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  • EADD Moderators: Pissed_and_messed | Shinji Ikari

The EADD Sickness and Pain Thread ver Pain of the Wrist & Cock

Hope you're beginning to find some relief for your pain Sprout. <3

Im just checking in really, not much change. Balancing (ie reducing) the pain relief to increase bowel activity and try to stop the dry heaving. I haven't actually been sick yet (despite not much passing through my bowel since Thursday, gotta be backed up a bit now), I think this is because my abdominal muscles just don't have the strength to push vomit out. It takes me about 10 minutes to sit up in bed, such is the nature of having an 8" incision from sternum to pelvis! Anyway I'm pretty sure all the retching is no good for these wounds so gotta try to stop it.

Really starting to feel shackled by the amount of medical apparatus still attached to me. I have one cannula with IV fluids and my morphine PCA. That's starting to get a bit sore, as is my urinary catheter. But the worst of the mess is still on my abdomen. Obviously I'm going to have to learn to live with the stoma bag again but the rectus sheath catheters are starting to do my head in. I'm not even having any painkillers through them, because they also make me sick, but I they probably have to stay for now as removing them could compromise the wound healing.

All good character building stuff though hey?
 
Went massively downhill overnight :(

Had a really good day and the registrar suggested we take down the catheters. All good, but then in the night I stopped being able to pee. The nurse on my ward re-catheterised me. That hurts, apologies to the rest of the ward, I may have shouted to some extent. Then nothing came out the cath so I had a bladder ultrasound (might there have been some kind of order issue here perchance?) and it was found to be empty.

The main event has been my epic vomiting though, about 3 litres in the last 24 hours, just watery green bile. (wonder if this has caused some dehydration which made my bladder empty huh?). A couple of times I managed to fill an 800ml sick bowl in just one motion, mostly through the nose. It's horrible when it happens but it makes me feel so much less painful and bloated for a couple of hours so I'm finding it hard to stop. If I don't stop I'll have to have an NG tube put in though another horrible procedure.

And then, because I'm just on IV fluids now and having no nutrition, soon they'll consider feeding me through a PICC or central line. Another horrible procedure.

Ah me, it's all going the way of my 2012 hospital disaster isn't it?
 
Josh man you ll make it through, im sure!!! I think all of eadd is sending good vibes your way... thats bound to start your guts moving man!...

Anyways i think and hope they ll wait a couple of more days till they put in additional tubes. The ng tube itself may delay thing so perhaps they ll put it in only if needed...
try to move about in your bed a little, chew some gum, and just take baby sips of liquid if you really need to.. hows the urine output after they put the cath back in? (And yeah they shouldve performed the ultrasound before they put it back in but i dont think it is a strict rule... also nurses tend to think of the most common causes for every symptom and treat directly. Personally i think there shouldnt have been any reason for you not to be able to pee several days after the anesthesia but they know their thing so cant judge)
 
Urine output is still quite low but I was super dehydrated this morning. It's getting better though, I'm on 250ml/h IV fluids still, haven't been sick since 10am, and drunk nearly a litre orally too. Pouch is sorta doing some bits again now. It won't be long before I'm doing all I can to slow it down I'm sure!

The NG has been delayed because I'm not at all distended. If I couldn't get this huge quantity of bile up or down I'd need it to shift it, but it's clearing pretty well, just not always in the right direction. If I can't eat without being sick soon I'll need the PICC line though, nutrition is essential to my recovery, I have no reserves left after the last 3 years of sickness. I weigh 52kg!

I dunno about the old bladder. I hope she's alright, can't be fucked with the idea of having to self cath when I go home, and face a permanent urostomy. This is why I stopped caning the Ketamine before I was done with it ffs. Although since I already have an ileostomy forever now, maybe it's no big deal to have another bag on the other side eh. According to my surgeon my pouch and my bladder were pretty cosy when he went in on Thursday. Which means he'll have had to Alice right down the middle... :/

I'm moving much better today despite feeling worse than yesterday which is reassuring. Been up and down the corridor, slowly, using my drip stand as a sort of walking frame heh. I love the idea that I'm basically walking up and down a public building in an open back gown with all manner of piss and shit bags on display :D
 
Oh Josh honey, I really hope you get on the path to mending quite quickly. Massive hugs to you love.

Also... OPEN BACK GOWN YOU SAY!!!! =D<3;)

Please get better soon sweetie xxxxxx
 
The fact you've kept your humour through out all of this Josh is amazing... by fuck, would I be whinging..

Keep flashing that hairy bum Josh, bags n 'all :D You're doing great <3
 
Just another piece of proof that doctors and nirses are pervs. I mean do you really need to have your ass showing? What, in case you need an emergency rectal exam? Does the color of the butt reflect blood oxygen levels? Is a drooping scrotum a sign you need more fluids fast?
;)
 
Well done Josh your our hero <3

DSC_0522.jpg
 
kingme said:
Just another piece of proof that doctors and nirses are pervs. I mean do you really need to have your ass showing? What, in case you need an emergency rectal exam? Does the color of the butt reflect blood oxygen levels? Is a drooping scrotum a sign you need more fluids fast?
;)
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Actually they're just for surgery really, they do actually do up completely but then they're undone so they're not stuck under you during the op when they might need access to all areas (I'm not sure I want to know what positions I had to be put in for my op!). I'm still wearing one now though because I'm spending a lot of time lying on my back and creased clothes underneath me will just fuck up my skin, so I undo it before I lie down. I have normal pj's with me for when I'm freed from cats and IVs though.

inflorescence said:
Josh!
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Haha, I actually do need one of these now :D although it was funnier asking a nurse to do it whilst I was fucked off my tits on painkillers too :D

kate said:
Well done Josh your our hero <3
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Aw thanks, but I'm no hero, I was a proper wimp last night when I had to be re-cathed. And for several other procedures. I'm like the worst patient ever in terms of being squeamish, passing out, flinching, shaking sometimes too. Tis why I tend to try to keep my spirits up in here, stay chatty to everyone and try to have a laugh, because I hope that makes up for the times I'm a pain in the arse.
 
Josh, your positivity throughout is absolutely incredible.
I wish you the best of luck and sincerely hope things improve for you.
<3

You have given me the courage to find out whether I have cancer or not.

I have spent months of my life too terrified to know the truth. The second I was informed of the possibility, I discharged myself and haven't seen a Doctor since. The hospital keep phoning for me but I have never picked up.

I can't keep on living in ignorance, but I have never felt such fear. I feel like a lost child.

Went for a 4 mile walk yesterday and I really am paying for it now. I can just about make it to the kitchen and back so I suppose it could be worse. Though I would sell my kidney for bloody Paracetamol at this point.
 
Good luck Sprout, it's never too good an idea to put off medical stuff. If I hadn't, there is a chance I wouldn't be in this mess right now. I mean I'd still have ulcerative colitis, but I might be managing it with drugs rather than six surgeries starting with an emergency one that if I hadn't had would have killed me within 48hrs (toxic megacolon, worth a Google image search).

I've been pretty rough today. I haven't actually been sick, but that has meant much more pain and nausea. Still, it's best for my wounds that I don't do too much retching. I'm so high risk for a hernia right now it's not funny, and I do not need that.

Feeling quite depressed. My original predicted discharge date was today, I checked the board earlier and it's now Sunday. The way I feel even that seems optimistic though.

Just want to get out of here. There is no peace or privacy here, no sleep, no nice things, no good nutrition. How anyone gets better in these places I do not know. Of course though, it's not practical for me to manage IV meds, fluids, catheters etc at home, so here I shall have to stay for now.

So much of my recovery depends on or contradicts other factors. The biggest thing for me now is to start eating, but I can barely tolerate tablets without retching still. But until I start eating, my new stoma will keep on pumping out litres of bile a day, which will keep me dehydrated, which means the IV fluids stay up and the cath stays in. I don't know. Hopefully feel better tomorrow.
 
You're probably sick of hearing it Josh... You're amazing... yes yes; I know we'd all just get on with it but you're getting on better than most... <3

My shit is in perspective. 8)

Sprout, go to the Docs man... <3

I worried about that shit for ages, on me balls...8( Ultrasound and what not and all is Dandy.... times are a changin fuck cancer x x x
 
Been having terrible voices of late and they are becoming more and more evil, a large part of it is sleep deprevation and the brain damage I got from a seizure so at least I can hold onto the fact that its nothing more than a messed up mind rather than some odd entity communication. Still makes it no less annoying and its relentless which makes it harder to deal with but I am some what desensitised to it now, still a fucker though.
 
Back in the zone regarding recovery this morning. Still feeling sick but not being sick now.

Goals today are: try to eat a little (already had half a slice of toast) to try to thicken up and slow stoma output, was a chore last night, emptying the bag every hour. I've switched from IV to oral meds now I'm not being sick, so drinking enough to have my IV fluids reduced or removed is also in the plan. Finally, the cath is coming out again soon so my last goal is to be able to pee so I don't have to have one of those fuckers put in again.

Hope everyone else is doing well today! :) <3
 
Surgeon overrules! Cath stays in but IV fluids come down. I'm happy with that. Got a sexy leg piss bag though, so I'm finally freed from the shackles of my bed and drip stand. Celebrated by putting on proper PJ's and walking the full length of the main corridor for the first time, about half a mile there and back!
 
5StarSquatHotel said:
Oh Josh, I feel for you bro. No matter how much I am suffering at least I am thankful its just my mind. All the best buddy.
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Not sure thats a better tradeoff... noone deserves pain, physical or mental... sending some good vibes your way...

Baby steps josh baby steps...

5star, ever sought professional help?
 
kingme said:
Not sure thats a better tradeoff... noone deserves pain, physical or mental... sending some good vibes your way...

Baby steps josh baby steps...

5star, ever sought professional help?
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Yeah man, had a benzo seizure in 2013 while in rehab and the brain damage has left me with relentless 'psychosis' so as soon as the rehab released me/I escaped, I have been heavily involved with the mental health services. They are cunts, they tried sectioning me 3 times and I tried all the new generation anti psychotics bar one......twice! Non helped and they made me more ill. I see a consultant psyc once a month and have a cpn whom visits weekly from the local 'hospital'. I cant say they have helped me at all, in fact they have caused more problems than anything. They don't know fuck all about the drugs they script and have even said that I know more about the drugs than they do. I have made massive lifestyle changes and where as I am in the best physical shape I have ever been, my head is fucked. I went to rehab to get off the doctors 12 year benzo and subutex crap and I left with psychosis and am now on 600mg of pregablin a day and 7.5mg zopiclone which does fuck all. I have been desensitised to a lot of my problems and have learnt that I cant look towards the services for help, I will just have to deal with it and hope it gets better.
 
kingme said:
Not sure thats a better tradeoff... noone deserves pain, physical or mental... sending some good vibes your way...
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Absolutely this, nobody should ever trivialise a health condition, be it physical or not. Sorry I talked over your post earlier 5Star, I hope you manage to find some resolve to your issue soon <3

Me, as per the thread title, I now have an actual pain of the wrist and cock! Haven't worked out how to do the velcro straps on the sexy leg piss bag yet, and had an incident whilst walking the corridor a while ago, although thankfully didn't lose any of the bag contents. And the wrist, well the cannula I just had removed was very well taped down, and now I have some kind of post waxing rash all over it :( I knew I shouldn't have used that title when I made this thread...
 
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