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Harm Reduction The Pain Management Mega Thread Version 4

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I'm so mad! I moved from CA where I was seeing a PM doctor he is the chairman of the board for pain management at Stanford so he knows his stuff. He treated me with 90mg ms contin and 40mg oxycodone a day for over two years.. I moved to Michigan because I lost my job and went to a free clinic...they are treating me like a drug seeker...giving me the 5th degree in questions and took away my MS Contin. Today I went for a refill and since I had the same pain and less medication I had to take more and I ran out 10 days early now and they want to do a pill count tomorrow. Obviously I can't bring an empty bottle, the doctor was a real bitch too she's like 'you're running into cultural difference that Dr. in California must be crazy.' I think she's a crazy bitch, don't call another doctor crazy. I'm looking for a new doctor since this one was shitty. I fractured my hip when I was 22 y/o(I'm 30 now) I had an ace-tabular fracture which is basically I broke the socket in my left hip and they bolted it back together. she thinks that my regiment is too much for severe degenerative hip disease, she isn't a pain specialist what does she know? Grrr. I don't know what to do I'm out and using Tramadol to keep the withdrawals away and splitting a couple of mc contins I had left in quarters. I'm unemployed and need to see a PM doctor not this quack :( Anyone have some advice for me? All of the local drug seekers fuck it up for people who are in legitimate pain and can't move.
 
Chronic pain and trying to go from suboxone back to morhpine sulfate

Please someone, i need help and advice.I'm in a mess. I've been disabled for 15 years with lupus, fibromyalgia, degen disc disease, five herniated/bulging discs in lumbar spine and two in neck, also have diabetes with peripheral neuropathy. About four months ago my pain clinic i'd gone to for 14 years closed down. I was on 160 mgs of oxycontin a day and 90 mgs of roxicodone a day for breakthru pain. I live in a bad area for drugs and a lot of the pain clinics got shut down. So the withdrawals got so bad i ended up in the hospital for three weeks dehydrated and very very sick. couldnt even eat or bathe or dress..My blood sugar rose to 400. When i got out of the hospital, i had no choice but to begin on Suboxone. I'd been on Subtex years before for pain and my dr. back then switched me over to methadone pills for pain.Then they switched me to the oxy's and roxies later on..I'm very sensitive to the naloxone and also have an allergy to all artifcial sweetners..Suboxone has acesulfame potassium in it an artificial sweetner, and also the generic pill, which i tried made by Actavis has sucralose, another artificial sweetner in it..So i've had to take benadryl with each sub. dose last 4 mos. and try to tolerate facial swelling, hand swelling,breathing problems,chronic cough with feelings of throat closing..I begged my sub dr for the subutex b/c it has no sweetners/naloxone in it, and he said no, only for pregnant women even though he could see me sick and swollen..i put on 24 pounds in four mos. and rarely leave my bed...So fast forward to three weeks ago, my primary care doc finally finds me a pain clinic to go to..I meet this new PM doc and hes rude and arrogant..He hates the idea ive been on sub for pain and sees i am allergic to it b/c of swelling and rashes on skin...So i ask him if i may switch to methadone pills like i did years b4 at old pain clinic and he says, No DEA has changed rules and he is not giving any crushable meds out anymore..He only give low doses of long acting meds, that are crush proof..So he gives me 15 mgs of Morphine Sulfate ..er to take twice a day...I was in shock, knowing i couldnt drop 12 mgs of suboxone a day and survive the withdrawals on 30 mgs of morphine sulfate er..and i told him this, he brushed me off and said hed adjust it if i needed and to call anytime..So i come off the suboxone two weeks ago, and begin the morphine. By day two, i was vomiting, in bed with horrible leg cramps, sweating, in terrible pain and screaming..So i call the PM doc back and his nurse says i should be fine since morphine is a full agonist...Now i know that suboxone is approx. 40 times stronger than morphine, and that the dr didnt even take this into consideration, or check a dose calculation chart for equivalancy of the suboxone dose i was on and what he should put me on..the nurse also says i probably have a virus going around and ill be fine, just continue...It was Labor Day weekend and i got really really sick..The PM doc was closed for holiday, So against everything in me i trudge back to the sub dr and explain whats going on..He says he will give me one week of the allergy producing sub to me for a week ifffff i let him destry my remaining 48 morphine sulfate 15 mg pills in commode and so sick and confused and trembling i comply, b/c i had no choice..Now i either have to call my PM and expalin this to him or keep taking a sub a med im allergic to, but one that i cant just hop off of like that from 12 mgs to a mere 30 mgs of morphine sulfate a day..Thats cruel and insane..I have an autistic son to care for and im sick anyhow...I'm so upset and dont know which way to turn..Im thinking of going to ER b/c im swollen feel like bees stinging me all over and my ears feel plugged each time i dose the suboxone, but the alternative was to suffer horrible w/d's on the ms contin...What do i do??? I desperately need advice..I feel lost and afraid, and dont know where to turn...:?

Sorry some of this is in bold, and half not...I'm sick and not in a good state of mind..Also I'm worried about the contract i signed at the PM doc. if u can call him that, since he didnt listen to me or try to help out much..Did i violate the contract since his nurse refused to ask him abt my issue and it was Labor Day weekend and they were closed for four days..Just afraid b/c i went back to the walk in sub clinic for a weeks help til the PM doc came bk in. They flushed the little 15 mg morphine, since i was getting no relief and guess he was afraid id mix them, which i know better..but im worried..thanks:(:!
 
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Well I'm starting pain management soon. Been living with multiple back problems for ~2 years now, the last year it getting pretty bad. Every day is a struggle to just not feel horrible by abusing drugs. Been dysfunctional for the last year. Standing hurts, sitting hurts worse, so I lie in bed a lot. Opioids/opiates dont seem to effect the pain much at all. I can take enough to get high and it manages the lesser of the 4/5 different pains but does nothing for the worse ones.

So far I got a MRI the other day and given a script for 50mg trams. Those are nothing for me... it doesnt seem right that half my pain seems mostly uneffected by opiates/opioids. Waiting to get the results and find out what all is really wrong with my back. I'm not sure how to talk with the doctor about some things -- I absolutely don't want her to know I've been abusing drugs up till now to self medicate. Or tell her that getting good n high on opiates still leaves the two worst pains uneffected. On the other hand, abusing speed seems to altar my perception of pain and does a good job at masking it.

I'm just not sure where I'm at with all this. Very happy to FINALLY be seeing a doctor and beginning treatment after over a year of struggling. I'm curious about non-opioid pain meds.

Re tricomb below: I can vouch for meditation/yoga sorta things. Im certain I'd be horribly depressed and mentally miserable if I didn't regularly practice it. I manage to keep a good positive mental outlook on things even having suffered with this crap getting bad for a year.
 
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Dr Pepper said:
Taking a break from pain meds. Exercise always seems to help. What do ya'll do for exercise? I had a fractured pelvis, so limited to swimming, walking, and pull-ups,dips and other upper body things. Kayaking is good too.
Anybody try some yoga? Other recommendations? Might start rock climbing again soon if it doesn't cause too much discomfort. Used to be pro status.
Click to expand...

Hydrotherapy, yoga, meditation, anything that doesn't exacerbate my GI conditions and neck/back.
 
helllp

Not sure how to do this, so ill just jump right in. I have had a bulging disc on my L4 L5 for about four months now. They started me off on hydrocodone but that didnt do any help and my dr said it was probably because ive been on narcotics before (shoulder surgery) so we would have to go with oxycodone (2 5mgs every 6 hours).. they sure as hell didntlast 6 hours, or even for.. but i was content with just getting a few hours of relief. Soon after, my doctor had resigned, so i had to see a new one from the same clinic. Hes ok, but seems as if hes not doing what he can. I also am bi polar, so after 3 months of the pain still being there, i brought my parents in so they would take me a bit more seriously on my pain level. Whenever a mental disorder is involved, it is no secret that doctors expect you to be dramatic. Every doctor that i have seen has told me "oh yes, you have a bluging disc, and probably a few pinched nerves." Oxycodone can only get you so far until you cant stand the pain anymore (especially when noone seems to understand the pain). My dr referred me to pain management. They seemed nice at first, but they actually had me taking thr oxycodone only three times a day. It was a change and i was still in a lot of pain. About 3 weeks after that appt, i was so tired of the pain, i randomly grabbed some of my psych meds (about a handful) and took them. I was sooo tired of drs not listening and kinda flipped. I was in ICU for a couple days then went home, still with no answers on how to solve my pain issue. Almost a week ago, i got injections in my back to hopefully solve the problem (this was all from the pain clinic). The dr and his nurse were both giving me completely different answers on how long it would take to work. The dr said one day (raising his arms in the air like it was nothing) and the nurse said 7-10 days. Until then, they gave me 15 mg ir morphine 3 times a day, and it hasnt helped one bit. They said they dont want to put me on the oxy for "liability" reasons (my mom gives me my meds as scheduled every day and ive asked her to do this. We told the docs this and asked if i could sign anything that makes them not accountable and theyre still beimg stupid). TheyKNOW exactly what my pain level is and that my back has a serious problem, and theyre still doing nothing. Please someone help me or give me advice on what to do, because my parents and i cant take this any longer...
 
I just kinda want to update you guys on my pain management progress after my surgery...

People, especially my parents, were giving me so much grief about taking opiates. My parents would ask to see the bottle and count them, that type of shit. So I decided to stop taking them all at once. Luckily, I don't get withdrawals, maybe a little RLS and some insomnia, but nothing I can't handle. This is true even after stopping fent, methadone, dope, and oxy. I'm just the luckiest opiate addict on the planet.

So I started smoking more weed, which I usually do every few days or so and now do once during the day and once at night. It's been a GODSEND. I started getting really picky with my strains, not necessarily CBD strains, but getting real good at knowing what strains work at which don't. Weed has been good for everyday chronic pain, but never great. Well, that all changed with a change in my habits regarding smoking, I have no, yes you heard me, NO pain, at all. Zip, nada, zilch, zero. It's truly amazing. I've never felt more blessed. All it took was getting very consistent on the strains, the time I smoked, and the dosages. I'm shocked, its been 4 weeks since my surgery and it doesn't hurt at all. I still don't have a lot of movement, and I started physical therapy, but still no pain.
 
I guess I am pretty much a newbie at this chronic pain stuff. It's been about two years. Seems like it took forever to get diagnoses of arthritis, spinal stenosis and peripheral neuropathy. So far, not much has helped (lyrica, gabapentin, NSAIDs, tramadol, PT, injections of steroids into spinal nerves and radio frequency ablation). Now I am referred to a spinal surgeon, although I am not at all ready to undergo anything that might be recommended. Does anyone here have any of these conditions? What has helped? I am also alcoholic and sober nearly 2 years. I am not writhing in pain, but walking or standing for more than a few minutes becomes pretty unbearable...........so all day I mostly sit. Needless to say, this is not a life. BennyZA..thanks for your last post. Have been thinking of trying to find some weed in the hopes that may help. Used to smoke a lot back in the day, but have not for quite a few years...back then I did a lot of shit. Thanks all. Gerry
 
dr thinks i may have a prolapsed disc so im gettin some CT scans to check my nerves n the situation out. on top of my usual pm meds, morphine and oxy, the dr put me on ketorlac temporarily which has been a god send at times of sheer pain, abling me to take half my usual doses. though, it cant be used long term. just after other feedback on peoples experiences with it. also whm has suffered from a prolapsed disc and what was your recovery regime like?
 
severe chronic pain sufferer: can what I eat effect an opioid?

I have severe interstitial cystitis with pelvic floor dysfunction. I am only in my early 20's so I have struggled for years for people to prescribe me anything that will help.

I experience 8-10/10 pain everyday ALL DAY. The only way I can do anything besides lay in bed is when I get a hold of morphine SR.

Instead I am prescribed 5mg percocet. I can only take two a day and the bottle says "one every 12" hours. Even though I know this is a 4-6hour pill.

I know from the years of self medicating that eating with the pill makes it work better. I get the high feeling (as in pain relief) way stronger than if I ate nothing.

My question is, can drinking or eating specific foods enhance the effectiveness of this pill? Proteins, dairy, fruit, juices, etc.

Alcohol works but because of the retarded acetaminophen, it is not a good idea.

I will say I read in a fentanyl pamphlet "do not drink grapefruit juice". Which in my mind means "drink grapefruit juice. A lot."

If no one knows, would anyone volunteer to experiment a little? I would appreciate it if someone would help me do this. It could benefit us all.

The reason this is so important is because I am on a pussy amount of pain pills. It's pissin me off. I can't even FUCK lately because it's so painful. I have to have my boyfriend bathe me and cook for me. I can't even shave my own legs dude. If I can make my weeny pain pill work better in anyway, it'd be worth it.

And yes I am disabled. My first ever disability payment starts next week.
 
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Ok, the deal with grapefruit juice is that you have to drink loads of it, about a litre, and not all varieties contain the right chemical for enzyme inhibition. It's a lot easier to take 800mgs of cimetidine half an hour prior to taking your opiate.

As for foods, things with high fat content help increase absorption. Some people like butter crackers, peanut butter, that sort of thing. Some people say that taking them with fizzy drinks helps, but I don't know if there's actually any evidence to support that.

FYI we have an opiate potentation megathread around here somewhere...

Best of luck!
 
Thank you so much! I am new so I wasn't sure where to post. I hope the thread will be moved somewhere better. I have been looking for such threads but there's so much to sift through.
 
I need to talk to my PM tomorrow.. oxy 5s are arent evem close to what I need for breakthrough, even being on the Fentanyl 100 mcg/hr patch, I need something like morphine... or dilaudid, opana that range at least (those are what I was on before I was switched to Fentanyl ... what best oral solution med should I try to get (not any oxy tho he wont increase my oxy yet he will let me switch to whatever else
My breakthrough pain is not good at all, and the Oxys dont work so much for me anymore)
 
OxyFentFast72 said:
I need to talk to my PM tomorrow.. oxy 5s are arent evem close to what I need for breakthrough, even being on the Fentanyl 100 mcg/hr patch, I need something like morphine... or dilaudid, opana that range at least (those are what I was on before I was switched to Fentanyl ... what best oral solution med should I try to get (not any oxy tho he wont increase my oxy yet he will let me switch to whatever else
My breakthrough pain is not good at all, and the Oxys dont work so much for me anymore)
Click to expand...

Just today my pain doctor upped my fentanyl patch dosage from 100mcg to 125mcg. He says if I have enough breakthrough pain to be taking morphine IR up to six tablets a day (as I have been), my baseline pain is not adequately addressed. I hope he's right. Given that the bioavailability of fentanyl transdermally is 92%, and the BA of oral morphine is 50% at most, he may be doing absolutely the right thing.

The new patches don't arrive until tomorrow, so it will be awhile until I know. With all of the greyish traces of patch adhesive stuck to me, I feel like the fent patches should say something witty like "Post No Bills."

Good luck with your pain person!
 
Good luck with that morphine lol. Be careful you might have just violated part 6393 of the drug manifesto ordinance- do not mention how much you are scripted or how much of a drug you have. Bragging or complaining about these details is counterproductive to discussion.
 
RodRamsey said:
Good luck with that morphine lol. Be careful you might have just violated part 6393 of the drug manifesto ordinance- do not mention how much you are scripted or how much of a drug you have. Bragging or complaining about these details is counterproductive to discussion.
Click to expand...

Noted.
 
Okay, I am desperate for advice here re: being fobbed off by doctors.

I have pancreatitis and rheumatoid arthritis (both extremely painful conditions). I was initially put on MST (slow release morphine sulphate) twice a day and oramorph (oral morphine syrup) for breakthrough pain. As my tolerance and pain levels increased, I was switched to oxycodone. 80mg OC OxyContin every 12 hours and 4 10mg instant release oxycodone for breakthrough pain (200mg oxy a day).
My pain got worse again recently and I noticed I was taking more like 240-250mg oxy a day. I told my doctor I ran out early because of increased pain. He sent me for scans which showed my right knee and lower back were in pretty bad shape from the arthritis and that I had 3 pseudo-cysts on my pancreas, one particularly large one actually growing around the main vein supplying blood to my pancreas they said would be especially painful but too risky to operate on since I already have damage/scarring to the pancreas they didn't wanna risk having to remove my pancreas altogether (or risk my pancreas necrotizing and causing septicemia if the vein cut off it's blood supply).
Despite having hard evidence as to why my need for pain management had increased, my doctor decided I had a problem with opiates (NOTE: I have never taken illicit opiates or taken my oxy for any reason other than pain relief. As soon as I DID start taking more then I was prescribed, I immediately told my doctor AND got evidence to my increased pain) and sent me off to a methadone clinic. So suddenly I find myself being cut off from the (very effective) oxycodone and dumped into a place with heroin addicts.
Now I am stuck on methadone which a) makes everyone assume I'm a heroin addict and b) really isn't that effective.

The specialists at the Pain Management Clinic said they don't write prescriptions themselves, but promised they would write to my GP suggesting I be started on Pregablin (Lyrica) and that I have my methadone increased also.
My GP refused to prescribe the pregablin ("I'm not prescribing sedatives or pain killers to you") and said that the methadone clinic were responsible for increasing my methadone. The methadone clinic said they prescribe enough to keep me out of opiate withdrawal but that it won't be increased for pain as they don't deal with pain or treat it.
So the Pain Clinic don't prescribe...the methadone clinic fob me off...and my GP refuses to prescribe and also fobbed me off.

What should I do? I feel like I went from getting excellent treatment and when my condition worsened, instead of being given additional medication/support, I was suddenly punished for it and now I feel I am facing gross negligence.

What can I do? I spend every day in agony. Every week going back and forth between these places desperately trying to get SOMEONE to prescribe SOMETHING.

What have I done to deserve this?
 
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