StoneHappyMonday
Bluelighter
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- May 10, 2001
- Messages
- 18,084
Sleep well my friend.
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European & African
Drug Discussion
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The Sad Thread (Anti-Snoo) 2 - Tory Britain in Flames
- Thread starter maxalfie
- Start date
Sleep well my friend.
Green Taffy
Bluelighter
Got dumped by the girl a couple of weeks ago. Right before I went on a trip through Europe. Felt like shit the whole trip, was pretty fucking gunt wrenching stuff. I've never felt so weak in my life. I should man the fuck up but meh...
class-a-team
Ex-Bluelighter
- Joined
- Jul 9, 2011
- Messages
- 877
That's really shit man, you're entitled to feel crappy over it though, it's only normal to feel that way so don't beat yourself up over it.
It's my fault I guess for pushing for an answer but have been told that my heart problem will shorten my life regardless of the medication I'm being given.
I still want more details though as I just read that 30% of people can die within 5 years of diagnosis but I don't know if those people were much older than me etc.
So am gonna try and push for what sort of life expectancy they think I will have if things don't improve.
I don't want to die in the next 5 years or even 10 years.
I still want more details though as I just read that 30% of people can die within 5 years of diagnosis but I don't know if those people were much older than me etc.
So am gonna try and push for what sort of life expectancy they think I will have if things don't improve.
I don't want to die in the next 5 years or even 10 years.
strungout2010
Bluelighter
Shit max, didn't know you had other health issues , hope things work out mate, stay strong thinking of you.
Fuck, Max 
Missed the part about the heart condition (would you mind being more specifc for those of us who either suffer from memory fail or just plain weren't around at the time of mentioning due to considerably less serious issues?). Is this related to the cancer thing which I do recall but was under the impression you had that caught in time and were (as far as is possible to be) on the up and up from it?
Whatever the case, as ever your attiitude is impeccable and admirable. I can but hope I could retain such positivity in the face of such news. Mind over matter is only part of the story but is a big part and seems you have that side covered which can only be a positive sign
Missed the part about the heart condition (would you mind being more specifc for those of us who either suffer from memory fail or just plain weren't around at the time of mentioning due to considerably less serious issues?). Is this related to the cancer thing which I do recall but was under the impression you had that caught in time and were (as far as is possible to be) on the up and up from it?
Whatever the case, as ever your attiitude is impeccable and admirable. I can but hope I could retain such positivity in the face of such news. Mind over matter is only part of the story but is a big part and seems you have that side covered which can only be a positive sign
Yes Shambles it is related to the chemotherapy treatment I had.
I have chemotherapy induced Dilated Cardiomypathy.
Basically my left ventrical can't pump the amount of blood that it should do.
Each time the left ventricle contracts it should pump out a certain amount of blood, the amount it can pump is called the Ejection Fraction rate and a normal rate is 55-70% i believe. My ejection fraction is 25-35% so basically is only half effective as it should be. This leaves me tired, breathless very easily and I also leads to fluid on the lungs.
I did have the fluid on the lungs a little while back and it was very frightening. Each night I'd wake around 3am being unable to breathe properly as while laying down my heart struggles even more and I got to where I was scared to go to bed each night as I knew I'd wake up struggling to breathe.
Luckily the cardiologist gave me some pills which help you pee more and rid the body of excess fluid and after 2 days of using the pills the problem stopped but I still have to take the pills among with other heart medication.
I want the cardiologist to be straight with me and to give me worst case scenario so I know what could happen. I just can't bare the thought that I could maybe die in the next 10 years.
Good news is that I'm in remission from the cancer & I just have to have Rituximab injection every 2 months for next 2 years to help knock cancer back down if it starts up again.
I have chemotherapy induced Dilated Cardiomypathy.
Basically my left ventrical can't pump the amount of blood that it should do.
Each time the left ventricle contracts it should pump out a certain amount of blood, the amount it can pump is called the Ejection Fraction rate and a normal rate is 55-70% i believe. My ejection fraction is 25-35% so basically is only half effective as it should be. This leaves me tired, breathless very easily and I also leads to fluid on the lungs.
I did have the fluid on the lungs a little while back and it was very frightening. Each night I'd wake around 3am being unable to breathe properly as while laying down my heart struggles even more and I got to where I was scared to go to bed each night as I knew I'd wake up struggling to breathe.
Luckily the cardiologist gave me some pills which help you pee more and rid the body of excess fluid and after 2 days of using the pills the problem stopped but I still have to take the pills among with other heart medication.
I want the cardiologist to be straight with me and to give me worst case scenario so I know what could happen. I just can't bare the thought that I could maybe die in the next 10 years.
Good news is that I'm in remission from the cancer & I just have to have Rituximab injection every 2 months for next 2 years to help knock cancer back down if it starts up again.
Thanks mate, hope all is going well for you.
Thanks for the detailed reply, Max. And sorry to hear it's a "cure that could kill you but 'could' is better than 'will'" everytime. I know nothing of such things really - and won't pretend to - but I truly do admire the way you've handled yourself under such truly trying times. There's nothing I can do beyond to wish you the very best and tell you you are an inspiration to me and surely to all
Sammy G
Ex-Bluelighter
Thought this was my Lousy Year, Max, but thanks for putting things in perspective (and then some).
All the best in making it through, and I hope the prognosis is as good as it can be.
All the best in making it through, and I hope the prognosis is as good as it can be.
Chatative
Bluelight Crew
Sorry to hear of your troubles continuing in another vein max.
I don't know much about your cancer but I assume that, in the worst case scenario, 5 years is longer than you would have got if the chemo didn't work?
Your courage in the face of these problems is admirable.
I don't know much about your cancer but I assume that, in the worst case scenario, 5 years is longer than you would have got if the chemo didn't work?
Your courage in the face of these problems is admirable.
swampdragon
Bluelighter
Shit, sorry to hear that, max.
Inflorescence
Bluelighter
- Joined
- Aug 11, 2013
- Messages
- 2,513
Max forgive this emote truly heartfelt Been awake too long to articulate the response your post truly deserves so will just say I echo Shambles and all other similar sentiments of a similar vein posted.
Been awake too long to articulate the response your post truly deserves so will just say I echo Shambles and all other similar sentiments of a similar vein posted.
strungout2010
Bluelighter
Our cat was run over and killed this evening, lady who hit her took her to the vets and they contacted us , mrs strung out and baby strung out are in floods , I'm pretty fucking upset myself , absolutely gutted.
Rip kitten.
Rip kitten.