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Misc The Pain Management Mega Thread version 3.0

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my pain problems are probably minor compared to most but here goes anyway....

i was diagnosed with gall stones early this year......the attacks were horrendous so much that iv pain relief was the only way i could feel better but going to the hospital was a task on its own as i had a newborn son and my partner works afternoons - evenings. the attacks were always in the evening.

anyway a few months down the line i had surgery. they removed my gall bladder and since i don't have attacks as such but from time to time i get the same pain just not as intense. i would have thought since i had the surgery that the pain would subside completely but it still rears its ugly head from time to time as a not so great reminder of those awful attacks.

i have not been to the doctor as i know they would only prescribe me solpadol - codeine 3Omg and diclofenac that don't seem to help the pain in the slightest. even though its not as bad as the attacks its still pretty horrible to live with. it mostly comes on when i am trying to sleep and has me in a panic everytime that it will become that wrenching pain that made me violently ill.

does anyone have any suggestions, advice or anything really? is there a certain medicine that would help more than another? does anyone know why i still get pain? i know its not psychological as i could be in a lovely mood, very relaxed and chilled then all of a sudden, bam!

thanks for any replies.
 
my pain problems are probably minor compared to most but here goes anyway....

i was diagnosed with gall stones early this year......the attacks were horrendous so much that iv pain relief was the only way i could feel better but going to the hospital was a task on its own as i had a newborn son and my partner works afternoons - evenings. the attacks were always in the evening.

anyway a few months down the line i had surgery. they removed my gall bladder and since i don't have attacks as such but from time to time i get the same pain just not as intense. i would have thought since i had the surgery that the pain would subside completely but it still rears its ugly head from time to time as a not so great reminder of those awful attacks.

i have not been to the doctor as i know they would only prescribe me solpadol - codeine 3Omg and diclofenac that don't seem to help the pain in the slightest. even though its not as bad as the attacks its still pretty horrible to live with. it mostly comes on when i am trying to sleep and has me in a panic everytime that it will become that wrenching pain that made me violently ill.

does anyone have any suggestions, advice or anything really? is there a certain medicine that would help more than another? does anyone know why i still get pain? i know its not psychological as i could be in a lovely mood, very relaxed and chilled then all of a sudden, bam!

thanks for any replies.

When my mom had her gall bladder removed it caused her to develop pancreatitis which I am told happens in like 5-10% of all gall bladder removals. The area of pain is similar, although my mom tells me pancreatitis is far worse than gall stones.

The only thing that has helped her has been Demerol and after that, medical cannabis has helped her from day to day when Demerol isn't an option.

Doomed: I to have been advised about a spinal cord stimulator but at my age (27) I want no part of something fully implantable. But let me know how it goes for you, I'd be quite interested to hear about it.
 
anyway a few months down the line i had surgery. they removed my gall bladder and since i don't have attacks as such but from time to time i get the same pain just not as intense. i would have thought since i had the surgery that the pain would subside completely but it still rears its ugly head from time to time as a not so great reminder of those awful attacks.

i have not been to the doctor as i know they would only prescribe me solpadol - codeine 3Omg and diclofenac that don't seem to help the pain in the slightest. even though its not as bad as the attacks its still pretty horrible to live with. it mostly comes on when i am trying to sleep and has me in a panic everytime that it will become that wrenching pain that made me violently ill.

does anyone have any suggestions, advice or anything really? is there a certain medicine that would help more than another? does anyone know why i still get pain? i know its not psychological as i could be in a lovely mood, very relaxed and chilled then all of a sudden, bam!

thanks for any replies.

I read this in another forum:

"dr's don't tell you when you get your gallbaldder taken out there may be a year or to you will still have pain like the gallbladder is still there . I went through this I was at the hospital about every two week with the pain . I found out that you still have to watch wat you eat that would cause gass like apples, pears , cabbage. It will finally go away but it takes awhile. My firend would have a round of throwing up about every month, my mother did the same for a long time. so be careful what you eat."

Since your timeline is less than a year I thought you might like to know that it is normal to have pain for a long time after the surgery. You have to watch your diet but I am certain your doctor already gave you plenty of information on that.

On a personal note: Diclofenac is very hard on the stomach. It made me vomit non stop for a day after one dose. I use "voltaren" (diclofenac gel) on my back for facet arthritis but putting something like that into a gut that is already compromised? I am not a doctor but that is a harsh medication for some. Additionally, it is generally prescribed for arthritis so I do not understand why the Dr. prescribed that for your problem.

I have never had gallstones but understand the entire process of a Cholecystectomy is harsh. I wish I could provide you with a remedy but all can advise is that you steer clear of diclofenac and eat sensibly.

Any pain of the gut sends me into fits so I feel for you. Hope all turns out well.
 
Hey bd. Im only 26 but my condition is degenerative and permanent so i looked at scs. Unfortunately they would have to put it in my neck and the risk of paralysis from the neck down is an 80% risk or 90% of 20% more pain so i wont be having it now.

I was really relying on that as my last option for some relief so Im heartbroken





When my mom had her gall bladder removed it caused her to develop pancreatitis which I am told happens in like 5-10% of all gall bladder removals. The area of pain is similar, although my mom tells me pancreatitis is far worse than gall stones.

The only thing that has helped her has been Demerol and after that, medical cannabis has helped her from day to day when Demerol isn't an option.

Doomed: I to have been advised about a spinal cord stimulator but at my age (27) I want no part of something fully implantable. But let me know how it goes for you, I'd be quite interested to hear about it.
 
^ an 80% risk of paralysis and a 90% risk of 20% more pain?? that is insane.
im sorry it didnt work out for you. any luck with the methadone? how is your day? <3
 
Hey bd. Im only 26 but my condition is degenerative and permanent so i looked at scs. Unfortunately they would have to put it in my neck and the risk of paralysis from the neck down is an 80% risk or 90% of 20% more pain so i wont be having it now.

I was really relying on that as my last option for some relief so Im heartbroken

Wow I had no idea we were roughly the same age. If you don't mind me asking, what condition do you suffer from? Scoliosis?
 
Well the cortisone shot definitely didn't work. I don't even know what to do now besides to keep plugging away at PT. I'm financially incapable of any imaging, I can barely afford a dr examination.
 
Check out this bullshit, I went to the Pharmacy last night to refill my Percocet last night and she is all we dont have anymore, I am WTF do you mean, she is all we have them on back order and will come in this week I went off didnt mean to but did, I am all what is the whole god damn world on them including my self what are we supposed to do, Just wait for you to get them and hope its soon, I am all this is bullshit I have NEVER heard a Pharmacy that "Ran Out" of meds, I grabbed my script and walked out. I had to go to the grocery store and use their Pharmacy never been there before, and gave them the script and they are sure we can fill this I am all you have them on the shelf right she is yes why? I told her what happened and she was surprised. Then she is all this is a controlled substance and asked for a picture ID I showed her and she gave them to me I am all thank you so much. So I will be using them in the future and not my Pharmacy. Honestly I cant get over that The only place to get every drug known to man and they just ran out!!?!?


WTF? Brother where are you in the US? I had no problems filling my percs and I JUST got my refill in California. What brand do you get? Name brand or which generic? I heard Endo (who makes the generic endos and the brand name Percocet) would have supply issues, but there's no Percocet shortage listed on the official FDA page.

http://www.reuters.com/article/2012/01/09/us-fda-endo-idUSTRE8081SE20120109
 
Got very weird alice in wonderland sensations this evening, I felt extremely small and very out of it - I will put it to coming off oxy and soma rather than DHC. The dose of DHC is almost neligable, I am considering plugging my dose as not to damage my liver. Still very impressed by the Carisomas effect on my pain even though it had some weird side effects - I put that down to this being classed as abuse rather than prescribed dosage, same situation with the oxycodone. Its a shame I have run out of them now and they don't seem to be used much in the uk and can hardly tell my doc about it.
 
WTF? Brother where are you in the US? I had no problems filling my percs and I JUST got my refill in California. What brand do you get? Name brand or which generic? I heard Endo (who makes the generic endos and the brand name Percocet) would have supply issues, but there's no Percocet shortage listed on the official FDA page.

http://www.reuters.com/article/2012/01/09/us-fda-endo-idUSTRE8081SE20120109

I do live in the US and I was trying to fill my percocet 5/325s and its generic. So when I went to drop it off the Pharmacist said that she had none and they were on back order, I was like WTF! too, it happened once before there, I dont understand it either but that is what happened.
 
How is everyone today?
Im making really good progress with my physiotherapy exercises, getting more strength and movement in my wrist :) my pain clinic told me there is no point in me having physio, they are so stupid/wrong again ! I really hate my pain clinic, they are really anti medication and think goal setting and CBT are the only things that work. idiots.
 
Hello everyone, first post. I honestly had no idea a forum existed for this. I broke my neck in 2006. C4-c7 is fused in the ant and they tried to fuse the facets along with it but no luck. I am looking at post plating as well now. I've had 5 surgeries and almost passed from a staph inf. last summer. This has been a nightmare and to top it off it's workers comp. no hurries there to approve anything. I take 60 mg of ms contin, 10-325 norco 4x daily, zanaflex, Robaxin, cymbalta, and Ativan daily for the pain and spasms. I am 35 and live in the s.e. u.s.
 
i feel for you. i am stuck in a worker's comp quagmire myself. they want to settle, but they want me to retire as a stipulation of the settlement. there's no way i am giving up a job with paid benefits for less than a $2million settlement, and i have a feeling that's several orders of magnitude higher that what they might actually offer. about every 5th doctor's visit they "forget" to pay for and since they want their adjuster informed every time i try to fill my prescriptions i end up paying out of pocket and getting reimbursed.

the hilarious thing is that i am a CHEAP patient. office visit every three months and a couple scripts. with what they have paid in legal fees they could have just offered me a decent settlement years ago.
 
I got a crap settlement after the first surgery. But medical on my neck for the rest of my life. 4 surgeries later and one to come, I am facing disability. Pain management is ok. But now a tolerance has built up to these meds after a yr. but i have no idea about stronger meds.
 
i feel for you. i am stuck in a worker's comp quagmire myself. they want to settle, but they want me to retire as a stipulation of the settlement. there's no way i am giving up a job with paid benefits for less than a $2million settlement, and i have a feeling that's several orders of magnitude higher that what they might actually offer. about every 5th doctor's visit they "forget" to pay for and since they want their adjuster informed every time i try to fill my prescriptions i end up paying out of pocket and getting reimbursed.

the hilarious thing is that i am a CHEAP patient. office visit every three months and a couple scripts. with what they have paid in legal fees they could have just offered me a decent settlement years ago.

I'd be in the same boat if I kept persuing...aint that America ?
 
i feel for you. i am stuck in a worker's comp quagmire myself. they want to settle, but they want me to retire as a stipulation of the settlement. there's no way i am giving up a job with paid benefits for less than a $2million settlement, and i have a feeling that's several orders of magnitude higher that what they might actually offer. about every 5th doctor's visit they "forget" to pay for and since they want their adjuster informed every time i try to fill my prescriptions i end up paying out of pocket and getting reimbursed.

the hilarious thing is that i am a CHEAP patient. office visit every three months and a couple scripts. with what they have paid in legal fees they could have just offered me a decent settlement years ago.

I'd be in the same boat if I kept persuing...aint that america ?
Huh ? Double post
 
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