear horrendous stuff from it. I would suggest that you avoid Reddit like the plague. It sounds like it's a breeding ground for fear and hopelessness. If YOU feel like you're getting better all the time then....you ARE!! 😊❤ Everyone recovers slightly differently from Invega, and at different rates. Try not to compare your own recovery to anyone else's.
 
Ooh I love that! Thank you! Yes I find Reddit to be extremely negative. It’s the same 5 accounts spouting doom and gloom and saying recovery takes years! Not true, people in my life (family and friends) have been commenting that I’m noticeably loads better! 😎
 
I hope these doctors know how unhinged we are from this drug.They are evil people who need their medical license removed.Anyway, Ive got a doctors appointment tomorrow for my latest mri.Then Im working with this alternative medicine doctor.He says he can get me better.Please pray for me.
 
I really don't know at this point.Im 54 yrs old.It looks like it is on a very weird angle.It is suppose to be upright, but looks angled down.I don't know the percentage.All I know as the months go along, the angrier I'm getting at what this doctor did to me. One good thing is that my hand tremors seem to be dissipating.

If hand tremors are dissipating it means that your dopamine is coming back which seems to be one of the main issues.
 
8 months off, no signs of rebound psychosis so far. I'd imagine there's a natural taper with injections as the released dose gets lower and lower.
 
I realized that the opposite of peace is suffering and agony, and invega primarily causes that, to the worst extremes that can't be grasped by imagination. It must be experienced to be truly understood how terrible it is.

Some of the heroin addicts beg for death during withdrawals, but invega puts this on an even greater extreme. It's much worse than heroin withdrawal and lasts much longer. People were through heroin withdrawals and who also went on invega confirmed that.

When I was around 1 year off, I was running outside and my head sometimes produced a sticky sound at the left top side of my skull. It went away in few months

Recently, I got the strongest goosebumps since going off invega.
About the herion withdrawal.. Do you have spurces of the people who said that? Not attacking you just curious. Ive read alot of this poison and have never heard that before.
Thanks!
 
To the person who posted 8 months off and no rebound psychosis:

Ah thank you that’s great to know! How are you feeling? 😊
 
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Heroin withdrawal v Invega withdrawal

The thing is heroin withdrawal lasts two weeks max, it’s the first four days that are the worst but methadone helps greatly. I would say the worse experience is actually taking Invega - It has no positive/ enjoyable aspects whatsoever and is sheer hell. I acted like someone who was mentally unwell because of the Invega side effects. I’m withdrawing from Palperidone injections and feeling much better now the horrid and embarrassing Invega side effects have eased off hugely. Being able to hold a lively discussion with jokes etc I feel like I’m getting my wits back after being a zombie.
 
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How are you doing friend ? You’re one of the more positive people here

To be fair, I've also been one of the luckier people here in terms of recovery, so it's easy to be positive.

I'm doing ok though! I need to get a job again and the market is dreadful. I'll probably end up working at a trader Joe's if I'm lucky.
 
I have another brain expert I am talking too tonight.I have two people in my arsenal now.If they get me better I will so gladly pass their contact info on.As recovery gets closer I get more and more angry at what this individual did to me.Enraged is the word.But I have to maintain my composure and worry about myself and concentrate on the task at hand.
 
i am 4 months off the poison and still have intense boredom and very low dopamine. I try to play games but can only play for a hour or 30 minutes. I try to watch stuff on here i can but eventually i find myself laying down and just staring at the screen not doing anything with very low motivation everyday multiple times a day i get bored of using the computer and fucking lay down and start groaning in agony and hopelessness this is ridiculous im only 18 i have hope sometimes but when i see multiple people fucking saying they significantly improved in 4 months i lose hope!😔💔 156+156 few days apart 4 months off little improvement!
 
I’m so sorry you’re not feeling any better - I hope you see improvements soon. It is true that everyone is different.
 
I’m so sorry you’re not feeling any better - I hope you see improvements soon. It is true that everyone is different.
the only improvements i have is that parkinsons went away and i feel less like zombie and weight gain is slowing and some mental function is back a little
 
Ooh I love that! Thank you! Yes I find Reddit to be extremely negative. It’s the same 5 accounts spouting doom and gloom and saying recovery takes years! Not true, people in my life (family and friends) have been commenting that I’m noticeably loads better! 😎

I find the people on reddit to be very conservative as well. Most on reddit psychosis where very anti drug and go by what their stupid nurses and docs in the psych ward told thm
 
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