Allergic To All Painkillers !!!

[Tangalang]

Can you tell us more about your overdose? Which drugs did you take? What happened?

Let me find one of his original threads for you. Long time lurking does have it's advantages.. =)

http://www.bluelight.ru/vb/showthread.php?t=305029

 

[Unlucky]

Tangalang , impressive work on digging up my first and original post

Thanks to everyone for offering me solutions, Ive had more help from this forum than actual Doctors lol. What would i do with out yous

I will make sure I explore every single suggestion made to me on here and i will report back once ive trialled them.

 

[Treacle]

It's strange. Your problem sounds like the symptoms I get from anxiety. I believe anxiety can be linked to NMDA issues. Interesting. Can you take benzos?

 

[Unlucky]

Hi Treacle,

Which particular symptoms that I described sound like anxiety? Unfortunately when someone has a neurological condition like "Autonomic Dysfunction" it effects all the bodies automatic functions that are controlled by the autonomic nervous system like, breathing, digestion, sleep, heart rate, blood pressure, body temperature, sweating and sexual function which become impaired.

Unfortunately when someone has anxiety the same areas responsible of the flight or fight reaction get triggered. So I can see how easy it is for people to get confused in regards to my condition. I assume when you have anxiety you experience a state of panic and find it difficult breathing and sweat?

Where as everytime I stand up or move my heart races due to postural the changes in blood pressure and blood volume which my autonomic nervous system is unable to compensate for. I also dont sweat as I have lost the ability to do so due to my medical condition. There is no emotion behind my symptoms. I dont feel fear or anxiety or any emotion whilst im having my symptoms of autonomic problems, but at times when i do get stressed all the symptoms that I experience on a daily basis just get even worse including the overheating.

As for my allergic reaction symptoms, they are quiete typical of an adverse reaction including the rash and hives which I dont believe happens in anxiety?

As for your question my body wont let me take benzo's either or antidepressants as they also make me sick and worsen my overheating and flare up my other symptoms so Im doomed to face life's pain without the aid of any medications or any other substances.

 

[Treacle]

I get all sorts of symptoms with anxiety. Far too many to list. The feeling of overheating and not being able to take any drugs, without freaking out were two of the main ones. I forced myself to take drugs again, to prove that I was actually fine. I'm not suggesting you do this! The two conditions just sound similar in a lot of ways.

 

[head_creeps]

Have you had any extensive blood work up to discover any deficiencies you might have?

Is your insurance PPO or HMO, either way, never give up. Try to make an appointment with another physician. Certainly see an immunologist despite being rejected in the past.

What types of drugs are you able to take? what are their route of administration?

 

[Auggie]

Not alone

My body responds much like yours does to any type of chemical. In fact, you are probably allergic to your freaking computer's emf! (electro magnetic field) Sensitive to say the least. I have what doctors lump into the Fibromyalgia label. When a person's immune system is so messed up that it turns against itself, they usually don't label it anything other than Fibromyalgia. Chronic pain in muscles, joints, irritable bowel, constipation, burning genitals, skin burning, hot flashes, headaches, peripheral neuropathy (feet & hands on fire). So when trying to eliminate pain the western way by trying to numb it, you are shit-outta luck. Your body is so clever, it will not be fooled. It has been traumatized and is in a permanent lock-down mode. Like swallowing Agent Orange. So you will need to look to the east for an alleviation of pains and symptoms.

I can tell you from my own experience of crawling out of the hell I've been surviving through for 10 years that yes, there is help for you, but progress is not overnite. I made a conscious decision a year ago to change all eating habits, since most everything has chemicals in them as well. At times I felt like I was like those who have to live in a bubble. If you decide to do the same, you will be able to listen to your body instead of be pissed off at it. (I was too) You see, that creates it's own nasty chemical reaction, cortizol. It causes pain & f's you up even more! Since starting my own healing program, I've improved at least 50%! I can now at least function.

The most important questions that nobody seems to ask is:
Do you drink copious amounts of water? You need to, but filtered only
Do you have regular bowel movements? In order to eliminate excess toxins, gotta be regular.
Absolutely no artificial sweeteners or preservatives, since they are chemicals too.
The list will go on and on, sorry to say.
Your body is continuing to give you red flags that are going overlooked!!
Go organic or no recovery!
Most importantly, you need to de-toxify your body. The blood, the digestive tract, liver, kidneys. I searched and searched for something that would do all this cheaply, since I live on a budget, and safely. I found it in the form of liquid drops that I take on a daily basis. I may have to take them for the rest of my life. I'm fine with that! It costs about $40.00 - $50.00 a month for them.

If you're like the rest of us, you are not suicidal, but simply want to end the suffering that you have on a daily basis. It takes about 2 weeks to even begin to feel a difference, but then magically, you begin to feel things other than pain.

You can lessen the pain you're experiencing just from using dietary fiber. It's like a sponge for all the shit in your system.(well, that too but toxins primarily) I wasted alot of time and money starting out with nutritional drinks. But it's like smoking and running. Not too effective. Clean the body as you flood it with nutrition. In goes the good, out goes the bad.

Anything that "builds" your immune system, run from. If it modulates it, it's safe. I am more than anxious to help another soldier down. So, any questions, feel free to e-mail me @ [email protected]. My life has taken such a change since clawing my way back to health. I look forward to another day now, instead of wishing I'd just die. I have just as much hope for you, also. If I posted product names, it might get construed that I'm soliciting shit. Suffice it to say that it's natural and cheap!

You will even need to watch all cleaning products, toothpaste, deodorants, shampoo, etc, etc. Yes, indeed it sucks. Think of it as going green!

 

[Unlucky]

Hi Auggie, thank for sharing your wisdom with me, it good to know im not alone out there in this.

I actually tried detoxifying my sytem very early into my illness and have tried again severel times inthe past few years. I was making freshly squeezed fruit juices every day and eating as healthy as I could. I even began growing wheatgrass and extracting the juices daily as I had heard it had high vitamin, minerals and healing properties, I tried detoxfying programs one of them being beetroot juice and I take omega 3 fish oil everyday along with a multi vitamin an mineral supliments. I have taken many different anti-oxidents including grape seed and continue to drink white and green tea everyday.

But despite all my efforts this dam neurological condition and its chemical sensitivty hasnt eased. To be honest Im starting to think ive done ireversable damage. I will drop you an email soon, we can have chat some more, thanks again for your offer to help and im glad to hear you have had some improvement.

 

[nabollocks]

To be honest I havent tried any antihistamines mainly due to the fact I hadnt heard of them until recently, but I will give them a go if i can get the courage to trial the pinkillers again.

At the moment I have a few boxes of fentanyl patches left over , but im shit scared to have another adverse reaction . To be honest each time I have a bad reaction it feeels so severe I end up questioning wether I will live live through it. I so hate near death experiences after having so many of them, it gives me goosebumps just thinking about another one.

Hey, stop thinking you have done irreversible damage. Your body is better at fixing itself than you think.

You mentioned that you have not tried any antihistamines before.

I would suggest that if you have not already tried this that you get to a doctor and get a script. You may even be able to get them from your local drug store without a script.

I would like to know how much difference this makes on it's own. The symptoms you described sound very much like a allergic reaction.

Common things such as dust mite, and household mould can cause severe reactions in certain people.

Give antihistamines a go before using pain killers, and report back.
It is not very well known, but a lot of pain is due to allergies.

Edit: Do you drink alcohol very often?

 

[Unlucky]

Hi Nabollocks, I had originally made this thread about 1 month ago but it was resurrected again yesterday. Since then I have bought myself some antihistamines and tried them on their own and along with the opioids but had no benefits from it at all.

I also read that fentanyl is one of the painkillers that does not cause histamine release so the antihistamines were obviously useless againt it.

Regarding your question about alcohol, I am not able to drink it, my body and autonomic nervous system is so messed up I dont think i can explain how bad it is in words, my body will not tolerate ANY stimulants, i cant drink cofee, coca-cola, alcohol, i get sick from smells fumes, chemicals, and i canttake any painkillers. there is something very wrong with me.

 

[immad]

Yet you continue to consume thea (caffeine and others) on a daily basis?

 

[Unlucky]

Yet you continue to consume thea (caffeine and others) on a daily basis?

No I dont , the only thing im trying to take is painkillers and that cause im in so much pain everyday, if i dont take it that then i cant even leave the house cause of the pain, but if i do take itthen i have adverse reactions so im in a difficult situation right now.

 

[bingey]

In fact some people do get a rash or hives usually in the neck when having anxiety attacks

 

[Sturnam]

i suppose the more radical step is to find a doctor willing to try deep brain stimulation (DBS) on you. so far it's worked amazingly well for almost everything they've tried it with.

 

[Auggie]

Not Alone

I agree, it's not irreversible damage. Your body continues to be chemical sensitive. Period. You cannot try and change it's sensitivity level yet. Antihistamines will not help, even if you could tolerate it now, you would soon grow sensitive to it due to your overactive, hypersensitive immune system. The difference being that each time there is an adverse reaction, the severity worsens.

You were right to want to detoxify, but with the health issues that you & I have, it's like stirring the pot. You immediately go into a health crisis, the Herxheimer reaction. Again, been there, done that. 10 years of trying. Detoxifying normally boosts your immune system! No can-do. Even going into a steam room sent me to bed for a couple of days!

This is a big-time, all encompassing allergic reaction to any and all chemicals. Remove the offending factors first! Health will follow, when you're prepared for it. Like I said, it's like smoking and running otherwise. You are still on toxic overload. The things that I previously mentioned such as shampoo, cleansers, soap, toothpaste. If you put it on your body, you are putting it in your body! We don't normally even consider this an issue, but trust me, it's big. Colognes, lotion, hair products. All must not have offensive chemicals. Your body sees it like another drug! Mosts stores now have decent priced health care products. If you want guidance in what to look for, let me know.

Now that I'm able to function at an acceptable level, I'm just wanting to pay it forward. I have so much more to share, but you gotta lay the ground work first!

 

[Unlucky]

In fact some people do get a rash or hives usually in the neck when having anxiety attacks

I dont have anxiety attacks, and the several times in my life when Ive faced exteremely anxious and stressful situations including the time I overdosed, or had near death experiences, hyperthermia or accidents, or chest pain, heart problems , kidney stones etc. I still never had rash or hives.

The rash only coincides with when I take the medication and exactly at the time of the medication onset when it actually starts to work, and when it eventually wears off so does the rash.

 

[Unlucky]

Its not the first time people have thrown the word anxiety at me and im sure its not the last either. BingeBoy I dont mean any offence as Im sure you had good intentions and was only suggesting a possibilty and im not just refering to your comments only but it makes me wonder why do people so quickly assume its a case of anxiety?

Is it because there are a lot of people in thses forums who experince pyschological problems, anxiety and panic attacks or is it because my situation is so unccomon that my allergic reaction claims sound that bogus and unbelievable?

Im sure in my lifetime Im going to confront so many people and Dr's who are going to be skeptical about me who I have to defend try and convince my condition is genuine and ofa physical nature rather than emotional or pyschological, how do I go about doing this?

I also had to do the same thing for my neurological condition before I was diagnosed and looking for answers I had so many Doctors tell me it was in my head when I knew %10000000 that it wasnt cause the symptoms were so obviously physical without any emotional sensations, eventaully I found my own condition on the internet and then took it to a world renowned specialist in the field who did some hardcore and intrusive state of the art tests on me and confirmed my findings were right. I am very in tune with my body unfortuantely its other people who label me quickly and maybe I shouldnt care but when its Doctors that do it they put my wellbeing at risk by not taking me seriously.

 

[nabollocks]

Well, if it makes you feel any better...

There is a girl in Australia who is allergic to water. She can't let it touch her skin, she can't even perspire without getting a rash. No shit. Anything is possible!

So do I believe your story? Yes I do. But you got to stop thinking about the past and treat every day as a new day.

Have you ever taken any antidepressants?

I ask, not because I think you are depressed, but because I am curious about your serotonin levels and how you react to an increase in serotonin.

If you have taken antidepressants, which ones? Did you get a rash?

You say you get an allergic reaction to lots of drugs. How about sugar? Salt?

Or are you allergic to the ones where you expect a certain reaction?

Have you ever tried benzos? Did you get a rash? Did you have any allergies?

I will ask more if you can be bothered answering all the questions I have already asked.

 

[Unlucky]

Nabollocks I apreciate you taking an interest and would be glad to answer any questions you have, after all you are helping me out.

Have you ever taken any antidepressants?. If you have taken antidepressants, which ones? Did you get a rash?

I have used anti depressants before I developed the neurological condition. It was about 11 years ago and it helped greatly with the depression. But now antidpressants really mess me up my neurological symptoms, I did not get arash from it but they made me overheat, ruin my sleep and mood and made me feel very sick. I tried prozac and also amitrypline after the pain managment clinic prescribed it to see if it would help with the pain. Its a coincidence u asked me about this as I had made athread on antidepresant effects of Tramadol last week....
http://www.bluelight.ru/vb/showthread.php?t=391671

You say you get an allergic reaction to lots of drugs. How about sugar? Salt??

I have no issues with sugar or salt, Im actually recomended by my neurologists and specialsis to consume a high salt diet daily to increase the low blood volume brought on by my dysautonomia.

Or are you allergic to the ones where you expect a certain reaction??

I have no expectations when I try a new medication but that dosent mean im not cautious because ive had enough of allergic reactions, I dread the thought of anotheras it takes its toll on me.

Or are you allergic to the ones where you expect a certain reaction???

From experience Ive found im allergic to all painkillers and unable to tolerate even small amounts of alcohol, ive had severe reactions to marijuana and cigarette smoke with irregular heart and overheating, last time I tried minuscule amounts of a recreational drug after developing the neurologic condition I spent most the night under a cold shower with severe heyperthermia, and a whole bunch of other symptoms questioning if I would make it through? It seems my body rejects any substance that stimulates it or alters mood or my body, anything that gets you high basically makes me feel sick.

Have you ever tried benzos? Did you get a rash? Did you have any allergies???

I have tried valium and also had very bad reactions to it. I used to take valium regualrly along with every other drug on the planet that gave me a buzz but since i developed this stupid illness benzos also make me feel very very ill, confused, feverish, chills and breathing difficulty.

I should note all thses reactions I get are from the smallest recomended dose.

 

[nabollocks]

I know this is off topic, but have you ever done steroids?

Have you had your iron levels checked lately?