I have just read that terribly sad thread about Tyler who it is believed passed away from Serotonin Syndrome. I had never even heard of this before let alone had it mentioned to me by one of my many doctors. I'll just reverse a bit to start if it's ok;
in July I saw my pain consultant, who was in right state, someone's notes had been lost and nurses were running everywhere. He seemed really flustered and in a rush.
i explained my pain still wasn't under control and it was (is) ruining my and my families lives.
i was taking; Lyrica 600mg a day, Morphine Sulphate 60mg a day, Oramorph, Ibuprofen Up to 1200mg a day, Sertraline 100mg a day and Omeprazole 20mg a day.
He looked at my notes and said "what shall we do with you?". I said I'd heard there were time release patches that can be more effective?". He said "yes, let's try that". Next thing I know is I have a prescription for 25mcg Fentanyl patch once every three days and he was looking to shake my hand.
i got it made out in the hospital pharmacy and she said "you've had this before right?" And was shocked when I said no. (I later got a missed call from pharmacy to try and talk to me about using then but the chemist was closed for the weekend when u rang back.. Hospital one..)
So on went the patch and boom... Instant weird ill feeling followed by hot sweats, cold sweats, temperatures, diarrhoea, heavy sweating, shivering, strong frontal lobe throbbing, headache and smell and taste gone.. Just strong chemical smell and taste. i went to bed on Friday and came downstairs on Monday.
i stupidly thought it was just settling in probs with moving from morphine to fentanyl, so I put up with two weeks of hell to allow for three patches and the week it takes me to get an appointment with my GP.
My GP says I have had a bad reaction and I should go back to morphine so I taper back to that with a Oramorph and WOW.. I have never appreciated being in pain and constipated as much as then. All my 'new' symptoms vanished.
My question did I have a bad reaction or is;
600mg Lyrica Pregabalin
100mg Zoloft Sertraline
25mcg fentanyl patch
and the other stuff ibuprofen and Omeprazole.
something that could have cause this Serotonin Syndrome?
I'm particularly interested because even though all my acute symptoms went away overnight after the meds were changed back, I have found less acute versions coming back recently. The frontal lobe thing and smell taste has been with me again today and my toilets have changed since, I don't have diarrhoea but I feel I want to go when I don't.
Am I being paranoid or?
My thoughts and prayers for Tyler's friends and family.
in July I saw my pain consultant, who was in right state, someone's notes had been lost and nurses were running everywhere. He seemed really flustered and in a rush.
i explained my pain still wasn't under control and it was (is) ruining my and my families lives.
i was taking; Lyrica 600mg a day, Morphine Sulphate 60mg a day, Oramorph, Ibuprofen Up to 1200mg a day, Sertraline 100mg a day and Omeprazole 20mg a day.
He looked at my notes and said "what shall we do with you?". I said I'd heard there were time release patches that can be more effective?". He said "yes, let's try that". Next thing I know is I have a prescription for 25mcg Fentanyl patch once every three days and he was looking to shake my hand.
i got it made out in the hospital pharmacy and she said "you've had this before right?" And was shocked when I said no. (I later got a missed call from pharmacy to try and talk to me about using then but the chemist was closed for the weekend when u rang back.. Hospital one..)
So on went the patch and boom... Instant weird ill feeling followed by hot sweats, cold sweats, temperatures, diarrhoea, heavy sweating, shivering, strong frontal lobe throbbing, headache and smell and taste gone.. Just strong chemical smell and taste. i went to bed on Friday and came downstairs on Monday.
i stupidly thought it was just settling in probs with moving from morphine to fentanyl, so I put up with two weeks of hell to allow for three patches and the week it takes me to get an appointment with my GP.
My GP says I have had a bad reaction and I should go back to morphine so I taper back to that with a Oramorph and WOW.. I have never appreciated being in pain and constipated as much as then. All my 'new' symptoms vanished.
My question did I have a bad reaction or is;
600mg Lyrica Pregabalin
100mg Zoloft Sertraline
25mcg fentanyl patch
and the other stuff ibuprofen and Omeprazole.
something that could have cause this Serotonin Syndrome?
I'm particularly interested because even though all my acute symptoms went away overnight after the meds were changed back, I have found less acute versions coming back recently. The frontal lobe thing and smell taste has been with me again today and my toilets have changed since, I don't have diarrhoea but I feel I want to go when I don't.
Am I being paranoid or?
My thoughts and prayers for Tyler's friends and family.