Coming off Invega/Xeplion (paliperidone) injections v 12

[flystr8]

Can’t wait the benefit of this thing is that i’ll be housed. Still blocked nose.. no comfort and being locked up breaks relationships and all that’good stuff

 

[KubiKook]

Thanks for explaining that. So is there a chance for my appetite to return? I notice I've had more shots than most at a total of 9 injections so are my chances of recovery slimmer? Is it possible to go back to how I was pre-Invega? Unfortunately with the sleep I'm not getting much because of this 30th June shot @50mg, my sleep had gone back to normal and so had my appetite but boom, I got my 9th shot and then things reversed within a few day's time. I think my body came to a place where it could no longer take the dopamine blockade and just shut down completely.

I have no appetite or much sense of thirst. Do you have to force yourself to eat? Have you lost a lot of weight? Do you plan on staying on Invega long term or are you tapering off now?

You looked absolutely stunning

Ha-ha. Thanks so much, Lara.

 

[8up]

Maybe try for a few days without the meds and see what happens

I wonder if cold turkey will 'kill' me...

The Chemical Shock change will affect you a lot. Wean off. Read up about it. Ask you Doctor in Hypothetical only, they won’t recommend out. They only answer a hypothetical FOR Legal Reasons!

With it the Sensations that can return with some being blocked still will be a shock. The configuration is not predictable based upon individual Bodies and Nutrition Available per individual. There are Wild Cards. Slow Reduction with mapping the changes incrementally so you know what’s to come. You need to know the Human Biology and Human Behavioural Sciences, otherwise you’ll feel blind. Knowing it will let you determine a sensation is a product of Factors. Without that you will Panic, Anxiety and Fight it Fight Mode (Panic Attack — Run From Predator), will Kick in. Go slowly and you can come if. Discuss it Hypothetically as I suggested. They would give you the theoretical timing. You can look it up also. It can seem quite slow. Do the correct time.

[FYI This Drug Category makes Johnson & Johnson ~ $4.22BILLION a year, Further Maths says $11.2BILLION].

 

[Brendan Clark]

I have no appetite or much sense of thirst. Do you have to force yourself to eat? Have you lost a lot of weight? Do you plan on staying on Invega long term or are you tapering off now?

Ha-ha. Thanks so much, Lara.

Yeah basically I'm eating to live just now. I've not lost weight yet cause this is a new development of this past week after my last dose. If it were up to me I would never take even one shot but yeah on this CTO the doctor is tapering me off with one more shot left, but I'm going to ask to stop taking all drugs completely or go to aripiprazole. I just hope I'm not permanently damaged.

 

[Brendan Clark]

The Chemical Shock change will affect you a lot. Wean off. Read up about it. Ask you Doctor in Hypothetical only, they won’t recommend out. They only answer a hypothetical FOR Legal Reasons!

With it the Sensations that can return with some being blocked still will be a shock. The configuration is not predictable based upon individual Bodies and Nutrition Available per individual. There are Wild Cards. Slow Reduction with mapping the changes incrementally so you know what’s to come. You need to know the Human Biology and Human Behavioural Sciences, otherwise you’ll feel blind. Knowing it will let you determine a sensation is a product of Factors. Without that you will Panic, Anxiety and Fight it Fight Mode (Panic Attack — Run From Predator), will Kick in. Go slowly and you can come if. Discuss it Hypothetically as I suggested. They would give you the theoretical timing. You can look it up also. It can seem quite slow. Do the correct time.

[FYI This Drug Category makes Johnson & Johnson ~ $4.22BILLION a year].

That's another thing that invega took from me, that "fight or flight" instinct. It's like I don't have any adrenaline, or very reduced. I don't get surprised at things anymore and that sensation of awe when something cool happens is gone too. Trying to stay hopeful that all will return eventually, but it's hard.

 

[Brendan Clark]

The Chemical Shock change will affect you a lot. Wean off. Read up about it. Ask you Doctor in Hypothetical only, they won’t recommend out. They only answer a hypothetical FOR Legal Reasons!

With it the Sensations that can return with some being blocked still will be a shock. The configuration is not predictable based upon individual Bodies and Nutrition Available per individual. There are Wild Cards. Slow Reduction with mapping the changes incrementally so you know what’s to come. You need to know the Human Biology and Human Behavioural Sciences, otherwise you’ll feel blind. Knowing it will let you determine a sensation is a product of Factors. Without that you will Panic, Anxiety and Fight it Fight Mode (Panic Attack — Run From Predator), will Kick in. Go slowly and you can come if. Discuss it Hypothetically as I suggested. They would give you the theoretical timing. You can look it up also. It can seem quite slow. Do the correct time.

[FYI This Drug Category makes Johnson & Johnson ~ $4.22BILLION a year, Further Maths says $11.2BILLION].

Yeah invega is a money making machine. What I wonder is whether its sale and use is going up or down at the moment....?

 

[KubiKook]

You said something I often think myself: “Maybe these medications are preventing the brain from healing after Invega.” This is not a crazy theory — it’s a logical question. Seroquel and Kaplita continue to affect dopamine receptors. Perhaps the true re-adaptation will only begin after they are discontinued. But I also understand your horror at the thought of insomnia returning. It’s not just fear — it’s your body’s memory of torture. You have already shown incredible willpower by reducing Seroquel from 300 mg to 100 mg on your own. This proves that you are capable of influencing the situation. Perhaps the next step could be discussing with your doctor a very slow, microscopic reduction — not for immediate discontinuation, but to check where your true sleep threshold is now, some time after Invega. But only if you are ready. You have already fought for so long that you have every right to take a pause. To simply exist in stability, even if it is medicated, without new battles. I don’t know if insomnia will return. But I do know that you have survived something that would have destroyed many others

My doctor minimizes the toxicity of these meds & the difficulty getting off of them... I'll see what she says next session, but it surely seems like I'm going to have to take matters into my own hands. Yeah, it's so hard, I don't even know if getting off the meds will ameliorate my long-standing ills... However, I DO know I'd be less mentally tormented... I surely don't like & don't need these meds for mental health purposes. Ugh. Damn drug pushers. Anyway, a pause is not what I need... I'm in 'limbo' agony. Some type of change is definitely what I need. The only one that seems to be available to me is the meds one. Hmm. Well, I appreciate the feedback, kudos, suggestions, etc. You always have such thoughtfully well-expressed posts & replies, Lara. Thank you.

 

[KubiKook]

You looked absolutely stunning

By the way, anything new (good) with you?

 

[KubiKook]

Yeah basically I'm eating to live just now. I've not lost weight yet cause this is a new development of this past week after my last dose. If it were up to me I would never take even one shot but yeah on this CTO the doctor is tapering me off with one more shot left, but I'm going to ask to stop taking all drugs completely or go to aripiprazole. I just hope I'm not permanently damaged.

Yeah, that's all I've been doing for almost 18 months. Maybe your appetite will come back soon. Good to hear you only got one shot left. Hopefully, you can recover quickly from it. I'm surely not the testimony to track. I definitely wish I'd known to taper down from that Invega Beast. Well, everybody is different as you know, so I guess on all accounts, we shall see. And 'hope' for the best...

 

[Brendan Clark]

Yeah, that's all I've been doing for almost 18 months. Maybe your appetite will come back soon. Good to hear you only got one shot left. Hopefully, you can recover quickly from it. I'm surely not the testimony to track. I definitely wish I'd known to taper down from that Invega Beast. Well, everybody is different as you know, so I guess on all accounts, we shall see. And 'hope' for the best...

All we can do is wait. Right now I'm in a really bad place because I'm not able to distract myself with anything but this drug. I wasn't like this just two weeks ago or even a week ago. It's worse than torture. And what's sadder is thinking about how this time last year life was going well and I was happy & independent. I could never have imagined the things that have happened this past year. If I do recover from this and go back to my old self I'll appreciate my life so much and never complain again.

 

[KubiKook]

All we can do is wait. Right now I'm in a really bad place because I'm not able to distract myself with anything but this drug. I wasn't like this just two weeks ago or even a week ago. It's worse than torture. And what's sadder is thinking about how this time last year life was going well and I was happy & independent. I could never have imagined the things that have happened this past year. If I do recover from this and go back to my old self I'll appreciate my life so much and never complain again.

Yeah, I'm surely with ya, BC, torture doesn't even begin to explain the depths of this hell... No distractions at all. I've used the word 'unimaginable' many times. I'm also so saddened by the memories of my life before Invega, same as you, I was happy & independent, enjoying my home with my cat, entertaining family & friends weekly, good food & drink, reading & writing, playing guitar, enjoying sun & a smoke on my deck, all the songbirds & other wildlife moving about, eating my seeds & nuts, drinking from the birdbath, butterflies flittering about, making their way upon the blooms... Oh man, bro, such devastating loss, I know. Impossible to believe it has led me here... Well, I truly hope you can make it back to your 'magical' place again. As for me, 'hope' has become entirely elusive... I don't even know that feeling anymore. Maybe somehow it will rise in me again.

 

[Brendan Clark]

Yeah, I'm surely with ya, BC, torture doesn't even begin to explain the depths of this hell... No distractions at all. I've used the word 'unimaginable' many times. I'm also so saddened by the memories of my life before Invega, same as you, I was happy & independent, enjoying my home with my cat, entertaining family & friends weekly, good food & drink, reading & writing, playing guitar, enjoying sun & a smoke on my deck, all the songbirds & other wildlife moving about, eating my seeds & nuts, drinking from the birdbath, butterflies flittering about, making their way upon the blooms... Oh man, bro, such devastating loss, I know. Well, I truly hope you can make it back to your 'magical' place again. As for me, 'hope' has become entirely elusive... I don't even know that feeling anymore. Maybe somehow it will rise again...

Yeah Dan it sounds like you were making the most out of life before this. It's clear you had an appreciation for nature. I hope you can go back to doing that one day or something else that brings you satisfaction and a sense of fulfillment. Do you find it also discouraging when you see the world going on as normal and people living their lives just as usual (not that they're having it all perfect but they have moments of happiness, which is the way it's supposed to be) and here we are wishing we even had a fraction of what they have, just even one miniscule bit of joy would make our day? What's also depressing is not being able to convey properly to people what you're going through, and people thinking you're exaggerating etc. That's what's going on with my psychologist in this mental health hospital/programme which is forcing me to take the drug. She tells me to try different activities and I say the drug is affecting me, and then she says I shouldn't ruminate over it, but she doesn't understand the pains afflicted by this drug.

 

[KubiKook]

The Chemical Shock change will affect you a lot. Wean off. Read up about it. Ask you Doctor in Hypothetical only, they won’t recommend out. They only answer a hypothetical FOR Legal Reasons!

With it the Sensations that can return with some being blocked still will be a shock. The configuration is not predictable based upon individual Bodies and Nutrition Available per individual. There are Wild Cards. Slow Reduction with mapping the changes incrementally so you know what’s to come. You need to know the Human Biology and Human Behavioural Sciences, otherwise you’ll feel blind. Knowing it will let you determine a sensation is a product of Factors. Without that you will Panic, Anxiety and Fight it Fight Mode (Panic Attack — Run From Predator), will Kick in. Go slowly and you can come if. Discuss it Hypothetically as I suggested. They would give you the theoretical timing. You can look it up also. It can seem quite slow. Do the correct time.

[FYI This Drug Category makes Johnson & Johnson ~ $4.22BILLION a year, Further Maths says $11.2BILLION].

Yeah, all the monsters of Big Pharma profiting so mightily on such misery. Tragic!

 

[Brendan Clark]

Yeah Dan it sounds like you were making the most out of life before this. It's clear you had an appreciation for nature. I hope you can go back to doing that one day or something else that brings you satisfaction and a sense of fulfillment. Do you find it also discouraging when you see the world going on as normal and people living their lives just as usual (not that they're having it all perfect but they have moments of happiness, which is the way it's supposed to be) and here we are wishing we even had a fraction of what they have, just even one miniscule bit of joy would make our day? What's also depressing is not being able to convey properly to people what you're going through, and people thinking you're exaggerating etc. That's what's going on with my psychologist in this mental health hospital/programme which is forcing me to take the drug. She tells me to try different activities and I say the drug is affecting me, and then she says I shouldn't ruminate over it, but she doesn't understand the pains afflicted by this drug.

I personally used to love travelling, meeting new people, trying out the different languages I know when I got the chance to practice, exploring new places I hadn't been before, making friends with total strangers on the street, testing people's geography trivia knowledge, playing with children I met outside, trying out food in different eateries, and a list of other things that would make someone/me content. I wasn't without my problems but I could bare with them and they would come in waves so not constant unlike this. I hope I get a new sense of interest and passion for these things, cause I mourn the loss bitterly. They were part of who I was and was my identity.

 

[KubiKook]

I personally used to love travelling, meeting new people, trying out the different languages I know when I got the chance to practice, exploring new places I hadn't been before, making friends with total strangers on the street, testing people's geography trivia knowledge, playing with children I met outside, trying out food in different eateries, and a list of other things that would make someone/me content. I wasn't without my problems but I could bare with them and they would come in waves so not constant unlike this. I hope I get a new sense of interest and passion for these things, cause I mourn the loss bitterly. They were part of who I was and was my identity.

Yeah, bro, sounds cool, you knew how to live well. I had my problems too, but like you, nothing remotely like this constant barrage of brutality. Having interest, inspiration & passion again would surely be nice. Seems like such an unattainable aspiration at the moment... Ugh. I was just talking to my mom about this loss of identity, all the things that made me who I am, and how incredibly devastating it is. Are you doing any specific things to help 'improve your condition' or just waiting (in time) for the tide to turn?

 

[Brendan Clark]

Yeah, bro, sounds cool, you knew how to live well. I had my problems too, but like you, nothing remotely like this constant barrage of brutality. Having interest, inspiration & passion again would surely be nice. Seems like such an unattainable aspiration at the moment... Ugh. I was just talking to my mom about this loss of identity, all the things that made me who I am, and how incredibly devastating it is. Are you doing any specific things to help 'improve your condition' or just waiting (in time) for the tide to turn?

I'm mostly waiting but I listen to a Christian radio channel called UCB Ireland and that brings some hope in the sense that I know eventually I won't live forever and will one day be taken by Jesus, or if I'm still alive during His second coming. The problem is that I'm 30 and find each day and hour of this unbearable, nevermind another 60 years of this.

 

[Brendan Clark]

I'm mostly waiting but I listen to a Christian radio channel called UCB Ireland and that brings some hope in the sense that I know eventually I won't live forever and will one day be taken by Jesus, or if I'm still alive during His second coming. The problem is that I'm 30 and find each day and hour of this unbearable, nevermind another 60 years of this.

So trying to stay hopeful that things will improve eventually, they can't stay like this for 60 years, can they?

 

[KubiKook]

I'm mostly waiting but I listen to a Christian radio channel called UCB Ireland and that brings some hope in the sense that I know eventually I won't live forever and will one day be taken by Jesus, or if I'm still alive during His second coming. The problem is that I'm 30 and find each day and hour of this unbearable, nevermind another 60 years of this.

Man, like I've said before, I wish I still had faith in Christ. I too believed He was coming, I thought soon. For your sake & mine, I 'hope' it's true. But yeah, I find every second of every day extremely agonizing to deal with, so 60 days seems like way-way too much for me... 60 years... Uhhh, urrrr, Come Quickly, Lord Jesus ; ) -

 

[KubiKook]

So trying to stay hopeful that things will improve eventually, they can't stay like this for 60 years, can they?

I imagine something would surely change during a 60 year span. Yikes!

 

[Brendan Clark]

Man, like I've said before, I wish I still had faith in Christ. I too believed He was coming, I thought soon. For your sake & mine, I 'hope' it's true. But yeah, I find every second of every day extremely agonizing to deal with, so 60 days seems like way-way too much for me... 60 years... Uhhh, urrrr, Come Quickly, Lord Jesus ; ) -

I actually saw Jesus back in January. He appeared in a miraculous way through my mum in that it wasn't my mum speaking anymore but Jesus speaking through her, the eyes and face expressions were of Jesus. And no I wasn't having a psychotic episode. One night He put his hand on my head before I went to bed and said "Brendan, tonight's going to be a night of transformation, new eyes, new brain, new everything, and the next morning when I woke up I felt like a new person. Then when He made food for me I ate it and my stomach felt a lot better. One moment there was an ad on tv with people taking God's name in vein, and both me and my mum felt disturbed, my mum said "That disturbs me" and I said "Me too", and all of a sudden Jesus said through her to me "That's because you both have the Holy Spirit" with a smile. He also knew all my passions and the things I enjoyed (we're talking about January so I was closer to my normal self). At that point I had three doses of invega so I wasn't so bad, and actually was moved into tears a few times. I just wish I had advocated for myself then to get out of these invega injections, my life would have been better now.