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Harm Reduction The Pain Management Mega Thread Version 4

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I feel like some people are just shockingly over prescribed, and everyone else is shockingly under prescribed. I mean, I have the worst fucking pain doc, ever... I told him lately that I can't smoke weed in the morning and my shoulder kills and he called me and said "there is nothing I can do." Uhhhh, you can give me a script for something. This is the guy who also gave me fent patches, but now wont give me some vicodin, at the very least. The closest other pain doc is an 1hr train ride and a 30 min walk. I tried to get to him and it wasn't possible.
 
I suffer with 7 out of 10 neuropathy pain 24/7. This has been going on for a year. No pain management doctor, primary doctor, hospital in New York State believes in prescribing anything stronger than Neurontin. I cannot live like this! My insurance changed and my copays tripled. Now I can't even afford to try other doctors. WTH is with these idiots? I sit in their offices crying in pain! I am disabled. They just keep reciting this new database law in NYS and that's why they won't prescribe. I am so depressed and done. If this is life it certainly is not worth living. All they want to do is implant wires in my spine.
 
I so feel for you guys infwct I feel kind of guilty living in the uk where prescribing is so liberal . If it was humanly possible to bring you guys over here and give you half of what ib get I would ( please no comment from the mods about sourcing narcotics....... Im speaking figuratively).......... My deepest sympathies.
 
Sympathy greatly appreciated. It is horrible and barbaric over here. Pain doctors want to only do injections and surgical procedures. They don't make any money from prescribing and the government has scared them into not prescribing. Even emergency room doctors here won't give you anything unless you were in a car accident. Sick and twisted. Their solution is for me to fork over $1,500 for a Qutera (cayenne pepper) patch for them to apply to my feet that isn't guaranteed to work and if it does, lasts 3 months. Only other option is surgically implanting a device into my spine to block pain in my feet. I can't afford the first option and the second scares the crap out of me! If this were a legal marijuana state I know I'd be doing that as certain strains are proven to treat neuropathy.
 
You mentioned neurontim (gabapentin) have u tried Pregabalin (lyrica) its very similat to gabapentim and helps neuropathic paim considerably im prescribed the maximum dose of 300mg twice a day bit dont always tske it. I kbow is hard to get in the US due tp the fact that its a brand name drug ane isnt always covered by insuurance and is expensive. It is however not a narcotic and so not as restricted. In fact i used to post my script to an American freind who needed it ut couldnt afford it. I dont think i broke any us or UK laws in doing so.
 
I am on gabapentin, as far as anti-anxiety / muscle relaxant affects compare, is it worth asking my dr to change me on to Lyrica, I'm assuming u can get it on the NHS

Edit: I'm getting it for pain but offlabel trying to make it help my anxiety as well , because I'm on a benzo detox that the GP doesn't know about
 
gerry978 said:
Here's my story. Hope someone out there can give me some direction. Live in the US. Went to rehab nearly two years ago for benzos and alcohol. Got out and a few months later was diagnosed with arthritis, spinal stenosis (lumbar) and small nerve fiber neuropathy (both legs and feet). When I got out of rehab, I had to find a new PCP, as mine of 20+ years retired. Saw the new guy (before any of the diagnoses) and was upfront about out of rehab and the reasons. Anyway, MANY doctors (rheumatologists, neurologists, rehab doc, podiatrist, pain management MDs), 2 MRI and EMG and multiple xrays later...........I continue to feel like shit, minimal if any relief. Tried on numerous NSAIDS, Lyrica, Tramadol and a narcotic topical. Currently maxed out on Gabapentin and Diclufenac. Also on Effexor and Nortriptyline. I do not expect to be cured or to have the pain gone. However, I would like to be able to walk more than 1/2 block or stand longer than 5-10 minutes (on a good day) and sleep more than 90 min. at a time. In folks' experience is 18 months an expectable amount of time with the trial and error method? Am I being unrealistic? I sort of regret being upfront with the doctors about the addiction.....what do you all think?..........I feel like I have a big "A" tattooed on my forehead. Thanks
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Never be upfront with dr's about addiction if you hope for your pain to be taken care of properly. Sad fact but that doesn't make it any less true.

Edit: and sorry about you guy's uncompassionate dr's. I've had a tonne of them in the past and am just grateful I have good ones now.
 
He right never disclose anything like that unless you absolutely have too. It almost always counts against you in a big way. Especially in the us. Ive seen it countless times..... People disclose addiction or illegal drug use and you have virtually no chance of getting effective pain management. I personally find that attitude by doctors disgusting......... And i work in healthcare
 
I am in a drug clinic as well as a normal GP clinic and in order to make things work half decent for me I have to tell the drug clinic I have a full time job and they're holding me back, and tell the GP that I can't go out and work because they are holding me back !!
 
benzoman12345 said:
I am in a drug clinic as well as a normal GP clinic and in order to make things work half decent for me I have to tell the drug clinic I have a full time job and they're holding me back, and tell the GP that I can't go out and work because they are holding me back !!
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Ive sent you a pm mate...check ur inbox......take care mate :-)
 
I tried Lyrica and had a bad reaction--suicidal. It is now on my drug allergy list. I know that yet again for the millionth time I need to try and find a doctor who will take this seriously. I have a nerve skin biopsy that proves I have a very severe case of small fiber neuropathy and this isn't made up.
 
brookevale said:
I tried Lyrica and had a bad reaction--suicidal. It is now on my drug allergy list. I know that yet again for the millionth time I need to try and find a doctor who will take this seriously. I have a nerve skin biopsy that proves I have a very severe case of small fiber neuropathy and this isn't made up.
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You had a reaction to lyrica ?? and you where fine with Gabapentin ???
 
I'm curious if anyone has ever failed one of their randoms at their PM doc, and what happened? A few weeks ago like an idiot I smoked for the first time in years, and of course I got tested at my appointment four days later. I may be ok, but either way I'm worried about it. I'm on a pretty high dose of opiates (4x 30mg Roxi's and 2x20mg Oxycontin), so I hope he wouldn't just cut me off completely at once.
 
It really depends on the doctor. When I failed with my previous doctor she called me 8:30am to tell me I failed when she knew I was extremely sick with a very serious health issue that was acting up and treated me like I was some strung out junkie She was gonna drop me as a patient but I was able to convince her to give me a second chance but I had to get a pain management evaluation from a psychologist to get her to write my scripts again. Thankfully the one she sent me to was pretty chill. When I borderline failed at my current doc she acted like it was a false positive and didn't accuse me when I said I don't smoke. I'm not sure if she actually believed that or just was bsing to see if I'd admit it. I ended up forgetting to sign the form to send it to the lab for confirmation. The next appointment she just tested me again and never mentioned the failed test.
 
Wait, I just had an epiphany... Why the don't doctors and pharmeutical companies work on a tamper proof dosatron type thing. A safe type thing that dispenses medication in your own house. If you got into it, it would ruin the meds, and it would distribute the high quality IR meds we want. It would be difficult, but if we can get to the moon we can do this. Even if it's expensive, if I could get the right med, on time, I would drop cash on it.
 
bennyZA said:
Wait, I just had an epiphany... Why the don't doctors and pharmeutical companies work on a tamper proof dosatron type thing. A safe type thing that dispenses medication in your own house. If you got into it, it would ruin the meds, and it would distribute the high quality IR meds we want. It would be difficult, but if we can get to the moon we can do this. Even if it's expensive, if I could get the right med, on time, I would drop cash on it.
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Genious
 
bennyZA said:
Wait, I just had an epiphany... Why the don't doctors and pharmeutical companies work on a tamper proof dosatron type thing. A safe type thing that dispenses medication in your own house. If you got into it, it would ruin the meds, and it would distribute the high quality IR meds we want. It would be difficult, but if we can get to the moon we can do this. Even if it's expensive, if I could get the right med, on time, I would drop cash on it.
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This already exists. I can't afford it. You may be able to. They're hundreds to thousands of dollars.
 
wait, what??? Hundreds of thousands? You could make one that is not 100k. Guaranteed it can be done. Instead of tamper proof pill, tamper proof pill bottle. A very hard case that requires a key or something that only the pharmacist has. If opened without the specific key that could have an RFID chip in it. I believe it can be done with 1k's or less. I guess I could invent this.

Do you have a link to the 100k machine? I'm assuming it's something that only pharmacies have access too.
 
JjjjjjThere are remote dispensing machines which are meant to replace pharmacies altogether (look up remote dispensing in google or Wikipedia). These would be very expensive.as its kind of like a phatmacy vending machine that can stock hundreds of different meds but there are far cheaper machines called pills dispensers (called med safes in the uk) that are given free to altzimers patients so they dont forget to take or take too much of their meds since obviously they dont have the memory.capacity to remember what they havebor havent taken. They wouldnt destroy the meds if you broke in to them but tampering would be obvious when they are refilled...they arnt expensive at all.
They are a kind of safe with a timer on that dispenses the required med at a certain time everydayand an alarm goes of to tell the patient to take the med. They are a metal safe and so a naturally resistant to being broken into without the electronic code. They aren't usually used for pain meds specifically but can be used for any med really. I may have mentioned i work for the NHS and we give thousands of these devices away for patients who need them so as i say they are very affordable...i can get more into if anyone is interested pm me
 
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