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  • TDS Moderators: AlphaMethylPhenyl | paranoid android

Coming off Invega/Xeplion (paliperidone) injections v 12

paranoid android said:
Ask for ipatropium nasal spray aka atrovent
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i don’t know if this one will work they decline it even last year when i asked for it and this doctor said it’s more for chest etc i don’t get it - i just feel so upset my precious nose is damaged again, the audacity they had to assault me
 
Those psychiatrist are cruel, they literally can push someone happy to suicide, they create biggest horror of our lives treating us as lab rat on a wish of demonic unloving family in this body case. I want justice in court and that old pricks dont want it cause = me speaking about the abuse ending in misdisgnosis
 
+1 @silenthill to doing keto, that has helped me a lot with recovery. Sleepiness and dreaming has come back for me. Motivation and drive has returned. I quit nicotine lol so no word on that. Anyone heard from @Trueart2 ? I know he was feeling recovered and thinking of leaving the forum, wondering how things are going for him with work and Invega symptoms.

I'm at 8 months now. Honestly, I'm feeling mostly recovered. I've started Vyvanse and that has been helping me with the anhedonia and focus issues I was having. I also have ADHD so my focus baseline isn't great, so it's hard to say how much of that was the Invega versus how much of that is the ADHD.

Unfortunately, I learned to shut up about my qualms, concerns, and Invega-related struggles to my psychiatrist. He treats it as a sign of psychosis, and I'm on a CTO so I can't risk that right now. It's a sad, broken system where you cannot speak up about the effects of the drugs you're being given without being accused of being sick or delusional. I will never trust psychiatrists again, frankly. This has shattered my faith in the medical system. I was forced onto a drug that left me in hell for months- they could have put me on Abilify, but they didn't. They didn't ask me any questions. They didn't give me any information. My heart goes out to everyone affected by this right now.
 
dopamineClippedAngel said:
+1 @silenthill to doing keto, that has helped me a lot with recovery. Sleepiness and dreaming has come back for me. Motivation and drive has returned. I quit nicotine lol so no word on that. Anyone heard from @Trueart2 ? I know he was feeling recovered and thinking of leaving the forum, wondering how things are going for him with work and Invega symptoms.

I'm at 8 months now. Honestly, I'm feeling mostly recovered. I've started Vyvanse and that has been helping me with the anhedonia and focus issues I was having. I also have ADHD so my focus baseline isn't great, so it's hard to say how much of that was the Invega versus how much of that is the ADHD.

Unfortunately, I learned to shut up about my qualms, concerns, and Invega-related struggles to my psychiatrist. He treats it as a sign of psychosis, and I'm on a CTO so I can't risk that right now. It's a sad, broken system where you cannot speak up about the effects of the drugs you're being given without being accused of being sick or delusional. I will never trust psychiatrists again, frankly. This has shattered my faith in the medical system. I was forced onto a drug that left me in hell for months- they could have put me on Abilify, but they didn't. They didn't ask me any questions. They didn't give me any information. My heart goes out to everyone affected by this right now.
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I don't understand what people on blueline are doing that everyone heals in 8 months here. In Facebook and reddit it's more common to people to heal in 16-18 months. Im 11.5 months and I'm just starting to heal and mostly bedridden still.
 
lostsoulowen said:
I don't understand what people on blueline are doing that everyone heals in 8 months here. In Facebook and reddit it's more common to people to heal in 16-18 months. Im 11.5 months and I'm just starting to heal and mostly bedridden still.
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I completely agree. I also read that people need more than a year (and sometimes up to three years) to fully recover. Everything is so individual, but those are the recovery timelines that most often appear
 
lostsoulowen said:
I don't understand what people on blueline are doing that everyone heals in 8 months here. In Facebook and reddit it's more common to people to heal in 16-18 months. Im 11.5 months and I'm just starting to heal and mostly bedridden still.
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InnerReturn said:
I completely agree. I also read that people need more than a year (and sometimes up to three years) to fully recover. Everything is so individual, but those are the recovery timelines that most often appear
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I wouldn't say I'm fully recovered, I'm not back to baseline, but I am able to function again. I don't think your timeline is unusual at all, based on recovery stories, and I don't expect to be fully at baseline until 1-2 years out. I still notice some differences with how my body registers substances, so I have a ways to go. Sorry to hear things are still so difficult, but I'm glad you're starting to heal. I was hoping to have a recovery like @demileigh and it seems I'm on track for that. It's worth noting I've also been on a WL journey which also is supposed to reduce amounts of Invega in the body. Things started significantly improving when I started supplements and the keto diet. Although, I admit, there's been lots of cheating for me on that diet... I did reduce my carbs overall.
 
dopamineClippedAngel said:
+1 @silenthill to doing keto, that has helped me a lot with recovery. Sleepiness and dreaming has come back for me. Motivation and drive has returned. I quit nicotine lol so no word on that. Anyone heard from @Trueart2 ? I know he was feeling recovered and thinking of leaving the forum, wondering how things are going for him with work and Invega symptoms.

I'm at 8 months now. Honestly, I'm feeling mostly recovered. I've started Vyvanse and that has been helping me with the anhedonia and focus issues I was having. I also have ADHD so my focus baseline isn't great, so it's hard to say how much of that was the Invega versus how much of that is the ADHD.

Unfortunately, I learned to shut up about my qualms, concerns, and Invega-related struggles to my psychiatrist. He treats it as a sign of psychosis, and I'm on a CTO so I can't risk that right now. It's a sad, broken system where you cannot speak up about the effects of the drugs you're being given without being accused of being sick or delusional. I will never trust psychiatrists again, frankly. This has shattered my faith in the medical system. I was forced onto a drug that left me in hell for months- they could have put me on Abilify, but they didn't. They didn't ask me any questions. They didn't give me any information. My heart goes out to everyone affected by this right now.
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How about coffee, can you feel that? It's still not hitting for me at all, unlike nicotine.

Same for orgasm, does that feel the same as before or not quite?
 
Invegatorment said:
How about coffee, can you feel that? It's still not hitting for me at all, unlike nicotine.

Same for orgasm, does that feel the same as before or not quite?
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Orgasm is getting there but not all the way there. Grateful for the progress I have had, had really bad and scary genital numbness initially that I thought would never go away.

Coffee I can somewhat feel, but it's still not like how it was pre-Invega. This is part of how I know I'm not back at baseline yet.
 
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