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Chronic Pain MEGA Thread

Painful one, That sounds pretty bad. I've gotten used to different kind of speech styles (I prefer not to call those as speech impairment) as my mom worked as a nurse in a housing for disabled people so I got to know people she treated when going to town with her and meeting people who talked differently due their conditions as we stumbled upon her patients quite often.

It just sucks that as soon as someone speaks differently than others it is often thought that they have inferior intelligence level or are under influence of something and people adjust their behavior accordingly or even get scared and want to refrain from communication.

I guess that can be more disabling than the actual condition causing that speech style.

I hope atleast your family will get used to it and act normal instead of being an ass.

One friend of mine has to use text-to-speech device and while we where on city council he used at first to pass his ideas to me and have me to present them instead of him presenting them through tts device. It took a while for me to get him confident enough of presenting them out himself as he thought that others wouldn't listen to him because of his disabilities.

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My pain has started to appear again and I currently can't pick stuff from ground by myself and it hurts real badly to get socks to my feet and such.

I am hoping this will be temporarily though.
 
:) Hello ALL...It's good to see some activity here. Our Pain Management Mega Thread seems to have fallen by the wayside. No, I don't wish chronic debilitating pain on anyone, but...I do find comfort amongst folks who understand.

Shouts out to Mr. Root, PO and RTP...Long time no "see".
 
Hey Dixi, How's the mouth from the south going lol.... I used to be called the same as I came from the south of my city but bought my land and built just Northof the city in a green leafy area (now worth double as the imaginary applause erupts) , I know my property and jewellery and drugs of course but that's us isn't it right?

I wrote a pity piece in the other thread Dixi but I won't crap this thread up with that guff.

So how are you chick?
 
=D Hello stranger! Me? Not dead yet, to the dismay of many, I'm certain. It's good to hear from you. Are you okay?
 
If someone said Dixi only ever gonna get a fair time in regards to life quality with respect to physical pain is when her body dies on this earth then I wish you would bugger off and die even just for a minutes earth time and a years "living pain free" time in some form of nirvana
 
Zneg aka mick died? OMG, the least expected!!

Rip dude, you'll be missed! Hope you find your true home xx

When ur asking where ppl have gone Dixi, does it cross ur mind they're not coping? Or in jail? Don't have the privilege to have an iphone 7?

Not all we hear from have access or availability to post on BL sadly.

Randomly I receive personal emails.

Life is truly disastrous for some chronic pain patients. Homeless, parents passing away, cashless, jail....

We are the fortunate ones, although we too suffer. With a roof over our heads, food in the fridge, loved ones at home etc

So not all have flown the coop, they just have too much shit going on to be posting here.

Rtp
 
:\ Thanks for the read, RTP...always loved a good lecture! "Too much shit going on to be posting here" ????

"Life is truly disastrous for some..." I would count myself amongst those CPPs.

My mom died on April 12th, drawing her last breaths as I held her. I told her "We are all here with you. You can let go now. It will be okay, Mama". I lied. No one was there but me, even though my siblings knew she was dying. I had been at her side for 2 days. When my sisters (3 miles away) finally showed up at the NH, she had died. They were rushing to leave me alone to wait for the coroner and funeral home director, which I did.

I then cleared out Mama's room, donating clothing, shoes and décor...keeping only photos to distribute to siblings. I returned home close to 3 a.m. to write her obituary. I was at the funeral home by 7:00 with her burial clothing/jewelry.

I then made all funeral arrangements alone, did her hair/manicure (to match her dress) post-mortem. She looked so much more herself in death than she had for the last year of her life. She was buried on Good Friday as the sun set. Her service was lovely.

I did not sleep or eat a bite for 6 days and nights (sans Gatorade), as my house was filled with those same siblings who never helped with Mama's care, demanding service and attention. They all ghosted asap after our annual Easter gathering on Saturday.

I'm now balls deep in settling the mess that is her estate. The jackals await on the cliff tops and the vultures are circling. My dear husband has my back, but he is stressed to the max that I won't survive this. We buried our nephew (24) last Christmas, 2 very dear friends (60,61) in February/March, which left us raw and heartsick, all the while watching Mama die a slow, horrid death.

Oh, and in the midst of all of this familial death, my gut motility is dying...bowels requiring in hospital evacuation monthly since January. Cherry on top of shit sundae is that my transverse colon is monstrously distended, crushing my heart and lungs, causing pericardial effusion and breathing problems. Just more to "cope" with.

Gotta fly the coop for now. This chik has more "shit" to do, like visit 2 jobsites w/concrete pours today...then submit bids/specs to mayor/board of aldermen tonight. Lunch with estate lawyer to determine who gets my next "pound of flesh".

Sending HUGS of love and support to my fellow PAIN PEEPS...always.
 
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Hey pain peeps. Im baaaack, lol. Still alive barley but im ok. Dixi sorry about your mom been year and half for me still is raw. I miss her especially now. I had to get off my dilaudid for awhile pretty much in a wherlcjair so im home and back on. Good to see yall out here. Ill post more later. Wish yall best as always;)
 
closeau said:
Hey pain peeps. Im baaaack, lol. Still alive barley but im ok. Dixi sorry about your mom been year and half for me still is raw. I miss her especially now. I had to get off my dilaudid for awhile pretty much in a wherlcjair so im home and back on. Good to see yall out here. Ill post more later. Wish yall best as always;)
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Hey Bruv glad ur back man, I think we're all stilled fucked up so you missed nothing then again I haven't been here much and just cos I've been hitting every pot hole and feeling every bump doesn't mean everyone has buckled their alignment, however, ur wheelchair bound, Dixi is still somehow alive, see your mum did give a valuable and positive gift - staying power - absolutely too stubborn to give up - they don't make em like you anymore Dixi and your working still!?
 
Don't know if this should be in the PM thread instead, but, this is 'the dark side' where emotions & truths can be released like white doves in captivity.

The best thing I have found to be helpful for my pain is distraction. To be grateful for what I can do. Mind & body. To be open to life & the wonders it offers.

To be thankful for my being, to help a stranger. Laugh out loud, cuddle your loved ones, feel their heartbeat along with yours, spot the saucepan of stars in the sky, eat with really tasting the food.

Surprises are always around the corner, one door opens while another shuts. We live in a progressive society. Some here may be more disabled than able, but we all dream, there's hopefully someway to function & focus on the treasures that this world has in store. Literally stop & smell the roses...(if nothing else, will hv passers by smile or stop to say hello).

Be available. Mentally, emotionally. Capture the moment, for there is good along with the bad. Value & love yourself first. May you all find passion & true love, that stays as wondrous & fresh as the first blush of spring.

Gotta go,- I think I'm just at the start of my dream.

I was mistaken, lol, to dream you first have to sleep, to sleep you first must have a clear mind, & for that,- you must make good choices & not feel any more broken than you already are.

Rtp xx
 
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Thanks SKR and well said RTP. My pain is out of control my 8mg dillies barley touch it i found out today why. The tissue around my abdomen and in groin with my clots is deteriorating but nerve endings are still firing nothing they can do. Eventually ityll be so bad ill be in wheelchair on heavy iv oiods rest of life. Jeez man i got some bad karma. So im living like im dying from now on. Recording my album in August and gonna tour and go as long as i can hopefully i can still play and write in my chair. Im thinking about switching my ROA back to iv screw it o need relief. Oral Dilaudid is 23% iv is 100% yall do the math. Wish me luck i need my Bluelight peeps more than ever i know yall can relate im surrounded by peole who cant its maddening!! If any questions feel free to PM me anytime SKR get at me homie let me know whats shakin RTP hope youre well. Why all yall gotta live Down Under, lol. Hope youre well Dixi if youre still out here. Love yall keep those meds pumping pain doesnt hurt feelings do:)
 
Hey i like SKR he helped me out a couple year ago PM me please let me know whats his deal maybe i can help dobt wanna see my homie all fucked up but were all atcrisk fircthatvi guess.
 
Thank you my friends Bless you all may a 1000mg of nice stuff cushion your next painful pain fall
 
Dude message me. Im going thru shit you wouldn't believe if I told you. Just woke up to an ostomy leak. Nothing like waking up from a nave dream covered in poo. I can make a bag last 10 days and I got cheap bags from hospital been thru 12 in 6 days. Uuugh. Im doing my thing but I wanted to ask you a question that would help so I'll hit you up. Later Aussie bro
 
Closeau, so sorry I've not PMd you. Since the accident my time is short with rehab & appts, travel & specialist care. My memory is also short,- while I can never recall ystrdy, I can clearly think of two wks ago!

I'm soooo proud of you, being though all those traumatic experiences & still pulling to get back to your original place!

Actually, Closeau, hon, you're my hero. Not many could or would have gone through so much, (could make a fun pun here), physical, mental, emotional agony!!!!!

You did though dude, so proud of you! May they stay in the past the most unpleasant, awful, sadness you've trawled. Now to the future..

Have you ever had nerve blocks? In relation to your groin, I wonder if S1 S2 blocks may help the stabbing pains.

Sorry to hear dilaudid does nothing orally for your pain, it was the same for myself.

Fantastic that you're recording in a few months, so exciting, you'll have to post an online demo!! So happy to hear you have reached such a high note with all your struggles, hero hon,

Rtp xx
 
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