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MDMA Recovery (Stories & Support - 4)

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I know it"s different for everybody but when would you guys suggest to start to consider taking medication if you aren't seeing improvements? I'm thinking around 6 to 8 months??

That's what I wish did.... Wait 6 to 8 months to try and get things to reset naturally.... But I wasn't that strong I guess.
 
Yeah Dr. A didn't say that, but I'll try and find some sources. Seems to make sense though. Dr. A did did say though that he thinks a lot of HPPD cases are gene related....

On another note, your not alone PatsFan on having symptoms show up a day later.....for me on my third relapse they didn't get real real bad until 5 days later.
Yeah I'm not to sure what to think about if it's more likely that your symptoms could be Permanent if you got them on your first or first couple rolls... But I do feel extremely unlucky I mean what were the odds I would get all those visual disturbances from just 1 roll?? Who knows really all I can do at this point is try to be healthy and not dwell on it and just have hope it will pass that's my only option
 
That's what I wish did.... Wait 6 to 8 months to try and get things to reset naturally.... But I wasn't that strong I guess.
Yeah I'm on month 3 so I figure after about 4 or 5 more months of stuff doesn't improve why not try the medication. I know that there is a lot of mixed reviews but I have heard that for some people it's like a reset for your mind to be anxiety free for a couple months then if you slowly tamper off it you could be fine after. I don't know how successful that would potentially be but That's going to be my next move
 
Yeah I'm not to sure what to think about if it's more likely that your symptoms could be Permanent if you got them on your first or first couple rolls... But I do feel extremely unlucky I mean what were the odds I would get all those visual disturbances from just 1 roll?? Who knows really all I can do at this point is try to be healthy and not dwell on it and just have hope it will pass that's my only option

Well it was my first time/ weekend with rolling that did me in...there's lots of people on here that only did it once or a few times it seems. There's one user I've been PMing with and he only did it once, but he's in year 3 and said he's doing sooo much better almost 100℅. He still has mild HPPD but his sleep and other symptoms are much improved.
 
Well it was my first time/ weekend with rolling that did me in...there's lots of people on here that only did it once or a few times it seems. There's one user I've been PMing with and he only did it once, but he's in year 3 and said he's doing sooo much better almost 100℅. He still has mild HPPD but his sleep and other symptoms are much improved.
Wow that's crazy man 3 years from 1 pill.... I hope that's not my case. I have to admit some of my symptoms are kind of unique and I have never heard of anyone else having them like I do. For example I can sleep a good 8 hours without really waking up in between every night allmost no problem but while lying down and even worse when I wake up I feel a bit dizzy and unbalanced. Oddly I can't take naps during the day ( if I try I can only fall asleep for couple min and wake up really disoriented) a lot of people are saying sleep is key so I'm hoping that's the case
 
I honestly think that LTC just happen randomly and it doesn't matter if it's your 1st time or 100th time or if you took a lot at once or took little. I think whatever it is it just hits you the wrong way just my opinion could be totally wrong
 
I honestly think that LTC just happen randomly and it doesn't matter if it's your 1st time or 100th time or if you took a lot at once or took little. I think whatever it is it just hits you the wrong way just my opinion could be totally wrong

Yeah, there are a lot of risk factors. Dehydration, stress, overheating, bad synthesized MDMA or even other drugs, low antioxidants in the blood, poly drug use, enzyme inhibition by food or medication, underlying mental illness, or simply just a bad setting, there are so many things that could go wrong and eventually cause a longer lasting change in brain chemistry and the mind.
 
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Hey! Just checking in with you guys. Had myself a big setback after a heavy night on NYE and I can say I'm over it for good now.

Spent many months agonising over having wrecked my brain or triggered a mental illness and the stress and anxiety was killing me and reduced me to a state of derealisation to numb me from those feelings.

Over 10 months now and all that stress and anxiety has gone. I think after all that time you start to feel pretty invincible and the panic and anxiety becomes far less pronounced. To think I only took MDMA in total 7 times it was always just me fearing the worst after a particularly heavy comedown. Some folks are just wired up different and handle anxiety and stress better I think.

To anyone still suffering, hang in there and keep going, time is your friend and things can only get better if you stick it out.
 
Unless you have permanent HPPD or damage.... Which does happen. I have all the symptoms this guy describes.

http://www.neurologytimes.com/printpdf/214160

99% of people will improve.... But let's stop pretending its a guarantee. One thing I can guarantee is that acceptance of the condition will help immensely. Which I'm having a hard time doing.
 
It does? Hes lived 20 years with the tinnitus and the black translucent floaters that I have, and haven't waned at all in my 5 months lol.

Yes I saw him once....he's retiring in December I plan to see him once more. He said I should recover.... but notice he said "should".....
 
I actually meant the sentence that half of the patients recovery fully over a period of 5 years. Sorry if this was inappropriate. I pretend to pick up only the good news.

Do you know if he is only researching on HDDP or in general on cases of what we call LTC?
 
I would like to disagree with "half the patients recover in 5 years" part. I believe it has to be more recover than that but just my opinion . I forgot to mention I do have minor floaters that are white and I can only notice them when I am driving my car for whatever reason I can't notice them indoors or for the most part outside unless I really look for it. One will just float by randomly lol. I could live with the minor visual snow, floaters, and blue light phenomenon that I have for a while but the thing that worries me the most is the fact that my vision just feels "off" it's hard to explain it has nothing to do with the visual things but it's allmost like I'm not perceiving thing the way I should. For example if I look down at the cement when I'm walking it just doesn't look right I can't really explain it lol. Does anyone else know what I mean?? I just feel like I don't have brain damage but something went off in my brain that can't be reversed and that's what worries me
 
I think it's minor derealization but even that I don't know cause it's the big thing with having derealization mean you feel like your in a dream state and everything feels unreal? I don't feel that way I know what's real and what isn't and I know the vision is just off. This is a 24/7 thing doesn't go away. During week 1 of my comdown I deffenitley had derealization cause my vision was like blurry and when people talked I felt wierd allmost like I was high on weed. That went Away thankfully. I would say if i do have derealization then during week 1 on a scale of 1 to 10 it was an 8 and ever since them it's been stuck at a 2 with no improvements.
 
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Unless you have permanent HPPD or damage.... Which does happen. I have all the symptoms this guy describes.

http://www.neurologytimes.com/printpdf/214160

99% of people will improve.... But let's stop pretending its a guarantee. One thing I can guarantee is that acceptance of the condition will help immensely. Which I'm having a hard time doing.
Adubbs also I would like to tell you that I clicked on Doctor Abraham article from that link and his study were he said only half the patients recovered in 5 years was from LSD not MDMA. He did say that MDMA could do the same but it wasn't studied so that could be a good sign
 
I would like to disagree with "half the patients recover in 5 years" part. I believe it has to be more recover than that but just my opinion . I forgot to mention I do have minor floaters that are white and I can only notice them when I am driving my car for whatever reason I can't notice them indoors or for the most part outside unless I really look for it. One will just float by randomly lol. I could live with the minor visual snow, floaters, and blue light phenomenon that I have for a while but the thing that worries me the most is the fact that my vision just feels "off" it's hard to explain it has nothing to do with the visual things but it's allmost like I'm not perceiving thing the way I should. For example if I look down at the cement when I'm walking it just doesn't look right I can't really explain it lol. Does anyone else know what I mean?? I just feel like I don't have brain damage but something went off in my brain that can't be reversed and that's what worries me

I know this feeling, could come from depression or general cognitive issues. It improved in my case with the AD therapy. I mostly mention it when someone behind me calls me, then I often look back but can't really focus on the person, but this depends very much on my mental state in this time, like if I'm tired or feel generally uninterested.
And it worsens extremely when I drink alcohol, but I already had this symptom before I took MDMA, but not in that strength.
 
I know this feeling, could come from depression or general cognitive issues. It improved in my case with the AD therapy. I mostly mention it when someone behind me calls me, then I often look back but can't really focus on the person, but this depends very much on my mental state in this time, like if I'm tired or feel generally uninterested.
And it worsens extremely when I drink alcohol, but I already had this symptom before I took MDMA, but not in that strength.
So AD therapy helped you? That's not CBT therapy??
 
So AD therapy helped you? That's not CBT therapy??

Yes, you can read on p. 42 my previous try's with SSRI, but now I'm about 3 weeks on 25mg Sertraline/day and it helps me extremely. And I'm now 1 year and 1 month into LTC.
I'm in psychotherapy too but it was completely senseless while I was unmedicated, because I didn't have any feelings, and words can't help with that.
 
Adubbs also I would like to tell you that I clicked on Doctor Abraham article from that link and his study were he said only half the patients recovered in 5 years was from LSD not MDMA. He did say that MDMA could do the same but it wasn't studied so that could be a good sign

The pharmacology of MDMA and LSD or Psilocybin are very different, but maybe the reason why they cause HDDP are the same. I don't know much about HDDP and why it actually happens.
 
It does? Hes lived 20 years with the tinnitus and the black translucent floaters that I have, and haven't waned at all in my 5 months lol.

Yes I saw him once....he's retiring in December I plan to see him once more. He said I should recover.... but notice he said "should".....

I think his case might be an special one, because it was mentioned that he actually landed in hospital and was even blind for a few hours. That would be a sign for maybe severe hyperthermia, which is known to increase the neurotoxicity of MDMA extremely, and I'm not sure if every HDDP suffering person here had such an increased body temperature.
 
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