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  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Coming off Invega/Xeplion (paliperidone) injections v 12

paranoid android said:
It helps anhedonia and depression. Of course it has risks all stims do but ritalin isnt as tweaky as amphetamines atleast for me. Doesent affect my appetite or sleep as much
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Gottcha. Thank you for the info. We shall see. I definitely need to something. The status quo is not working at all.
 
Brendan Clark said:
I went to the park today with sister, brother-in-law, and young nieces. I remember how I used to play with my niece before this invega and how even though I tried playing it didn't generate that same kind of happiness it used to for me, like I was just going through the motions. If it was my old self nothing would have been able to stop the child inside me, but invega took that away. Will this ever return?? I was doing better in the end of June but this last dose was the straw that broke the camel's back it feels.
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That's how my third dose felt, everything went really bad after compared to the two loading doses. It's just now kind of starting to swing back the other way (at least with the once-a-day nicotine rush), but for the first 2-3 months you might feel really bad coming off the shots.

Hopefully your brain is young enough to recover; I know it feels really scary now because I'm in the same position. Just remember that most people don't really feel much improvement until at least 6 months.
 
Brendan Clark said:
How many doses did you get? Yeah you're lucky not to have gotten a blank mind, cause your stream of consciousness is just taken from you. It's much worse than the anhedonia...I've found people complaining of this but so far no one has said it gets better...Taking one day at a time feels like a mammoth task already as a day feels like whole year to me just now
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3 doses, the two loading doses and a final third one before I figured out the shots were the reason I felt awful.

Try to keep in mind that a lot of what you read will be disproportionately biased towards negative experiences and we don't always know the final outcomes. The data leans more towards full recovery from what I have seen, but it will just take a really long time in comparison to where you're at now.
 
Invegatorment said:
That's how my third dose felt, everything went really bad after compared to the two loading doses. It's just now kind of starting to swing back the other way (at least with the once-a-day nicotine rush), but for the first 2-3 months you might feel really bad coming off the shots.

Hopefully your brain is young enough to recover; I know it feels really scary now because I'm in the same position. Just remember that most people don't really feel much improvement until at least 6 months.
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I really hope so, I'm 30 so we'll see...
 
Invegatorment said:
3 doses, the two loading doses and a final third one before I figured out the shots were the reason I felt awful.

Try to keep in mind that a lot of what you read will be disproportionately biased towards negative experiences and we don't always know the final outcomes. The data leans more towards full recovery from what I have seen, but it will just take a really long time in comparison to where you're at now.
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The problem for me is I had more doses than most @ 9 doses so this puts my recovery at a great disadvantage I think, which really worries me, making me think this will go on forever, and that my dopaminergic pathways are ruined forever. I wonder if it's possible to get your dopamine and serotonin measured?....
 
Brendan Clark said:
I also have faith in the Lord
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it gets hard to have faith in the lord with me as i’m chemically poisoned body is tweaking out - weak - constantly wants to sleep but i can’t cause invega injection is slow releasing and triggering a blocked nose these doctors are evil - have faith in the lord
 
KubiKook said:
You think the meds caused the 'concrete' nose? That would be weird. Sounds awful though. Yea, I wish I still had faith in the Lord. Lost that completely. Definitely a bummer.
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I’m losing it too but anytime i feel energy ill pray but still the blocked nose is awful - it’s the meds as if done jt last time and i never have this normally im chemically poisoned and thing is there’s no fix
 
AlphaMethylPhenyl said:
Unfortunately not (yet) in living beings.

I encourage people to keep busy, exercise and meditate, take up a hobby, distract yourself and your brain may heal quicker!
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Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
 
AlphaMethylPhenyl said:
Unfortunately not (yet) in living beings.

I encourage people to keep busy, exercise and meditate, take up a hobby, distract yourself and your brain may heal quicker!
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It feels like my dopaminergic pathways are damaged so when trying to do these things my brain doesn't have the same reward centre/feeling where I feel good when doing it.
 
KubiKook said:
Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
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Do what you can, dude. We believe in you!

Brendan Clark said:
It feels like my dopaminergic pathways are damaged so when trying to do these things my brain doesn't have the same reward centre/feeling where I feel good when doing it.
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Rome was not built in a day. Start small and work your way up.
 
KubiKook said:
Yeah, I appreciate the feedback, and understand the positive nature of doing those things, my brain is just so screwed now, none of those things are 'doable' anymore... It's quite the dilemma.
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Actually I just checked and there are universities that do dopamine D2 receptor occupancy PET scans and serotonin occupancy PET scans. They inject you with a tracker and it can show whether the brain lights up or not to determine if it's binding correctly or if it's been blocked by invega. Unfortunately you can't purchase a scan like that as they're only conducted for research purposes in universities. The only option would be to write to a university to be involved in a clinical trial where they're checking the influence of antipsychotics on the brain
 
KubiKook said:
By the way, anything new (good) with you?
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A few small things. Lately I've been sleeping a bit better (especially feeling sleepy during the day), and in a few days I'm planning to visit my friends. I prepared gifts for them: a small knitted capybara, a book, some mystery boxes, an original "Stone Island" patch, and a Lego Batman keychain. I haven't seen them in a long time and I miss them a lot, so I think they'll be happy
 
Matthew01 said:
Anyone using a dopamine agonist in here?
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I was prescribed dopamine agonists because my prolactin levels turned out to be abnormally high according to the tests. I don’t have any mental disorders, so it didn’t cause any side effects. At first, I was afraid it would affect my sleep, but it didn’t get worse. On the contrary, I started sleeping without being distracted by outside noises and without waking up. In addition, my cycle returned. It definitely helped me
 
InnerReturn said:
A few small things. Lately I've been sleeping a bit better (especially feeling sleepy during the day), and in a few days I'm planning to visit my friends. I prepared gifts for them: a small knitted capybara, a book, some mystery boxes, an original "Stone Island" patch, and a Lego Batman keychain. I haven't seen them in a long time and I miss them a lot, so I think they'll be happy
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That's awesome, Lara. Feeling sleepy is a big deal. Such nice & thoughtful gifts... Did you enjoy the whole process? I'm sure your friends will be thrilled. I hope you all have a wonderful visit.
 
InnerReturn said:
I was prescribed dopamine agonists because my prolactin levels turned out to be abnormally high according to the tests. I don’t have any mental disorders, so it didn’t cause any side effects. At first, I was afraid it would affect my sleep, but it didn’t get worse. On the contrary, I started sleeping without being distracted by outside noises and without waking up. In addition, my cycle returned. It definitely helped me
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If you don't mind me asking, which one(s) did you use? Knowing my condition a bit, would you recommend me trying them? I'm desperate as can be to 'activate' some change in my brain.
 
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