• The Dark Side 💕 Welcome Guest 💕
    Posting Rules Bluelight Rules
    Notable Threads Urgent Hotlines
    Bereavement Mindfulness
    Suicide Support Anger Management
  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

Status
Not open for further replies.
@willowblosom
hey.. it all came back
the lack of drive
i was feeling so good i couldnt sleep
all night in the streets
then i had an argument with a friend then i smoked weed
and i was back Down..
has this happened to you? feeling like your old self and then losing that feeling again?
 
@nybryx trust me, I have read the pamphlet and the ins and outs of the medicine. I even consulted with a law firm about how it stopped my menstruel cycle, made me obese and lactating. They basically don’t care about what’s happened to you on it unless you are young and have had gynocamastia from it. All the things I experienced are all listed as side effects in their pamphlet so no law company will go after them. So basically we’re just stuck with the shit.

@we flew over it’s hard to gauge because weed effects so many people so differently. I have a conspiracy theory that is uniquely my own about weed. In our area, during weed grow season we see an abnormal number of “Chem trails” and those planes dropping shit in our land making it hazy and leaving us with a “what the fuck is that”. The area I live is a potgrow haven. I truly believe the shit in those chemtrails are what’s making folks go into psychosis. Whatever is In the chemtrails. NEVER before in history have we seen so many people getting put into mental wards for weed psychosis. They say weed isn’t the same as it was years ago and they are right! Weed is not only stronger but it’s being “sprayed on”. Again, this is just my own theory and I believe it to be true.
I have had many times where I have felt back to normal and then a wave of the poison tries to pass through and I’m down again.
Ive had that happen multiple times! I think it’s your body still trying to push out the poison.
 
invegauser said:
@Specified: first one when you google it. lots of others boss. it's a natural remedy. https://draxe.com/burdock-root/

@Invegarecovery: welcome to the thread. have you tried burdock root? is there a way to test to see if it works that you know of or do you have some personal experience you can relate using it with? just simple questions and honest answers, no firing squad here. (trying to be polite even though i'm mentally fatigued and not really able to communicate positively, long day but very productive :\)
Click to expand...
Its been less then a week I'm taking burdock root and lemon. I had an injection on January30 and had blood test the same day that I got my last injection on march 1st and the level of invega showed 13 and the doctor said it should've showed 20-60 and I didn't fasted when I took the blood test. i ate breakfast. And I drank lots of water between January 30 and my last injection. I drank 30 cups of water guessing in 5 -8 days and the rest of the days 7 cups of water. And Im for sure I didn't drink lots of water the day in my blood test,maybe little or nothing.I don't remember.and I still didn't recovered from the side effects of invega.so I might have a blood test in the future soon to see the level of invega in my body and this time I will fast. I think if I fast I'm not sure the level of invega will show higher so I know if there's still invega in my body if I have very little invega in my body.
 
It's been four months after my last shot. I only had a loader dose and booster 2 shots total. I can feel coffe soda cigarettes. I feel like I am getting better I believe that dose was only for a months worth or maybe four months? I know it takes time to get out of your system but I suffered from sexual dysfunction and a really heavy feeling at first and it has all gone away. I don't know I don't feel anhedonia or depression but I'm sure I still have some healing two years I'm sure I'll have all of the poison out of my system and my body will go back to its normal self. To be honest I guess I don't really feel many negative side effects I still get windows of appreciation happiness I can feel my emotions. I'm no where were I used to be early 2017 I used to be on top of the world happy and healthy not only because of invega but other stuff that is going on with me but I can think back to where I was in good health and feel a positive feeling from that memory. I still get feelings emotions they may not be super strong but I am sure they will heal and come back in this lifetime. I should consider myself lucky I may not have as strong emotions feelings adrenaline from testosterone and having good physical psychological and spiritual health like before but I do not suffer from any major negative side effects from this terrible drug and I have experienced healing even in four months. I am certain I will gain all of the following back in full: pleasure adrenaline happiness feelings of being invigorated energy just positive emotions feelings that you get after taking care of your health or positive events in ones life from working social interactions love friendship activities expression traveling new sites whatever it is in in this world that gives you good feelings pleasure movies films comedy outdoor activities festivals theme parks site seeing etc. I have listened to music recently and I can feel strong emotions from it that is good music gives me good feelings I can drink beer now and feel it I couldn't before right after I had my shots. So healing is possible I just think it takes a lot of time like years taking care of your health and detoxing this terrible drug from your body and the hope that with Neuroplasticity that your brain will renew rebuild receptors and recycle out the blocked/dead receptors.

I hope everyone heals from this terrible drug under no circumstances is it okay for some idiot to chemically murder people with this poison. Basically it's a chemical lobotomy. They are raping their patients, possibly even causing permanent damage negatively altering peoples brains. Idiot doctors who don't even know what the hell they are giving their patients basically injecting a bullet into innocent people like a mad men.

I wish you all well hope we all recover fully.
 
Last edited:
Hello everyone, i would like to say gladly that im another success story. I will remember the sad memories I had on this drug and reading the forums and getting the desperate help I needed. Thank you all very much for supporting me through this. (This may be my last post). I will leave you guys with a video I made titled "My Weight Loss Journey on Invega Sustenna". It is a music video showing the weight I gained while I was on the meds and what I did to lose it. Again, thank you all. Good bye.Best regards,Ammar
 
Approximately how long til this poison is out of my system if I've only had two shots? Six months?mistake, it's around five half lives to get out of your system so would that make it eight months seeing as the half life is 49 days?
 
Last edited:
To the thread: I'm really sorry, I haven't had much to say. I was in the psych ward for 2 weeks and injected with the 2 loading doses before I left, June 23rd 2017 was the day I was released. My heart condition hasn't been that great to talk. Im glad you guys are still here communicating with each other. Im happy about that because you guys are stronger than you know, trying the best way you know how to help yourself, thats great. Remember the good in yourself. I think for a long time I had became traumatized about something I went through before coming to the psych ward and the medication just masked it, and of course Invega sustenna tramatizes you. I personally couldn't bring myself to take anymore medication for my brain but now at 11 month, I just started taking adderall, I have felt good and talkative for a moment on it but I took this because I was really concerned for my life, I honestly didnt help myself much in this process because I havent cared for myself much. I felt like I could do anything, I was desperate, probably kill myself but April 27th is the day I felt really good and my emotions came pouring out because my prayers were heard and answered on HIS time not Mine, be patient. life was ending, I honestly had gave up on life but listen to me, no my emotions are NOT all the way back but what I have are SOME EMOTION NOT All but life is precious, I called on Jehovah, because he is real, not trying to convert anyone, just letting you know what helped, im am not fully recovered yet.
 
Also since January I'm pretty sure I have been experiencing tactile hallucinations on my head or my nervous system is wigging out. I feel sensations on my head non stop, I dont have the answer yet if I will start taking antipsychotics again but what is important are OUR LIVES!
 
@amari

You're cute dude. I'm glad u made the recovery fully and had ur message at the end

@momogus

I had the heart problems too but they pretty much are non existent anymore.

@room

I will keep the train rolling. I am also considering myself 100% fully healed no heart problems full emotions. Joy and happiness from working out. My chest doesn't look the same but it's down to the point of passing off as just pecs now. Thanks to ashgawanda and e blockers I've been taking.

You will heal I love all you guys

-Sean
 
Approximately how long til this poison is out of my system if I've only had two shots? it's around five half lives to get out of your system so would that make it eight months seeing as the half life is 49 days?
 
Guys I was suicidal last week. Had been off invega for 2 months after 6 months of shots.
during that time it was like my drive (not just sex drive, all my motivation and interest) had been sapped out of me slowly, and I felt at the end of my rope
had been reading on forums for two weeks and was losing hope

I was convinced suicide was the only option for me, so I wrote two suicide notes
for my brother and sister and then googled how long it would take to die after slitting my wrists
I was a bit discouraged by what I read and then I started writing my first post, the one I posted here,
asking to talk to someone who said he had recovered

As I wrote I became more and more immersed in the writing, it's like it completely calmed me and fully activated my thought process
I think it was the fact that I was expressing what happened to me, making sense of it and getting it out, it somehow freed me;
after posting I instantly noticed I felt okay, but it wasn't until I started listening to music, after the adrenaline kicked in, that I fully realised I was completely back
I was myself 100%. I felt incredibly happy. Kept singing and socialising all day and at night I couldn't fall asleep as I was really excited. Libido, energy, fast thinking, everything was as it was before invega. The anxiety started to set in after 24 hours and it was back as fast as it had left.

now I'm constantly comparing my reaction to everything to what i think it would be if I was myself
like I imagine the active response to life and society that I lack and it brings me down
because everything is a reminder of how good life used to feel
I'm desperate again, wondering if that was the last time I'd ever feel like myself again.

Pre invega: I felt great -> Invega 6 months: downhill, feeling worse and worse -> Post invega: worse than ever (1 day of feeling like Pre invega) and then back down

I need to know if anyone has recovered 100%
If anyone has recovered their drive and gone back to feeling as they did pre invega
 
Update 4 months: heart rate is still high, at 90-110, dizziness, lack of emotions, jerking at night, no dreams. Good thing emotions don't F with your memory and learning that much, just need to figure out ways to grasp the subject. Are you guys having the same problems, high heart rate? I still have the dilated pupils last time I checked, and swelling.

I am tired of trying to tell people just how bad this drug is, and how much havoc it recks. No one cares, really, to them it's a laughing matter. Most of you might have been on that same side, if it wasn't for the first hand experience. I still have dizziness. I'm not sure just how this will get better. I would need to focus on and work out some strategies towards my health once school ends, I can only hope that this is not caused by some kind of tumor. I only wish my family was the one who experienced this. It would actually be very interesting to see them go through this after all the BS they talk of.

Second of, I firmly believe the main ingredient isn't palperidone. No way! Palperidone was the stuff that made me feel weird and weak, not anhedonic, and gave me vivid nightmarish dreams, made me have unwanted erections and sexual thoughts, it also gave me severe hair-loss during the first 2 weeks. Once the weakness went away, these solid crystals left behind at the injection site is what is making me feel like crap. Giving me the jerking at night. Hopefully not too long to go, but unfortunately I couldn't give my health much time bc of school and work. working out just once every 2 weeks, wow it's difficult. Good thing this semester is finishing up, and I'm moving out of here.

The journey can't be too difficult from here. Now how long it will be is still a question I don't know the answer to, but it won't be difficult. I got an A grade on my midterms, drugged out on this crap... :)
 
Last edited:
@we flew over there are lots of recovery stories here scroll up for @undiminished's post for the latest. I personally don't see recovery happening for me I had a distinct moment when my brain felt lobotomized 1 week after 2 shots and nothing has got better in 12 weeks really, a lobotomy is what they often say this is and that means removal of brain tissue, no amount of time can fix that IMO, I think some of us get off luckier than others and I'm just unlucky I got the full lobotomy and im naturally highly sensitive to my thoughts and too much of a perfectionist that I can't take having any bit of me ruined nor do I have the patience and faith to wait for months for something that isn't guaranteed

@most ultimate, well done scoring high grades at school, just attending is a monumental task while being under the poisons thumb, best of luck in your pursuits


I miss my old life that was full of activity never bored never envious and never suicidal, life has completely stopped I'm on self imposed death row, compelled to stop the endless misery, I never imagined life would turn out so bad, I hate all the people behind this miserable paliperidone shit and all antipsychotics


 
As promised, I got the results for my prolactin levels and it is wonderful news. So when I had my bloodwork drawn back in January my prolactin level was 61.0 which is the prolactin level of a breastfeeding woman. That was after being 4 months off the sustenna at that point! Now, at almost 8 months off the sustenna and taking a dopamine agonist. My prolactin level taken this last Saturday measured in at 9.0 ng/ml which is completely normal for a non breastfeeding woman! So now I have the prolactin completely controlled. Since a few weeks ago I have been able to lose 10lbs too! So stuff is getting back to normal! Finally!
 
Can we compile a list of all the success stories on the net? From all users? This will give hope and hope is a positive emotion even if it is clouded by this poison.
 
invegauser said:
@Willoblosom: super awesome great news. glad to hear it. :D i wonder if the guys can benefit from this...? (any men wanna give it a go and let us know?)

@We Flew Over: very well said. i was fortunate that i knew what suicide looked and felt like before going into this so i could recognize it. this might be toeing the line here but what you described is a good way of going through the motions of getting past it instead of going through with it i think. you worked through it in order to realize what was happening and gave your brain the time to allow it to deal with what's going on and understand it. we all do that in our own way. if others are having a hard time then they can try that method and if it doesn't work then they can try other methods until they find one that does and gets them past the suicide state. getting past it is a relief in it's own.

everything you describe is what we all go through, it is the poison playing tricks on your brain. so your par for the course and that's a good sign nothing really bad is happening. a horse runs free and moves of it's own choosing. when saddled and rode by a human it is not under it's own control, it is being driven by a rider. the poison is adjusting chemistry to make you like this. endure, accept and fully heal to see for yourself that you are only temporarily removed from yourself. it's not permanent. also there have been plenty of success stories here and other places on the net. it will happen, hang in there.

@TheMostUltimate: we call that skills man. skills. far as the jerking movements i've had worse than that from the poison. it messes with not only your brain but muscles and nervous system as well. if you find out any more relevant info about how it works or what else is in it let us know.

@Specified: you posted it twice, you doing ok buddy? Ammarishot tossed an answer up for you, it's correct. you can shoot me a PM with the details (how many injections, what doses, when was the last one and how many days for half lives you want and i can PM you back with the answer). 30 days in a month as a rule of thumb, 5 half lives X 49 days = 245 days. 245 days divided by 30 days = 8.17 months. poison messes with the best of us, keep it up and you'll be healed before you know it. one year of our lives is unfair but a drop in the bucket compared to your entire life span.

@nybryx: keep it up man. i know the feeling, i don't like to admit it because i constantly strive not to be but i'm a perfectionist too. a real big downside to the poison. we have to work extra hard at disabling that part of ourselves while under duress from the poison. it plays against us. you don't have the patience but the rest of us do for you. we are here and going through it with you. you are not alone.
Click to expand...

how long did you take it for and how long have you been off it??
do you now feel like you did pre-invega? or has it changed you? -im fucking panicking
 
invegauser said:
i delete my posts from time to time and i'm here through multiple batches of people suffering from invega. i'm apologizing to those who have already heard this.

i was on the pill for two years, injections for ten months. healing for 5 years almost. come next month it will be 8 years total invega time.

i'm a negative exception, an extreme one. please do not expect the same time frame as me. i experienced everything everyone else has except the women and gynecomastia.

right now i feel like pre invega more and more, almost done. i'm shaking off the last of the comedown phase and getting back to my old self. all i do is try to pass along relevant info and help where i can.

the panic goes away. suicidal feeling, anhedonia, akathisisa, tdk and all the rest do too. (<--- i have a long list, i've been keeping tabs on what i go through and what everyone else does in hopes of finding the antidote if not having proof of all of this)

i will make a full recovery. so will everyone else. i have yet to meet anyone who has stopped taking the poison and not healed yet.

it seems hopeless and terrible, it really does. it doesn't last forever. the receptors targeted are that crucial to day to day living and for the long term. hope, functioning, perception... but it only seems to be forever, it is a trick a drug plays on us. nothing more.

distract yourself, research, eat good food, drink water, exercise when you can, try things that those in the past have found to ease their suffering, try things in hope of making this go away faster or finding the antidote, take it one day at a time, keep coming back here. learn that this is not you and that who you are is only temporarily removed from you, that you will get you back. accept and one day when your first window hits you will see that life is not over. that first window is better than life, sex and any drug could ever be. you will see.
Click to expand...

by 'window' do you mean feeling 100% like u did pre-invega?? last week i had a day where i felt 100% healed and then the angst and worry came back and stayed until now, is that a 'window' ? so do windows happen more and more frequently and last longer or how did it go for you? and how did recovery go from windows now and then to permanently feeling like pre-invega? (if thats what it is) ((sorry to bother you im really worried and i have no where else to go to... pretty tragic))
 
Status
Not open for further replies.
Top