Mental Health Coming Off Invega Sustenna (Paliperidone) v.2

Status
Not open for further replies.
Oh my opinion is not tolerated, hm? Well I am sorry to tell you that you either endure having to skip my posts in fear of learning something new or look for an anti-psychiatry forum because bluelight is in no way against psychiatry - well, or you could just keep insulting me, maybe that will teach me!

Keep self-medicating and keep blaming neuroleptics for your psychiatric problems. Surely that will go very well, as has been shown in thousands of randomized double blind placebo control studies!

Practically all recreational drugs are "inherently toxic". Dosis facit venenum, pretty sure I have said that before.

While antipsychotics contribute to the decrease in brain volume that can be observed in schizophrenic patients, they are still a necessity in those who suffer full-blown mania or schizophrenic episodes. Untreated bipolar I disorder and schizophrenia have a very poor prognosis if left untreated.

EDIT: I don't take neuroleptics for "maintenance" of a steady affective state, I take olanzapine as needed which is during manic episodes. It isn't unlikely that I would be dead by now if I did not.

If you are not "pro psychiatry" does that mean you do not believe in the existence of psychiatric illness or that you don't believe it can be treated pharmacologically? Ketamine is ineffective against depression as well then, correct?

EDIT 2: Well there is at least one study that found a greater decrease in brain volume in untreated patients than in those treated with antipsychotics, but most other and more recent studies disagree. This one has found short-term treatment of 12 weeks to cause no reduction in grey matter, brain volume or volume distribution between different brain regions. This one shows how strong the correlation between total dosage and brain volume reduction is. Dosis facit venenum, I think I've mentioned it.

Either way, it is not really an option to leave a person with severe schizophrenia untreated. Name one person you've known who handled his life well despite suffering from a serious case of untreated schizophrenia. How would that be possible in our society?

The same goes for mania. I don't think you appreciate what an extremely destructive state that is. People have contracted multiple STDs within a couple of days, gotten themselves into legal trouble, physical confrontations, cheated on their spouses, started companies which instantly go to shit, quit their jobs or borrowed large sums of money just to burn through it in no time. Mania and schizophrenic episodes can ruin a life and antipsychotics do a very good job at treating them.

Stop spewing your unsubstantiated opions on this thread and find a pro psychiatry and pro pharma site like CrazyBoards. You will have better luck there. I think most of us would agree that your perspective is not appreciated here.
You don't seem understand that I do not have alternative treatment options for my manic episodes and have seen what it can do to my life. It took me 3 years to get back on track after my last psychotic episode. If you have seen mania, you would agree that living with a manic person is not something you want your wife or daughter to go through. It seems you have not or you would understand that perfectly well.
But hey, you seem to know better. I wasn't aware you had psychic powers. In that case I should probably listen. Do you always go around making promises that you can not keep? How has that been working for you?

Just name an alternative treatment that has been proven to work.
 
Last edited:
I will reply in more detail to your post later.

Have you heard of the Cochrane Foundation?
Check out what Peter Goetsche, founder and leader of the Nordic Cochrane Center has to say about psychiatric drugs. This is the guy who produces meta-analysis of all classes of pharmaceutical drugs and therapies. Thousands of people work for him. He might know even know a bit more than you.

The Cochrane reviews are what most doctors and experts rely on to make informed decisions on evidence based treatment options. You might be suprised to hear that most Cochrane reviews of psychiatric drugs show little to no benefit over placebo and a high incidence of drug related harm. The first two links say everything. Do you think experts at from Kings College London and the Council of Evidence based Psychiatrie might know more than you? The top video is short and the most relevant one to get my point across to you.

https://m.youtube.com/watch?v=DiJcSoo3C4Q

http://cepuk.org/2015/05/13/third-l...bate-harmful-effects-psychiatric-medications/

https://m.youtube.com/watch?v=iTQ4t7RmyfM

If you ever have spare time these may also be interesting

https://m.youtube.com/watch?v=ZMhsPnoIdy4

https://m.youtube.com/watch?v=dozpAshvtsA

https://m.youtube.com/watch?v=v6_T7z-Pr70
 
Also listen to the first 10 minutes of the third link about what Professor Peter Goetsche has to say about the effectiveness of antipsychotics in the treatment of Schizophrenia. Not trying to be rude, but I think you could learn a lot from this.
 
I don't need hate in my life, and I have the feeling the majority of us are forced to be on neuroleptics. They are serious drugs that will make a hopeless dopefiend unable to feel anything (except for opioid but who cares...). Of course some people on board never used them and go on with the schisoschiso she need s helps. The thing is, if you you push someone of their limits, you will see strange things happening. The sad part is that my family seems to enjoy this. (Of course it might be because i'm schizophrenic, but hey lie is a form a schizophrenia.


I mean jésus it's like we have to prove Our selve were not schizophrenic with all that psychiatric bullshit... Seriously go back the your 6 digit salary and leave us alone
 
I mean jésus it's like we have to prove Our selve were not schizophrenic with all that psychiatric bullshit... Seriously go back the your 6 digit salary and leave us alone
If you are not psychotic you don't need antipsychotics. I've stated numerous times that I think they are overprescribed and that you will not only not benefit if they are wrongfully prescribed to you, but will also suffer much more severe side effects compared to someone who is psychotic and takes them.

Again, can you really not get your point across without insulting me on that level? Makes our entire community look ridiculous.

I will reply in more detail to your post later.

Have you heard of the Cochrane Foundation?
Check out what Peter Goetsche, founder and leader of the Nordic Cochrane Center has to say about psychiatric drugs. This is the guy who produces meta-analysis of all classes of pharmaceutical drugs and therapies. Thousands of people work for him. He might know even know a bit more than you.

The Cochrane reviews are what most doctors and experts rely on to make informed decisions on evidence based treatment options. You might be suprised to hear that most Cochrane reviews of psychiatric drugs show little to no benefit over placebo and a high incidence of drug related harm. The first two links say everything. Do you think experts at from Kings College London and the Council of Evidence based Psychiatrie might know more than you? The top video is short and the most relevant one to get my point across to you.

https://m.youtube.com/watch?v=DiJcSoo3C4Q

http://cepuk.org/2015/05/13/third-l...bate-harmful-effects-psychiatric-medications/

https://m.youtube.com/watch?v=iTQ4t7RmyfM

If you ever have spare time these may also be interesting

https://m.youtube.com/watch?v=ZMhsPnoIdy4

https://m.youtube.com/watch?v=dozpAshvtsA

https://m.youtube.com/watch?v=v6_T7z-Pr70
I will do that when I get home tonight. Thanks for the link and more importantly, thanks for being the only person so far whose reply did not contain any insults. Sad as it is, that's what our community has come to.
 
Watch first 15 minutes of this. Eye opening.

Wouldn't after watching this most agree that the FDA and European medicines agency should be sued and shut down for approving drugs proven to cause death, permanent brain and body damage and lifelong disability. Cochrane founder and leader Goetsche has been known to say that neuroleptics are more toxic to the body and brain than chemotherapy. And that millions of lives would be saved if they were banned decades ago.

The officials at the FDA who sanctioned the approval of Haldol, Risperdal Consta and Invega Sustenna should be jailed for life. The FDA hid trial data and evidence that long acting neuroleptic injections KILLED 1 in 100 individuals who recieved them.

I encourage everyone to watch the first 15 minutes of Goetsches presentation and to file a lawsuit against the FDA for failing to protect Public Health and Human lives.

I'm unsure how easy it is to succesfully sue the FDA but I do know that suing drug companies will not chane anything and thay you will not get compensation that way.

If everyone who ever posted on the Invega threads sued the FDA it could bring about huge changes.
 
hi everyone

i've been reading this thread for awhile now, and i never found a clear answer of withdrawing from invega. i just stopped this moth from taking invega sustenna for the third time, hoping it will be the last. the last time i stopped taking invega it was for two months, it wasnt pleasant at all and i had to take it again. this time i will share this experience with you guys. my last injection was on feb the 27th, it was 50 mg. i started lowering my dose from "150 mg - 100 mg - 100 mg - 50 mg - 50 mg" i am now on wellbutrin 150 xl twice daily and inderal 20mg twice daily to control the withdrawal effect. i will be updating you guys of how it goes and i hope you guys learn something from my experience.
 
I'm afraid I might get court ordered invega when I see my doctor. If she does court order me to take the shot, how long can it be court ordered?
 
If you are at an acute risk to cause harm to yourself or others, especially if you've already become violent or had suicide attempts and are still psychotic and incompliant with treatment.

If you really do experience troubles like delusions or hallucinations, you should seriously consider using antipsychotics, but settle for the lowest dose possible in cooperation with your doctor. There are just as many patients, if not more, who are very satisfied with their treatment, so try to get insights from people not posting in this thread. They might save your life.

I video offers some very valuable insights into what it means to suffer severe schizophrenia, but still be well-adapted:
https://www.ted.com/talks/elyn_saks_seeing_mental_illness

The video is meant for those who deny the existence of schizophrenia, it is not about pharmacological treatment! It is actually very critical of some aspects of psychiatric treatment.

Nobody I saw posting here seemed psychotic btw and treatment with antipsychotics should not be prescribed to the healthy. A very low maintenance dose is commonly prescribed for as long as one year after a heavy episode. If your doctor does

Watch first 15 minutes of this. Eye opening.

I watched the first video and like Götsche and as I've stated before I am convinced that antipsychotics should only be prescribed for limited periods of time. This is in congruence with treatment guidelines. There is currently no other option good for treatment. Some psychiatric facilities here put stress on making patients feel good and at peace while only prescribing very low doses of antipsychotics to ease patients out of the psychosis.
Götsche agrees that this is where antipsychotics indeed make sense. Here is a quote from him "Psychiatric drugs should be used very sparingly". I am in congruence with that statement and have never said otherwise, neither in life outside of the internet, nor in this thread or anywhere else online.

What he says about there being no indication for untreated schizophrenia causing brain damage is plain wrong though according to current research!
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3877095/
http://sci-hub.cc/10.1016/0920-9964(92)90038-7
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4197784/

There are countless other studies which came to the same conclusion.

Again, I agree to a lot of what he said and as it may have escaped some people here, I am indeed very critical of psychiatry and how the psychotic are treated, both by society as well as the medical community.
However these substances are far from useless or evil. I think it is respectless towards those who have gotten their life back on track and had further suicide attempts or violent outbursts prevented to deny their usefulness. My best friend had three suicide attempts, knocked out a dozen strangers, took shits in the middle of crowds of people, robbed a store fully naked before he got on risperdal which allowed him to lead a normal life with a long term relationship (9 years now) and a steady job (9 years). He is still the life of the party and not brain-dead or emotionally flat at all. Low doses. Dosis facit venenum.
I personally got myself into debt, got sued for various misdeeds, hallucinated being consumed by a fungal organism, said my goodbyes to loved ones on multiple occasions due to being convinced I'd die, made noises all the time instead of using words, screamed at people for the slightest perceived provocation, had to catch my breath mid-sentence because I would constantly talk at a high speed (pressured speech), making communication with me impossible or at least very difficult for those patient and understanding enough. Low-dose olanzapine eased my out of that. Another year was spent on quetiapine, doing which I started doing sports and going out and after two years off treatment (including 200 hours psychotherapy) and I not only fully recovered, but had also repaired the damage my last manic episode caused to my life. In some way I am very thankful for these psychotic episodes because they taught me a lot about friendship and other things, but I could never be a member of this society during untreated manic episodes.

I can't stand by idly to watch people paint such a one-sided picture of the situation because these drugs could potentially save the lives of others who read this thread. This site is about harm reduction after all. However, I can only urge anyone who considers treatment to get his doctor to agree using a micro-dose for a limited period of time. Good psychiatrists will indeed agree to this, but it depends on your history of treatment and illness as well as the severity of symptoms. Good doctors will put a lot of thought into your treatment regimen instead of just prescribing high-dose neuroleptics for years. That is just wrong, even if your doctor did it!

Antipsychotics have saved a lot of lives and unfortunately have cost some patients their lives as well, just like NSARs have or pretty much all other medication. They are also extremely side effect laden with a positive correlation between dosage and severity and number of side effects.


EDIT: Most people would consider electro convulsive therapy to be cruel and inhuman. However bad the side effects on memory can be, a lot of people voluntarily go through with it because e.g. their affective disorder does not allow them to lead a life well-adapted to social norms.
Look at this TED talk: https://www.ted.com/talks/sherwin_nuland_on_electroshock_therapy

Just saying, it's not all black and white.

EDIT2: On another sidenote, if you are one of the unlucky ones who experiences psychotic episodes, I can recommend asking the court for a legal guardian who will look after your interests when you are unable to communicate them, given that it is possible where you live. I've had one for the past 6 years and am very grateful for it. They can help with all kinds of shit, IF you want them to. If it wasn't for my guardian, I would have lost my apartment while psychotic. Not something I'd want happening to me.
 
Last edited:
Sorry I forgot to post the video before.

Anyone interested check out the first 15 minutes of this:

https://m.youtube.com/watch?v=iTQ4t7RmyfM
Like I said though, he is not against administering antipsychotics in acute situations. That would be ludicrous. Other than that he makes a lot of very good points.

My issue with a lot of posts in this thread is mainly that people claim psychiatry is a lie and antipsychotics have no use whatsoever. That is absolutely ridiculous and shows that zero actual research has been done and the person who holds those views has never in his life dealt with severely psychotic people in whichever setting - or he didn't appreciate his problems.

Other than that I can only say that there is a lot wrong with psychiatry and the way antipsychotics are prescribed. Things are getting better though, at least they are here in Germany.
 
I haven't posted in a long long time. I'm here to tell you that I have been off Invega Sustenna for a year (My last shot was March 25 2016). I feel great. Today I ran 6 miles in 60 minutes which is 10 minutes per mile. I balloned up to 240 pounds and now I am down to 220 pounds. I am loosing weight and starting to feel like my old self physically. I am going to continue to loose weight and just stay positive. The only thing I suffer from is erectile dysfunction. I am loosing weight and technically I am naturally big. Koz26 lost weight going from 210 ish pounds down to 186 pounds. I am still loosing weight and I will say weight loss is possible and feeling good is possible. PLEASE STOP!!!! watching Ross Jason Boehm Lai's videos.... He is only bringing you down. He really needs to stop bitching and take responsibility. I am recovering(maybe not fully but just enough to enjoy the things in life such as being thin, feeling good, making money, RUNNING/EXERCISEING; sex I will have to talk to a doctor :/ ).... If you look at my old comments, you will see I had soooo much negativity. I honestly was the most doubtful and most angriest posting death threats to hurting psychatrist. I honestly thought I was never going to run again. PLEASE PLEASE don't give up hope. And PLEASE stop watching Ross Jason Boehm Lai's video's. Everybody is different. So to those that think they will end up like him, redirect your life and understand that you are different person and you are not Ross Jason Boehm Lai.
 
Once you get cuffed and injected with neuroleptics maybe you'll understand.
Why would you even reply to me when you have apparently not read my posts? I've written about that twice within the last two pages and am fully aware of the horrors of suffering akatisia while being strapped to a bed. That has after all happened to two of my closest friends. Again, it's not all black and white.

PLEASE STOP!!!! watching Ross Jason Boehm Lai's videos.... He is only bringing you down. He really needs to stop bitching and take responsibility. I am recovering(maybe not fully but just enough to enjoy the things in life such as being thin, feeling good, making money, RUNNING/EXERCISEING; sex I will have to talk to a doctor :/ ).... If you look at my old comments, you will see I had soooo much negativity. I honestly was the most doubtful and most angriest posting death threats to hurting psychatrist. I honestly thought I was never going to run again. PLEASE PLEASE don't give up hope. And PLEASE stop watching Ross Jason Boehm Lai's video's. Everybody is different. So to those that think they will end up like him, redirect your life and understand that you are different person and you are not Ross Jason Boehm Lai.
Listen to the man!
 
He explicitly stated neuroleptics should never be used for psychosis as benzodiazepines work just as well and do not cause the same degree of damage to the brain and body that antipsychotics do. He never said neuroleptics should be used in acute situations. He did say benzodiazepine use in acute situations is justified.
 
I haven't posted in a long long time. I'm here to tell you that I have been off Invega Sustenna for a year (My last shot was March 25 2016). I feel great. Today I ran 6 miles in 60 minutes which is 10 minutes per mile. I balloned up to 240 pounds and now I am down to 220 pounds. I am loosing weight and starting to feel like my old self physically. I am going to continue to loose weight and just stay positive. The only thing I suffer from is erectile dysfunction. I am loosing weight and technically I am naturally big. Koz26 lost weight going from 210 ish pounds down to 186 pounds. I am still loosing weight and I will say weight loss is possible and feeling good is possible. PLEASE STOP!!!! watching Ross Jason Boehm Lai's videos.... He is only bringing you down. He really needs to stop bitching and take responsibility. I am recovering(maybe not fully but just enough to enjoy the things in life such as being thin, feeling good, making money, RUNNING/EXERCISEING; sex I will have to talk to a doctor :/ ).... If you look at my old comments, you will see I had soooo much negativity. I honestly was the most doubtful and most angriest posting death threats to hurting psychatrist. I honestly thought I was never going to run again. PLEASE PLEASE don't give up hope. And PLEASE stop watching Ross Jason Boehm Lai's video's. Everybody is different. So to those that think they will end up like him, redirect your life and understand that you are different person and you are not Ross Jason Boehm Lai.
I am glad to see someone else who healed. You seem more athletic than a partier... but have you tried getting drunk? I have seen a lot of comments from people that healed but no one mentions this. I just want to kick back, relax and enjoy a buzz. I hope everyone is doing well and I hope everyone can quit arguing.
 
Hi folks, I have been reading since V1 of the thread and I am also an invega victim. I received 3 shots. Last one two months ago.

English is not my first language.

So far, no improvements.

My symptons are total sexual dysfuncion and HUGE INSOMNIA. Does anyone else here have insomonia as side effect? I dont see many conplaining about it.

I also took haldol, cant remember the dosage, for about a week. I dont know if my insominia and sexual dysfuntion is a permanent haldol side effect or if its just the invega shots still acting.

I dont feel so much anhedonia or weigght gain. I also dont feel much like crap and depressed like most of you here

I think i am perma fucked couse of haldol+invega. And I never had schizophrenia.
 
I looked up some supplements for people who had a stroke and came across this.
Hope it helps people searching for more stuff to help with recovery.

Coenzyme Q10:
https://draxe.com/all-about-coq10/

Turmeric/Curcumin Improves blood flow to brain
https://authoritynutrition.com/top-10-evidence-based-health-benefits-of-turmeric/

Cinnamon
http://articles.mercola.com/herbs-spices/cinnamon.aspx

This is a good article too.
https://authoritynutrition.com/boost-male-fertility-sperm-count/


http://articles.mercola.com/sites/articles/archive/2017/04/02/biohacks-to-improve-brain-health.aspx

Also I started myself up on CDP-Choline again and I will grab a b-complex, since it ran out a while back. I think that CDP is probably the best supplement.
I seem to be improving now while on it. The 250 mg bottle with just one pill makes me think. 3 pills and my brain gets pumped like my muscles do when I workout. I think April should be my month and I should be pretty good going into May.
 
Last edited:
sorry for only asking about a buzz, but I am a recovering addict. Does anyone know? Does the ability to catch a nice buzz come back? I'm sorry for just ignoring everything for so long and then coming back just to ask if the ability to catch a buzz returns... I guess that's just the addict in me speaking but I really want to know. I have been very suicidal not even being able to get drunk. I am barely holding on. Please message someone and confirm that the ability to catch a nice buzz comes back!
 
sorry for only asking about a buzz, but I am a recovering addict. Does anyone know? Does the ability to catch a nice buzz come back? I'm sorry for just ignoring everything for so long and then coming back just to ask if the ability to catch a buzz returns... I guess that's just the addict in me speaking but I really want to know. I have been very suicidal not even being able to get drunk. I am barely holding on. Please message someone and confirm that the ability to catch a nice buzz comes back!
wtf
 
Status
Not open for further replies.
Top