Mental Health Coming off Invega Sustenna (paliperidone)

[Hilary]

Here's an inspiring story of a woman who had half of her brain removed when she was 7 years old. I thought it might be an encouraging story for those of you who are worried about not getting your brain function back.
Girl With Half Her Brain Becomes Speech Pathologist as Adult (Video)

 

[Londonscouser]

Get well soon, while i have gotten past the worst of it i can say that i still just dont feel like my old self , im trying everyday even if its little steps at a time.

How long you been off the poison ?

And great video Hilary.

 

[swisscurrie]

I think Janssen should be banned from advertising these drugs as some sort of helpful, safe medicine. I took one 4mg risperdal tablet that a friend got prescribed and its fucked me up this whole week.

http://www.janssencns.com/invegasustenna/

Check out Janssens website for promoting invega sustenna. I mean what the fuck. These people need to be put in prison. I just read through this entire thread, and then looked at that site. Those psychopaths are encouraged and get FDA approval to utterly destroy millions of lives with neurotoxic, lobotomizing drugs and pot is illegal?

What the fuck is going on here? I still feel restless from a single 4mg risperdal tablet taken 7 days ago. I found this study showing that risperdal has a long brain half life so if you got invega sustenna it could actually be blocking you're dopamine receptors for months.

http://www.ncbi.nlm.nih.gov/pubmed/11920159

If I got invega sustenna and suffered the consequences you guys suffered I would file a lawsuit against Janssen. What right does that pharma company have to ruin thousands of lives? Invega and risperdal block more than 70% of your dopamine receptors and they literally shrink the brain. That is why many of you are feeling like shit. If everyone damaged by it filed a lawsuit against janssen it would be brought off the market can could potentially change the future of psychiatry. I mean imagine if you guys all went public about it and contacted news agencies etc. Imagine headlines reading "Commonly prescribed antipsychotic devastating the lives of users". It would also force Janssen to be more open about the exact properties of the drug and the amount of brain damage it can cause.

Even if the damage has been inflicted on you, by suing Janssen you could potentially save the lives of thousands of future victims.

 

[Bad Robot]

23 weeks off the poison
Had more blood tests, get the results back next week, this has been some sort of torture, but thankfully I can see the light at the end of the tunnel.
Another month and I'm hoping I'll be close to have recovered, my concentration seems to be returning and I am starting to make plans for the future and am getting some feelings of motivation back, still have to start doing things for myself, but I can sense the real me in there somewhere and am starting to feel at ease in my own company.
Just got to try and put this experience behind me and try not to be too bitter at the doctors who forced this poison on me, but its easier said than done.
These long acting depots really do want banning, the tablets are bad enough, but having one of these injections can be a death sentence for some people and can lead to a lifetime of misery for those that don't understand whats happening to them and the real reason they feel so ill. Just got to spread the word, but I think big pharma are just too powerful and corrupt.

 

[Symbolicone09]

How long you been off the poison ?

And great video Hilary.

Its been a year now. The problem im having is reintegrating back to everyday normal life. My emotions are back, sexual issues are gone, anhedonia is gone but i am lost i feel like and dont have the natural motivation to do my hobbies and its very difficult to provide for my self. Im not really moving forward in life and i suppose depression has alot to do with that but even with the depression and before the invega i was accomplishing my goals and now its like i dont have that drive anymore. I am blessed to have a great support system tho, things could be much worse from what i read in this thread. I was only on invega for 3-4 months, currently taking well bultring 450mgs a day

 

[Decisive]

Its been a year now. The problem im having is reintegrating back to everyday normal life. My emotions are back, sexual issues are gone, anhedonia is gone but i am lost i feel like and dont have the natural motivation to do my hobbies and its very difficult to provide for my self.

Now that you recovered your emotions, do you feel pleasure/joy when you listen to music ?

 

[iridescentblack]

I keep having these energy spikes. The medication seems to be losing the battle.

I could be wrong. Wouldn't be the first time.

 

[Londonscouser]

Its been a year now. The problem im having is reintegrating back to everyday normal life. My emotions are back, sexual issues are gone, anhedonia is gone but i am lost i feel like and dont have the natural motivation to do my hobbies and its very difficult to provide for my self. Im not really moving forward in life and i suppose depression has alot to do with that but even with the depression and before the invega i was accomplishing my goals and now its like i dont have that drive anymore. I am blessed to have a great support system tho, things could be much worse from what i read in this thread. I was only on invega for 3-4 months, currently taking well bultring 450mgs a day

Wow that is actually a great recovery, because 1 year isn't a massive amount of time to recover. Emotional numbness, anhedonia and libido issues are amongst the worst of the symptoms, however you have past this. You have problems with motivation though...I guess this will most likely sort itself out in the next few months-1 year. I think in 1 year, you may be 100% recovered. Keep exercising, this is 1 of the most important things.

 

[Symbolicone09]

Wow that is actually a great recovery, because 1 year isn't a massive amount of time to recover. Emotional numbness, anhedonia and libido issues are amongst the worst of the symptoms, however you have past this. You have problems with motivation though...I guess this will most likely sort itself out in the next few months-1 year. I think in 1 year, you may be 100% recovered. Keep exercising, this is 1 of the most important things.

today i just had a big jump in the right direction this was literally the first day were i didnt have any moment of feeling depressed. Im kind of in shock right now... I hope this is permanent

 

[akaz]

today i just had a big jump in the right direction this was literally the first day were i didnt have any moment of feeling depressed. Im kind of in shock right now... I hope this is permanent

Nice, keep us posted. I was really motivated when I read of your recovery after 6 months, with MDMA. That and things makes me believe that the mind state we choose could have more power than we think, "mind over matter." Like, yes, the chemical is ruining us. But like the heart's EMF aura, larger than the brain's, we can in theory vastly out-power/over-power their drug.

 

[Londonscouser]

today i just had a big jump in the right direction this was literally the first day were i didnt have any moment of feeling depressed. Im kind of in shock right now... I hope this is permanent

good news it probably isn't permanent...but it is a good sign nevertheless

 

[Bad Robot]

Approaching the six month mark off the poison and I'm starting to notice positive improvements weekly now. Managed to play the computer at weekend and watch sport. The concentration seems to be returning and I'm starting to get some motivation back to do things although I've got in a lazy way of life whilst being in recovery, but I can feel that with a bit of effort I will be starting to get jobs done and hopefully recover my life.
Started smoking weed the last two nights, only a joint with a couple of beers, but its something I've missed doing and even though I was trying to stay off it for another six months, its just too depressing for me to give it up and I'm liking the day after don't give a fuck feeling. Maybe not the smartest move, but I feel like I can handle it now and after thinking I was dying half an hour after the first joint the old magic could be returning.
No intention of going back to all day smoking, but am planning on having a joint a night while I build my tolerance up and perhaps its a form of self medicating for me because I'm a happier person when I know I can chill out with a joint and a couple of beers at night. It gives me some motivation to get work done during the day aswell.
After smoking for the last twelve plus years nightly with no mental problems and holding down a job and generally being a happy person who was content with there life I'm thinking my love of weed is too much for me to give up especially how depressed and having no life for the last six months i have been. I'll just have to monitor the signs and hopefully recognise if its having a negative effect, but I know I'm a happier person when I can chill out with a beer and a joint at night.

 

[Tina3000]

I still feel so sick. My problem is that I didnt need that medication . I have been misdiangosed and they gave it to me when I was healthy. I said that i got murder threats wshich was true, they didnt believe me and labeled me. I am still suffering from anxiety, panic, depression, crying attacks and body aches. I d love to see more successful stories. Can you please post them?

 

[Hilary]

I just sent an email to Janssen, who makes Invega Sustenna, to ask them for some guidance on how to deal with the side effects of Invega Sustenna. Part of my email is as follows:

I am emailing you in the off-chance that you would have any idea how to get this horrible drug out of [my son's] system. Is it possible to purge it out of the muscle somehow? Do you have any antidote? Is there any way to reverse the damage that it's done?... Soon after receiving the shot he developed severe anhedonia. He's so miserable ... Why would you make such a poisonous product?

Here's what they said in an email:

...This is in follow up to your recent e-mail message concerning your experience with Invega Sustenna... As you may know, we are required to inform the Food and Drug Administration of adverse experiences associated with our products. Therefore, our Drug Safety and Surveillance department may contact you for additional information...

If anyone else is interested in contacting Janssen about their product, you can send them an email at:
Janssen Medical Information

 

[Hilary]

Now Janssen wants me to call them on the phone. No way. I want all this in writing, so I contacted the site again and told them:

Dear Sir or Ma'am, Thank you for responding to my email regarding my plea for help about the horrible side effects of your product. I do not wish to contact your company by phone. I would prefer to have all communication in writing. You may write to me at my email address or to:...

 

[Decisive]

I just sent an email to Janssen, who makes Invega Sustenna, to ask them for some guidance on how to deal with the side effects of Invega Sustenna. Part of my email is as follows:

Here's what they said in an email:

If anyone else is interested in contacting Janssen about their product, you can send them an email at:
Janssen Medical Information

Thanks Hilary for the idea, I called them and spoke about my problems with Invega Sustenna ( lack of emotions/motivation etc), the woman took my name and my phone number and told me that a specialist will call me to give me the answers I requested...
I'll keep you updated when I'll receive the call.

 

[Decisive]

The Janssen specialist finally called me 5 min ago, we globally talked about my problems with Invega Sustenna, to sum up , she told me that after about 8 months off you still have some mg of the drug in the blood and that may be the reason why I still don't have emotions nor motivation, she said that recovery is just a matter of time since the half life is long compared to other antipsychotics. She said that for me who had only 4 injections, it will take a year after the last injection to recover everything, so within 4 months I'd have recovered my emotions and motivation, I hope so...
She also added that the time elimination depends on the metabolism which are different among people, some person needed just 6 half lives whereas some need 7 or 8 half lives!

 

[Hilary]

Thanks for the feedback, Decisive. She sure makes it sound like this is normally what you should expect from the medication - no emotions or motivation. Recovery from medication?! Wow. That's not medication, that's poison.

 

[iridescentblack]

That's not medication, that's poison.

Funny. A girl I talked to recently said the same thing.

The Janssen specialist finally called me 5 min ago, we globally talked about my problems with Invega Sustenna, to sum up , she told me that after about 8 months off you still have some mg of the drug in the blood and that may be the reason why I still don't have emotions nor motivation, she said that recovery is just a matter of time since the half life is long compared to other antipsychotics. She said that for me who had only 4 injections, it will take a year after the last injection to recover everything, so within 4 months I'd have recovered my emotions and motivation, I hope so...
She also added that the time elimination depends on the metabolism which are different among people, some person needed just 6 half lives whereas some need 7 or 8 half lives!

That still doesn't explain the sudden dips in the medication where it - for whatever reason, at the time - feels like the medication has completely left the system.

Based on that information, though. I may have something like another year left to go...

Thanks for sharing that, nonetheless.

 

[Decisive]

Funny. A girl I talked to recently said the same thing.

That still doesn't explain the sudden dips in the medication where it - for whatever reason, at the time - feels like the medication has completely left the system.

Based on that information, though. I may have something like another year left to go...

Thanks for sharing that, nonetheless.

Maybe the dips you feel are the moments where your receptors are free from the drug, this feeling lasts until a new wave of the drug comes to block those receptors. I noticed it 3 weeks ago when I felt deep anger and other emotions which lasted some minutes, so I thought I was fil lu healed but unfortunately the emotional numbing came back as well as the anhedonia.