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  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Coming off Invega/Xeplion (paliperidone) injections v 12

Brendan Clark said:
I also have faith in the Lord
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it gets hard to have faith in the lord with me as i’m chemically poisoned body is tweaking out - weak - constantly wants to sleep but i can’t cause invega injection is slow releasing and triggering a blocked nose these doctors are evil - have faith in the lord
 
KubiKook said:
You think the meds caused the 'concrete' nose? That would be weird. Sounds awful though. Yea, I wish I still had faith in the Lord. Lost that completely. Definitely a bummer.
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I’m losing it too but anytime i feel energy ill pray but still the blocked nose is awful - it’s the meds as if done jt last time and i never have this normally im chemically poisoned and thing is there’s no fix
 
AlphaMethylPhenyl said:
Unfortunately not (yet) in living beings.

I encourage people to keep busy, exercise and meditate, take up a hobby, distract yourself and your brain may heal quicker!
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Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
 
AlphaMethylPhenyl said:
Unfortunately not (yet) in living beings.

I encourage people to keep busy, exercise and meditate, take up a hobby, distract yourself and your brain may heal quicker!
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It feels like my dopaminergic pathways are damaged so when trying to do these things my brain doesn't have the same reward centre/feeling where I feel good when doing it.
 
KubiKook said:
Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
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Do what you can, dude. We believe in you!

Brendan Clark said:
It feels like my dopaminergic pathways are damaged so when trying to do these things my brain doesn't have the same reward centre/feeling where I feel good when doing it.
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Rome was not built in a day. Start small and work your way up.
 
KubiKook said:
Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
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Actually I just checked and there are universities that do dopamine D2 receptor occupancy PET scans and serotonin occupancy PET scans. They inject you with a tracker and it can show whether the brain lights up or not to determine if it's binding correctly or if it's been blocked by invega. Unfortunately you can't purchase a scan like that as they're only conducted for research purposes in universities. The only option would be to write to a university to be involved in a clinical trial where they're checking the influence of antipsychotics on the brain
 
KubiKook said:
By the way, anything new (good) with you?
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A few small things. Lately I've been sleeping a bit better (especially feeling sleepy during the day), and in a few days I'm planning to visit my friends. I prepared gifts for them: a small knitted capybara, a book, some mystery boxes, an original "Stone Island" patch, and a Lego Batman keychain. I haven't seen them in a long time and I miss them a lot, so I think they'll be happy
 
Matthew01 said:
Anyone using a dopamine agonist in here?
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I was prescribed dopamine agonists because my prolactin levels turned out to be abnormally high according to the tests. I don’t have any mental disorders, so it didn’t cause any side effects. At first, I was afraid it would affect my sleep, but it didn’t get worse. On the contrary, I started sleeping without being distracted by outside noises and without waking up. In addition, my cycle returned. It definitely helped me
 
InnerReturn said:
A few small things. Lately I've been sleeping a bit better (especially feeling sleepy during the day), and in a few days I'm planning to visit my friends. I prepared gifts for them: a small knitted capybara, a book, some mystery boxes, an original "Stone Island" patch, and a Lego Batman keychain. I haven't seen them in a long time and I miss them a lot, so I think they'll be happy
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That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I'm sure your friends will be thrilled. I hope you all have a wonderful visit.
 
InnerReturn said:
I was prescribed dopamine agonists because my prolactin levels turned out to be abnormally high according to the tests. I don’t have any mental disorders, so it didn’t cause any side effects. At first, I was afraid it would affect my sleep, but it didn’t get worse. On the contrary, I started sleeping without being distracted by outside noises and without waking up. In addition, my cycle returned. It definitely helped me
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If you don't mind me asking, which one(s) did you use? Knowing my condition a bit, would you recommend me trying them? I'm desperate as can be to 'activate' some change in my brain.
 
KubiKook said:
That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I' sure your friends will be thrilled. I hope you all have a wonderful visit.
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Brendan Clark said:
Actually I just checked and there are universities that do dopamine D2 receptor occupancy PET scans and serotonin occupancy PET scans. They inject you with a tracker and it can show whether the brain lights up or not to determine if it's binding correctly or if it's been blocked by invega. Unfortunately you can't purchase a scan like that as they're only conducted for research purposes in universities. The only option would be to write to a university to be involved in a clinical trial where they're checking the influence of antipsychotics on the brain
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Are you considering trying some type of dopamine-boosting meds? Or something for serotonin? Maybe both. I know Weebutrin works on both. I'm not sure if that's worth a try...
 
KubiKook said:
That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I'm sure your friends will be thrilled. I hope you all have a wonderful visit.
Click to expand...
KubiKook said:
If you don't mind me asking, which one(s) did you use? Knowing my condition a bit, would you recommend me trying them? I'm desperate as can be to 'activate' some change in my brain.
Click to expand...
Thank you! Yes, the whole process of choosing and preparing the gifts felt really nice. It reminded me that I still like being the reason for my friends' smiles.
About the dopamine agonists — I was prescribed them for a very specific reason: my prolactin was abnormally high due to the Invega injections. The medication (cabergoline) helped bring my levels down, my cycle returned, and my sleep improved. But I don't have any underlying psychiatric condition, so I didn't experience the psychiatric side effects that can sometimes happen with these drugs. I can't recommend anything for you because I'm not a doctor, and your situation is different from mine. Dopamine agonists can trigger mania or psychosis in people who are vulnerable to those states, and you mentioned having had manic episodes in 2019 and 2025. That would make me very cautious. It might be worth asking your doctor whether prolactin testing is relevant for you and whether there are any options that would be safe given your history. I really wish I had an easy answer. You deserve a break after everything you've been through
 
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
 
Brendan Clark said:
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
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It's apparently called "cognitive rigidity"
 
I also learned and can testify to the fact that invega caused me "robotic monotropism". Us neurodivergent people usually focus on one thing at a time, but apparently "invega can amplify this to an extreme, stripping away the natural, lateral thoughts that usually keep your mind dynamic and flexible." So it takes our focus to an extreme.
 
Brendan Clark said:
One other negative side effect of this drug for me is that it makes my concentration too good in a bad way. In the past when walking outside I would get distracted in a natural way by things around me. Now I focus too much on one thing with a fixed gaze and have to consciously shift my focus elsewhere, not in a spontaneous, natural way if you know what I mean. I've noticed this when walking outside when I'm able to stare at people or objects for long bouts while I see them get distracted by the things around them. I'm neurodivergent so I used to have lots of thoughts and ideas rushing through my head, but this invega has made my mind too quiet and I don't have that same spark I used to have. The thing is that my neurodivergency was what made me me, so it's like this has stolen an authentic part of who I am. It's horrible that such a drug could exist, that changes someone so drastically. Again I was getting better towards the end of June but the shot I got two weeks ago set me back to a place I've never been familiar with.
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This explains why I don't enjoy watching tv or reading anymore like I used to
 
InnerReturn said:
Thank you! Yes, the whole process of choosing and preparing the gifts felt really nice. It reminded me that I still like being the reason for my friends' smiles.
About the dopamine agonists — I was prescribed them for a very specific reason: my prolactin was abnormally high due to the Invega injections. The medication (cabergoline) helped bring my levels down, my cycle returned, and my sleep improved. But I don't have any underlying psychiatric condition, so I didn't experience the psychiatric side effects that can sometimes happen with these drugs. I can't recommend anything for you because I'm not a doctor, and your situation is different from mine. Dopamine agonists can trigger mania or psychosis in people who are vulnerable to those states, and you mentioned having had manic episodes in 2019 and 2025. That would make me very cautious. It might be worth asking your doctor whether prolactin testing is relevant for you and whether there are any options that would be safe given your history. I really wish I had an easy answer. You deserve a break after everything you've been through
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Yeah, I definitely used to enjoy that stuff too, making someone's day, sometimes just sending family or friends something as simple as an out-of-the-blue heartfelt handwritten card or even maybe just an 'emotive' email... I loved being creative. I know it sounds bad, but it's so hard now to see other people going about their lives while I'm stagnating in this wretched state of being.
 
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