Positive The Tapering Support Thread v 2.0

Thank you friends.
I just love you guys so much.
I need the support here.
I’m going to come hang out some through the holidays.
We need to have some fun!

I don’t have anyone for support now.
My brothers and sister haven’t understood about “chronic pain”.
They’re starting to though.
Some of them are having big health issues with themselves or their partner s and they are learning.
They are being as helpful as they can and vice versa.

Just having a bad day.
Lots of pain today.
I overdid it and just have to rest.
Have a flu going too.

Hang in there everyone.
Sending you all hugs.
*group hug
 
Thank you friends.
I just love you guys so much.
I need the support here.
I’m going to come hang out some through the holidays.
We need to have some fun!

I don’t have anyone for support now.
My brothers and sister haven’t understood about “chronic pain”.
They’re starting to though.
Some of them are having big health issues with themselves or their partner s and they are learning.
They are being as helpful as they can and vice versa.

Just having a bad day.
Lots of pain today.
I overdid it and just have to rest.
Have a flu going too.

Hang in there everyone.
Sending you all hugs.
*group hug

We'll be here whenever you need us! 💗
 
Hi Guys,

Hope everyone is doing alright.
I have been suffering a lot with this chronic neck and back pain.
It has been absolute hell since my doctor retired and I got put on suboxone.
It sucks for pain.
I’m so tired of the pain friends.

My mom passed away a few months ago also.
I helped her through all four stages of Liver Failure and Disease.
She never drank or smoked or anything. Ever.
It was just genetics and old age.

I’m extremely scared without her.
It has been so much anxiety.
I am really scared.

Hi @Painful One,

My heart absoloutely goes out to you. My codolences as regards you mother - it must be extremely overwhelming for you having to grieve whilst also in constant pain. What were you prescribed for pain before the Suboxone?

Im so sorry to hear that you are scared. My father passed of cancer and never smoked or drank. Genetics too. I still havent dealt with his death, I've been numb since 2021.

Do you have any other family besides your mother? Are you living alone?
 
Hi @Painful One,

My heart absoloutely goes out to you. My codolences as regards you mother - it must be extremely overwhelming for you having to grieve whilst also in constant pain. What were you prescribed for pain before the Suboxone?

Im so sorry to hear that you are scared. My father passed of cancer and never smoked or drank. Genetics too. I still havent dealt with his death, I've been numb since 2021.

Do you have any other family besides your mother? Are you living alone?
Hi @endlessnameless

Thank you. I appreciate that.
I came off Morphine 30 mg 2 daily.
Got put onto this Suboxone and it just doesn’t work for me to have more of a normal life.
I was doing a lot better on the morphine twice a day relief.

I have had to use a few more clonazepam then prescribed due to the stress and pain flare up while having to plan and execute funeral and daughters wedding all at once.
I did way too much the last few months and I am hurting bad.
Now, I am in benzodiazepine withdrawal for a few days and Holy Hell it is bad!

Yeah, plus now I am alone.
I lost not only my mom but my best friend and companion too.
I had the best mom ever.
I do have my brothers and sister though and they have been good to me so far.
Thank The Good Lord that I have a bit of an inheritance and my brothers and sister.

This is really hard.
 
I'm so sorry @Painful One. At least you are still strong and trying so hard to cope.
My Blessings and Prayers for you from my heart as well.
Take care. You are always being your best and have such a warm heart.
It is so good to have you with us all. And to have your presence around is a Gift too.

Love sent your way. Alright. Thanks for being here. 💙💖🩵💫


<3
 
Thank you. I appreciate that.
I came off Morphine 30 mg 2 daily.
Got put onto this Suboxone and it just doesn’t work for me to have more of a normal life.
I was doing a lot better on the morphine twice a day relief.

You're most welcome. Bluelight and its members have been of so much help to me over the passed 15 years and I'm always happy to give back in the way of helping anyone in need be it replies with advice or indeed the offer to DM me should they wish to confide or vent with someone - an offer which I extend to you also so do please feel free to do that any time you please @Painful One. I typically back that day unless I've having an off day as I'm tapering off codeine (prescribed) and benzos myself at the moment. Again, you're most welcome.

While I've had no experience with Suboxone, I do know a few people who have and they make the very same claim in respect to it being no use as an analgesic. Have you said this to your new GP? Surely they can put you back onto the Morphine considering this isn't working for you. Apart from your previous doctor retiring, I wonder why they took you off a medication that was working perfectly fine for you. I mean thats is exactly what morphine is prescribed for where as Suboxone is primarily prescribed as a means of MAT as a substitute for people who were addicted to opioids or in the process of weaning off them. Even Methadone would have been a better alternative as that has better analgesic properties than Suboxone however the withdrawal process - while not as intense as opioids or opiates - is quite a long and drawn out process.

I would have a serious sit down with your new GP and tell him that the pain is having such a dire effect on your life that you simply cannot function. Have you done this already?


I have had to use a few more clonazepam then prescribed due to the stress and pain flare up while having to plan and execute funeral and daughters wedding all at once.
I did way too much the last few months and I am hurting bad.
Now, I am in benzodiazepine withdrawal for a few days and Holy Hell it is bad!

I completely understand what you're going through with the benzos. So too have I had to use more than usual due recent stresses. I was the victim of an attempted mugging in October where I was assaulted from behind the assailants fractured both my jaw and cheek bone which aside from the intense pain prior to and following the operation I had to undergo to correct the damage, left me with even more anxiety than I had before hand as it was very traumatic for me.

On account of the pain I was unable to sleep for a week before the operation and a further week afterward to the point where I was in a state of delirium in hospital. They were perfectly willing to give me as much oral morphine as I requested (and I requested rarely) but were very hesitant to give me anything for sleep which I would have taken over the pain medication because I was literally losing my mind).

The worst part was that I had sleep medication at home but the hospital was over the other side of the city and I had no way to getting to it. I would have brought it with me but when I went over initially I thought I was just going for a consultation but they said the fractures were that bad that they would need me to stay over for surgery and I was completely unprepared.

As a result, I've been using more than usual and ran out last Friday and while I wasnt on the verge of a seizure, I didn't get a wink of sleep all weekend and I was crawling the walls with rebound anxiety. Thankfully I was able to get some last Monday so I'm much more at ease now. I had also ran out of Tylex so the pain came back big time so I had nothing to even knock myself out with while I was miserable with the pain. Fortunately, I just received my Tylex prescription so I'm off to the Pharmacy to get them now.

When are you due to get your Benzos next?


Yeah, plus now I am alone.
I lost not only my mom but my best friend and companion too.
I had the best mom ever.
I do have my brothers and sister though and they have been good to me so far.
Thank The Good Lord that I have a bit of an inheritance and my brothers and sister.
This is really hard.


I have no doubt at all its likely much more than just 'hard', it must be verging on impossibly overwhelming for you. Hopefully it won't be long until you get your next benzo prescription and that will take the edge off your incredible stress levels because if ever there's a time you need stress relieve its NOW.



_______________________________________________________________________
*Reason for edit: Issues with quoting last paragraph (now resolved).
 
Thank you my friends.
I love you guys so much.
I appreciate your support and understanding.

I don’t know why they just dumped me off to suboxone.
I was a perfect pain patient, have good referral from past doctor of almost 15 years.
They are trying to give chronic pain patients suboxone (at least in my state) .
I really did give it a good try but my functioning has gone down.

It is super hard for me to even write a response right now.
I’m really sick to my stomach and my body is just on fire.
The pain level is intense.
I fell in my high heels at my daughter’s wedding and hit my back and neck (original car accident injuries) and I am really having trouble moving my arms. It really hurt me.
I have needed to relax my muscle spasms etc..and it all caused me to be short on meds.
UGH!

I am really sorry to hear what happened to you @endlessnameless
That is horrible and I am so sorry.
Gentle hugs and healing love sent your way.

Pray for me guys.
❤️ you all so much
 
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I always find myself reading “The Best of BlueLight” when I REALLY need to laugh and try to ease the pain.
That “I bought an alpaca while on Ambian” and the one about “WE DID IT, GOD DID IT,” are so classic. LMAO

If anyone needs a good laugh, go read “The Best of BlueLight”.

😂😂😂🤣🤣🤣
 
Thank you friends.
I just love you guys so much.
I need the support here.
I’m going to come hang out some through the holidays ...
🩵
@Painful One. Keep trying to hold on and you will be alright. I am sorry that the medical system changed your meds like that. They have that tendency to make everything degrading and un-functional like that now. I hope it can get better again someday. Maybe soon would be better.

I wish that I could adopt you and give you a big giant hug. So there's that.

I have to learn how to cope now too with everything. Or try. I am just trying so hard with my family and to grow older. The pain makes that impossible.

You never know. Sometimes things can get better. K's.
 
🩵
@Painful One. Keep trying to hold on and you will be alright. I am sorry that the medical system changed your meds like that. They have that tendency to make everything degrading and un-functional like that now. I hope it can get better again someday. Maybe soon would be better.

I wish that I could adopt you and give you a big giant hug. So there's that.

I have to learn how to cope now too with everything. Or try. I am just trying so hard with my family and to grow older. The pain makes that impossible.

You never know. Sometimes things can get better. K's.
God I love you my dear friend.
Thank you for always being here when I need you most.
I am close to damn death.
Huge respect and love for you.
Always.

Can get benzodiazepine prescription on Monday.
Thank The Lord.
Now I see why they say it is worse than Opiate withdrawal.
Especially with Chronic Back and Neck Pain.
Trying to hold on.
My dog is majorly concerned.

Yeah I wish they had not of made me unfunctional.
Thing was, after years and years of 2 30 mg MS Contin a day, I needed a little increase in dosage or just a change to another equal but slightly different formula to remain functional.
I got into “wishful” thinking that maybe I had healed some and could be a little more functional and that was a HUGE mistake.
I don’t feel like I am even stabilized on the suboxone after 2 years!

Maybe my condition is deteriorating and worsening too.
It definitely is, along with older age setting in.
Add shitstorm of taking care of and losing both parents to horrific conditions.
I’m PTSD out.

Sorry friends.
Sorry for the complaining.
Thank you for caring and letting me just get it out.
I know you all pretty much understand the situation .
I wish you guys didn’t have to suffer this!

I am going to take severe care to make sure I never, ever run out of this again.
 
Peripheral Neuropathy is a diagnosis that is matching some of the symptoms I keep experiencing .
Does anyone else have this condition and does anything help for the “Boa Constrictor “ like feelings in hands and feet?
Please advise..
 
I am tapering benzos and I have this symptom. I wonder if it's related to benzo withdrawal?

The only things I can find to help is an electric throw blanket for the warmth and elevating my feet. Massage definitely helps. I wish I had a hot tub! No over the counter pain medicine helps mine, unfortunately. I hope you find some relief.
 
I can understand why some of you might think this is due to benzodiazepine withdrawal, but it is not.
I keep having this problem, no matter if I have the benzodiazepine or not.
I have been trying to catch what keeps waking me up in a panic or why I wake up in the morning in a panic with pins and needles, sharp pains and numbness in feet, hands, arms, and legs.
I finally caught what was happening the other night.
I wake up in a complete panic because it feels like I have a Boa Constrictor (snake) squeezing the blood circulation off.
My pathways feel too small for the blood flow.

I don’t think I can go to the grocery store again.
I can’t feel my feet, can’t feel my fingers at all on right hand now, both hands and feet are numb, severe pain in left leg and right arm and hand now.
Especially in my right finger. It feels like it needs to be amputated. Same as my left leg.

OMG! I am so crippled now.
Tried to get a massage and my body is so sensitive that I freaked when she tried to touch me.
Had to pay for the massage and just left without it.

I got my clonazepam yesterday morning and just slept all day but it continues to be broken sleep.
Waking up still to the above problems and the pain is so severe that I am losing so much weight due to sweating so badly and just squirming
in pain and agony. (As much as I can squirm due to paralysis)

I have a doctor appointment on Thursday and I am going to talk to them about this.
The migraines are back full force. I had those under control with the MS Contin (I had only gotten a handful of migraines in the 15 years of taking the 2 30mg MS Contin a day) now, they are out of control again.

* Deep sigh
Pray for me friends.
I am scared.
 
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Pray for me friends.

I am Praying for You. 🕊️🩵🕊️

I think that they should have compassion and give you your MS Contins.
And then be careful with the benzodiazepines.

You probably wouldn't need as many benzodiazepines with the proper MS Contin.

I know I am not a doctor ... but it is so obvious.

You really don't deserve this either.

I am so sorry. You didn't do anything to deserve this. Why do some have to suffer.

Why. I know it's How.

You need your pain med's. I'm sorry.

<3

Take Care please. It's so very good to hear your voice and your presence. So Good !!!!!
 
I can understand why some of you might think this is due to benzodiazepine withdrawal, but it is not.
I keep having this problem, no matter if I have the benzodiazepine or not.
I have been trying to catch what keeps waking me up in a panic or why I wake up in the morning in a panic with pins and needles, sharp pains and numbness in feet, hands, arms, and legs.
I finally caught what was happening the other night.
I wake up in a complete panic because it feels like I have a Boa Constrictor (snake) squeezing the blood circulation off.
My pathways feel too small for the blood flow.

I don’t think I can go to the grocery store again.
I can’t feel my feet, can’t feel my fingers at all on right hand now, both hands and feet are numb, severe pain in left leg and right arm and hand now.
Especially in my right finger. It feels like it needs to be amputated. Same as my left leg.

OMG! I am so crippled now.
Tried to get a massage and my body is so sensitive that I freaked when she tried to touch me.
Had to pay for the massage and just left without it.

I got my clonazepam yesterday morning and just slept all day but it continues to be broken sleep.
Waking up still to the above problems and the pain is so severe that I am losing so much weight due to sweating so badly and just squirming
in pain and agony. (As much as I can squirm due to paralysis)

I have a doctor appointment on Thursday and I am going to talk to them about this.
The migraines are back full force. I had those under control with the MS Contin (I had only gotten a handful of migraines in the 15 years of taking the 2 30mg MS Contin a day) now, they are out of control again.

* Deep sigh
Pray for me friends.
I am scared.
The symptoms you are describing sound terrible and are much worse than mine. I hope your Dr will listen to you on Thursday and can give you something that helps.

I'll say a prayer for you!
🙏🙏💖💖
 
Sounds like the doctor needs some Prayers. To be a better doctor !!!!!!!!!!! 💔

That system is heartbreaking. It really is.

They don't really seem to care when it gets to a certain point. Most. :(



<3🙏🕊️
 
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