• Select Your Topic Then Scroll Down
    Alcohol Bupe Benzos
    Cocaine Heroin Opioids
    RCs Stimulants Misc
    Harm Reduction All Topics Gabapentinoids
    Tired of your habit? Struggling to cope?
    Want to regain control or get sober?
    Visit our Recovery Support Forums

Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

Status
Not open for further replies.
Hello Everybody . You all have been on my mind.
Special hello to my brother closeau. Wise Runtoparadise, SKR, my darling DixiChik and the rest of you. I lift you all up in my prayers.
 
DixiChik. I was at my pain doctors office and I found some information that you might already know about but I'll share, just in case. It starts off by saying "my opioid pain medication is slowing my insides to a crawl" This is by AstraZeneca. They simply call it OIC or Opioid-Induced Constipation. It trails off after that. They say talk to your doctor about prescription treatment options. It's dated 2015. Apparently there is some medications out there, probably made by AstraZeneca . I hope this helps you Dixi and or anyone else.You all remain in my prayers.
 
Hey Closeau,

SO glad you got your meds. I got mine, too! I can't wait to hear your songs, man. Remember we talked once about having a virtual band? Someone else plays guitar. I can sing, maybe a tambourine?

Hope you get that job. Praying for you. Sounds like things are turning up!

RtP, how's it going? Any news?

Dixie, how are you?

Good to see you, Speed King. Hope everyone is having a good night, and a good weekend.

How about some of our new friends? Anyone checking in? Updates?

I think this weather affects our mood as much as anything else. Once spring REALLY comes, and we can feel some sunshine, things will seem brighter. I'm in Boston; we had SNOW this week. TWICE. SNOW.

Hugs and Drugs, family.
 
No news on my end, but tomorrow's the last day of the two week "Easter" school hol break.

Sweetchildofmine & I stayed with friends for three nights not too far from here, but far enough to feel like a mini vay-cay.

Was awesome to just be with another mum I've known for a decade & her kids, as ours are at different schools. No fighting or tears, it worked so well.

My friend doesn't have chronic (or acute) pain, instead the pain of being cheated on for at least twelve mths (that she knows of),-& letting him home again after begging forgiveness, before then leaving her not once, but twice more for this other woman.

She still loves him, and kinda refuses to believe he won't return and stay. A heartbreaking story & three children ten & younger involved.

Despite all this, we still had a great time & both appreciated the distractions & company.

Rtp
 
Glad you had a good time Rtp. Its good to be with friends. Thats crazy about your friends marrige. See, dudes cheat, especially when married cause their pretty sure they will be forgiven. Sad thing is they usually are which leads to repeated cheating. I sound like Dr Phil, lol. Hes an idiot on tv here in states who pretty much bullies weak people and has gotten rich doing it. Hes not even a adr. Urrrggh, dont get me started. How are you feeling today?

I got my meds Friday sovmuch better weekend than i thought. Its amazing how bad i felt and one dose made me feel almost fully better. Its weird to having none and looking on floor for possible drop to having a full big bottle. It never ceases to amaze me how well these dilaudid work. I was in so much pain and withdrawl and it was like magic. Im def physically addicted to them and mentally i go up and down. I dont count obsessing about them when i was sick cause, well, isick. I do notice since its a different manuf that i nod out, just orally now, really quick. I take my dose and hr later im relieved but falling asleep, even when im typing. Im actually experiencing it righ now. Anyway, i think getting out is paramountbfor chronic pain patients. Even going to get gas or something. I know it really helpd me. Anyway, im off to get out. Have a great day pain peeps!!
 
Closeau I'm so glad that u got your meds n ur feeling better maybe u can stand a cold shower now I know that even water can hurt when in wd. I know that the referral finally got actually sent to pain dr...I really miss the place I was going to well actually I miss having my own meds...and having to either buy or beg something..
Banana..I thought the stimulated was supposed to help the pain not make it worse...I guess the dr thought so too if they gave u less meds than before...that really sucks..

Dixie I hope ur dr will give u the linsezz I keep seeming ads for it on tv..for chronic constipation like speed king said...
Well I have some stuff to do even though it's Sunday so I will be back later ...katt13
 
Thanks Katmomma. I feel tons better but i dont think im ready for another cold shower, lol. Im gonna ask owner of house how she does it cause i know she doesnt take cold showers. Guess i gotta give it more time to heat. I needed to take one this morning cause my ostomy exploded when i got up out of my sleeping chair. It was a bad one. All over me and floor and ruined my favorite shoes. I wanted to clean them but one of them was full of shit so i had to chuck them. Dam, they were my favorite. Luckily i had another pair but dont have money for new pair cause these chucks are pretty worn. Trials and tribulations of fucking ostomy bag. So i used some baby wipes insread of cold shower. Im still so used to that happening and id jump in hot shower with no bag. I miss my home!!!

So remind me, why dont you have your own meds? What is your medical condition. Please forgive my forgetfullness. Were you on meds at one time? Where you posting from? Im in NC so i go to Duke for mostly everything which is convienent cause drs can talk to eachother and everything about me is in the computer. I was happy bc they give you paperwork before you leave each appt and have a list of all your diagnosis. Well finally they had narcotic abuse, marijuana use and alcohol use all in remission. I thought that was awesome!! Anyway, thanks again for your words and fill me in on your stuff. Lat
 
Closeau I'm so glad that u got your meds n ur feeling better maybe u can stand a cold shower now I know that even water can hurt when in wd. I know that the referral finally got actually sent to pain dr...I really miss the place I was going to well actually I miss having my own meds...and having to either buy or beg something..
Banana..I thought the stimulated was supposed to help the pain not make it worse...I guess the dr thought so too if they gave u less meds than before...that really sucks..

Dixie I hope ur dr will give u the linsezz I keep seeming ads for it on tv..for chronic constipation like speed king said...
Well I have some stuff to do even though it's Sunday so I will be back later ...katt13
 
Closeau my back was broken in 2006 and I have rods n screws in it had laminectomies done on t 8 n t 9 n have something called myelomalacia which spinal bleeding..it's actually worse than I thought but at least I'm not paralyzed..so anyway oh yea u asked where I'm at..in Alabama. The drs here are so scared of dea most won't write roxi 30mg anymore. N since I had to get a new MRI done because the last one was done in 09..and my primary care Dr didn't even want to send me for one coz I had metal in my back...but it got done finally n referral sent to pain Dr ...so now just waiting on appt..anything will be better than nothing...well I do have tramadol but it don't do much...well that's my story...n I will ttyl...
 
Closeau so glad dilaudid helps ur pain. Did nothing for me..I pretty much took pill after pill waiting for some relief like oxycodone Gave me,- albeit in high doses.

Funny you mention dr Phil, I quoted to her one of his best lines. "The best predictor of future behaviour is past behaviour"...

If I could just do something with this damn shoulder/neck/arm pain. It's awesome having most of my chronic pain under control, but the neck to the hand is pretty intense.

Also keep in mind I can't really cook, brush my hair or teeth etc with a numb hand. So frustrating!! Hundreds of things we take for granted with our dominant hand, at least I've learned to live with it a bit, trying to keep strength & muscle in my arm.

Love & good karma to you all

Rtp❤️
 
Double post,- Darling Dixi, I was offered some cannabinoid oil from a friend of a friend who has been diagnosed with ms,- though she doesn't fit the exact bill herself.

Gosh I wish u were closer, it's kinda a hush hush thing even over here in OZ.

Parents buy it online to help their epileptic children lessen their seizures, but face the price of going to jail for it.

So it's certainly out there, unfortunately you just need a contact to see if it'll help you.

Chat soon

Rtp xx
 
Yeah, be careful Dixi. Its a dam shame you can go to jail just as long for that as cocaine. Silly shit. People out there use it so there are def contacts. I will see what i can do as far as locating some.

Katmomma, dam bro broken back. Youre right, at least youre not paralyzed. I hope your pain clinic appt goes well. Ive been thru Alabama a bunch. Tuscaloosa and my sister is an Auburn alum. Shit is tight everywhere man. I never get below 5 or 6 on pain scale so i could use more help but im at my limit. If i could take what they wanna give me, Exalgo, things might be different but my insurance doesnt cover it or Oxycontin. Just MS Contin and im just wasting money on those. Anyway, thanks for explaining and kudos to you relearning simple tasks. Later
 
:| Hey Peeps! This one's gonna be LONG, so beware of boredom! Yea, it's a fucking crying shame that folks who are looking to get "high" or "trip" or "party" or whatever the fucking terminology is...can buy ANYTHING they want, no matter the legality.

I have no contacts for anything drug-related, as I never took drugs for recreation. Hell, I took very little for monstrous pain...Darvocet til taken off the market. I've only felt "relief" from pain in a dentist's chair or on an operating table. I could never have the luxury of "no responsibility", "nodding", "chilling", "couch-locked"...again, terminology. I don't wanna get high, I'd be content just to be able to get "up" without horrid pain. Recreational use is not a mindset that I can comprehend.

I don't judge...So PLEASE don't take offense...anyone. :\ I'm just being honest when I say "I don't understand". Throughout my childhood, I witnessed my aunt and uncle drunk and drugged out of their minds. They were volatile and combative. It was utter destruction for all who witnessed it...especially us little kids. My mom broke up the fights of the crazies, and made us kids clean up their mess. Why? Read on, if you dare.

I have worked since I was 10 years old (yep). I will work until I'm on the root side of the Bermuda grass. I've no choice, really. It's expected of me. It's my identity. Thus, I need a clear head and sharp mind that most pain meds don't allow.

In case y'all haven't figured it out, I was besties with the Flintstones. I grew up in a time where education was paramount, and accomplishment was everything. Perfect was never good enough. My mom would have literally killed us if we took drugs or drank alcohol. We just didn't do it, aside from a little Jack Daniels at Ole Miss. She instilled such fear with the regular beatings. She'd beat us until we bled...then beat us for bleeding. We knew better than to cry. She was (is) wicked, even now at 90. I still fear her though I'll soon be 55.

So...
I'm not street-wise, not even a smidge. The medicinal CBD:THC oil is not something being hawked in a dark alley. I'm certain there are modern day web charlatans that sell miracle oils online. IMO, the biggest street dealers of any drug are big pharma. Yet I can't obtain this MMJ oil that may save my colon and my life.

KM...Just realized you're in Bama! Roll TIDE! Unless they're playing the REBELS! Seriously, I'm sorry you're caught in the hamster wheel of "non" pain management. We ALL know the struggles to obtain proper care. Your broken back makes me cringe, doll baby...rods, screws and all. Gentle hugs to you. I hope you'll find a comfy space and stay with us a while. You're just "next door", unless you're on the Georgia line.

Closeau...The Exalgo is indeed outrageously expensive...BIG PHUCKING PHARMA rides again! I'm careful, I promise. I don't trust easily...ask my husband. But that's a whole 'nother story from a long time ago.

Bless his heart, he spent his birthday taking care of me. I couldn't eat, sleep or stop pooping (after harsh bowel meds). I was so weak, sick and unconsolable, once pot patrol ended, he insisted I take my Ativan (at 3 in the afternoon). He lay still and held me while I passed out and slept for a bit. He said his only birthday wish was for me to feel better.

THANK YOU, C...for sharing your most intimate feelings about your ostomy bag. It's not funny, I know...but your expressions and honesty make me laugh. Laughter is GOOD STUFF, even when forced to laugh at ourselves. You're a trooper, my brotha. Did you get the job? If not, there's something better for you! Stay strong.

SK...Thanks for your thoughts and suggestions! Movantik is ungodly expensive and my insurance won't approve. My PM doctor is as useless as teets on bulls, so he won't advocate for anything other than his $280 per 10 minutes, tops! I'd rather terminate my contract and invest that monthly charge into legit CBD:THC oils or tinctures. Ole Dixi is burning DOWN!

RTP...I hear you regarding the things we take for granted when we are well and able-bodied. I learned those lessons LONG ago. There were days when a hot shower/shampoo and fresh undies spelled VICTORY. My niece would French braid my (then 80's) Bon Jovi big hair to prevent the spiral curls from becoming knotted. I am sorry you are going through this, but happy you have friends at your side...and of course your mom and "sweetchild".

Anna...Hope each day forward eases your pain until it is bearable. Fingers and toes crossed, as I've known SCS to not meet expectations. I considered one early on, but neither it nor the "pain pump" would have been feasible for my body's buffet of pain! Whatever you do, my sweet, don't push yourself too hard. Give yourself the same compassion you give to all of us here at PAIN PEEP CENTRAL! Together, we are stronger.

SKR, Stef, Shroom etal...Come back! Come back! Let us know how y'all are doing. SKR, I'm concerned about your back pain without the Oxy. Are you okay? I care. We had a couple of news guys, but they didn't seem to stick around.

Chronic pain is like "Hotel California"..."You can check out any time you like, but you can NEVER leave." Ain't that the fucking truth!

I almost checked out this weekend, but ultimately I couldn't leave my husband and Dal...the loves of my life. :|
 
Last edited:
Just ran into the effect of the new CDC guidelines-the most anti-patient bullshit promulgated. I'll post later when I've cooled down.
 
Hi Dixi. You have a great husband. You both are lucky to have eachother. No job yet. Being discriminated against. To be honest, i dont know how long i could hang at a job but i wanna find out. My pain and ostomy bag is gonna hinder my performance. I changed clothes this morning and sat down and lit a cig and smelled it and looked down and its leaking. It used to leak from top but these leak from bottom. I threw a vase and it made a mess. That was a long time coming. Im on an ostomy forum like here and get a lot of suppirt from people who share my misery. Its cool. It was just a small vasr and i paid for it cause i had to spend an hr getting all the little pieces so my cat doesnt get hurt. I talked to my sister for the first time since Dec. we text but you know. I came out of it realizing i get more comfort and support from yall here and my ostomy site. She just cant relate. She doesnt understand why my bag and pain bothers me so much. Uuugh. Oh well. Its a shame i have so much family but no one understands me. Thank you all for understanding me. Like i understand yall. Dixi, its a good tthing not to have street smarts. If you have them you were out doing bad shit. I know cause i was that kid. I was always down for whatever until it came time to hurt people. I was a peacemaker. Anyway, im sorry youre having a rough time Dixi. For anybody new to this thread, this woman is the def of class and toughness. I wish i had an ounce of your toughness. There has to be something that can be done for you. Like ive said befote, i wish you could come to Duke. My surgeon would be all over your case. Dont rule it out. Anythings possible. Well, me and Captain Shitstorm have a date in the bathroom, lol. Stay tough peeps?
 
Hey Dixi, yeah I'm just really depressed so I've been hiding away. I'm addicted to opiates (suboxone) but now there's no pain relief so that kills me mentally, I take benzos simply because I'm addicted (nothing major) but I'm under dosed on Valium which is the easiest one for my sub Dr to prescribe otherwise he gets scolded by the Government body that registers everyone who is on maintenance so I'm tempted to Dr shop (more) but I'm sick of lying, it destroys my soul. Lying was the main reason I called it quits to hard drugs a decade ago and thanks to pain which is tied in with Karma I'm a drug addict again....yay. So I hate myself and cry when I think about my son having a dad like me, and my poor wife who is my rock is cracking.....cos her stupid husband kept hitting her with a sledge hammer. I feel sorry for her, god she's tough

As tough as you guys and gals, take care folks.
 
Listen SKR, i can tell guilt is eating you alive. Im so sorry. Im dealing with it too. I often wonder if i dont stop what kind of shitty father ill be. My daughter lives far away but it doesnt matter. Try to make a gratitude list. Self explanatory and at the end if you just have one thing on there youre not out of the game yet. If dr shopping makes you feel shitty, dont do it. I know its easier said than done, trust me. Guilt can destroy a soul quicker than anything. If youre in pain and Suboxone aint working, change it. I always thought it was shitty for pain anyway. Im currently fighting a battle of abuse and its ripping me apart. Im begining to hate people again and feel quite evil when im out there. Now i got different manufacturer and its not the same so for a month i gotta use these. Maybe God giving me a chance. Most people in our pisition dont believe in God but i do. Id be dead many times over if it werent for Him. Man, i didnt mean to butt in here but felt like i had to tell you youre not alone at all. Im addicted to opiates and benzos and adderall. I need speed for the day and tranqulizers at night. My ostomy bag continues to leak shit all over me. I rent a loft in a house with no water. My life is a big bag of shit right now. Sometimes i just wanna leave this place. I have been struggling since i was 10 yrs old ccoincidentaly thats when i got fucked up first time. A codeine pill and a beer. My mom about killed me and my grandpa. So i cant live and can. Bro, things will get better and better. Maybe im erong but faith is all i got. I pray thinngs turn around for you and im sure youre a great father. One day at a time SKR. Take care
 
SKR, sorry you're not improving in any way. Have you fought for more tests, more imaging?

I read today at my physios about something called thoracic outlet syndrome. Apparently many drs don't know it on presentation & nothing generally shows up on MRIs etc. Only clinical examination by a dr experienced in clinically diagnosing can help.

Being on maintenance as a last resort to being under medicated for pain is not reason enough for your psych to not refer you to a higher PM group in your area to go back onto full agonists.

Pain is pain whether there's a history of subs for whatever reason!

Pick yourself up & battle these arseholes. R u still taking your ADs?

Closeau is right about being grateful, a journal that you can write at least one good thing in everyday is a wonderful & well founded idea.

Try to resist dr shopping, it'll be all over your medicare records should anyone care to look.

Rtp
 
Thats interesting about thoracic outlet syndrome. Learn something new everyday. How are you feeling today, or tonight where you are? Any news on your condition? Ive been urged to see my surgeon about my hernia under my ostomy. These bags are supposed to fit on a somewhat flat surface and with my hernia its like sitting on a baseball so i leak alot. Im not going to though. First i remember asking him about it and he just shrugged it off and two, i dont have the strength for another procedure. I still have nightmares about my surgery so going back in to fix something that isnt bothering anything i cant do. If theres a problem, yeah but not untill then. Im flat out scared of hospitals and Drs now. Ive gotten some great tips for my bag. I got 12 left and i need them to last till the 3rd. Hopefully that will happen but i went thru 2 in an hr yesterday. Trial and error. I need to find a way to get Exalgo. Maybe the company has some sort of program. Im not getting any relief from ms contin. Thats supposed to be my base and dilaudid for breakthru. Well i dont have breakthru, i have pain. I take dilaudid every 4 hrs so i take it, hr to kick in, then bout hr and half of dulled pain then right back in it. Even the head Dr wanted to put me on Exalgo. Im gonna research it. My insurance company helps on some stuff but extended release opiods they have nothing. I just wish id get used to the pain. Mornings like this where my abdomen is killing me makes it hard. I have no desire to do shit. I gotta go to store but im procrastinating. I have a big chair with an autumen and this is where i sit and sleep and it doesnt prop you forward like a recliner so i gotta use tummy muscles to get out and today i can barely get out. So i dont see it being a goid day and yesterday was bad so im on a funky roll. Wondering when my Cadillac and 20 million and Natalie Portman are gonna show up, lol. Gotta dream. Next post ill have paragraphs. Sorry. I forget. Have a good night Rtp and i hope youre well.
 
Well pain peeps, im left with a horrible decision. To go to the ER or not. Im having terrible pain on my middle right abdomen. Between my surgery scar and ostomy. The pain is massive and if i even move in my chair it gets sharp. Most people wouldnt hesitate and go but for me the last two times ive went there in pain ive had to have emergency surgery so im petrified. I wish yall were out here to guide me. I guess thats the downpoint to having online friends. I know i should go but im scared. All kinds of shit is crossing my mind like the immodium i take caused a blockage. I dont think its that cause im getting output and no blood in it. Im not running a fever or i would have went right away. I know, go get checked just to be safe. Not that simple for me. I simply cannot deal with another surgery. Those of you who know my problem may think its that. I thought that too but its been 3.5 weeks since ive done that. I messaged my pain dr and waiting on response cause in both places they say go to clinic not ER but that makes no sense causse they dont have scans at clinic. Im really scared yall so i figured id type and try to get me mind off pain. Im due for dose of dilaudid in 45 min and i might take 2. I also know if i need to double dose i need to go. You know what? Im gonna go. Its painful but not as painful as my surgerys. My landlady is home so she can take me. Worst time of day to go but hoefully ill get in quick. Its not who comes first its severity of case. I just asked her and were already in truck. Shes speeding, lol. It was sore all day and she and a tenant got into it and for some reason, it flared then. Stress induced? Idk. Im trembling. Please God no surgery. Yall give me best wishes and ill give the prognosis when im done which i hope is soon
 
Status
Not open for further replies.
Top