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Coming off Invega/Xeplion (paliperidone) injections v 12

invegaloner said:
I hope that he will be ok too. I think he said here he’s choosing to live in the psych ward permanently. He said he’s able to come and go and he’s allowed his phone so I guess it’s not so bad and he’s being monitored. Some of the things he complained about weren’t just about his injection though, and I feel like his depression is making his other symptoms worse. He said he’s able to sleep from 10pm to 6am so 8 hours but was upset he couldn’t nap, but wanting to sleep all day isn’t healthy. Tinnitus is so common, 1 in 5 people people have it, and stress and poor mental health are known to make it worse. It’s also caused by so many things… even if his tinnitus was truly caused by the injections over a year later, it wouldn’t mean that he wouldn’t have developed it from something else later on. Depersonalization and derealization are serious issues and indicates a bigger issue with dissociation and trauma, but he never mentioned trying any sort of therapy to help. He said before all of this he would get frequent panic attacks so he wasn’t completely “normal” (I don’t think he’s abnormal or wrong, just something that could indicate something bigger). He also mentioned having family issues before his injections too.
I do believe he was mistreated in the hospital, so many people come and go they aren’t as delicate as they should be working with patients. I just also think being in the hospital in general is traumatic, and you need more than just drugs to heal. There’s no such thing as a happy or miracle pill, and we aren’t like machines where you can just fix a bug in the code. Constantly telling yourself your life will never get better will put you in a cycle of never getting better. You also can’t do it alone and it seems like he’s been intentionally isolating himself…
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The psych ward is fucking trauma imo. The whole goddamn experience was traumatic for me. Fuck that place and why hed choose to be there is beyond me.
 
paranoid android said:
The psych ward is fucking trauma imo. The whole goddamn experience was traumatic for me. Fuck that place and why hed choose to be there is beyond me.
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I hate the way many psychiatric hospitals are structured. Sometimes they feel disturbingly similar to Bedlam during the Victorian era in England — even if the conditions today are more humane on the surface. For many vulnerable people, the experience itself can still be deeply traumatizing
 
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Hello everyone! I hope you are doing well
I wanted to ask please if anyone tried on Abilify 5 mg? Not to return to my baseline, just to get me out of bed and do something in the meantime the injection substance fades away. Thank you very much to let me know
 
chima said:
Hello everyone! I hope you are doing well
I wanted to ask please if anyone tried on Abilify 5 mg? Not to return to my baseline, just to get me out of bed and do something in the meantime the injection substance fades away. Thank you very much to let me know
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Ive been on abilify before. I recovered after around a year.
 
invegaloner said:
I wouldn’t worry about it too much unless it becomes chronic, insomnia comes and goes. I have weeks where I sleep for less than 5 hours and weeks where I sleep normally. Usually I have trouble sleeping because my mind is too active. It could also just be the temperature changing, I have trouble sleeping if it’s even 3 degrees hotter than normal. It could even just be hormones.
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You’re probably right. It’s most likely connected to my emotions and bodily reactions slowly coming back, which is also part of recovery. But I really miss the kind of sleep I had before all of this. Back then, I wouldn’t wake up from every little sound — it was deep, restorative sleep that gave me energy for the whole day. Now it feels like the entire architecture of my sleep has been disrupted. I fall asleep after midnight and wake up already feeling exhausted
 
Nina2021 said:
Hey all,

I am not checking the forum anymore but I just wanted to do un update about how I am, since some people write me a DM to ask about it sometimes

It's been almost 4 years and a half since my last shot (got 6) and I am still really struggling so I really think I am one of the cases of people who have permanent brain damage from Paliperidone depot. I don't remember my last post in here and my memory is really damaged, so I don't know if I already wrote that I was accepted for assisted suicide in Switzerland. Even if it's nothing concrete I like to have that as an option if I can't hold on anymore. At least I deserve a peaceful death.

Before I die I would like to prove that I have brain damage but the only close thing to that is that I have abnormal results in a QEEG test. So I suggest other people to have a check at that.

Invega totally destroyed my ability to sleep so I can't be off psych meds. I am stuck at 37.5mg of Clozapine to sleep, which is tragic.

Regardless, it's been like a month now that I suffer quite a bit less. It just happened overnight, as it happens to most people. I believe that nothing helps healing besides time.

I also wanted to write here to share this article which I find very interesting, since psychiatrists always say that Paliperidone is out of the body after 4-5 months : https://pmc.ncbi.nlm.nih.gov/articles/PMC12122147/

And also, people, please join the Facebook group: "Invega Sustenna/Xeplion (Paliperidone Palmitate) Should Be Banned".

Hugs!
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What got me was I got put on that shit right out of high school and the side effects were to much so I couldn't work and were stuck with them after I stopped them.
 
abefourth said:
Thank you for checking in. I'm interested in hearing about stories about those getting/applying for assisted suicide/MAID in other countries. I'm in a similar situation and was leaning more towards the Netherlands because they give people the option to donate their organs when terminating their life through a program.

I'm sorry it's come to this but I sincerely hope you find peace somehow.
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I would do it in a heart beat
 
Flynnal said:
I sure hope he is OK. I often worry that I'll read the Shrine and will see a RIP next to his user name. It's not a good look either way for someone to talk about the stuff he was talking about and then just disappear like that.
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There another guy I haven't seen for a while Matthew i think he had purple M as his pfp.
 
Flynnal said:
On Reddit? JFC! I would never post excessively candid comments about my MH problems on there. The end result can be a nuked account. And don't. And I mean don't FUCKING EVER go on SuicideWatch, the place there is run by a absolute fucking asshole who is likely become a psychopath due to her own experiences. Sometimes loss can turn people into assholes and SW is one example where it has likely happen. Don't go there, don't read the comments, don't post there. I hear too many horror stories on there. That sub should literally be fucking banned and I'm concerned that Reddit allowed it to stay on there. Probably because the moderator there who is clearly an asshole is in cahoots with the admins. DO NOT POST THERE.

Reddit is NOT the place to discuss suicide. AT ALL. Anything suicide-related should be banned on Reddit anyway. It's an open forum about all things humanity, but suicide ain't on the menu. PLEASE DO NOT DO IT.
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r/Psychwardchronicles used to be a good source for experiences of those visiting psych wards. The asshole moderators locked the subreddit about 1 year ago and are total dicks. Yet another example of reddit douchery.
 
I'm 9 months and 17 days and still totally disabled, Adderall doesn't work so clearly my dopamine is totally blocked, i don't get people that recover already.
 
invegaloner said:
Do you mean Matthew01? He’s also on Reddit. He started parnate but stopped after a week because he said it caused him anhedonia. He said he started off with 10mg but went up to 20 after 2 days though? I don’t know if he chose to do that or if his doctor told him to because they usually want to keep you on a certain dose for a week or two before raising it… he’s been asking about testosterone levels and if homorne treatment will help him.
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Yeah I was told by a guy who has chronic akathisia like me and he said he got rid of it by taking testosterone shots.
 
fuckabout89 said:
Yeah I was told by a guy who has chronic akathisia like me and he said he got rid of it by taking testosterone shots.
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I take TRT but i honestly dont know how it would help akathisia. It can certainly help anhedonia and depresssion but akathisia i dont know. But if you where on invega or any antipsychotic its defg worth getting your test levels checked
 
paranoid android said:
I take TRT but i honestly dont know how it would help akathisia. It can certainly help anhedonia and depresssion but akathisia i dont know. But if you where on invega or any antipsychotic its defg worth getting your test levels checked
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Yeah Im guessing he was confusing anxiety for akathisia.
 
14 months and still not recovered. Cant believe I am so close to 18 months but still no improvement in my situation. Anyone who recovered in the recent days? Starting to feel this is permanent.
 
mona21 said:
14 months and still not recovered. Cant believe I am so close to 18 months but still no improvement in my situation. Anyone who recovered in the recent days? Starting to feel this is permanent.
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Yeah thats how I felt after the abilify shot, I never had akathisia like from that antipsychotic that an Haldol.
 
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