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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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Lol, I look like that Xmas toad every morning, and that's after my pills.

They should be able to diagnose pancreatitis with a simple blood test. Pin pointing the cause is another story but 9 times out of 10 it's caused by a sick to dead and necrotic gall bladder. The Dr will see raised lipase and possibly amylase levels and probably some wonky liver & kidney values too. It felt like dying to me......sickest I've felt.
 
HELLO, It's me...Betcha thought it was Adele, huh?

Am I the first PAIN PEEP "in" for 2016? I hope that's not an omen. Okay, fess up...How is your NEW YEAR treating you?

Quiet here today, as even my bowels aren't moving. Nothing changed there for 2016. Double dosed Linzess this morning because my left side feels like that same section of colon is distended like a balloon.

Cliffy and SKR...You'd think if I have pancreas issues, these dickhead doctors would find it. They did multiple blood draws while hospitalized in October. However, these are the same geniuses that couldn't figure out why I screamed in agony when they touched my left side to back. H-m-m, could that pain be due to my intestine herniating itself from fecal obstruction? Nah, too obvious.

I'm telling ya, doctors write me off when they see the Franken-surgeon scar from breast bone to pubic bone. Nobody wants a piece of that action. These "specialists" I encounter are legends in their own mind. They are not only unwilling, but incapable of treating the complexities of Endometriosis.

On a much lighter note...Hotty, Toddy, Gosh almighty...The Rebels won the Sugar Bowl last night! I think it was the first one since maybe 1970. SKR...I fell asleep in my chair again...so I empathize with those gnarly ass distortion techniques we awaken with! Hope you're feeling better and that you can find some relief with your meds, nix the thoughts of heroin. I've heard that doesn't end well.
 
FINALLY HAVE HOPE OF RELIEF- I saw my PCP and he said if I go on the methadone clinic once I give clean urines for 6 months he can maybe refer me to a doctor at his practice that prescribes methadone for pain. Only obstacle- was just booked yesterday for a misdemeanor charge of child endangerment by neglect (ordered RC benzos- thought 2 mgs etizolam would be fine since when I infrequently (until past few weeks- stopping now) take benzos I take 3-4mgs of clonazepam and over a bar of xanax when I rarely take that and am fine- no blackouts, memory loss, etc.). Well there was a blackout.

I feel like a huge shitbag already- I know everyone is thinking that. I am now going to AA/NA and am determined to follow the program. If they give me probation then I will be giving cleans. I really want sobriety (if you count MMT then pain management EXACTLY following a doctor's orders sobriety).
 
My daughter is with my parents now- not the system which I thank God for.
 
Hey all...
As mentioned in my last post, I been going through a lot of tests, scans, etc..
I also found a new doctor. He took a look at an MRI from a year ago of my low back, sacrum, and immediately dianosed me w/ Arachnoiditis. He was surprised I could even walk as it is so advanced. I started seeing him in November. He told me my cortisol levels were so low, I would be dead by Xmass if we did not start aggressive treatment. He said I been in such intense pain for so long, that my adrenals were just about worn out.
The treatment is heavy doses of pain killers, even gave me hydromorphone injections to take home for bad breakthrough pain. I've also started hormones, and heavy duty anti-inflammatories, Toridol injections, steroids, and small doses of amphetamines, as well as benzo's.
My list of 'scripts would be a junkies dream, but it's just keeping me semi-comfortable. A nightmare for me.
Oh, and the worst thing...He told me absolutely no MMJ because he has to answer to the DEA and other Fed's for what he prescribes(but, I also think it's his own issue, he's old, seems like a hater). I quit using the Herb day after Xmass, and I just feel worse daily.
But what else can I do? I NEED the drugs, or I'll die, and just can't risk any fuck ups right now. I hope this aggressive part is just temporary.
Really though, great news! I finally got a solid diagnosis on the mystery back pain I've had for 15yrs, and it saved my life! I even have inklings of hope for nerve regenesis in the future.
Now, hopefully I can get this inguinal neuroma treated in some way...
 
Well, ive decided to deal with my pain without narcotics. I see head Dr at pain clinic next Tuesday so well talk about best way to get off, prob a slow taper but id rather do it quick with week of Suboxone. Whatever he thinks best. Im moving and becides mornibg dose i worked my ass off today without my breakthru. I hsve other reasons too. My life will be better this way plus i can always go back but i thin ill be fine.
 
Well done Closeau to chose to deal with ur pain without "narcotics" ( god I hate that word, Only see it on cop shows).

Pain clinics will help you & stand by you if you undergo an intense workshop.

I know mine was expected to be five days per week, 9-5pm for three weeks and then be free of all meds.

I just haven't been quite ready to give it all up. Every single tablet that I've been prescribed over the years....it's a tough game?

Rtp
 
I prefer to go the more natural route for my relief. I have to take certain meds, thats a given. But theres one med that really helps me but while im in pain managment i cant use it. To me taking a couple of puffs of a pipe are much better than taking all these meds. Well see. We dont even have medical marijuana in this state but bill is going thru house in Feb. it will never pass in this dam state but i think i got another year here and im off to Colirado. I can get help there and be closer to my daughter. Win win. For now ill do what i can. Im nervous about stopping these meds. Ive been on them so long. But i was so busy i miseed 2 doses while moving yesterday and was fine. Ill give it my best. Wish me luck
 
GOOD TO "SEE" folks posting again... How is everyone? Were you able to "manage" your pain during the holidays and have a reasonably "good" season? As posted earlier, I faked my way through it...dreading the start of another year of the same. Yet here it fucking is, whether I like it or not. Woo-fucking-Hoo!

JM,
no judgment here, my friend. We're all pulling for you. Your daughter's safety and emotional well-being is paramount. It's good that she's with your folks. I do hope you can get the help you need.

Shroomy...I tried Kratom for the first time in June-July of 2015, after reading of its potential benefits for pain and depression. I did not see a big change with pain relief, but NO DOUBT it helped my mood. It felt like it somewhat lifted some of the heaviness of my depression. I was taking it (capsule form) when my sweetheart Dal Hotty died suddenly in July. I thought I went into shock, as I cried very little. It broke my heart, but I believe the Kratom kept me "comfortably numb". Otherwise I've no doubt I'd have been in the psych ward. Unfortunately, I think the Kratom made my pre-existing constipation ramp to a deadly partial obstruction. I stopped taking the Kratom capsules in early August because of the GI (clogged pipes). By October I was in ER, then hospitalized, with "a colon filled with stool and a bladder filled with bacteria".

My gut will never be "right" but I can't blame the Kratom. I wish I could take it, honestly. Just the mood lift strengthened me to push through the day to day debilitating pain.

:| FWIW...MSN has a lengthy article online today about Kratom and its potential for addiction/gateway to drugs. It's just a matter of time before Big Brother intervenes...as per usual.

closeau...Kudos for your desire to stop the use of opiates. If the weed is sufficient to ease pain, yet allow you to be a productive member of society, go for it. Just DO NOT burn bridges EVER with your med team at Duke. Keep your options open...always...as they will guide you lifelong with your GI issues. I'd give almost anything to have the skill and in depth proficiency of Duke University. Please proceed cautiously. Indeed, if you don't need the pain meds...it's best to taper off until and unless you do need them down the road. Cyber ((hugs)) my brotha. We're here for you.

RTP...How are you? I asked about you in earlier posts over the holiday break. I do hope that you made magical memories with your "sweetchildo'mine". Kids make Christmas, IMO. I hope your pain is well-managed, friend.

Dayem, SNod...May I please share your doctor? My dream is to have meds that could be administered IV (by a professional, not me). I can't even give myself the weekly B12 injections. My hubby does it for me. Your post is interesting on so many levels. Have you had facet injections or epis in your spine for relief ever? Those can actually cause Arachnoiditis. I realize they provide temporary relief for many. I myself have been through the gambit sans nerve ablation. I won't allow those procedures ever.

I empathize, my brotha, on every aspect of your diagnosis. The scream-worthy agonizing pain of sciatica, or pain radiating into the sacrum, down the leg is difficult to treat and maintain QOL. It sounds like you've found a gem of a doctor. Hang on tight and follow his/her rules to the proverbial "T". The cortisone level is interesting. Mine is opposite...high as a kite (19). It's been out of control for 2 decades now, since surgically induced menopause @ 33 (yay me!). My oncologist forbid my taking any type of HRT for life. Can't express what an emotional odyssey I've experienced for the "prime" of my so-called life. SUX

I don't "do" the New Year resolution blah, blah, blah...I live by the mantra of trying to be the change in the world that I want to see...Ghandi, right? I don't need to lose weight or pay off credit debt, or join a gym as the marketing machine shouts from all directions. I'm GOOD on all those proclamations, thx anyway. I DO NEED change, whether it's a career move or relocate to greener pastures, literally. It's tougher every second of every waking moment to find light in the darkness. But by God, I'm gonna keep changing those blown out bulbs and hitting the switches, lighting the fires under my own ass...starting Monday!!!

As Scarlet O'Hara said...I'll worry about it tomorrow. Today I've found temporary escape (yay) with Nurse Jackie on Netflix (7 seasons). I've clawed my way out of the "show hole" to escape via big screen.

Y'all enjoy your evening, if at all possible. For those who need encouragement...Listen for the rustling of my red and blue pom-poms, CHEERING YOU ON from a distance. I'm here if y'all need me.
 
Def Dixi, i plan on leaving on good terms cause if something else happens to me i might be back in there. Thats why im being honest about my weed use. Honesty goes a long way with adrs ive learned. Slow taper sounds nice but hard for someone like me to do. Im already down to 4 dilaudids instead of 6. I know subs are opiates that are hard to come off but i still think a week on Subs would be better. They could just cut me off and ill go to sub clinic. Its actually on same road. I can go in there. Just gotta go thru hell of day before you start. It was amazing l went about year ago and was in full withdrawl and dr checked me out and confirmed it and they gave ne half tab and 15 min later another half and withdrawl was gone. But i dont want to stay on it bc of withdrawing from subs. Slow taper is best. I still have enough till 22nd so maybe we can get it done. Im about to endure a big change in my life with moving to a situation thats gonna be hard so i dont wanna have PAWS al all in this place. Im not worried about burning bridges, just getting sick. Anything that makes you feel sick when you stop iis prob bad. They helped when i needed them but im at a point where my reief comes a different source and i think thats ok. I mean, for instance i took a break from working and i felt like shit. Hurting and sore and i hrt my hand so took my 4 dose and no relief so i took a couple puffs and felt much better. My attitude toward my bag is better and general attitude is upbeat and optimistic. Enough suffering. Now i can be myself and live. Where im going im gonna need it. I got a chill loft and space bit sharing the house with a lot of people. Only 3 live there but always people over. My new headphones are gonna save me and theres a big pit bull there who kills kittens so i pray my cat stays away from that dog. Putting a fence up at top of stairs. Idk man. Im trying to put my surgery behind me but very diffucult cause of the huge scar and the dam bag. Thing is fine for a couple weeks then leaks on me like today. Usually no leaks and ive had 3 today. Cable was takin out today so i got one dvd i keep repeating. I hope everything is over soon and getting some cool stuff with my pain med money. Its still in budget for meds just a different med. anyway, thanks for the advice. No burn bridging here. Ill keep this thread posted. My pain appy is next week. Im gonna keep tapering snd go to 2 ms contins tomorrow. Working hard at moving tomorrow. All i asked of this woman is she clear out the loft cause there was tons of shit up there and this was last Tues and we show up yesterday and nothing was done. Some dude said hes gonna get it straight foe me cause im taking a shitload of stuff over tomorrow. How do you put an ad out to rent out your loft and its full of shit. Ill be setting it up Tuesday and making it home with pics and got a bumch of incense im burning. Luckily i smoke cigs cause they smoke in the house. Def wouldnt have moved in if i didnt smoke. All the smoke rises to my room but gonna get some of that smoke febreeze. I hope i find another place before my daughter comes in June but if it works ill stay. I can actually save money here and without a 106$ tab for pain meds a month. Im so sorry im rambling. Im out??
 
^
kratomk can cause serious liver problems in a select few and if you use a lot it can cause all kind of weird-side effects / complications like blackening of the cheeks.
 
Shroomy,
How did you ever get your hands in 90% purity H? Were u in Cambodia or something? Import quality is around 76%. Or so I've read. <cough>
JM- how long was DD alone with you? Shit happens, I hope your little girl wasn't too affected by the whole thing. Thank goodness your parents are in the position to take her in :)
 
Me too Shroomy. Id get real naucous and cramps. I wish i could take it cause some people swear by it. Def helped me last month but tesults are stillbiffy. Allbibknow is id take that shit and 30 min later i would get nacous and cold sweats. Oh well. Other weeds argree with me so im ok. Today i am extremly relaxed and i have tons to do. Damnit. Its cold out there too. Gotta do it. Back is starting tobfeel alright. Every morning the chairvi have to sleep in kills my back. The ostomy requires me to be st an angle and so not even propping upbin bed helps. Im usedvto it.?ive slept sitting up for years since this Ostomy. It runs yur life when you have one of these. Trying to accept it better but its hard!! Weather i do or not its there. So much to do! Anyway, yes Kratom did same thing to me. Yuck?
 
Thats a great way to describe my life. Being stuck in between pain and depression and highs. That sucks for us but it was a great way to describe it. It sucks but im changing a few things to see if that works cause its hell. Anyway, great wording. Hope you feel better.?
 
any1 tried LSA? its the best Psychedelic with painkilling abilties In my opinion plus the euphoria is incredible!
 
^yep. If you lived near by I would be happy for you to remove the billion seeds growing on my HBWR vines. I haven't tried it for years, now that I'm a chronic pain sufferer you've got my attention. Good for pain you say?
 
If you're in serious PM eventually they'll get u a bed with a ketamine drip...if your pain is anything like mine.

But I've managed to avoid it since July, so just maybe, I've broken my own mould!!

Re: avoiding opi's, I like you two above must have something in my system!

Rtp
 
I just found this thread. I made a new thread and posted a question in another section and I have gotten a reply but I think this would be a better place for it. Would it be ok if I copy and pasted it here? Sorry I'm new ^_^ lol.

Everyone dealing with chronic pain is in my thought and prayers.
 
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