Stargazer
Bluelight Crew
- Joined
- Apr 28, 2013
- Messages
- 1,673
Ive been prescribed zomig. I found it the strangest feeling. It anesthetized me. I went from awake to not remembering falling asleep. Didn't get drowsy. From awake to knocked out. It also gave me very realistic dreams. So realistic, it was difficult to discern if they we're real or not.
We had a friend living w us, he used to walk to the store at 5am every morning to get a newspaper. I dreamt, he walked by me, said "Hey 10, I'm going to get the paper", I said "ok, see you soon", and out the front door he went. If I hadn't woken up a at 3am, I would've sworn that I had just seen him leave. Also, I would have some unpleasant dreams on it. My husband would wake me up, because I was obviously distressed. My husband experienced all the same side effects. I stopped taking it. If it works for you, great. Everyone is different.
I don't have a good reaction to Seroquel either. I get extremely drowsy, my legs feel like I have buckets of cement tied to them but, I can't sleep! The feeling stayed with me until the following evening. So maybe, it's just me that those meds don't agree with.
I used oxygen for a few years. There's even a "cluster mask", designed by a ch sufferer. It has a tight seal for around nose and mouth to keep the O2 in. You use a high liter flow of ,O2, 15-25 lpm for relief. The air is rushing out, very audibly I actually found the sound soothing.
That's why the cluster mask is much more effective. With a regular O2 mask, alot of the air escapes. I've done it all. Including nerve blocks, that would leave one side of my body paralyzed for 3 days. I'm "med-resitant and chronic". Most ppl with Ch's are episodic. They have them in Spring and Summer, or Fall and Winter. I've exhausted all protocol. I'm considered chronic pain. So, it really sucks lol.
To be honest, other than your pain being unilateral, it doesn't sound like you have cluster headaches. You said you're able to function(never happening w Ch's), need to lie down in a dark room, etc. That's characteristics of a migraine. With clusters, it's extremely difficult to stay still. It took years to be able to sit still w my eyes closed and meditate. I still tremble from the pain, instantly am covered in sweat, with it riveting off my jaw. You mentioned you had an injury, that makes sense. I'm not a Dr ., just someone very experienced with cluster headaches. Your Dr may have thought they were clusters, because you have unilateral pain, eye swells - indeed they are symptoms be of CH. But not the rest of it. I'm happy for you�� - you don't want CH's.
I haven't used it in a long time. It's difficult to get insurance to cover it if it's not for respiratory issues. Thanks for the info though.
Weird/negative dreams are common while in w/d and detoxing. Your garage had a special corner for your pst. Maybe that has something to do with it. Hope your well IAG. I'm here for you.
We had a friend living w us, he used to walk to the store at 5am every morning to get a newspaper. I dreamt, he walked by me, said "Hey 10, I'm going to get the paper", I said "ok, see you soon", and out the front door he went. If I hadn't woken up a at 3am, I would've sworn that I had just seen him leave. Also, I would have some unpleasant dreams on it. My husband would wake me up, because I was obviously distressed. My husband experienced all the same side effects. I stopped taking it. If it works for you, great. Everyone is different.
I don't have a good reaction to Seroquel either. I get extremely drowsy, my legs feel like I have buckets of cement tied to them but, I can't sleep! The feeling stayed with me until the following evening. So maybe, it's just me that those meds don't agree with.
I used oxygen for a few years. There's even a "cluster mask", designed by a ch sufferer. It has a tight seal for around nose and mouth to keep the O2 in. You use a high liter flow of ,O2, 15-25 lpm for relief. The air is rushing out, very audibly I actually found the sound soothing.
That's why the cluster mask is much more effective. With a regular O2 mask, alot of the air escapes. I've done it all. Including nerve blocks, that would leave one side of my body paralyzed for 3 days. I'm "med-resitant and chronic". Most ppl with Ch's are episodic. They have them in Spring and Summer, or Fall and Winter. I've exhausted all protocol. I'm considered chronic pain. So, it really sucks lol.
To be honest, other than your pain being unilateral, it doesn't sound like you have cluster headaches. You said you're able to function(never happening w Ch's), need to lie down in a dark room, etc. That's characteristics of a migraine. With clusters, it's extremely difficult to stay still. It took years to be able to sit still w my eyes closed and meditate. I still tremble from the pain, instantly am covered in sweat, with it riveting off my jaw. You mentioned you had an injury, that makes sense. I'm not a Dr ., just someone very experienced with cluster headaches. Your Dr may have thought they were clusters, because you have unilateral pain, eye swells - indeed they are symptoms be of CH. But not the rest of it. I'm happy for you�� - you don't want CH's.
I haven't used it in a long time. It's difficult to get insurance to cover it if it's not for respiratory issues. Thanks for the info though.
Weird/negative dreams are common while in w/d and detoxing. Your garage had a special corner for your pst. Maybe that has something to do with it. Hope your well IAG. I'm here for you.
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