JamesBrown - Illness, Hospitalization

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Captain.Heroin

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I have decided to create a thread in The Dark Side for our fellow Bluelighter, jamesBrown.

He has recently been hospitalized, and has gone through a lot. Up until now he has been posting about it in the Suboxone Mega Thread, but it's going to be easier to keep this topic situated away from the Suboxone Mega Thread, as I believe he deserves his own TDS thread for support with this matter, also for his sister's sake because she is using his account to keep us updated with his condition.

Without trying to go into this situation any further, I've decided I'm going to quote some of the most recent posts jamesBrown and his sister have made through his account. You can view the last few pages of the Suboxone Mega Thread (the link is in my signature) to see what people have already said in reply to him, but I'm going to defer people to this thread in the future for talking about this topic.

Thank you.


I haven't been on BL for a short while and I see that we have practically doubled our sub megathread and we have taken on some new members since I was last here. Welcome to BL and I hope you find the help and advice you need during your time here. This truly is an informative and caring environment.

Anyway, I wanted to post about the hell I have gone thorugh in the past couple of days, just like I did when I posted a few days ago about the days previous to that....but I decided against it, as it would be entirely too long, painfull, and it really wouldnt make a difference...I believe that I am capable of getting my point across with fewer words(allthough im sure this will end up being a long post either way).
As many of you know, I have been experience medical issues the past 3-4 weeks that have resulted in me having to endure non-stop excruciating pain that I believe originates in my spine and has now sread through my entire body(it had mainly been just my lower back and legs in the beginning but it has now entirely taken over my body).
I have been in yet another hospital the past couple of days, trying yet again, to figure out what is wrong with me. In case you didnt read my previous posts I had basically been treated like a junky scum-bag since the moment I tried to get preffessional help for my "mystery pain". I was always up-front with the doctors and nurses and one of the first things I would say would be that I am an ex-opiate addict and have been clean for more than 6 months....and had been stabilized on buprenorphine.
Telling my doctors this, unfortunately, turned out to be a huge mistake as they all have refused to treat my pain. Consequently, I want to kill myself most of the time I am fully concious, and the rest of the time I just sit with a blank stare, in a mind numbing pain fog(thats the best way to describe it). I have lost 21 pounds in the 3 weeks since this started, and have slept probably a total of 6-9 hr's in this entire 3 week period. I am dehydrated, weak, starving(I am unable to eat anything because the pain is too intense), in excruciating pain, and most of all, I am hopeless. Atleast I have now become hopeless. I have lost all respect for doctors, and cant seem to muster up any trust or faith in our healthcare community/system.
I do not want to recount what happened to me at this last hospital but long story short, they refused to treat my pain the entire time I was there even though I was crying and screaming like a newborn baby. My family ended up screaming and fighting with the hospital staff because of how I was being treated and they were simply told that no one believes that I am in pain and they think all I want is drugs to get high off of like a junky. Not only did this make my mother break down in tears(because my family has been the people who have had to witness me crying in pain, day after day, night after night, and they have had to to watch me waste away to an extremely unhealthy body weight, not to mention the strain this has put on my heart...I can feel it being stressed more and more, and fear cardiac arrest because I am not getting better, and no one will help) but my father too broke down and cried like a child because no one would help his son.....and I have never seen my father cry. I cant even put in words, how this made me feel. Unfortunately I was too exhausted to say or do anything in my/and my families defense......it hurt to breath, it hurt to talk, it hurt to even think. I wanted to die and give my family some sort of peace.
I still dont understand why these supposed medical proffessionals are blind to what is directly in front of them. No junky I ever heard of lost a pound a day of his body weight for three weeks and didnt sleep for weeksas well, just so he can spend thousands of dollars to get admittet to a hospital and possibly get a narcotic. You would think a doctor would understand that if I wanted to get high I would have shuffled my now weak and frail body to the streetcorner to buy some dope or oxy, etc.....
but no, these doctors take one look at the chart that says I use to be an addict, and instantly refuse treatment. For all I know I have scoliosis or some disease that causes severe pain and then death if untreated...but I doubt I will ever know that now, as I have tried several times to go the "right" route to get me well(hospitals, EMS, doctors, etc..) and that always ended in worse pain, worse stress, and just more questions.
But the worst result of what I have gone through is that I have lost the ability to get even a tiny amount of joy out of life, and I have lost faith in....well..... everything.......except for my family. Only they believe me and only they have any idea of what I am going through. It hurts so much to hear my mother cry every night because she cant help her son. Its even more pathetic because im forced to hear her cries over mine....because of the constant hell I live in now.
I ended up ripping my IV out of my arm yesterday and stumbled out of the hospital after the "pain specialist"(who i had been waiting on for 9 hr's) walked into my room and told me straight to my face that he doesnt want to help me because I was a junky and all I want to do is get high, and the only thing he will offer me is tramadol. This is where my father got into an argument with the doctor and after witnessing his son waste away for almost a month, and after doctor after doctor refused to help me, and after he had to hear his son cry every night, and after he had done every single thing he could possibly think of to help me get better and still failed,......thats when he started to cry.
.......and the "pain specialist" looked him square in the face and said..."your son is a junky, i will not treat him" and then he stood up and walked out of the room.....and then I commenced the ripping of my IV etc...
I hope that someone who happens to read this can understand how I was feeling while limping out of the hospital that day.....I cant even describe it......there I was, an American citizen, in so much pain I thought of suicide daily, and there seemed to be no one on the planet willing to help me. It was the saddest moment of my life, and I have sworn to stay away from doctors until I die(which shouldnt be long now).

I apologize for the long post, its just this is probably going to be one of my last posts and I wanted to explain to the few people who knew me here what had happened. I also wanted to use my experience as a way of teaching others of what is possible, even in the "grand" country of America. There is not always justice, and you are not always going to be treated with the respect you deserve or be given the treatment you need.
My weight is still declining, as I still cant eat or sleep, and my parents are somber yet try to be positive and act as my nurses, doing every little thing for me as my body wastes away, but I can see the pain in there eyes, having to watch there son basically slowly die. Because I see nowhere else to go, Im on a waiting list for another pain managment specialist, but its a 3 and a half week wait, and by that time my weight will be down into only double digits, and im a 6ft tall male. Im pretty sure my heart is going to fail me and I will be rushed to the emergency room and I dont know what will happen after that but I just hope that it ends up in a lawsuit and my parents get alot of money from those bitch ass, scum bag, doctor bastards. That would make me happy.
The only reason I can post this is because I took a shitload of klonopin and it is now starting to stop working so im gonna end this unintentionally long post.
I do not see myself posting again in the future unless my health gets better miraculously. I want to thank everyone here who has helped me and who have acted as my friend in the past few months.....i cant thank you enough.
I want people to read this and be more aware of there health and make the right choices in life so they dont end up like me, simply because I was a drug addict. Maybe the lesson is to not get addicted to drugs, maybe its to not trust doctors, I really dont know, but I feel that people will be able to take something away from this. I also want to stress that doctors do not know everything, and they are ignorant idiots just like the rest of us. All the doctors I have had throughout this entire experience.....not one of them knew what bupernorphine was. I actually had to teach them and they actually told me that im lying and made it up. ????

Anyway, thank you all again, and please wish for me to get better, or atleast wish that my pain goes down....even just a little would be a godsend. I would love to come back ot this community but right now I just cant. Im not really here anymore. I feel like I have wasted away to almost nothing and have lost hope of ever being the same person ever again. I now can tell a difference, for the worse, in my pain and my health in general, by the hour. I almost hope that I die. I just cant do it anymore.

Thanks for the advice, help, and guidance. I hope that all the new BL'ers will contribute to this community and make it better and better....because spreading the word about harm reduction is of monumental importance...and maybe someday, the doctors that refused to help me, will change there minds and understand that pain is pain, and must be treated. Drug addicts, and ex drug addicts are people too, and they are good people, and nice people, and intelligent people, just like everyone else.


this is james' sister and i would first like to thank everyone who seems to care about him and is wishing him luck, but i have to say that i am disgusted at what some of you are saying. he told me that he had explained in detail what he has gone through, and i would imagine that would have made it clear to some of you, like the man who posted this quote, that james has done everything possible to get better. and when i read about you telling him to suck it up, it just makes me want to say things to you that i wouldnt say to my worst enemy but he told me to act civil when i posted for him so i am going to respect that.but you saying that makes me sick to my stomach.
i want to make something cllear to everyone. he is dying. there is no doubt about that. he hadnt eaten or slept for weeks until last night when i gave him some oxycotin that i got from a nurse friend of mine. i would have never done that but given the circumstances i know i made the right choice. as soon as the drugs hit his system he completely knocked out and slept hard. he is still asleep actually. so its been 24 hours now that he has been asleep. i guess the pain was the only thing keping him from sleeping and as soon as some of it was relieved, his body just couldnt stay awake. he looks like a ghost and doesnt even have a personality anymore. he has now lost 25 pounds i think it is and looks like he just came out of a concentration camp.
so please, dont tell him to suck it up because thats what he has been doing for almost a month now while going to several hospitals and doctors, and specialists, and chiropractors.....and they all refused to help him. actually, i apologize, its a bit more complicated then that.
The last hospital he went to, he had taken a bunch of kolonopin before so he could even stand up and get in the car to get there. he was reffered to that hospital by one of his regular doctors after being turned down by several other hospitals, and this regular doctor said that this hospital was sure to help him and believe him. well, when he got there the kolonopin started to stop working but he was able to get a cat scan in before he was unable to lie down or move anymore. im not sure if you are aware of this but when he doesnt have drugs in his system, he is basically immobile and cant even lift a glass. me and my mother have stopped working temporarily so we can act as his home nurses beause he literally cant do anything for himself. he cant even put his clothes on or take them off, he cant eat without vomiting in horrific pain, he cant lie down without hurting his sides and legs, and he cant sit up without experiencing horrible pain in his legs. he pees and poops by us pushing him over on his side which makes him cry in pain, and then he goes into a bucket we put there. but this has only happened a couple of times because he was only able to drink about a quarter of a smoothie we made for him once and then about a half of another one another time, so there isnt much to shit out. he cries every few hours after he has built up the energy to do it again. in between the crying he just lies there, too exhausted to speak or move. sometimes he will groan and its sad but thats how we can tell he is still alive sometimes.
anyway, after the cat scans and 9 vials of blood taken from him, the pain had come back in full force and he was hunched in his bed, rocking back and forth very quickly, screaming and crying. atleast they had gotten the tests done allready we thought. the doctor told us it was a problem with his intestines and basically part of his lower intestine had rolled over itself like pulling a sock inside out, and it can cause the worst pain he said. he also said its extremely rare in people other than elderly or infants, but since he had an impaction earlier it made more sense.
well, they refused to help with his pain, even though they had a diagnosis. the nurse literally told us that they thought he was faking most the pain to get opiates to get high because they thought he was still a drug addict. we couldnt believe it.
the doctor said they would perform surgery tommorow. so we went home because we have many animals to attend to and james was only screaming and crying and didnt want us to watch him like that all night. he told us that he was screaming at the top of his lungs for 4 hours all the way until 4 am and constantly pressing the nurse button on the bed and they kept telling him a nurse would come to help him over the intercom but they never came for 4 hrs.
They finally came, but not to help him, they came with a security guard to yell at him and tell him to shut up and that he was disturbing other patients. He told us that between the crying and screams he told them that he couldnt help it because the pain was too intense but they still didnt believe him and called him a stupid junky and took him out of that room, and moved him into a room in the corner by himself, unplugged the power to the buttons to call for a nurse or help, and shut the door, leaving him there crying like a baby, rocking himself back and forth. He couldnt even adjust the bed angle because they had unplugged everything. im not sure but he told us he thought that was illegal.
that is when he called my mom and screaming and crying on the phone he begged for her to come and take him away from that horrible place. of course we all rushed over immediately. and if you can believe it, they wouldnt tell us what room he had been moved to. luckily he had typed it into his phone as they rolled him in. he told us later that he had a feeling of being surrounded by people that he couldnt trust at that point so thats why he did that even though he was in horrible pain. he called us and told us what room he was in and we went there and tried to get him some help. we asked why he wasnt being gien painkillers to help with the pain and they told us because he wasnt really in pain and that he wqas putting on an act. i dont know why they thought this because he had lost so much weight and looked like death and could barely breath or talk and his heart was so weak. we just couldnt understand why he was being refused treatment.
Anywa, sometime in the middle of the night a surgeon looked at his cat scan and said that the diagnosis was wrong and it must be something else. so we were back to square one but he was now in unbelievable pain and no painkilliers to help him. they also took him cold turkey off of all his regular medicaltions as soon as he went in, which included the kolonpin. he told me this could have caused a seizure, i dont know why but he knows more about this stuff than me.
so they needed to do another cat scan they said but after he drank this 32 oz liquid that would light up on the screen or something. and james wanted to do it and we did to so we could finally figure this out but he was in way to much pain to lie down or sit still. he was half sitting half standing and frozen solid, rocking back and forth crying, and then being silent, but all the time in horrible pain. they also wouldnt allow him to eat or drink anything. not even water. even though he hadnt eaten or drank in weeks. allthough he couldnt keep anything down anyway, but im sure some painkillers could have changed that.
so they yelled at him and told him to stop faking it and stop crying and screaming and that he was a junky and they told him to do the cat scan but he said he couldnt even move or lie down or sit still. he said the pain was worse than death. he kept asking us to kill him, and when he was too tired to cry, he would whisper ways of killing himself. it made my mother cry and she yelled at him to shut up. that is the pain he was dealing with. and he is not weak or cant handle pain, he has broken dozens of bones during a 16 year soccer career and never cried once. but this was something different altogether.

the doctors told him that he was refusing treatment and wrote that in there charts. he yelled and cried at them saying that he wasnt refusing treatment, it just was impossible to do the cat scan in the pain he was in. they of course didnt believe him and kept saying he was refusing treatment and kept calling more and more security guards to stand in and out of the room. i dont know why. maybe because he was screaming so much. maybe because they were worried he would go junky crazy on them. i really dont care, they just stood there. they of course woudnt give him pain meds to help his pain just a little so that he could do the scan. my parents begged the doctors to do this but they kept calling him a junky. they kept using that word. junky. junky. junky. i wanted to slap all of thos idiot doctors for saying that and treating my brother like that.
then they said they would call a pain management specialist to the hospital to see if he would advise giving him pain meds so they could run the tests. james was screaming that he wanted to leave at this point. he had had it with the entire staff of the hospital and the way he had been treated. it had put so much more stress on his allready frail body and heart, we were all worried he would have a heart attack. he didnt want to wait for this doctor because they couldnt tell us when he would show up. he was a very busy man they said, they didnt know when he would be there.
9 hrs later, im sure it felt like a lifetime for james, the doctor showed up. and james told me that he allready told you about how that doctor treated him. calling him a junky and refusing to help him. he then bit off his IV and then ripped it out of his arm an bled all over the place and limped out of the hospital. my parents and i were all weeping.

so dont ever fucking tell me or my brother to suck it up. he is the strongest person i know and i cant imagine lasting this long in that much pain. especially since he could have easily gone to the streets to get painkillers this entire time. he was trying to do it the right way, but instead, he was treated like scum. we had gone to so many hospitals, doctors, specialists, we didnt know what to do anymore. my brother is dying and we cant do anyhting. we cant go back to the hospitals because he left against doctors orders. and the earliest doctor he could find that could get him in was 3 and a half weeks away. i am almost positive he will not make it that long. that is when i decided to get him the oxycotin. just seeing him sleep made my mother cry and cry and cry. she was so happy because her son had been awake for weeks, screaming in pain, and that was the first moment she had seen her son in a peacefull state.
we are going to wake him up soon as we are worried about how sleeping that long could effect his spine and back. we are also going to try to feed him. because if we can get food and water down his throat, even little by llitte, he has a much bigger chance of surviving.
he has told us that he cant do it anymore and wants to die and that when he dies he wants us to sue the hospital and doctors and get alot of money. but this makes my mom so angry and cry so he has stopped saying and he now pretends like he has some hope in front of her, but he tells me he doesnt have any hope in anything anymore except his love for his family. he says he doesnt even care anymore. im sry but im getting too emotional to write anymore about this. i have been crying for a while now and cant type like this.
i hope that some of you people who are trying to give james advice about sucking it up or just find a better doctor, learn something from this because that is one of the reasons i typed all of this. the other reason being that he had asked me too. and i swear to god that if my brother dies i dont want to feel guilty for not doing his last wish. and it digusts me to people telling him that there are such simple answers to his problems. no there arent. he has tried everyhting. he has gone to over a dozen doctors. he has gone to almost all the hospitls in our city, he has dealt with the worst pain of his life for almost a month, he has not slept or eaten in a month, he has not had one peacefull moment, he is dying, and no one will help us.
we are desperate, and we do not know what to do.
he cant keep living like this without help.
please, people, just hope that my brother gets better, and he wanted me to tell you to make sure that you do your best to not let this kind of shit and injustice happen where you live. nowhere in the world should a family have to watch there son die because he use to do drugs and because of that, he is not worth giving painkillers that could save his life.


Thank you all for your kind responses about my brother.
and yes, i was only talking about that one person really who i quoted when i mentioned the whole suck it up thing. i am sorry for the confusion.

and yes, we know that our only option now is to go to a far away place or hospital or doctor or something and get him treated without telling about his past drug use. but one of the biggest problems with that is that he cannot sit in a car for more than a minute or two before his pain increases tremendously, even beyond what it allready is, which i cant even imagine because he says his average pain is a 1000 on a scale of 1-10. so i dont even want to think about how the car would make him feel.
also, my family is not rich, and im not even going to mention how much money we have spent on medical expenses these past few weeks. lets just say that its mind boggling. we do have insurance but even with that, there are limits on his plan and it still is extremely expensive to go to all these hospitals and doctors and have all these tests done and then have them done again because they fucked them up. just the ambulance rides to the hospital are almost $800 each. and i know my family will spend every last penny they have to help him and they would tap out every resource they could find to help james but even then, it probably wont be enough. its rediculous how much medical procedures cost.
just a side note..my brother was sitting in a chair with a pillow folded up and behind his lower back outside of the house (thats where he goes when his pain gets really bad, the chair seems to help some), and he said about 45 minutes ago that he was feeling the worst pain he has felt yet. well, actually he screamed and cried it. and it was like 1 am here and he was sitting out there screaming at the top of his lungs and moaning and writhing in the chair and begging for death, no joke, and eventually the police showed up cuz a neighboor thought someone was being murdered. seriouslly. my brother couldnt even look at the officers he was in so much pain let alone talk to them so my dad had to explain the situation to them and they were insisting that he go to the hospital but thats the last thing my family and james wants, and also, he isnt allowed back to all methodist and baptist hospitals in the city because of them thikning hes a junky and because he left without consent. and thats pretty much every hospital in the city.
i think you people are right about taking him far away and keeping his history a secret but first of all, my parents are very straight edge and would not ever withold information from a doctor. allthough they are probably getting close to the breaking point because there son is almost dead. i almost think my mom is willing to but drugs off the street to help him...thats how serious it has gotten. thats pathetic, in america, a mother is forced to illegally buy narcotics for her dying son so she can save his life because no professionals will help.
also, dont you guys think it would look weird to a doctor in a near by city that we drove all the way out there just to go to that particular hospital or doctor? i mean, thats probably suspicious to a doctor. maybe not, i dont know. i never really used drugs so i am not sure about the answers to any of these things and appreciate all of your responses.
if in the end we do decide to take him somehwere far away, i would have to buy him a bunch of illegal painkillers or a shitload of kolonopin for the drive to make it barely possible for him to stand the pain. is there a drug he coudl take that would just knock him out for the whole ride so he wont have to deal with the pain?
oh no, thats probably not a good idea because when he sleeps in a position for longer than a few minutes it makes his body hurt like a motherfucker excuse my language so he has now decided that if he ever is going to get some sleep me or my mom have to wake him up every 10-30 minutes so he can change positions or move to a chair and sleep or move to the floor or someplace else we would have prepared for him.
im sry about the long post again its just my family has no one to go to now and your help is like gold to us.
please help us with some advice so we can decide what to do fast. he only has 1 80mg OC left that i got him and that really only takes away about 10-15% of his pain for like 4 hours. unless he injects it then it only works for like 2 hours. i am happy tho about one thing. he told me that the pills I got him were not even made anymore and are able to IV but i dont like that but if thats what keeps him alive than so be it.
anyway please help me please please please. after this last pill he will start losing weight again and continue getting weaker. i truly appreciate your advice and I see why james enjoys this website so much.
thank you and please hope pray wish that he gets better.

also i forgot we cant take him too far away because his is on probation so he cant leave the county or surrounding area or something like that.


this is james' sister again. thank you all for caring.

to the man who said that we should stop making excuses and just go and do something allready, im not mad at you for seeming so insensitive, i kind of agree with you in some way, its that its not that easy now given james' condition.
just like i told you that james' couldnt do the tests that they had allready done earlier and they had messed up apparently, like cat scans, because he was in too much pain and couldnt even lie down or sit still, and so the doctors wrote in the charts and files that he refused treatment even though he wanted to do it badly, it was just physically impossible. just like that, we cant just throw him in a car and drive far away without him probably having a heart attack because of the pain. for some reason cars cause his pain to escalate alot, especially when he is getting in and out of them. we would have to buy some illegal narcotics like oxycotin in order to lower his pain enough so he could even get there. and if we go to another hospital, they will do a drug screen just like al the other hospitals have, and they will see he has used strong drugs that he isnt prescribed too. and im not sure if that in itself will cause the doctor to refuse treatment or if they will somehow work around it. its really a matter of getting lucky and getting a doctor who is understanding. but since out of all of the 12-16 or so doctors he has seen so far, none have been understanding, and most have been hostile, even when james had clean urine samples and hadnt used until two nights ago when i gave him the oxycotin, the odds of us getting a doctor willing to help seem very small. and that would make that trip a waste and more than likely it will aggrivate his pain and make him extremely stressed and unpleasant, because after all he has gone through, he has little patience, respect, or trust in any doctor or medical establishment. he gets enraged with what little energy he has left and that stresses his heart even more.

also, we would like to hire an attorney but first of all we cant afford one right now with all the medical bills that have piled up and not to mention all the new bills that we will get in the future. we also only have the energy to concentrate on his health right now. having to deal with a lawsuit at this time would just be too much. but i dont know if james has told you but we have legal connections in the form of very good attorneys through our family and in fact thats the only reason he is not in jail right now. he should be locked up but instead he is on 2 concurrent probations that will make the charges dissapear once he completes the probations correctly. so we can get an atorney but if we are going to have to drive all over the place to find him an understanding doctor, or have to decide whether or not to give him illegal pain meds in order for him to been even capable of being ina car, and deal with all the othe crap that is going on with him on a minute to minute basis, we just dont have the energy, or mental capacity right now to worry about a lawsuit. maybe after he gets better god willing.

i promised myself i wouldnt write a really long post like i have been doing because i noticed that my posts are much longer than most others. so im sorry. i will stop here.

james told me to tell all his friends here that he appreciates there concern and wants to come back as soon as possible. he said "i wish i could use bluelight on my goddamn phone!" last night during one of his screaming sessions.

thank you all.

and to the poster above me, subdude, im sry some of this doeesnt make sense to you. it doesnt make sense to us either. we are at a loss of word every time he is refused treatment or called a junky.
and his injuries were always soccer related. he broke both his ankles, sevral toes, sprained his ankles on several occasions which can be even more painfull than a fracture apparently, he also broke his left forearm, his left wrist twice, his right wrist 1 or 2 times, I cant remember, also he has broken every single one of his fingers atleast twice, if not more. and I know thats a hard one to believe but it is 100% true. he played goalie for a period of time and i guess he has weak bones, maybe because he never drank milk as a kid. also, he usually refused to stop playing even with a broken finger or toe or something. he would just tape it up and deal with it. he also has broken his clavicle if thats how its spelled, got kicked with metal cleats right in the shoulder area and snapped it. also, during his high school soccer career it is much more intense, im not sure if you know much about high school soccer but its basically like football without all the pads. they were allowed to tackle each other using there legs and lower torso as long as they touched the ball. believe it or not. he also had broken a shin or two, im not sure exactly which one or how many as i was away at college during his high school years. i know he has a couple more fractures but thats all i can remember. its odd cuz he never broke his spine or back but thats where his worst pain is. and sometimes his legs. but, he has had constant back and leg pain for the past 6 years or so from playing intense soccer for so long, its just a part of his life. if you play hard long enough you will end up with constant soreness, which is how he described it, but he never took even tylenol for it because he said he coud just deal with it and the pain wasnt bad or debilitating enough for him to go to a doctor. of course whenever he did go to a doctor he would tell them about it and im sure it had been checked out, but nothing was ever diagnosed as being a problem. he hast had a fracture in over 3 years now since he quit soccer to use drugs. in fact i think thats why he started taking pills, because of the constant back and leg pain. and it eventually led to heroin. he probably has told you guys this already.

also, i dont know about anyone who has 8+ pain automatically getting surgery but he told them the pain was like 1000 and if you read my previous posts, you would have known that they had made a diagnoses and planned for surgery the following morning but in the midde of the night the surgeon looked at the cat scan and disagreed and that diagnoses was thrown out. and then after that he was in too much pain to do any more tests without painkillers, which they refused him, so it ended up in him having to leave because it was impossible for him to do the tests and yet the doctors wouldnt budge about the pain meds.
 
I wish I had some useful suggestions but I don't, so I'll just offer my best wishes for a speedy diagnosis and effective treatment.
 
I read everything.

It sounds like whatever condition he has is being exacerbated by both opiate and benzo withdrawal. I can't even imagine how agonizing this combination of factors must be.

I also can't believe you're actually paying doctors out of pocket to treat you like this. I wouldn't have believed it if I hadn't read it here. Part of their job is to systematically treat patients who are on existing medications.

Best of luck to everyone involved, and I sincerely hope james pulls through this.
 
only good words in this thread please....

best of luck james.....
 
only good words in this thread please....

best of luck james.....

That's why I moved it here to The Dark Side, SK, everyone in The Dark Side are caring, loving people; there is simply a deep sense of community in The Dark Side. The moderators of The Dark Side are wonderful individuals and will make sure that only positive comments are posted here. If you have any concerns about responses posted in this thread, please use the Reported Post system by clicking this button (
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I hope James pulls through this too. My thoughts are with him and his family.
 
To James & his family i really hope and pray for you all, my thoughts are with you and i wish you all the luck in the world in finding a decent/understanding doctor to help james get well and get you all through this.
 
Sorry, there isn't going to be any hang-wringing in this post, but hopefully there will be some good words.

I'm not sure if his sister is reading this, but it was unclear what benzo, what dose, and for how long he had been taking them.

Many of the symptoms he describes can be attributed to abrupt cessation of benzos in some people who have used them for a period of time. The insomnia, the despondence, lack of appetite, nausea, etc.
Linked here is a very descriptive video outlining symptoms in one user who was taking .75mg xanax for a period of 1yr prior to cessation. You might be surprised as the severity of the symptoms. It might be worth checking out.

Also, as sad as it is, very few practicing physicians understand the complications of long-term benzo withdrawal. Sometimes the severe/acute symptoms can last for months.

Like I said, not knowing much about james' benzo use, or how experienced he is with withdrawal makes it difficult -- but maybe this will help. It's possible his sister is bringing him oxy, when what he really needs is a proper ashton taper.

Please understand that I'm not in any way minimizing or illegitimizing his medical condition. But by the look of it, the doctors are actively refusing to acknowledge a physiological problem. If it is the case that withdrawal is complicating the symptoms, it might be easier to make a diagnosis by eliminating brain chemical factors.
 
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I read the whole thing and it enrages me how James and his family have been treated.
It also completely breaks my heart.

James' sister, if you read this, I sincerely wish you and your family the best outcome with this horrific situation. I know it's easy for me to say this through a computer screen and on the opposite side of the planet, but please do not give up hope yet. I will be hoping every day that James gets a proper diagnosis and the correct treatment very soon.

Much love <3
 
Love and respect to james who has been treated incredibly poorly by his doctors. He has a mighty strong soul to have gone though this and still be going through this. I'm glad you were able to provide him with something to let him sleep. What a blessing you are in his life, and in our lives for keeping us informed.

I apologize for the bluelighter who made a stupid remark to you. I've had a few people make real nasty comments to me, too, but don't let that color your picture of bluelight because the haters here very few, fortunately. Everyone else knows and understands what we collectively share, and we like to help if we can.

I am sending you peace, and love. The world should never be this painful, and yet it sometimes is. I know there are many who will read this thread and not post, because they don't know what to say, so on their behalf as well, we do send you peace, and love. I hope that you and your family have the comfort of knowing that individuals from all over world are thinking of your brother, willing our collective strength to him, that he might find renewed strength in his broken body.

Sister I know you've shed many tears over this. Be comforted. Be calm and at peace, if only for a few minutes. You will need to stay strong and healthy, Sister, for James and your parents, and of course, for yourself. Take time to find something to make you smile for a minute. Let your heart feel the warmth of the dozens of hearts that are sending you bluelight love.
 
So sorry to hear all that ive read ,james helped me a couple of times on here when i first joined.
I was gonna ask where ya all lived and see if it was possible to get to canada for treetment,they would definatly treet him for pain,i am totaly sure of that.
Untill i read he cant leave the country.
This is so sad,being treeted like that is absolutley rediculous.
I would definatly sue.
best wishes,sounds like the only thin to do is to get stuff from the streets at least for now.
Hope to gawd he gets better and at least starts feeling better,wish i could realy do something.
If i had something that could help him i would send it your way.
Please dont give up......
 
I said this in the OD thread: if his condition is so miserably bad that he literally can't move and is constantly crying from pain, even going back to addiction would be a better alternative than staying in that piece of shit hospital.

I would normally never encourage people to score opiates or benzos off the street but in this case, I truly think it's worthwhile doing - even if just to give your brother some relief, some time to evaluate his options and to possibly move him to a different hospital. If you can't find benzos on the streets, go see a dr. and explain the situation but say the drugs are for YOU, because the situation is giving you panic attacks/anxiety.

Can't these nazi Dr's understand that it would be far, far, far easier for him to take a trip to 'drug dealing corner' and score some drugs than to sit in a hospital for days crying, shitting himself, and not being able to move, all the while spending $1000s more than it would cost him to get a nice healthy stash of whatever he wanted from a dealer? How can they rationalise his behaviour as drug seeking when the alternative is infiinitely easier? Would it be possible to have some form of conference with his Dr's where you point this fact out logically and without emotion? Alternatively, is there anyway you can go above the head of these Dr's to the hospital administrators? I'm guessing if they think there's a chance of malpractice, they'll set things right.

If I were you (James Brown's sister), I'd ask your brother where to score, go and get him some drugs and get him the fuck out of that deathtrap hospital.

Best wishes, thoughts are with you!
 
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Fuck :(
Heartbreaking is the word...

Again, I'm so sorry that I cannot offer any advice but only words of hope and best wishes.
I seriously, seriously... seriously hope you can find a hospital that won't act with prejudice and distain purely because of his past ♥ It's utterly sickening :(
 
call a malpractice lawyer and all this is evidence.
please. Please.
call a lawyer. Call several until you find a good one. Once you've started the malpractice suit, the doctors will change their tune very quickly.
Please get a lawyer.
None of us can help you as much a lawyer can. Giving money to the hospital is just a waste. Giving money to a lawyer will be an investment and you should get back ten fold at least on whatever the lawyer costs. They can't prove he was faking but you CAN prove he has a real medical condition.
I hope the doctors have to pay you for the rest of eternity. Get a lawyer.
 
this is james' sister again
thank you all for your kind words. i had given up on asking for advice here because of the insensitive, ignorant people posting to me and about james in the other forum thread thingy. i couldnt understand why he was a member of this website with so many assholes. but after reading your posts i have regained hope in getting some help.
i think that a couple of you are confused about his situation a little bit. he is no longer in the hospital. the last hospital he went to they treated him horribly, called him a junky looking to get high, and refused painkillers. if you read my long posts above you probably read all about that. and in the end because he couldnt do yet another cat scan because he couldnt move an inch, they told him he was faking it and thet he could move and they said he was refusing treatment, and they wrote that on there permanent medical records. after my parents begged and cried for them to help him the doctors said they would call a pain specialist to the hospital to see if he reccommended actually giving james pain medication so he could do the tests. james didnt want to wait, he was allready fed up with these assholes, but he waited mainly because he could barely move, and because my parents had hope this doctor would understand pain and help us out, and then make james able to do the tests again and figure all this out. we waited 9 hrs for him and when he showed up he turned out to be the most rude and ignorant doctor of them all. he refused to help james, calling him a drug addict junky and left the room with my family, including my dad, crying there eyes out, because that was basically there last hope at getting any tests done and answers given at this hospital.
after that james ripped his IV out and left the hospital. very slowly but in a fit of rage. and since he left against doctors orders, he isnt allowed to go back to that hospital(baptist) or any hospital affiliated with it, which is pretty much every hospital in the city. we had allready tried other hospitals and were refused treatment there as well.

there is also another confusion. yes, while he was in the hospital(s) he was taken off all of his medications, including his kolonopin. i think its like 1.5mg's. but he was only ever in a hospital for 2 days tops. and he got right back on his medications as soon as he left. so kolonopin withdrawal is not the source of any of these problems. because the first couple weeks of his horrible experience, he was still taking his kolonopin and yet his pain was still unbarable and thats when he wasnt able to eat or sleep and barely drink for a couple weeks and thats when he lost most of the 25 pounds he has lost. he tells us that the pain comes directly from his spine and feels like what he would imagine a pinched nerve or slipped disc would feel like, but even more painfull. the pain radiates from his spine down his legs and on the side of his butt, and sometimes it covers his entire back. that is what he tells us when he is barely lucid, which is as good as he gets now.

also, james had been on suboxone maintanence for about 6 months after he got clean and when he went to these doctors and hospitals and specialists, not one of them knew what suboxone was. he told us he had to explain to a doctor what it was and how it worked and how it blocks painkillers or something, and they didnt believe him and told him he was making it up to get high.

im sry, i cant post anymore, i have to go change james' clothes and try to get him to drink something. he has a probation officer appointment today and i have no clue how he is going to be able to do it. they dont allow anyone in the building except the person to see the probation officer. so he will be on his own, and from what he says, they have no sympathy in there.

wish him luck please and thank you all.

angela
 
Angela,
You are such an angel. Your name fits you perfect. PLEASE do NOT pay any attention to the evil assholes who post on Bluelight. I know you've had some complete idiots making comments. I know some of those idiots through the boards. There are VERY FEW of them. (I would name them and put them on Front Street for the rest of BL to observe, but I don't want to waste your time.) Screw them. They have made me feel like shit on many occasions but I stay on BL because it is worth it. The problem stems from the fact that the people who post shitty comments to us get some kind of thrill out of it, being as they are anonymous cowards, mentally defunct, the dregs of humanity. You can ignore those people. They represent the hate and the illness in their own souls and do not deserve your attention. Please give them none. If you can figure out how to use the "ignore" feature, you won't see their posts.

In spite of those few who only post here in order to inflict pain, there is a HUGE body of BL posters who help each other, love each other, support each other and we are the ones who matter. We are the ones who will be thinking of you and sending you love and support with our hearts and our souls and our minds.

I so wish I was closer to you. I'm an unemployed teacher in Calif.(one of thousands) and I have time. I have nothing BUT time right now. I would help you take care of James, gladly. Please let us know how the probation meeting went. There may be other resources for James that I haven't thought of that another Bler might come up with. I've been helped much over the last few years by talking to people on BL about drugs and the accompanying problems. BlueLight is a sanctuary for many of us who use substances. We know we can always talk to someone here. It's worldwide, someone is always awake somewhere in the world, to talk to, to ask questions of, or just to shoot the shit with. I am glad James found BL because now you have found BL and now you know that everywhere in the world, there are people who care about a man they have never met, and are sending him positive energy in the form of prayers, thoughts, wishes, and meditations.
All blessings for you and James today, that you will get though it. I hope there are BLers in your area that can offer their assistance in person. I certainly would if I lived near you.<3
 
I agree totaly with above .
I have had nuthing but good expeiences on here with help and helping others ,till one day i made a post and got some of those assholes posting on my thread also.
It was my first experience with them and it made me feel terrible,i wanted to quit coming on here because of it.
But then i thought of all the good ones that helped me compaired to the few assholes that posted bad remarks etc.
I made the decition to continue reading posts till i felt better again and started posting again.
Im not a god believer but if there is a god ,hope he strikes those types of people down because they sure dont need to be on this site whcich has so much to offer.
Again best wishes ,i realy hope he can get the help he needs.
Also was wondering,well this is canada speeking so i know my shrink could perscribe me pain meds im not sure about the states.
But it may be worthe a shot .
I dunno i just wish i could help somehow...
 
Angela,
You are such an angel. Your name fits you perfect. PLEASE do NOT pay any attention to the evil assholes who post on Bluelight. I know you've had some complete idiots making comments. I know some of those idiots through the boards. There are VERY FEW of them. (I would name them and put them on Front Street for the rest of BL to observe, but I don't want to waste your time.) Screw them. They have made me feel like shit on many occasions but I stay on BL because it is worth it. The problem stems from the fact that the people who post shitty comments to us get some kind of thrill out of it, being as they are anonymous cowards, mentally defunct, the dregs of humanity. You can ignore those people. They represent the hate and the illness in their own souls and do not deserve your attention. Please give them none. If you can figure out how to use the "ignore" feature, you won't see their posts.

In spite of those few who only post here in order to inflict pain, there is a HUGE body of BL posters who help each other, love each other, support each other and we are the ones who matter. We are the ones who will be thinking of you and sending you love and support with our hearts and our souls and our minds.

I so wish I was closer to you. I'm an unemployed teacher in Calif.(one of thousands) and I have time. I have nothing BUT time right now. I would help you take care of James, gladly. Please let us know how the probation meeting went. There may be other resources for James that I haven't thought of that another Bler might come up with. I've been helped much over the last few years by talking to people on BL about drugs and the accompanying problems. BlueLight is a sanctuary for many of us who use substances. We know we can always talk to someone here. It's worldwide, someone is always awake somewhere in the world, to talk to, to ask questions of, or just to shoot the shit with. I am glad James found BL because now you have found BL and now you know that everywhere in the world, there are people who care about a man they have never met, and are sending him positive energy in the form of prayers, thoughts, wishes, and meditations.
All blessings for you and James today, that you will get though it. I hope there are BLers in your area that can offer their assistance in person. I certainly would if I lived near you.<3


:-( Best of luck to him. I know how it feels to literally not be able to move. It's not fun. I totally understand the not being able to do a CAT scan, or even X-rays because you can't get into position. I've been there and it's not fun. Luckily, I still younger when it happened so people felt sorry for me. But, at that same hospital years later, I had to wait THIRTEEN hours to even be seen. I begged and begged that I was in so much pain and it's getting worse. I really think they just thought I was there for drugs. My mom told me to call the on-call orthopedic, so I did. I explained the situation to him and gave him information and my doctor. He actually personally saw me after this. Perhaps you should find a hospital and research their doctors to find one that would be willing to help. He should not give up hope, but you guys should try contacting hospitals to see if you can find a doctor who is willing to take a look.
 
I hate to be a downer, but has he been checked for kidney stones or cancer (esp. leukemia)? Both can cause incredible pain along with his other symptoms.
 
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I hate to be a downer, but has he been checked for kidney stones or cancer? Both can cause incredible pain along with his other symptoms.

My cat experienced kidney failure and almost died as a result, she had 5% odds of survival and beat it. We got her to the vet just in time too.

Come to think of it, that would explain inability to eat, wasting away, dehydration, etc. I have never seen a cat look so depressed in all my life though. :(
 
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