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  • EADD Moderators: Pissed_and_messed | Shinji Ikari

The EADD Health, Sickness and Pain Thread - share what ails you here.

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The early stages were most intense for sure, Squeegee. But the zapzzz were coming and going for the whole three months long after the acute w/d had gone away. Random flare-ups of the opiod stuff too. I really don't get on with SSRIs/SNRIs though so may be more sensitive to that side of things. Although it ain't just me that's noticed the three month thing so am guessing it's not that far out of the ordinary :\

Didn't think of trying any supplements though so they may well be of some benefit given the severe brainchem rapejob tram does.

Inso: I had to educate my doc about the major issues regarding combinations with serotonergics after coming a cropper meself due to ignorance. When I was first prescribed them he thought they were totally harmless if a bit shit. The surgery as a whole is trying to wean folk off 'em and limit prescription other than when absolutely necessary now. Not cos of the interaction stuff but just cos medical knowledge has moved on and has realised how horrid they really are at last.
 
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Shambles said:
Not cos of the interaction stuff but just cos medical knowledge has moved on and has realised how horrid they really are at last.
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Mmm - maybe not over this side of t'pond just yet - I went on a rant with my GP about prescribing long term Trams to people and he just kinda shrugged.. reckon a lot of GPs never bother studying after they graduate - I've had to explain to more than one the danger of simple infections with the anti TNF drugs I'm on
 
That's bad Shambles if they are just giving them out for everything, to be fair to my surgery they did call me to make an appointment on my 2nd re-prescription of tram to discuss why I still needed them.

The Gabapentin I've been on for about seven months now, and am probably going to need to be on for the forseeable future, can have some rather difficult withdrawal effects too which I'm not looking forward to. I missed a dose once during the day due to forgetting to take it with me and was feeling rather strange and anxious for a few hours until taking it that evening. Again, this has never even been touched on by any medical professional I've seen.
 
Is a bit scary really when us punters have to educate the doctors on the drugs they prescribe. Am lucky to have a very good relationship with my doc and can be straight with him and he appears to value my thoughts - or at least he certainly looks into what I say and responds at a later date when he's read up a bit. Squeegee is bang on - GPs mostly seem to sit on their arse and hope the BNF (or Irish equivalent) will save 'em. But at least some of 'em are open and keen to hear feedback from actual patients. Takes a while sometimes but usually gets there in the end. I blame the drug companies more than GPs really. GPs just get suckered in by freebies (that definiitely are not kick backs - oh no they aren't) and do what they're told or can remember from the haze that is being a medical student. Kinda ironic that the students most notorious for excess are the ones that dish out scripts on a daily basis really :D
 
although I'm not a fan of pain, I am a fan of my thread creations living on in a good way after my shambolic amount of pain in the OP. Im glad this thread is here, is good stuff.

Hope that everyone's pain gets better soon, my eye pain is virtually gone, I think I need a haircut so that my hair doesn't interfere with my eyes
 
Not too much pain now but the worst pain I ever experienced was last October, a week after my girlfriend of 2 years broke up with me. Ulcerative colitis took a hold of my colon and I was unable eat for 3 weeks. Lost 1/3rd of my body weight and was admitted to hospital with massive abdominal distension.

IV steroids and immunosuppressants did nothing and eventually the colon perforated infecting my abdominal cavity. Emergency surgery to remove the colon and create an end ileostomy (now I poop in a bag taped to my belly), but the infection caused an ileus for 6 weeks.

Basically my small intestine shut down letting nothing through, so I spent every day unable to eat without massive bile buildup in the stomach causing bloating pain that no opiate based painkiller could touch (and were rarely administered due to slowing gut function, for shame!), spent my days writhing and sweating on a hospital bed in agony until the inevitable evening chunder released the pressure. Had tubes in my stomach to drain but they never worked.

7 weeks of being fed from a big bag by a tube in my arm through veins to my chest every night and I was finally able to start eating a little bit of real food and found moving around sorta eased the bloating, but the 8" laporectic scar which had infected and burst open in 4 places requiring daily packing and dressing was still pretty sore.

4 months down the line and I'm pretty much ok again now but underweight and no muscle makes me weak. And in 12 month time the fun begins again when they open me up to either do a 2 stage surgery to create a semi functional colon from a bit of my small intestine called a j-pouch, or to remove my rectum and sew up my arse hole for good (feels like sitting on a thistle for 6 months apparently) if I decide against j-pouch (which has an 80% success rate - so not a foolproof option).

Ho hum! And this is all right after I recovered from a journey down a staircase to a hardwood floor, resulting in a few fractures to the skull and 3 hemorrhages, although that phenazepam based incident I have only myself to blame for and there was no pain, just about 6 weeks of memory loss and a bunch of very scared friends wondering if I'd ever be "me" again...
 
Heh, it's not so bad now, bags a bit inconvenient but life is pretty much back to normal. Drugs and booze can be consumed carefully (gotta watch out for dehydration with no organ to reabsorb water from my poo - I live on an electrolyte solution the taste of which has grown on me). Just thankful to be alive really, 24 hours with a perforated colon and the infection wipes out your liver and kidneys, 48 and you're dead.

I owe it to my surgeon for making a tough call at absolutely the right time, and then standing by me for the duration of my prolonged hospital visit, even popping in on his days off sometimes. The nurses on my ward all rocked too, half of them were Irish and they all managed to make me laugh (quite painful also - the fuckers) despite it being pretty dark times. People slate the NHS but the only complaint I have is that people have to work too hard, there's not enough hours in the day for them to do what they need to!
 
Ah man, doing a real piss for the first time after having the catheter out. That was intense!

Thanks for the kind words. To be fair I think if I'd had mobility problems after my surgery (beyond just being a weaker, low powered version of myself due to malnutrition) I'd have been a grumpy fucker too, so your mood is entirely justified imo!
 
For what it's worth... a very close friend of mine had to have the colostomy treatment a while back. She's still mortified about it even though it was essential given the condition she has. Was at least one EADDer who shits inna bag too (although he's banned now - for unrelated reasons... aside from apparently shitting all over the forum). Got a belter of a "comedy" emergency colostomy tale too but will save it for another time cos am knackered and have told it before.

Bottom line (=D) being that at least you can say for absolute certain you ain't full of shit ;)

/poor quality colostomy bag gags

<3
 
pontifex01 said:
Hahah yeah! Jesus the burn... I had to pull a Kill Bill whenever I needed to piss because my legs had atrophied but I was adamant about not using a wheelchair, so without telling anyone I'd just drag the chair next to my bed over to me, sit on it, and then kind of jump/drag myself along until I got to the toilet. Would take me a good hour just to go for a piss, and I once shat myself before I could make it LOL. That was embarassing to explain.

That bitch of a nurse lied about how much the catheter would hurt coming out too. I was scared shitless, cock was less than 1/2" and doing its best to hide, she tells me not to worry, it's completely painless, she'll count to three and then take it out. Then she goes "Take a deep breath for me first though" and as I start inhaling she just yanks it out with no forewarning. Apparently it's because if you clench your urethra you can do serious damage. Ughhh doesn't bear thinking about. How's the pain now? You on any meds for it...?
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I remember the nurse using the syringe to empty the balloon that holds it in the bladder before removing it saying "there should be 10ml in here", and then only pulling 5ml and saying "oh well we'll try to remove it anyway". Not sure if it was her sick joke but it came out ok and was only 5ml, maybe Irish catheters are bigger?

I get a repeat for Tramadol, but I'm not really taking them so much now after reading the sort of issues people get themselves into with them. I knew when I was waiting for the clock on my next dose even if I wasn't in much pain that it was time to stop. It's really only discomfort from the scar being stretched and pulled as I move around, and some adhesions between my manhandled intestine and the abdominal wall. I'm a bit sad that I never got any abusable meds since the all affect your gut motility, a morphine pca woulda made life so much more pleasant! How about you?
 
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Chronic pain with no help from Drs this day and time.

I have been in chronic pain since 1985 while I was working in drywall for 23 yrs, It was getting harder and more difficult to do all the lifting of the drywall and bending over often. One day I heard a click and could not stand up straight for a while when each attack occurred. I eventually was unable to work until I had to give up and find a less demanding job with so much lifting and bending. I went to collage at 37 yrs old to become a nurse thinking I could find a job in nursing that didn't require lifting and bending so I became a psych nurse. The patients walk up to you when they need something apposed to being a regular nurse where the call buttons go on all day and you're running around on a hard concrete floor. I then was in a headon collision and almost exactly a year from the first wreck someone rear ended me and that was the straw that broke this nurses back. The psych nursing went well for a while until I couldn't even handle that job either so I am still living with low back pain without medication. It's nit fair for Drs to be so afraid to give out pain meds because of all the drug seekers making anyone in legitimate pain have to suffer with no quality of life. No matter the reason they justify letting people in real pain suffer it is just not right. My new Dr is giving me hydrocodone 10mg which helps manage the pain but not enough to work. I'm just venting here because I don't seem to see any changes for a long while. The Drs have no problem at all prescribing meds for other illnesses with brand new drugs that are not time tested and cost are way too high to buy them anyway. It is not about the patients well being now but all about money. I accidentally came across this site and saw the topic on CWE and really need to know as much about it as I can to relieve this pain. Thanks for letting me vent. Thanks for letting me join the group.
 
v_fulcher said:
It's nit fair for Drs to be so afraid to give out pain meds because of all the drug seekers making anyone in legitimate pain have to suffer with no quality of life. No matter the reason they justify letting people in real pain suffer it is just not right.
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Too right. Doctor's incompetence at fault though. They have the power, not the drug user.
 
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