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Mental Health Coming off Invega/Xeplion (paliperidone) injections v. 9

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life imprisonment or limb amputation is better than getting injected with Invega or haldol anyone agree?
 
I took invega back in June 10 234 mg and June 18 157 mg and gave out blood 2 times in June after the injection and two times in September so it should be less in my system. And I noticed today my head jerks/twitch motion goes back when I control my restlessness which I didn't had but now today, did any of you had that when you withdrew invega for a while?
 
Invegarecovery said:
I took invega back in June 10 234 mg and June 18 157 mg and gave out blood 2 times in June after the injection and two times in September so it should be less in my system. And I noticed today my head jerks/twitch motion goes back when I control my restlessness which I didn't had but now today, did any of you had that when you withdrew invega for a while?
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I always had a head tic from taking Ritalin as a child and it got worse after invega, especially after I quit smoking weed, but now it's back to how it was before invega.
 
You can see the northern lights from the lower peninsula of Michigan right now. Heads up for Canadians and folks in Montana, Minnesota, Wisconsin, Idaho, the Dakotas, New York, and anything else at that latitude. :)
 
okthen said:
Thanks for coming back and checking in! Just wondering, do you consider that you've healed because you’re doing all the things you used to do, or is it more of a being able to feel that you're better
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Invega stopped my period for 16 months. I had acne all over my back and shoulders, couldn’t cry, could hardly sleep, couldn’t enjoy music, rarely laugh or felt laughter. I constantly felt disoriented and out of it. I felt depressed 24/7. I had no motivation to do anything, couldn’t feel joy. I had no desire to shower, or even do my hair. I had no thoughts. I felt like a zombie. I was stiff inside of my body, couldn’t feel comfortable or even relax. I was also suicidal for the first time in my life. I have completely healed in every way. I am the same as I was prior to be medicated. I am doing the things that I used to do, also my body has recovered. I sleep eight hours again, and can also take naps. I don’t know what it is about that wicked mess, but I couldn’t sleep or take naps hardy, that lasted for about 17 to 18 months, after receiving two injections. I refused to take sleep medication. I always had faith that my brain would heal. I am back sleeping and napping. I listen to music and feel happy again, my skin finally healed. I can feel my full rage of emotions again. I am no longer depressed. I am no longer a shell of myself. I am back being my goofy self. I laugh at everything. I stopped laughing and listening to music after that meditation, that was the biggest red flag to me. I have always been super goofy and have a first love for music. I listen to it everyday, sometimes throughout my whole day. I had no desire to do anything after that injection. I am back living my life, doing the things that I once loved. I rarely think about what happened to me. I feel exactly the same as before.
 
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Invegarecovery said:
I took invega back in June 10 234 mg and June 18 157 mg and gave out blood 2 times in June after the injection and two times in September so it should be less in my system. And I noticed today my head jerks/twitch motion goes back when I control my restlessness which I didn't had but now today, did any of you had that when you withdrew invega for a while?
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When on respiradone pills I'd have this head thing were it would constantly shoot up to the sky every few seconds.
 
Kiaf85 said:
Invega stopped my period for 16 months. I had acne all over my back and shoulders, couldn’t cry, could hardly sleep, couldn’t enjoy music, rarely laugh or felt laughter. I constantly felt disoriented and out of it. I felt depressed 24/7. I had no motivation to do anything, couldn’t feel joy. I had no desire to shower, or even do my hair. I had no thoughts. I felt like a zombie. I was stiff inside of my body, couldn’t feel comfortable or even relax. I was also suicidal for the first time in my life. I have completely healed in every way. I am the same as I was prior to be medicated. I am doing the things that I used to do, also my body has recovered. I sleep eight hours again, and can also take naps. I don’t know what it is about that wicked mess, but I couldn’t sleep or take naps hardy, that lasted for about 17 to 18 months, after receiving two injections. I refused to take sleep medication. I always had faith that my brain would heal. I am back sleeping and napping. I listen to music and feel happy again, my skin finally healed. I can feel my full rage of emotions again. I am no longer depressed. I am no longer a shell of myself. I am back being my goofy self. I laugh at everything. I stopped laughing and listening to music after that meditation, that was the biggest red flag to me. I have always been super goofy and have a first love for music. I listen to it everyday, sometimes throughout my whole day. I had no desire to do anything after that injection. I am back living my life, doing the things that I once loved. I rarely think about what happened to me. I feel exactly the same as before.
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I pretty much have everything you mention, except the acne and period. When did you notice first significant improvements? You're also one of the first to mention the napping thing, I too can not nap anymore. Just lay there. What did you tell people about not doing anything? People just keep telling me medication helps people and to push myself...
 
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Hey guys just another update. (Injected 2023 July 14)
So things are okay.
So I mentioned being able to feel euphoria again at the 10 month mark and yah around ten months off I got two hospitalizations and lro blah blah blah.

So after being in two psych wads, I got out of the second psych ward in June 2024. I am numb music is dull and I cannot get high or drunk still. Not as bad as the first 6 months off invega tho. I emotionally am far from myself. I am wondering if this is invega or me being actually mentally ill. I am honestly not sure if I am mentally ill.

Physically my life is good. Started one class at college(I am 20). Moved out of my dads house in August. Got employee of the month. In the best cardio shape in life doing hard hikes fast I ran 14 miles just three days ago. One year ago (3 months after invega injections)I was unable to even work. I coukd only run for like ten minutes at a time. (Due to extreme extreme anhedonia)

So that anhedonia has improved, but I am still anhedonic. But that is life. I have no other option but to work my ass off becasue just because things suck does not mean that things will get better.
But physically 100% recovered.
 
invegafuckedmeupmeow said:
Hey guys just another update. (Injected 2023 July 14)
So things are okay.
So I mentioned being able to feel euphoria again at the 10 month mark and yah around ten months off I got two hospitalizations and lro blah blah blah.

So after being in two psych wads, I got out of the second psych ward in June 2024. I am numb music is dull and I cannot get high or drunk still. Not as bad as the first 6 months off invega tho. I emotionally am far from myself. I am wondering if this is invega or me being actually mentally ill. I am honestly not sure if I am mentally ill.

Physically my life is good. Started one class at college(I am 20). Moved out of my dads house in August. Got employee of the month. In the best cardio shape in life doing hard hikes fast I ran 14 miles just three days ago. One year ago (3 months after invega injections)I was unable to even work. I coukd only run for like ten minutes at a time. (Due to extreme extreme anhedonia)

So that anhedonia has improved, but I am still anhedonic. But that is life. I have no other option but to work my ass off becasue just because things suck does not mean that things will get better.
But physically 100% recovered.
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Did you get a different long acting injectable?
 
TonyTonyChopper said:
I wouldn't use xeplionhell as an example for recovery. His story is shady . I was reading V4 and saw him comment about huge recovery milestones month after month but he comes here 4 years later and says he recovered 40-50% and still suffers from anhedonia.
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Incorrect, feel free to quote. And I said I'm ~65% 3.5 years off, right now I'm 65-70%. It's still not 4 years off.

I used to post a lot as it was the only thing I could do except walking around (I would walk, up to a point where I could not stand) and play a few songs a day, I forced myself to run and train eventually, other reason was to keep track of progress even if it's very minor and often just temporal (like with insomnia and negative emotions), to give myself hope. First year off was the hardest part, ~70% of the suffering was contained in that year.

If you are 1% and you move to 10%, it is ~x10 difference, the was most noticeable in terms of passage of time, this is what gave me strength to go through all this.
 
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okthen said:
What's everyone's thoughts on these "windows"? Have you all experienced them? How long was it till your first one? I seen some time like @t_xeplionhell mention his progress has always been gradual, that mean not experiencing the "windows"?
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Windows are temporal improvement of side-effects, for example with anhedonia, insomnia, negative/positive emotions, and usually last up to an hour. They happen suddenly, and the amount of difference they make depends on your side-effect baseline (the amount you have recovered).
 
Goosebumps with no reward response, when it is just a tingle, by itself is not any indicator of recovery.
 
t_xeplionhell said:
Incorrect, feel free to quote. And I said I'm ~65% 3.5 years off, right now I'm 65-70%. It's still not 4 years off.

I used to post a lot as it was the only thing I could do except walking around (I would walk, up to a point where I could not stand) and play a few songs a day, I forced myself to run and train eventually, other reason was to keep track of progress even if it's very minor and often just temporal (like with insomnia and negative emotions), to give myself hope. First year off was the hardest part, ~70% of the suffering was contained in that year.

If you are 1% and you move to 10%, it is ~x10 difference, the was most noticeable in terms of passage of time, this is what gave me strength to go through all this.
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I believe you. I know what I was like in the three years prior to this. I know what I knew, I know what I used to think about. I am 12 months off and this has done something serious. It has shrunk my brain, which is a cause of Alzheimers, and my thoughts and capabilities are not the same. Can anyone see how serious this is?

Drug use does not mean you have a mental illness. Clear the drugs from a persons system and usually they are fine. They do not need a life ruining shot, when most people (so I’ve read) are getting it for weed abuse.

Weed breaks the programming of this shit world. You ever been stoned and watching tv and you can SEE the acting, whereas when your straight you can’t?

All I know is weed has been given to us by God himself for a reason, for thousands and millions of years, Invega was invented 20 years ago. Something is seriously wrong here. Seriously. Seriously.

Psychiatrists are Agent Smiths, put in place to protect the Matrix. You say ONE thing out of place and boom Agent Smith pops up.
 
maryjaneforever said:
I believe you. I know what I was like in the three years prior to this. I know what I knew, I know what I used to think about. I am 12 months off and this has done something serious. It has shrunk my brain, which is a cause of Alzheimers, and my thoughts and capabilities are not the same. Can anyone see how serious this is?

Drug use does not mean you have a mental illness. Clear the drugs from a persons system and usually they are fine. They do not need a life ruining shot, when most people (so I’ve read) are getting it for weed abuse.

Weed breaks the programming of this shit world. You ever been stoned and watching tv and you can SEE the acting, whereas when your straight you can’t?

All I know is weed has been given to us by God himself for a reason, for thousands and millions of years, Invega was invented 20 years ago. Something is seriously wrong here. Seriously. Seriously.

Psychiatrists are Agent Smiths, put in place to protect the Matrix. You say ONE thing out of place and boom Agent Smith pops up.
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Yeah, people get stuck on these drugs when they try to go off and they get withdrawal psychosis and doctors will tell them, "See?? You have schizophrenia!!!"

They can tell if your brain is small for your age with a scan. Have you gotten a scan? You should get one if you're stuck like this. Some people recover between one and a half years and two years and I really hope you're one of them.

I'm worried about my emotions and my memory. I think my cognition is the same as before now, but that is hard to gauge by yourself. I don't know for certain, but I am having an easier time conversing with people and following video essays and podcasts. I problem solve in video games well. My memory hasn't stopped improving though.

I think antipsychotics can be bad for people without schizophrenia, but if it's any comfort, a lot of the damage comes with long term use. People have made full recoveries after one or two years on invega sustenna as well. Definitely get a scan to see what's up though, MRI and PET will show you relevant information.
 
I did a CT scan because it feels like I have cement in the centre of my brain and they said it looked normal.

I have permanent anxiety 24/7 from this shit. It fucks your fight or flight mode which is primitively built into humans for a reason. I’m constantly stuck in flight mode. I’ve lost the fight mode because I no longer have the ability to get angry. Anger is a natural response to threats, it inspires powerful, feelings and behaviors, which allow us to fight and to defend ourselves when we are attacked.

Anyone seen the movie Glass? Where at the end she says before he dies -
Dr. Ellie Staple: [to Mr. Glass] They got it wrong in the comics. They talk about secret evil groups trying to stop the heroes. I don't think we are particularly evil and we don't choose sides. We try to stop both of you. If there is one of you, the opposite of you appears. It escalates. We step in. There just can't be gods amongst us. It's not fair. It has worked just fine for 10,000 years our way. Take consolation in the fact that you were right about your theory. Be at peace.

What if “Mania” is just superhuman ability.

But to inject someone against their will, take away all their joy, ability to look after themselves, to do nothing else but lay there all day, to not even be able to watch tv, to music not even sounding good, no hunger is so wrong it’s beyond even words.

I smoked weed a couple of times since being shot, and I could feel the neurons travelling around my brain. Never ever in my life have I ever felt that from weed. I could feel it travel to two spots behind my forehead and sit there. It’s so hard to describe. But it also felt like a massage on my brain. Invega has taken absolutely everything from your brain. Everything.
 
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