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Mental Health Coming off Invega/Xeplion (paliperidone) injections v 8.0

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AlsoTapered said:
In the UK we caught them - so now a close eye is kept on nursing homes prescribing them. Agitated people with dementia can be hard work but neuroleptics are contraindicated in people with dementia,
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Are UK doctors just as ignorant of antipsychotic withdrawal as they are in North America
 
Mucky said:
Over 8 months since my last injection , no improvements whatsoever , still suffer from severe anhedonia , no emotions , severe alogia , blank mind , can’t feel substances , no libido , no interest in anything at all (just feel dead inside ) insomnia , life is a living hell … don’t think im going to recover tbh , won’t be living a lifetime of this torture , my only way out looks like suicide at this point.
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I hope you get better dude, im 8 months off and 80% recovered.
 
InvegaAnon said:
Lion's mane made my genitals go numb again. I really wish someone gave me a link to stuff about lion's mane side effects. I would have never taken it if I had known it was a possibility. I really, really hope it gets better. There's some signs that it is getting better already, but I hate that I've been set back like this. It's hard to live with the uncertainty. I think invega took my curiosity away from me, so I didn't do much research, and I thought people were just being silly about ~oohh brain mushrooms~. I should have listened to the people who said it was a bad idea, but they didn't directly tell me why.

It suddenly made my anxiety and insomnia worse and I had no idea it was the lion's mane so I just kept taking it!

I had just started to feel pleasure again before I suddenly went numb. I can still have weak orgasms and I have some sensation. Still sensitive to pain.

Feel free to laugh at me. Do not try lion's mane if you have an autoimmune disease or recent bad reaction to an SSRI. Also do not take antihistamines after. I will serve as a warning, I guess.

I lost my emotions again too. I was having a smooth recovery. I'm sorry to anyone I gave hope to and I'm sorry to myself the most.
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It is very likely not from Lion's Mane, it's not known side effect.

Invega makes you lose sensitivity much quicker, many members have complained on it and it's a known side effect.
If you wait 7-14 days it should be regained, but recovery time of the sensitivity will depend on how much you have recovered from invega till now.

At beginning of my invega recovery I was restraining for 4 months streaks. When I broke my streak, I had almost zero sensitivity. While at around 1.5 year off, I had good amount of sensitivity back but once I use it, it would go away within minutes and would take 14+ days to return fully.

While I consider this to currently be irrelevant detail since I still suffer from other side effects which are much much worse.
 
Out of all the antipsychotics I think it takes the longest to get back in shape after discontinuation of invega. It lasts awefully long in our bodies. It even worse than zyprexa the way I see it. Anyone agree or disagree?

Bojana said she got her figure back at month 5 which is two months after the first half life of a trinza shot. Im two months away from this mark and Im praying I have similar results.
 
t_xeplionhell said:
It is very likely not from Lion's Mane, it's not known side effect.

Invega makes you lose sensitivity much quicker, many members have complained on it and it's a known side effect.
If you wait 7-14 days it should be regained, but recovery time of the sensitivity will depend on how much you have recovered from invega till now.

At beginning of my invega recovery I was restraining for 4 months streaks. When I broke my streak, I had almost zero sensitivity. While at around 1.5 year off, I had good amount of sensitivity back but once I use it, it would go away within minutes and would take 14+ days to return fully.

While I consider this to currently be irrelevant detail since I still suffer from other side effects which are much much worse.
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I have really low progesterone and all the symptoms I have align with that. Low progesterone with estrogen dominance causes genital numbness in AFAB people, it usually happens during menopause. Lion's mane can mess with your hormones if you have anemia and I'm anemic. I'm confident it's this. I'm having steady improvement already and I'm going to treat the hormonal imbalance.
 
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Can anyone tell me why they are being given depot shots? It's just a risperidone metabolite and that comes in tablet form. Is their some clinical advantage for paliperidone?

I note that they sell the racemate and so maybe the two enantiomers have different actions? But I see no evidence of this.
 
AlsoTapered said:
Can anyone tell me why they are being given depot shots? It's just a risperidone metabolite and that comes in tablet form. Is their some clinical advantage for paliperidone?

I note that they sell the racemate and so maybe the two enantiomers have different actions? But I see no evidence of this.
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I got labelled "non-compliant" in my notes because I had to stop taking risperidone 2 years ago (it was making me go blind). I was taking everything they were giving me at the ward without a fuss, so I don't know why they felt the invega was necessary but that's the most likely reason.
 
Did anyone recover their weed high and when? I’m 3 months off and still feel nothing.
 
bowandsparrow said:
I got labelled "non-compliant" in my notes because I had to stop taking risperidone 2 years ago (it was making me go blind). I was taking everything they were giving me at the ward without a fuss, so I don't know why they felt the invega was necessary but that's the most likely reason.
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They really DO like depots don't they? I have a friend who suffers from schizophrenia but he only takes the tablets when he needs them. It's worked for him for 38 years. The UK actually changed the law so a patient has the right to refuse any medication. I suggest that's specifically because depot neuroleptics were being forced on people. Certainly they were being misused in old peoples homes to quieten people with dementia. The BNF actually states that neuroleptics should NOT be used on sufferers of dementia.

A more general message for everyone. If you have got so ill that you required neuroleptics, ALL drugs are out. Cannabis is one of the most hazardous things to use if you have underlying schizophrenia and/or bipolar disorder.


I hope the above booklet is of value to some people. Opioids and cocaine are covered in this one:


I know both of the authors very well and they are trying to give you the best advice in an easy to read format and their are some jokes thrown in. I do appreciate that for many people, these drugs are taken for self-medication rather than to catch a buzz but they really aren't a long-term solution and may make your symptoms worse,

If a medication causes serious side-effects, their are always others.

Look after yourselves.
 
AlsoTapered said:
They really DO like depots don't they? I have a friend who suffers from schizophrenia but he only takes the tablets when he needs them. It's worked for him for 38 years. The UK actually changed the law so a patient has the right to refuse any medication. I suggest that's specifically because depot neuroleptics were being forced on people. Certainly they were being misused in old peoples homes to quieten people with dementia. The BNF actually states that neuroleptics should NOT be used on sufferers of dementia.

A more general message for everyone. If you have got so ill that you required neuroleptics, ALL drugs are out. Cannabis is one of the most hazardous things to use if you have underlying schizophrenia and/or bipolar disorder.
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That's my go-to plan if I have future episodes. My current psychiatrist doesn't think I'm on the schizoid spectrum but I have had two episodes with minor hallucinations and severe paranoia and persecutory delusions. The fortunate thing is there's been a recognizable build up to them, so if I feel another one coming on I'm confident that I can reach out and get on a reasonable dose of seroquel until it passes.

And yes, you're absolutely right about cannabis. I was a heavy user around the time of my first episode and my second episode seems to prove that I can't handle it. Not even 5mg doses of Indica. I miss it, but I'd rather give up temporary euphoria than end up in a lifetime of anhedonia.
 
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